Wouldn't you know one more dx to add to the list.

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straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 9/3/2009 2:19 PM (GMT -7)   
Hey Everyone,
 
Well, I saw the dermatologist this morning and he was fabulous. Its a shame he is retiring in 4 years. I have psoriasis of the palms and soles. I am being referred to the guru of this particular problem for treatment. He told me this guy puts his patients on the drug that can potentially kill you, make you sign a stack of release forms about the drugs and rattled some names off that is used. He said he was just too old to get involved with drugs of that nature lol.So, I should hear something soon from their office. He asked me how in the world I had tolerated this mess as long as I have. Anyway, just wanted to share the new info. 
   
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 9/3/2009 4:34 PM (GMT -7)   
Straydog
 
I thought that is what you had! Do you remember this? It was your post (thread you did a short while back?) Here is the Link:   http://www.healingwell.com/community/default.aspx?f=16&m=1574058     scroll down and look at my post on your thread! I Know somebody that has psoriasis and has it on their hands (palms) and feet (soles)  and just went to this specialist and got some fantastic medication cream that has really helped clear it up. I will try and find out what it is and I will let you know! Thanks for sharing the news! I do hope your new Doc can help you!
 
White Beard


Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Post Edited (White Beard) : 9/3/2009 5:38:50 PM (GMT-6)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/3/2009 8:01 PM (GMT -7)   
Susie,
Well, it sounds like a good news/bad news thing. Good that you have an answer and possible solution, not so good to add another diagnosis and more meds to your life.

Catch 22. Sometimes we just can't get a pass!

But I hope it works out for you and that the medications you need won't be as bad as they've been made to sound. Maybe more like what WB is describing.

Good luck!

Hugs,

PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 9/3/2009 8:35 PM (GMT -7)   
Hi Susie,

I'm glad you got some answers, but am sorry to hear that the treatment is so risky! Hopefully they can work something out for you!

hugs,
Skeye

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 9/3/2009 8:43 PM (GMT -7)   
Hi Susie, I know from the RA site that a lot of the biological agents that are now used to treat RA also clear up psoriasis. I'm on humira but there's quite a few different meds these days and many people with Psoriatic Arthritis find it clears up both conditions. The main down side to them is they lower your immunity to infection so you have to get anti biotics at the first sign of infection symptoms. I'm assuming this is what will be offered to you, very expensive drug but brilliant. Good luck, golitho

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 9/4/2009 10:47 AM (GMT -7)   

Thanks so much for the thoughts gang. Glitho you mentioned Humira. I am on Humira for crohns. I started Humira back in Jan of this year. So far its been the best for my crohns. However, because of so many infections I have had to stop it so many times. I am waiting once again to be able to resume it once the infection is gone.

I just hope this new guy can help me with this mess.  


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 9/4/2009 12:05 PM (GMT -7)   
Take heart, there's a lot of treatments for psoriasis. Bio agents are good for it, but you may also need something that's more localized treatment. There's a million things that can be done from light treatments, to steroidal creams. I've lived with psoriasis since I went through puberty. I've found some things that work great for me and others that don't. The only thing that I haven't tried yet are the bio agents. Those are next if I can't get it back under control. Just keep in mind that there are options.
Curious people are interesting people...I wonder why that is.
~Bill Maher


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 9/6/2009 8:53 AM (GMT -7)   
straydog

have you ever heard of a stuff called Psorent a friend of mine who has Psoriasis was prescribe or told to try using this, and it has worked wonders, in just a few weeks it has cleared allot of the scalelyness and redness up . Might be something to look into anyway? Good Luck to You!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 9/6/2009 10:28 AM (GMT -7)   
WhiteBeard no, I have not ever heard of that cream but have written it down to discuss with the 2nd new dr. The derm did give me a script for an ointment to try. He said it most likely would not work well since the Clobetasol didn't but worth a try. I like it because it will help moisturize so to speak. Like after a shower is the best time to put it on my feet because the skin has large thick scaley areas and he said the ointments work better versus a cream. The skin on the sides of my feet is extemely thick & hard and as well as on some places on the toes and soles. This is what happens after the blisters form. I was surprised its considered an auto-immune disease. I have done some reading about different types of treatment and there are lot of options. Its like anything else medically speaking, you have to find what works the best for you. I laid my Humira shot out today to get get at room temp and plan to start back on it. Wouldn't it be great if I could get it under controll with it since I already take it for crohns.But, I just need to be able to stay on it consistently and not have to keep stopping because of an infection. I was not aware drs make you sign releases if they rx drugs like, Remicade, & Humira, they are TNF blockers, I have never had to sign a release.I had a 3 month supply delivered Friday. Thanks again WB for the name of the cream.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.

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