anyone ever use colchicine for pain?

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merrygirl
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Date Joined Jun 2007
Total Posts : 702
   Posted 8/21/2009 8:51 PM (GMT -7)   
It is used for gout mostly.
 
 

I took some today cause my pcp is away and /my pain is outta control. I wanted to go in and get the reults of my knee aspiration but he isnt in.
 
dont know why I didnt call pain doc cause of the pain.
 
I had some left over from a trial a few moths ago. So I deicded to try them again.
 
I dont suggest anyone do what
I did with out consulting their doc!  nono
But I was desperate. I found it cut my pain in half. talke to a friend who said she used to take it for pain.
its says its not an anlagesic.
'
anyone else?
 
melissa


Chronic Lyme Disease
Fibromyalgia
Chronic fatigue syndrome
Polycystic Ovarian Syndrome
Sleep Apnea
Hypothyroidism
Adrenal Fatigue
 


Chutz
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Date Joined Jan 2005
Total Posts : 9090
   Posted 8/21/2009 9:30 PM (GMT -7)   
Hi Melissa!

I'm sorry you've been in so much pain. We all understand the misery and desperation you must be feeling. It just isn't fair but somehow we get through it. With your fibro I'm sure you already know several ways to help ease the pain....warmth in any form, especially moist heat. I stand in the shower and drain the tank...lol...OK, nearly drain the tank. Keep your muscles moving as much as you can during the day. Not strenuous movement but as we all know sitting or laying in one position is the worst thing we can do. It sounds like you have a complete medical team in place and you are not only lucky but are a very smart woman!!

I had never heard of this medication so I did some research. It's a mighty potent drug that can have some serious reactions and interaction...I"m sure you already know that. (part of this post is for others who haven't heard of it either ;-)) Below is some of the research I found. A couple are links and others are items of interest from several sites. Please do be careful with that particular medication, which you already know, but if you have started taking any other medications since you were prescribed the Colchicine then please do ask your pharmacist and/or doctor before you take any more. We sure don't want anything bad to happen to you. I know...I sound like a nagging mother...lol...and I probably am but I care so very much about the people on the forums....I just want everyone to be safe.

Please keep us pdated on how you are doing...OK?

Hugs,
Chutzie


**************
http://www.nlm.nih.gov/medlineplus/druginfo/meds/a682711.html

http://www.mayoclinic.com/health/drug-information/DR601693

***************
Side effects

Side effects include gastro-intestinal upset and neutropenia. High doses can also damage bone marrow and lead to anemia. Note that all of these side effects can result from hyper-inhibition of mitosis.

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One of the most worrisome side effects of colchicine is that it can damage the bone marrow causing severe anemia and low white blood counts. Reduced white blood cell counts can increases the risk of infections. All patients taking colchicine long-term require blood count monitoring. Colchicine can also cause hair loss, weakness, and nerve irritation.

********************
Toxicity

Colchicine poisoning has been compared to arsenic poisoning: symptoms start 2 to 5 hours after the toxic dose has been ingested and include burning in the mouth and throat, fever, vomiting, diarrhea, abdominal pain and kidney failure. These symptoms may set in as many as 24 hours after the exposure. Onset of multiple-system organ failure may occur within 24 to 72 hours. This includes hypovolemic shock due to extreme vascular damage and fluid loss through the GI tract, which may result in death. Additionally, sufferers may experience kidney damage resulting in low urine output and bloody urine; low white blood cell counts (persisting for several days); anemia; muscular weakness; and respiratory failure. Recovery may begin within 6 to 8 days. There is no specific antidote for colchicine, although various treatments do exist.[6]
Play fair. Don't hit people. Say you're sorry when you hurt somebody.
~Robert Fulghum

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
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PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/21/2009 9:38 PM (GMT -7)   
Yikes! Those are some side effects! Melissa, I do hope you won't take any more of it unless instructed by your doctor. This sounds much too dangerous to play around with.

Hugs,

PaLady

anice
Veteran Member


Date Joined Apr 2009
Total Posts : 536
   Posted 8/21/2009 9:49 PM (GMT -7)   
Melissa, I am sorry you are having a hard time with your pain. Sometimes it gets bad and I can understand you wanting relief and some help. I haven't heard of this med. before. I agree with PaLady and Chutzie. Please be careful... I am glad that it did give you some relief. Please keep us posted as to how you are doing.We do care. And you know we will support and encourage you. I do hope you are able to get a good nights sleep. And I hope you will waken tomorrow feeling some better, too.
Anice

merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 8/22/2009 7:16 AM (GMT -7)   
thanks for caring so much.
it means a lot.
the problem is I start having bad thoughts when I am in this much pain. That scares me most, as I do not completely trust myself.

I didnt sleep well again, but I took a dose of colchicine (its 1 tab 2x a day) at 5am and I have very litlle pain!

thanks again
melissa
Chronic Lyme Disease
Fibromyalgia
Chronic fatigue syndrome
Polycystic Ovarian Syndrome
Sleep Apnea
Hypothyroidism
Adrenal Fatigue
 


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 8/23/2009 11:12 AM (GMT -7)   

 

 

   Miss Melissa,

     Goood afternoon! *warm huggs* I wish I knew more about the differant types of medicine but I dont. I am glad however that it is helping! You live in such a contstant high level of pain, I simply cannot imagine how you do it! You ve really stumbled on to something good.

      I "tried again" relofen (nabumetone) after my first injection series and now am on it to this day. I told my doc right away. "Hey this stuff make my hipps and knees and shoulders feel great! Its like "oil" for my joints! Can I keep it up?" He said "Sure! lets do a blood test make sure there are no side effects happening. I think you will benefit from it long term." He seems really pleased. Perhaps your doctor will too?

*warm huggs*

     dani


TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 8/23/2009 2:05 PM (GMT -7)   
merrygirl
 
Are you taking it for pain in your knee? Is your knee swollen and red? Do you have problems with any other of your joints? Were originally you given this med for your knee, or shall I ask why were you given this medication? Have you taken it before? If so why did you stop?  This medication is given for gout, you say it helps stop the pain, How? I mean what type of pain do you have and where.  Does it come and go? Have you noticed that you have more pain after eating certain foods, meat, gravy, drinking alcoholic drinks after having meat or gravy or certain veges? Try to pay more attention to your diet and what you have eaten and when you have the most pain.  Keep a journal on your pain! You need to talk to your Doctor about this and tell him what you have been doing. As maybe some or all of you pain is related to gout, and Gout can be extremely painful indeed! But it can also be controlled, through medications and proper diet! Avoiding certain foods  and the like! So make sure you tell your doctor about this, it is important!  This medication can be very effective for Gout, but it is not a medication to be taken lightly, so please talk with your doctor about all this! 
 
Good Luck to You
 
White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

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