ug......can't sleep

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Gretchen1
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Date Joined Jan 2007
Total Posts : 3459
   Posted 8/25/2009 2:41 AM (GMT -7)   
Hey everyone,
 
I don't usually start threads.  It is 2:30 and I have not slept.  I know that many don't get sleep.  I fight MS fatigue so I usually sleep like the dead.  I haven't closed my eyes tonight.  My legs are killing me.  I can't imagine why.  I didn't do anything out of the ordinary for me. 
 
I get neuropathic pain.  It is like nerve pain but not peripheral in nature.  Mine stems from CNS dysfunction related to MS.  My legs are on fire!!!!!!  I don't have a lot of pain med options.  Since it doesn't happen all the time, I don't take a nerve pain type med. such as neurontin or lyrica.  I did take a klonopin hoping to take the edge off but ......sigh it didn't touch it.  I am just going to have to gut it out.  It is managable pain, it is just that I can't sleep and I have so much to do tomorrow.
 
I need to get my 7th grade son registered for his classes tomorrow.  It is a lot of "hurry up and wait' and standing in lines....ouch.  Luckily, he is a pretty independent guy and not at all afraid to "take care of business".  I am hoping I can send him in with all his paper work and only join him if there is a problem or some confusion. 
 
well anyway, thanks for listening. 
 
 
 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 8/25/2009 3:32 AM (GMT -7)   
Gretchen have you thought about trying neurontin. It has a generic call Gabapentin and is cheap to purchase. The only side effect I have noticed is word recall. I can see the object in my head but can't think of the name of it for the life of me. I does help with my nerve pain. Good Luck at school today and hope you get a nap in today.
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


White Beard
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Date Joined Feb 2009
Total Posts : 3611
   Posted 8/25/2009 3:36 AM (GMT -7)   
Gretchen

You have not been alone this past night although I did not get online as soon as you did, I did manage to get a couple of hours sleep from midnight to 2:30 or so but the last 3 hours I have just been laying awake, with pain in my neck and left arm, and way to many things on my mind! Anyway I do hope your legs quit hurting and burning, why is it being awake at night with pain is always the worst? I do hope you managed to get some sleep! Good luck on your kids school registeration! Summer has went by way to fast! I have noticed how the days are getting shorter, and I am not happy about that at all!
Anyway Good Luck

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Blessedx8
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Date Joined Aug 2008
Total Posts : 3193
   Posted 8/25/2009 11:05 AM (GMT -7)   
Gretchen,

We had a similar night cry I am sorry you couldn't sleep. It's so frustrating not to be able to sleep - especially when you have stuff to do the next day. You are probably at school right now. I'm praying you have some extra energy to make it through.

Talk to you soon...
Tina
Pain Issues: Neck/back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands, arms, feet; I also have POTS/dysautonomia; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Addison's Disease; Central Sleep Apnea; etc etc

Meds: MS Contin (480mg daily); MSIR (15mg/6x day); Soma (3x day); Atenolol; Midodrine; Phenergan; Effexor and on the list goes...

Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/25/2009 11:24 AM (GMT -7)   
Gretchen,
I was up last night (or should I say this morning) too, but we all must be like ships passing in the night!

Have you thought about cymbalta at all? It's an anti-depressant, but also designed to help with nerve pain, but doesn't have the same side effects as lyrica or neurontin. If your neuropathic pain is maybe starting to worsen, it might be worth discussing with your neurologist.

Hope you're feeling better today!

Hugs,

PaLady

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 8/25/2009 6:10 PM (GMT -7)   
Thanks everyone.  I am feeling better.  I am not ready to treat my neuropathic pain on a regular basis.  I can usually treat it as needed.  I do so appreciate the suggestions.  I already have pretty bad word recall problems so I am not going to try the neurontin any time soon.  Cymbalta also has it's share of side effects.  I have a friend that LOVES it though.  I am keeping that one in mind. 
 
I can usually treat it with .25 klonopin and maybe an advil.  Since mine seems to be sort of like nerve confusion, sometimes confusing it more with ice can help.  Other times, not much helps.  I made it through the day and got my son registered for 7th grade.  We are pretty much organized and ready to go. 
 
I appreciate your kinds words of support.  I am pretty tired; I expect I will sleep fine tonight.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 8/25/2009 8:45 PM (GMT -7)   
Hi Gretchen,

Nope, you weren't alone. Someone mentioned to me today that they drove past my house at 2:30 am this morning & saw my light on. Yup. I was up. It seems I always am.

hugs,
Skeye

painsince91
Regular Member


Date Joined Apr 2007
Total Posts : 77
   Posted 8/26/2009 4:31 PM (GMT -7)   
I can't sleep either.  I was awake at 2:30 this morning.  It is usually between 1 and 3 am. I can't lie in bed because it makes me nervous so I have to get up and take some meds. Sometimes I go back to sleep, sometimes I don't. I hate it and I feel so tired all the time.

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 8/27/2009 3:26 AM (GMT -7)   
Hi Gretchen-
hope you are sleeping tonight. I have had a bad last 9 days of sleepless nights. Dang kidney stone, kidney stone tests, kidney stone manipulation and stent, dang kidney stone stent removal, lasering, and stent reinsertion. Been at the hospital for 6 or the 9 days so far and still counting. I got 3 hours straight tonight or this morning, which ever.

Take care,
Bill

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 8/27/2009 6:55 AM (GMT -7)   
Oh Bill! 
 
I am so sorry!  I have never had a kidney stone.  I have a friend that has had them and the agony on her face was so scary and sad!  I hope you get some relief soon! 
 
Everyone; I am doing much better!  I have had some better nights and don't feel quite so nuts.  Thank you all for your responses!  It is so nice to know you are not alone.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 8/27/2009 11:01 AM (GMT -7)   

 

 

   Oh Gretchen!

  *warm huggs* The absolute LAST thing you needed was sleeplessness! Gosh! *huggs* I am a little foggy, so my brain is moving at the pace of a turtle shakehead I do hope thou! That your son can get into the classes he wants and his teachers are supportive. What electives did he want to take this year?

*huggs*

   dani


TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 8/27/2009 11:35 AM (GMT -7)   
Gretchen-
Glad to hear things are better for you. Lack of sleep makes everything even worse than it is.

Take care,

Bill

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 8/27/2009 8:36 PM (GMT -7)   
Hey Dani,

He has P.E., English, Pre-Algebra, Ancient Civilizations II, Accelerated Science (biology), and 7th grade chorus. He is very musical. He plays piano, violin and guitar. He loves this chorus program. They compete at music festivals that are judged. If you don't earn a perfect score on your music tests (singing solo to the teacher ......must be reading the music) then you don't make the cut for festival. Festival days are a day off campus. Last year's festival earned them the highest ranking of "superior" and it was at a theme park. Hehehe....they played lots after the comp. So that could be part of the reason. I am very blessed, he is an excellent student. He carried a 4.0 for 3 out of the 4 quarters. He had a 3.8 the other quarter. His hardest class is chorus. TONS of homework in that class.

He is my stinker! He is a lot like me and can find trouble!!!! I was the same way...hehe, but not nearly the student he is. Thanks for asking. (are you sorry yet?)
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 8/27/2009 10:52 PM (GMT -7)   
 
 
   Dear Gretchen,
 
     Oh it sounds like he has an exciting year lined up. My oldest daughter was in chrous all last year, but this year has asked for dance instead. It is important to have music/arts as a part of children (young adults) development. :-) Makes a big differance, I think. It is fantastic that his grades are so high , take alot of work.  Hehe my bumblebees love to find mischief, but I blame it all on Dad smilewinkgrin
 
(are you sorry yet?)
 
 For asking how you are doing?  do something wrong?
 
*bigg huggs!!*
     dani
 
    
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 8/27/2009 11:20 PM (GMT -7)   
Gretchen, I also hope and pray you find not just sleep but deep restfulness. I joke that I have found a definite patern of days that I have sleep issues. All days that end in "y" are difficult days. Sleep is just simply over rated. As you encourage your son and see him doing so well in the academic area, it probably gives you more patience with other areas. Life is always full of surprises.
 

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 8/28/2009 12:21 AM (GMT -7)   
Hi Gretchen, hope you're back into sleep mode again. Lately I keep waking up at the exact time for re-runs of Ironside on the classic chanel!!! Don't know what that says about my sleep clock! But seriously how wonderful to have such a talented child. Two of mine play violin although they are not too serious about it, more sporty than musical I encourage them because I think it brings a quietness into their busy lives, sort of restful and serene. My youngest (9) has just passed his grade 2 exam and is finally mastering some lovely bowing. I think I probably enjoy it more than them and keep expecting them to throw it all away but for now its lovely, golitho
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