New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 8/30/2009 7:17 PM (GMT -7)   
Hi Dani,

I just wanted to check & see how you are doing after Friday's procedure! I hope you're not in too much pain between the back & the teeth.

Sending you healing hugs,
Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/30/2009 8:20 PM (GMT -7)   
Skeye,
So glad you started this! Yes, Dani, please post when you get a chance. Know we're sending lots of hugs your way!

((((((((((((Dani))))))))))))

PaLady

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 8/30/2009 8:47 PM (GMT -7)   
Dani, we are waiting to hear how things went. We miss the wonderful sense of humor and words of encouragement. I hope you are doing well and relaxing this weekend.Post an update when you get a chance.

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 8/30/2009 10:10 PM (GMT -7)   
I'm in line too. I do hope you are doing well...

Hugs,
Chutzie
Play fair. Don't hit people. Say you're sorry when you hurt somebody.
~Robert Fulghum

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 8/30/2009 10:15 PM (GMT -7)   
I'll send my hugs too, Dani, hope you're putting out a big smile, goltho

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 8/31/2009 12:55 AM (GMT -7)   
Hi Dani:

I, too, am hoping and praying that you are doing okay. I miss you and your posts.

Lorie

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 8/31/2009 5:33 AM (GMT -7)   

Dani,

Sending you hugs and healing thoughts!!

((((((((((((((((((((Dani)))))))))))))))))))

XXOO
Patti


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 8/31/2009 8:51 AM (GMT -7)   
Hey Dani,
 
I am missing you.  You are so fun and loving.  I hope you are hanging in there.  I hope you are getting support from your family and loved ones.  Please know we are all thinking of you. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 8/31/2009 6:15 PM (GMT -7)   

 

     Hi Everyone!

*BIG HUGGS*Oh so much has happened. I am unsure as to where to start? Well, first off I should say that I am okay. Tired of the fever. In alot of pain, but okay.   wink  

     Thursday night I stopped all meds. Sometime around 3 am friday time bagan to go by very slow. It  hurt. I went to the procedure, the next day and I was so spent I think i was on auto pilot. When they took my temp they said I had a fever, odd blood pressure reading. My regular nurse saw me and came up to me saying "Oh no, I remember last time but oh". I cried. The other nurse couldnt do arm iv, off to the wrist.. arms look so ugly.. Anyway they wheel me in to the spine specialist.

      He seems grumpy. Hes always grumpy but more than usual. Hes worried about infection due to the amount  and type of steroids....Say if we do this we have to watch out for infection... then changes his mind. Says we have to reschedual. *(*&&( !!!!!! then says my blood work keeps comming back odd, if my new endocronologist has gotten me on embrel or fosomax yet? *(*&(* ??   I told him I was sorry and I dont know what he is talking about. Keeps asking me questions I dont know answers to. by that time Id been in 10+ pain too long to really respond anyway even if I knew what he was talking about.

     Nurses wheel me out. I get re dressed and un-Ivd?  I go out to waiting room and doc and husband are talking. They seem and look frustraited. I hugged them both. I didnt know what else to do. Then my husband and I left. Later my husband and the doctor are on the phone? says hes sorry for being a #2 ??? they talk on the phone a while. I go back in in two weeks for medicine in my back. cry

     .....long weekend. I hate tv. My house.. feel the dust teasing me... Got lots of jewlery sets made thou.

      And Today! We find out from my oral surgeon that, no, I am not having implant retained on the top. Only bottom and it will "lock into place". When I saked about upgrading was told "in about 20yrs maybe wouldnt worry about it now?" There i am looking like a horses #2 thinking I was getting same thing on top as on bottom? But apparently I am to feel good that I am healing fast? Here I am, healing right along. Ive got a few more dental appointments to keep till i get the final result. But nothing too major from here on out, and should be done in few more months. From that point I just need yearly checkups. Maybe If I schedual it in advance I can do teeth check-up~~> then go across street for general checkup / flu shots :-) .

      My general take on this last week has left me with even more questions than I had before. If you guys don't mind I am gonna pass these thoughts along....

     Iv had a low grade fever for a while now..  it isnt anything new. Arnt they paying attention?  Is my doctor grumpy with me? Hes been so gosh darned grumpy these last few visits. Everyone has. these last few months have been the worst for the bone loss. Why wont anyone talk to me? Gosh I dont think I look like Ill break anythime soon... okay, maybe that was the wrong..phrase, sorry. But still! And that one nurse. I dont ever remember her name. She is always there. Ever so kind for .. haha almost 2yrs now. Crazy? This it would be uncomfortable or weird if I gave her a jewlery set? Is that, you know, uncomfortable for medical personel? Technically I learned jewlery becuase my pain psychologist suggest I find a pain dristaction hobbie. Works to, my own littel world for 10-20 min stretches !!off track!!

     And so all my "procedures" are stretched out again. 2weeks for back? (fever still here?).... 3 weeks for bottom "placement" (no top). and that puts those two smack dab in the middle of the endocronologist "tests" and "reults" lovingly dubbed Endo round 2.

      Ive only been able to catch up on a few of the posts.. like 15 or so. Have alot of reading still  :-)  

*warm huggs*

dani    

    

 


TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 8/31/2009 9:07 PM (GMT -7)   
Dani,
I'm so sorry to learn things didn't go as planned on Friday - to put it mildly! But I wonder why your husband and doctor keep talking without you involved? How are you to know what's happening if your doctor doesn't tell you - unless you want it that way, which is certainly your choice.

It sounds like something is going on with your bloodwork that you need to understand. I don't know if this doctor canceled your injection because of some medical reaons (sort of seems that way) or just something to do with him. There are a lot of unaswered questions.

I'm glad you got to make some jewelry and relax over the weekend. As far as giving a gift to the nurse, a lot of hospitals and health care professionals make it a rule not to accept gifts, although some do. I don't think I'd be giving one of my providers anything unless I was either moving away or they were, or I was ending treatment. That's just my opinion.

It sounds like things are progressing with your dental issues, and that's great.

I'm glad you let us know all that happened!

Hugs,

PaLady

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 8/31/2009 9:27 PM (GMT -7)   
Dani, I agree it seems wierd to talk to your husband and not you! Who is the patient after all? The fever dosn't sound good, Us RA sufferers often get low grade fevers with flares, sort of auto immune response, so I'd be asking about it. Why is your doctor grumpy? Because your sick? Wierd all round, I'd be asking some questions, did your hubby tell you what was discussed? Why you were re scheduled? Curiouser and curiouser!!! Do your bottom teeth look good now? Whats happening with the top? I'm getting confused, golitho

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 9/1/2009 1:34 PM (GMT -7)   
Hi Dani,

I'm sorry to hear about the fiasco on Friday! Hopefully next time things will go better!

hugs,
Skeye

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 9/2/2009 7:16 AM (GMT -7)   
Man o Man what a day you had.......

Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 9/2/2009 12:29 PM (GMT -7)   
Awe, Dani...
You just hang in there for now and take it easy! sure hope your feeling better soon...
lots and lots of soft hugz.....
(((((((((((((((((((((((((((((((((Dani))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/2/2009 7:00 PM (GMT -7)   
 
 
   PALady,
     *huggs*
 
But I wonder why your husband and doctor keep talking without you involved?
 
     I have to re sign papers each year for everyone from HR to Insurance carriers to hospital staff so my husband and doctors etc can all talk freely with one another. It isnt usunual they are talking. Their conversations this last time seem to revolve around "risk of infection" with it being only a few days out from oral surgery. Same conversation he had with me... Its just that when ive been in sever pain (inflammation / bone loss) it is hard to communicate effectivly. I try hard thou.
 
It sounds like something is going on with your bloodwork that you need to understand.
 
     I have tried very hard to understand. They are all thyroid and calcium tests that can be measured from my blood. They seem confused that the test are showing at one end of the spectrum, then negative or/and opposite end of spectrum. I am pretty sure only one that comes back the same number is my calicum absorption rate which is 0.002. I have to re test the same "calcium & thyroid tests" at the end of this month. So far, literally every 3mos. I really hope they can figure it out soon. I have spent far far too long in limbo.
 
     My doctor and husband are/was very concerned over the risk of infection. I trust his judgement, but mentally all I can think is "Gosh.. more pain... 2 more weeks." Selfish I shouldnt think of things in such a way, but occasionally a negative thought slipps in.
 
      
Golitho~
 
      *warm huggs*
 
       I know I mimic RA. The arthritis panels are done every 6mos. . At times I wonder when they will stop testing that one. It isnt cheap. Quite a few vials for that specific set. It always comes back negative. I do know the similarities are there. In fact one medacine to help my hipps.. it is my understanding that is most commonly for Arthritis called Nabumetone. The hospital staff refer to is as "relofen". It gave me my mobility back.
 
     Why is your doctor grumpy?
 
     Exactly. I dont need the folks around me getting frustraited "for me". I need action. I need help. It isnt just him. My family, my friends, even my online friends. I know every is frustraited, noone more so than I! But gosh! Do I really have to pull everyone aside and say "Stop! Your only making it worse for me!!"
 
      I was re schedualed, it seems, for a number of reasons. Recent surgical, fever seems to be top of the list. "Rick of infection" came up in all our conversations. I just feel bad that I A. Wasted everyones time  B. Seem to be such a sorce of frustraition to those who know me. C. have limited medical knowladge.
 
     My bottom teeth get placed in 3 weeks.  But really, the "temporary teeth" are so beautiful, noone knows any better. They dont look temp. I appreciate the work that went in to my temp for sure. I never was able to "see" the perm. bottom set. I was able to view the perm. top set before my procedure and they are georgous. If I had just taken them off the "settting" device thou, I would have seen that there wasnt any pegg holes!! But!! It is nice, to be able to smile when I want and have someone smile back. Also, my husband has said if I really really want the pegs on top he would do that. It is something to think on.
 
       I'm getting confused
  
     Don't feel alone. Dear lord I am too.  cry
 
     It is time for some changes. Nothing is going to get better, physically.  This is how I will feel unless or until I see otherwise. It is okay, and I am okay that my body, for whatever reason, doesnt seem to want to work right. That, for whatever reason, the doctors cant seem to give me a diagnosis. But it is time to make my time here as comfortable and enjoyable as possible. Not just for me, but for all those around me. It is time to prepare myself and my family for the next stage of life. Whatever that turns out to be.
 
     I have mapped out the expectations of myself for the next 6mos. I really hope to be able to realize the first step of these changes. I would like to "clean house" and be ready for when hubby find new home. More like a life clean. Would like to provide time each day maybe an hour or two for jewlery. I would like to work towards being able to sell it. I wont intrude on any times that are for my family. I really think if I make a few changes each day, I can find a small space of time for my personal & family goals. My husband said that when I was ready he would gladly help me realize these dreams. Maybe out door flea market at first, see where it goes. Who knows? Small goals to most. Big goals for me. I have got to keep moving forward.
  
 
     I appreciate all of yoru support so much. I am sorry I havnt be able to sit down for very long. Sting & exhaustion seems creep up every time I begin a task.
 
      Deep breaths.
 
*warm huggs*
       dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/2/2009 10:26 PM (GMT -7)   
Dani,
I think it's great you're thinking about your future life and goals! Small steps always seems to work out the best. Take enough of them and when we look back we can see how far we've come. You've come a long way already!

The temporary set sounds beautiful! Now I understand a little more where you're at in the process. And I'm so glad your hubby is so supportive!

Many, many hugs!

PaLady

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 9/2/2009 10:43 PM (GMT -7)   
Dani,
 
You inspire me everyday.  You show us what it takes to climb a mountain.  You climb one step at a time.  You don't worry about the size of the mountain, you just keep stepping.   Pretty soon you are at the top, enjoying the view and all you have accomplished.
 
YOU GO GIRL!!!
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 9/3/2009 5:47 AM (GMT -7)   

Dani,

Sending you lots of love and healing energy hugs!!!

((((((((((((((((((((((((Dani)))))))))))))))))))))))))

XXOO
Patti

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 2:33 PM (GMT -7)
There are a total of 2,735,497 posts in 301,310 threads.
View Active Threads


Who's Online
This forum has 151413 registered members. Please welcome our newest member, MamaPhoenix.
358 Guest(s), 18 Registered Member(s) are currently online.  Details
robotguy, Thankuall, sheepguy, therearemiracles, dismissed, waterbee, IamColumbo, 1000Daisies, Girlie, getting by, NiceCupOfTea, Bobby Mac, Jingles1234, Madcat25, quincy, Mustard Seed, gilly2, Peter A


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer