I have had it no more I need a break.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13454
   Posted 8/22/2009 12:35 PM (GMT -7)   
You are not going to believe this. Was at the drs, legs so much better what was it Friday a week ago. Last night noticed a burning and aching in my lower left leg, thought ok, your legs are swollen-maybe your sport socks are cutting off the circulation. took off the socks & shoes. Kept on, ignored it.
 
Got up this morning I have a knot the size of an egg very angry & hot, I mean hot, cannot hardly walk on the leg, feels like my heart is pumping down there in my leg. Have another spot on opposite side on the ankle same way. The pain is just incredible in this leg. The cellulitis is back with a vengenance and I am having a doppler on Monday which I think is a waste of time we know whats wrong. So, back to having the legs elevated so, will be MIA for awhile again. I am done, I am sick of these legs, I am livid. Different antibiotic this time. Can't take alot more too much hitting at one time. Sorry to vent here, its that or I will start throwing things here in the house. I just cannot believe this.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


cbear
Regular Member


Date Joined May 2009
Total Posts : 138
   Posted 8/22/2009 12:53 PM (GMT -7)   
straydog, you have been kind to me in the past. im so sorry to hear you are having such a rough time. i dont exactly understand what is going on with you. maybe you dont either! i hope you get the best care possible. im sorry to hear you will have to be off your feet for so long. can you look at it in any positive light? i once had surgery on my foot and was off my feet for 6 weeks. i tried to use that time to do some things id been wanting to do but seemed to put off. things like reading, writing poetry, watching good (or not so good) movies. im not trying to make light of what youre going through, just trying to make positive suggestions. odviously one thing you can do is help even more people through this site. i wish you the very best and would like to say a prayer for you, if that doesnt offend you. thanks for everything youve done for me and everyone else.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/22/2009 12:54 PM (GMT -7)   
((((((((((((Susie)))))))))))))))

Do NOT apologize for venting here. Please!! If anyone deserves to right now it's sure you! Please, don't even give it a second thought - especially if your time here is limited and the only thing you can do when you get on is scream via words!

We understand.

Please, please take care of yourself. I know you're trying. I know you don't want to go inpatient again but if it's necessary....

I can't help but notice the word "angry" attached to those lumps in your legs and you bet I believe it's related to what you just went through with the dentist and the ultrasound. Maybe you do need to throw some things around the house - or maybe go outside on a porch and throw eggs at a pictures of anyone who looks like they've caused you grief.

We will be thinking of you here. You're only MIA in one form, we know you're here (and we're with you) in spirit!

((((((((((Susie))))))))))

PaLady
p.s. I just thought of something. Remember an infection in your mouth can spread throughout your body. I'm glad you're on an antibiotic, and I wonder if there's any connection. I am about to get a refill for my third round of the antibiotic and will stay on them until my tooth is pulled, and then for a short time thereafter (unless something else goes wrong!). So I'm just wondering if there's a connection for you.
Hugs,

PaLady

Post Edited (PAlady) : 8/22/2009 1:59:04 PM (GMT-6)


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 8/22/2009 1:37 PM (GMT -7)   
(((((((((Susie)))))))))))). Your situation sounds just miserable! I hope your legs start behaving soon! I'm sending some prayers your way!

hugs,
Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/24/2009 7:39 PM (GMT -7)   
Susie,
How are you doing? I'm glad to see you online, but wondered if you were feeling any better.

Hugs,

PaLady

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 8/24/2009 7:51 PM (GMT -7)   
Susie

How are your legs? did you have the ultra sound today? I do hope your doing alright! You know we are all here for you! Take care

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13454
   Posted 8/24/2009 8:11 PM (GMT -7)   
Hi everyone, I had to take a break from the propping and elevating thing tonight. I had the doppler today and was told nothing which I expected that. But really, I think if there had been a problem the tech would have went to one of the drs in the clinic and had him/her come in and discuss it with me. I highly doubt they would allow a person with a blood clot just walk out the door too risky. I have had many dopplers done but none painful until today. This gal really pressed down hard on her wand
Then you know they do their squeezing thing to make the blood flow out in a burst like way and all I can say is, it was painful and not any fun. There was a few times I let out a holler. I am sorry, when you have a goose egg that is a hot one and somone want to press on it, lets just say it hurts. There were many other places higher up in the leg that was quite painful, over all I really feel it was all due to the condition of my leg today. The heat and redness has started moving up the leg almost midway to the knee. Come on Bactrim do something. I am managing my fevers with Tylenol so far.
 
Antibiotics are a hard drug for me because I am highly allergic to the best oral ones on the market. So, this does pose a problem. I do not think 7 days on Doxycycline did the trick needed to clear up the cellulitis completely, too weak of a drug. Now we will see what Bactrim does. I did some reading on celuilitis a long time ago and it is caused by a staph infection which explains why its so hard to get rid of it. I know my first dance with this mess got me 18 days of IV Vancomycine and you cannot get any more potent in antibiotic than it. Ins comp's hate it because its very expensive. What I am taking is like taking a Tylenol compared to it. I am not good on long term use of oral antibiotics because it kicks up my UC and I end up with C diff which requires a totally different antibiotic.  I feel like this rat in this maze trying to find my way out and so far I haven't.
 
I am hoping that maybe by tomorrow or the next day the medicine will kick in and start calming things down. I am tired of this mess and tired of not feeling good. I really do have other things to be doing lol. I am quite sure I could figure something else out to do, just give me a minute to think about it lol. Keep the prayers going, I need all I can get.
 
The one thing I do want to do badly is tear that dentist's head off and shove it where the sun does not shine. Trust me, I am not done with him yet. I have sincerely considered  doing a protest outside that clinic, but that takes good legs. No, I am not done with him, all in time.
 
I am thinking that until I can get all of the open sores totally healed up on my feet, the cellulitis may be around much longer. The first time I had it, the dr found a very small cut on the bottom of my foot and said that was the culprit of infection.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 8/24/2009 8:25 PM (GMT -7)   
Susie

Vancommycin is the Big Guns alright, that is the heavy duty stuff for sure! and getting C-Diff is the worst! I have dealt with all that when I worked up on Onco! I do hope that antibiotice works for you, keep a close watch on your legs, if you don't start feeling some relief soone get back to your Doc! I will kepp you in my prayers!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13454
   Posted 8/24/2009 8:50 PM (GMT -7)   
WhiteBeard I believe my return appt is set for the 28th, he will be surprised to see me for sure.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 8/24/2009 9:03 PM (GMT -7)   
(((((((Susie))))))))). I'm glad that they didn't find any clots, but am sorry to hear that you are still no better! Lets hope that the new antibiotic does the trick!

By the way, how is Jake doing?

Skeye

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2280
   Posted 8/24/2009 9:04 PM (GMT -7)   
Susie,
So sorry you are in such pain. I have a hard time with antibiotic meds too. The last time I had a horrid infection, I was given 1000mg/day Azithromycin (Z pack). My doc had to fight tooth & nail to get my evil insurance company to cover it, but gosh darn it, I'm so allergic to everything else. On top of that I get sick off of just about all the antibiotics that I'm not allergic to so even though I can take the Z packs, my poor tummy is never happy (though I've learned that probiotics really do help). Anyways, just wanted to wish you well & keeping my fingers crossed that they can find some sort of antibiotic that will work for you.

peace & prayers,
Frances
Moderator -- Depression Forum


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/24/2009 9:21 PM (GMT -7)   
Susie,
Of course we'll keep you in our thoughts.

And the vampire squad is organizing. We will soon be available for outtings to visit "certain" doctors, dentists, whoever a member of our CP family requests!

I'm not done with my dentist yet either (I mean the one who's related to yours). But I haven't felt like writing the letter my "good" dentist asked me to. I sent the good guy a nice thank you note, though.

You take care!!

(((((((((((Susie)))))))))))))

PaLady

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/24/2009 9:26 PM (GMT -7)   
Loves and prayers my sweet friend. I wish for you some peace and comfortable sleep. It's time the misery ends and you are able to enjoy some life again.

Hugs,
Chutzie
Play fair. Don't hit people. Say you're sorry when you hurt somebody.
~Robert Fulghum

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 8/24/2009 11:28 PM (GMT -7)   
Susie,
 
I am so sorry to hear about your newest hurdle.  When I read your newest adventure in your ongoing medical epic "how much can one person stand" - I think your headed for a lifetime achievement award when it comes to how many diseases one person can collect.  The sad part is that you are only half way through your life.  I know some of us are over achievers- but enough is enough. (I am just kidding; of course!)
 
Stay strong and keep focused.  I know you have been through more than your fair share, and it is so easy to want to say "I QUIT".  I don't know why some of us get that little extra - you know that "let's kick her while she's down" syndrome. It is obviously that you are a strong woman that handles bad situations with grace and humor.  You have taught me that I am not traveling alone on this endless road health misadventures.  I would not wish this on anyone, but your postings help remind me and others - that together we are stronger.
 
I just we are like the characters from the Wizard of Oz going through the dark forest.  Instead of saying "Lions, and Tigers, and Bears, OH MY!  We would be chanting Crohns, COPD, Fibro, Pain, etc. etc. OH MY! What a site we would make.  Patching up pieces, as we marched on.  Pass the oxygen and pill bottles - it's off to the Emerald City.  Let's see what new body parts the Wizard in his bag has for us.
 
Take care Susie my prayers are with you and for goodness sakes don't forget the ruby slippers.
 
 
 
 

Stella Marie

Co-Forum Moderator for Chronic Pain

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump  & neurostimulator.  Extra features: O2 & wheelchair

 Not all of us can be Cinderella, but some of us can be Fairy Godmothers.......

 


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 8/24/2009 11:55 PM (GMT -7)   
Susie, I'm going to say a special prayer for you right after I this post! I'm so sorry your in such a bad place. You have helped so many here and have many, many good people pulling and praying for you. I'm sure the antibiotics will begin winning the battle raging in your leg soon!
Big Hugz coming your way my good friend!!!
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, Joseph is on the aircraft carrier USS John Stennis back in Bremerton, Wa. after 8 mo. deployment! and Pete Jr. is on The Asault Ship USS Bataan "The Jaws of the Fleet" somewhere in the Persian Gulf w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13454
   Posted 8/25/2009 4:43 PM (GMT -7)   
Stella & Pete thank you both so much. Stella I really do prefer not to join the acheivment award ranks lol. But, I do admit to it being a little harder each time I get something new thrown my way. about time I think I may be coming to terms or muddling my way thru I sometimes get hit with a real zinger. I honestly do try to remember and remind myself that there are many more people out there much worse off than me. That seems to be what can help me stay grounded. I guess the old saying "sick & tired of being sick & tired" seems to fit sometimes, I think thats probably where I am at right now.

I am tired of this hot weather as well, I hate having to get out in it and drive to the dr. I really believe this has been one of our hotter summers. It was 102 and thats just too warm for me.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 8/25/2009 8:42 PM (GMT -7)   
Susie,

If I heard correctly, the news people mentioned this week that places in Texas are on day number fifty something of consecutive days with the high temperature being in the 100's! Unbelievable! You guys must be frying down there! It's been in the 90's here & very humid lately -- which is no fun -- but it is supposed to drop back into the 70's later in the week. It took until the middle of August for it to actually feel like summer though! It's been unusually cold. Today was beautiful: mid-80's, low humidity, blue sky. Just gorgeous!

Skeye

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13454
   Posted 8/26/2009 3:33 PM (GMT -7)   
Skeye please send me your weather. yes we are frying down south 102 yesterday. I am sick of this heat, I cannot go outside when its like this.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/26/2009 5:10 PM (GMT -7)   
Susie,
I've had skeye's weather, too! We've had such a cool summer - now I know where our heat went! We just got some warmer weather here in August, and it's already leaving and becoming damp and chilly and feeling like fall.

Really feeling the aches and pains today!

Wish we could have evened our summer temps out by sharing!!

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13454
   Posted 8/27/2009 2:42 AM (GMT -7)   
PaLady I really think this has been one of our hottest summers by far. I cannot handle the heat and trying to be in it is out. My oxygen gets hot in the tank, nothing like having hot air blow up your nose, lol. I am so ready for cool weather. That is something you never hear me utter,lol. Here it is Aug and still in triple digits.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/27/2009 12:03 PM (GMT -7)   
Susie,
I can't believe how much weather changes are starting to affect me. I thought during summer (our summer's here are short, but usually "decent" even though less than perfect) I'd get a break, after having cold buried in my bones all winter. But we had one of the coolest July's on record. Then August when we finally get some heat we get awful humidity with it, and I didn't have my air conditioner put in the window this year because it was so cool. So that's been added to the tooth stuff for me and it's no wonder all I want to do is sleep. Now the damp, cool, chill seems to be returning and I DREAD winter. For too many reasons to list! We all need to pool our money, build a complex somewhere in a centralized area where there's a moderate climate, and move to be together!

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13454
   Posted 8/27/2009 2:09 PM (GMT -7)   
Listen, if I knew how to pull that one off, I would be in. In reality is could be a very lucrative adventure fo someone with more money than sense, think of it. It is something that is definely needed for the people on fixed incomes who still have their faculties (well most of them), physically able to care for themselves and just do not want to live alone. I think its a wonderful idea. Many similiar things are out there but not many.

This year we had a terrific spring and it seemed like we right to the 100's plus.Electric bills are out of sight, total electric. Water bills the same trying t save the lawn.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 9:55 AM (GMT -7)
There are a total of 2,733,002 posts in 301,075 threads.
View Active Threads


Who's Online
This forum has 151228 registered members. Please welcome our newest member, Acro1010.
316 Guest(s), 12 Registered Member(s) are currently online.  Details
RDP74, PeterK, AnxiousTexan, NiceGuyEddie, Paxton, iho, NiceCupOfTea, Melg, Fairwind, snowboat, multifacetedme, otheym432


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer