Co-Forum Moderator for Chronic Pain
Rare neurodegenerative /movement disorder called “Multiple System Atrophy”. Mobility issues,, neuropathic pain, spasticity, central apnea, collagenous colitis, joint and body pain, swallowing and respitory involvement, Implants: intrathecal pump & neurostimulator. Extra features: O2 & wheelchair
Not all of us can be Cinderella, but some of us can be Fairy Godmothers.......
Post Edited (BionicWoman) : 8/26/2009 5:26:01 AM (GMT-6)
OMG BionicWoman wow. I can tell you as far as the feet go its really strange because the blisters are inward deep into the layers of skin, not your usual raised blisters. When they actually begin to dry up the skin is like a callous, very hard and peels off in layers. I lose several layers of skin during this peeling process. Its like the skin dies off. about the only thing I can do is once the skin start peeling I trim it because I am always catching it on my sport socks. I has even got on my toes. A few weeks ago when the cellulitis hit, I had many blistered areas pop up on my toes and they were all red, hot & infected. I firmly believe whatever this skin thing is, is the culprit to the cellulitis. Back in Dec of 07 the dr found a small cut on my foot and said thats what caused the cellulitis this. My feet look extremely dry and when it first started I did not have dry feet, always made sure to lotion the feet. Yes, this crap is very painfull, makes it difficult to walk when there is so much rawness and cracking open going on. This has been going on over a year now and no relief. The rheumy has me using Clobetasol cream which honestly does not help. The info packet says its a super-high potency corticosteriod and the warnings on this is wild. Not to be used for more than 2 weeks, can cause withdrawals when stopped, can cause Cushing disease, can suppress the HPA's, its really a wicked cream for sure. The dr says that also with me being borderline diabetic its hampering the healing too.
Forgot to mention in all the wildness lately I have known for years I have bilateral carpal tunnel with my right hand being the worse of the two. Thats a a very old dx. Well, lately when I wake up the hand pain is something else. So, I went and got fitted with braces to sleep in at night to help with this. The dr says this is the best way to treat this. I hope they help because I have been dropping things and do not realize they are dropped till you hear the crash when it hits the floor. My strength is pretty much shot, its nearly impossible to open anything with a lid on it.
PA I do agree this would make a good brain teaser the info Bionic Woman gave. Bionic Woman I do so appreciate you telling us about this, I just have no clue as what is going on. My hands are so bad right now when in public I try to hide them, very embarrassing. The feet I can hide with shoes & socks.