Welcome to HW, we are a FAMILY of caring and empathetic people! All of us are here with CP from different causes! The emotional ups and downs, symptoms and frustrations are shared in our posts!
I am so sorry that you have joined us. You mention that your husband is an M.D., what is his specialty? Are you currently working with a PMD? Most of us have been where you are when our only answer is to use Narcotics to control our pain! I did a google search for your condition and Hyperbaric Treatment was mentioned, have you tried that? I live in Phoenix and we have several of these facilities in town. I worked for an M.D. Homeopath for all of my career until I could no longer work due to pain. I have extensive nerve damage in both legs, had a reaction to Lyrica 2 yrs ago, so I can no longer take it. I do alot of alternative methods in an effort to control the pain from this and a triple cervical fusion 9 yrs ago. Nothing totally takes the pain away but with Medication, homeopathic remedies, laser treatments and acupuncture it is more tolerable!
The first step is to find a Pain Management Dr. that understands your condition and will work with you to find a medication regimen for relief!
Again Welcome to our family!
Its the drugs lol, I read another post and confused it with yours about the MD...so sorry!
The reaction I had to Lyrica was a slow progression, when I first started at the 50 mg. dosage twice a day, I did notice relief. Shortly after I started to notice leg swelling! I saw the PA in my PMD's Office and he increased the dosage slowly to the dose of 300 mg. at Bedtime. For the 1st time in 9 yrs. I was sleeping comfortably. He did that in month 4 of being on Lyrica. The leg swelling became severe, I started getting Palpatations, I would forget mid sentence what I was talking about.....my memory was the only thing that I could count on and when that started happening I was frightened as was my husband. I gained 20 lbs. from Oct to April (no diet changes). I was in the middle of PT and my muscles were so weak I told her I could not go on.....I was displaying symptoms of a Stroke. I saw my PMD and a cardiologist that day and they both agreed along with the Pharmacist it was a Lyrica reaction. They weaned me off and the 2 frustrating symptoms that remained was the weight gain and I was diagnosed with Lymphaedema. I never had leg swelling before, so this was a permanent side effect that along with the nerve damage gets very uncomfortable! So I am unable to use Neurontin or Lyrica to control the nerve pain. The alternative treatments I do, do help!
Arizona used to be the place for Allergies, arthritis and many other health challenges but people relocated here and brought with them plants, trees from other regions etc. Arizona is actually the worst place to live for these conditions now...especially allergies. Pools have added humidity to the hot hot summers, so no longer are we blessed with a DRY Heat of 20 years ago.
Good luck and I hope you have a low pain day!
I do have lymphatic drainage done by my massage therapist.....it does help!