One of my problems is no one understands why I'm in such pain.
Two, my pain isn't really constant, but I have something happen just about every week that causes me pain, Ex. Migraine, ovarian cyst, pluricy, another migraine, scar tissue in abdom., jaw dislocation, etc.
Three, I've been on some kind of pain med for years and doctors for some reason want me off.
Four, the only pain docs. in my town treated me once for an intrapped nerve, did injections and pain meds, helped but I had surgery and fixed the problem. When I was in the hospital with terrible pain before I found a suregon to help they said, "they can no longer help me" and won't see me for my other problems b/c they are not "chronic".
Five, I have a HUGE tolerance. For ex. when I am put to sleep it takes 3x the amount of meds so says my doctors. I took fentynl suckers for a while for migraines, helped, but I built a tolerance. For my jaw dislocations my hospital can only do moderate sedation, whilch is versed and diladid. Versed makes me panic rather than relax me so they give 2 of diladid and maybe some morphine and I'm wide awake, no sedation at all. So me taking 5mg Hydrocodone only 3x a day is like drinking a glass of water sometimes, but doc doesn't want to go higher, he's "wants to see me off that stuff". He had a wrist surgery and took no pain meds just so he could tell his patients that it wasn't always needed...told it to everybody when they saw the pin in his wrist. BUT this man has treated me for about 20 years, knows me and my family, and I trust him. I think he is just scared of the DEA or something. It seems like everybody in my town got really scarred of prescribing pain meds, even in the hospital, around last year.
I have a lot of weird side effects too, like ambien makes me hyper, this cough suryp I got the pharmist says, You'll sleep well tonight, well's its 5 in the morning and I haven't been to
sleep yet...UPDATE on sleep, doctor let me try chloral hydrate and it did not work. I was so frustrated. Its 8am and I have slept NONE tonight. She gave me an old anti-depressant that causes sedation but I'm afraid to take to AD's. May try anyway. I have literally tried everything. She said " i have to say you are my most complicated patient I have ever seen", but she seems to really want to help.
I am seeing a psychologist and I told him about my problem with pain meds and we are working on it. I am learning some new things with him, EMDR, ever heard of this?
I'm trying really hard. Really. They say my pain may go away once I'm off pain meds, I wish to goodness this could be true.
Its just a hard road. Please don't judge me, but i do get what everyone is saying. I just don't know where to turn anymore. It would be easier if someone would say, "you have ThIs" instead of my many problems.
I"m only 24 and I want my life back. What will that take?????
sorry for the rant...
Migraines, Ovarian Cyst, repeat and multiple jaw dislocations, depression/anxiety, PTSD, and the list goes on
On Jan 17th 2008 I had a very traumatic situation ending in a colostomy. had the reversal which put me through months of hell, but better now. I have had over 12 pretty major surgeries, 100's of "procedures", my immune system is a NO GO. I've been in and out of the hospital for the last 10 years. I have no real Dx's really. I have a lot of "Psuedo" (sp?) symptoms, so they say. This in just 24 years and its just half the story. (Violin's playing yet?)
Meds: Celexa, Klonopin, Serequel, Hydrocodone)
May God give you a reason to smile today, an extra reason
to laugh, and bring joy to your soul.