SSDI wants to talk to me

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bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 8/13/2009 5:37 PM (GMT -7)   
I got a letter from SSDI requesting that I call them.  They need some additional info about my condition.  They also want to know what I am still able to do and how my condition prevents me from working.  I hope this is a good thing at least I didn't get a denial right off the bat.  I do have numerous films (the most recent MRI early 2009) and doctor (orthopedic, rheumy, & PM) documentation as far back as 2002 regarding my back and neck issues.  Wish me luck and I'll let you know how it goes tomorrow. 
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc C-2/3


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 8/13/2009 6:19 PM (GMT -7)   
Jag
I do wish you luck, I know what a hassle it is to get through this process. I think they really do try to get you to give up on the process! Just stick with it, and give them all the info that you can!
 
Good Luck to You!
 
white Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 8/13/2009 6:59 PM (GMT -7)   
You just recently applied right? A phone interview is pretty standard. They will also go over with you what you need to do next to expedite your application.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 8/14/2009 1:23 AM (GMT -7)   
Jim, I know you filed recently too. I think we are kinda in the same boat. Our standard of living has changed dramatically without me working but my husband is behind me 100% on this. I get really tired of taking pills to make me feel better, stuff to make my bowels move, not being able to do the things I enjoyed and paying with pain & stiffness when I do. I've always been active and this is all starting to get to me. I have a appt with my PM today and I think it is getting about time to talk to someone about anxiety and possible depression. Part of the problem is being home all day with not working then feeling like I'm not contributing enough.

Thanks for the words of encouragement White Beard and Jim did you have your phone interview yet?
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/14/2009 9:23 AM (GMT -7)   
Jag,
Wow - your statement about being home all day hit "home" to me, too. It is all such a huge adjustment - on so many levels. I hope your SSD goes smoothly, but I know that's easier said than done. I'll be on that road soon, myself.

Just an idea - I happened to call my Senator's office earlier this week (at the federal level, not state, because SSD is a federal program) about a different matter. One of my Senator's is Arlen Spector, whom you may have seen on the news lately being accosted at town hall meetings. I was going to go to some of those meetings and after seeing them on tv, thought I'm not going to put myself through that so I would telephone in my thoughts. In the process I started talking to the woman about my situation with no insurance, starting the SSD process, and I ended up nearly in tears (very unintentionally) and she was so nice. Gave me her name and said they can't help with the initial filing, but once I've filed to let her know. They can flag it in some way so that others know it's being watched, and if I'm denied the first time, then they can help. So it might be worth a call to your Senators and Congressperson at the federal level to get them on board.

Good luck!

PaLady

tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 8/14/2009 11:02 AM (GMT -7)   
Hello PaLady and Jag!

I am jumping in head first here at CP now...I COMPLETELY understand the sentiments about being home due to pain and then feeling isolated away from work/career (people in general) and THEN additional depression and guilt since I am not financially contributing to our household, to add to that, I have a premature baby at home...

I'll stop there and just say that I really appreciate knowing that I am not alone in my feelings.

(((hugs)))

sorry to hijack the initial question of the thread--I unfortunately don't have any info regarding the SSDI call. Sorry--but GOOD LUCK!!!
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bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 8/14/2009 11:36 AM (GMT -7)   
Well, I had my phone interview and I guess it went well. He just wanted to know how long I can walk and I was honest that walking is my least painful thing to do. I did tell him though that if I take a walk and my back & hips start hurting I stop, sit down awhile, then continue on. I approximated that I can walk for 30 min. without much pain. Sitting was another thing. I told him I couldn't sit for more than about 10 min. before I am wanting to get up and move. If I sit too long I get stiff and have a hard time getting back into an upright position, after too long pain starts going down my leg. If I want to sit down to read a book I have to sit in the recliner. I also can't stand in one place for more than about 5 min. then my back starts killing me.
I also told him that I had a PM doctor appt this morning and they are requesting another MRI of my cervical spine. It's giving me alot of problems under my fusion area. He requested that when I get the report from it to take it to the SS office plus paperwork where I went to PT the last week for exercises that I can do at home. He hadn't received anything from any doctors yet but it hasn't been very long since he had requested the information. My PM was writing like crazy today though and reviewing my records that I'd had sent over from my previous rheumatology doctor. She did ask me if I thought I'd be able to return to work by doing my exercises and with my narcotic pain meds. I just looked at her like she was crazy.
Now the waiting continues.

Hey, tysmyboo, my first son was a premie too. He was 3lb.13oz at birth but his lungs were fully developed. Brought him home at 4lb.5oz. He's now 26, 5'10" and wears a size 12 shoe. The only thing I noticed was that he didn't sit up until 9 mos and didn't walk until 13 mos.

PAlady, my husband said that if I get denied the first time he will contact our state reps. Our library sent everyone our government officials information when they were getting ready to really hold back library funding. He kept all the info. Very good idea. Thanks for the heads up.
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 8/14/2009 12:28 PM (GMT -7)   
Glad to hear the call seemed to go well..now, just getting the doctor's to get movin' :-) Way to go, every little step is something!!!

My daughter is almost a year old now, and is doing amazingly well. I was terribly sick during my pregnancy (in and out of the hospital for the majority of the time with hernia, preterm labor, kidney stones, kidney surgery, stent placement, gestational diabetes, high BP, Hellp Syndrome..etc) and when she was born 6 weeks early we decided not to send her to daycare (where she would be exposed to so much more illness) She spent two weeks in the NICU, which were the worst two weeks of my life but she is doing really well now and hitting most of her milestones on time. Glad your son has had no "issues" from prematurity, it is amazing!

**baby's up, gotta run..more later**
Sara-Migraine/Headache Forum Moderator
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DX: occipital neuralgia-radiofrequency nerve ablation every 6mo
 
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fatherjohn
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Date Joined Feb 2009
Total Posts : 999
   Posted 8/14/2009 8:59 PM (GMT -7)   
Jag, I hope the process goes well for you and that you get approved the first time. Even though I am one of those that continues to work, when I am home, I have a tough time as I always want to be doing something. That gets me into trouble. I told my wife the other day that when I am home alone, I find myself just walking around. This may sound crude but after I was injured, the state put me through many doctors and evaluations. The state came back and told me I could go back to work but it had to be at a job where I did not sit or stand for more than 15 minutes. I looked across the table at them and told them that I was not looking for a job where I laid down. They got my point. I don't know how some of our CP family make it stranded at home so much. Several times people have commented on my work schedule but I think it would be much harder not being able to get out. Anyway, have a blessed night.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/14/2009 9:40 PM (GMT -7)   
Jag,
Be sure to contact your FEDERAL representatives, not those in your state. The ones who go to Washington, not to your state capitol.

Tysmyboo - jump in anytime!

Fatherjohn - you do have a good point. Being at home so much is so isolating, let alone I feel like my brain is drying up.

Hugs to everyone,

PaLady

tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 8/14/2009 10:35 PM (GMT -7)   
ha ha PaLady, I have often said that I feel like my brain is turning to mush! I thought maybe part of it was having a baby but really its from being home isolated all the time.
 
I am attempting to start taking classes again in September "firm up" my mush brain! (I am secretly scared that I won't be able to manage)
Sara-Migraine/Headache Forum Moderator
Battling headpain for 17 years.
DX: occipital neuralgia-radiofrequency nerve ablation every 6mo
 
Thanks for Visiting HealingWell.com, Please Donate to keep Healingwell alive!
 
 
ER Treatment Form
 
 


gonuts
Regular Member


Date Joined Jan 2008
Total Posts : 159
   Posted 8/15/2009 7:19 PM (GMT -7)   
HI, I am trying to get ssd too!! I was denied and am in the appeal process. I hired a lawyer. I hope he does help me. I feel like crap most of the day. Nausea, lightheadedness, ibs, pain you all know the story. I am praying that it happens soon, I am waiting for a appt to see a law judge.. the letter they sent me said it will happen as soon as it could that alot of people are in line.
The letter before that one said that i should be able to to a seditary job confused What's that?

Anyway, I hope you don't have to appeal, but most people do as i am told. Good luck. Laura wink
Cervical spine surgery 2004, C-section 1986, Cholecystectomy 1999, Thoracic and Lumbar injury 2000. Anxiety/depression 2008. Fibromyalgia 2009, Thyroidectomy 2008. Degenerative disc disease. IBS. Asthma, Rheumitoid Arthritis, Sacroillitis, Scolylosis, disc bulge in L5/S1. Meds: Lisinophil, xoponex, symbocort, pulmocort, troponal, vitamin 2000 D, Vitamin B complex, Hydrocodone, Tylonal Arthritis, Cymbalta.

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