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Angel_Who_Cares
New Member


Date Joined Sep 2009
Total Posts : 8
   Posted 9/9/2009 11:20 PM (GMT -7)   
Hi Everyone,
 
Hope you all are doing fine. I have just joined the forum. I had visited this forum when I was in the clutches of horrible chronic back pain. That was the time when I couldn't even sit, so I was not a regular. The phase lasted four years (feels like eternity, though). My life went upside down because of that. 
Anyway, I have somehow managed to come out. I cannot really say that I am 100% alright now, but I am almost. I am here to support all the poeple who have to go through pain in every way I can. I understand how important it is to have somebody who knows what you are going through. As they say, wearer knows where the shoe pinches.
 
Really hope to be good friends with all of you and, of course, I wish for fast recovery for everyone on the forum!
 
Thanks for letting me in,
Angel. 

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 9/10/2009 4:45 AM (GMT -7)   
Hi Angel,
Welcome to the group! I'm sure that you will find that you have many who can understand where you have been and root for you now that you are doing so much better! I'm sure that everyone will be by to say hi and welcome you too.
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
[url=http://dragcave.net/view/xdyP][img]http://dragcave.net/image/xdyP.gif[/img][/url]


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/10/2009 7:50 AM (GMT -7)   

 

   Dear Angel_Who_Cares,

     Good morning! My name is Dani. It is very nice to meet you. I am glad that you found the Healing Well Community, even better the chronic pain forum.... Were the cool ones! yeah

     I am glad to hear you are no longer a pain patient. Mind my asking what was your diagnosis is? Many of us here have multiple chronic conditions. Multiple problems attacking our systems all at once. I have decided our pain must like company, other wise why invite so many other guests? Hehe

     It is re freshing that you are helping others in any way you can. I once read ~~> "Loving others can make the climb down easier." I believe this to be true.

     It was very nice to meet you. I do hope to get to know you better as time goes by.

*huggs*

dani


TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Angel_Who_Cares
New Member


Date Joined Sep 2009
Total Posts : 8
   Posted 9/10/2009 9:20 PM (GMT -7)   
Hi Sandi and Dani.
Thankyou so much for the warm welcome. Nice to meet you guys too.
about my diagnosis - As I said, I'm still not done completely. Ok, where do I start.... Let me take it from the beginning, one fine day I started having this bugging feeling in my lower back, not really pain but something very uncomfortable. I hoped it would go away but it started getting stronger. Then I found out that I was pregnant. I had miscarried on three previous occassions, so I was tense. As my pregnancy progressed, the feeling turned into pain... unbearable pain. So much that I had to quit my job. No body posture or time of the day was comfortable. It was as if something was constantly being stabbed in my lower back. Strangely, there was nothing wrong with me or my pregnancy as far as tests were concerned. I hoped the pain would go away once I was done with delivery and all but it persisted. I got all possible tests done, six sets of MRIs etc. Nothing was wrong with my spine or anything. But it was a torture to go on with my life. I couldn't sit, I couldn't lie down. No pain killer helped. I consulted as many as 150 doctors (can you believe it?). All one can do to get me relieved was to make me sleep. So I was on that sort of medication. The strangest part was that even the slightest air/humidity made the pain a lot worse. So no airconditioning (or even a fan) for me even in scorching summers.
Well, as I hopped from one doctor to another, I found a pain specialist who had done a lot of work in that field. Especially the pain that doesn't have any specific diagnosis. He first tried steroid shot on my SI joint and other things, which didn't work. As he kept on understanding the pain better, he singled out one particular nerve which had gone bad. Blocking that nerve did the thing for me. I had to take three shots. My doc is very hopeful that we won't have to go for radio-frequency denervation. But, you know, if required, that is an option too.
I would like to add one more thing here. Though I was doing everything I could in terms of medical science, holistic approaches helped me a lot too. Because of that episode, I am a better and wiser person now. I got to know myself and the life a lot better. I am into meditation and spirituality now and I strongly believe that that approach helped me find the right doctor, the right treatment ultimately.

Angel.
Everything is well in the end. If it is not well, it's not the end!


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/11/2009 9:29 AM (GMT -7)   
 
 
   Dear Angel_Who_Cares,
 
     Good morning *huggs* it is good of you to stopp by. How are you doing today? Good I hope? Im currently sitting on my rear end procrastinating!! Hehe
 
     I too recieve injection (injection series), just have them done regularly to help slow down damage and relieve inflammation.... They are a frustraing part of my "pain management", but needed.  cry
 
    Often the steroids are temporary relief (2 to 4months). As are "RF Burns" (6 to 8months~rarly some folks have permanant relief).  After you were able to pin point the specific "nerve" ~~~> 
 
As he kept on understanding the pain better, he singled out one particular nerve which had gone bad. 
 
     Was he able to tell you why the "nerve" had "gone bad"? I ask because you mentioned your X Ray was clean? I met a lady here once who ended up going to an internist (sp?) after the "spine" was ruled out as a "cause". But we never heard from her again shakehead
 
     And here I go chatting your eyes off!! Hehe, I need to get off my #2! It so hard when you have a whole  "community" of folks who understand. *sigh* like home  !! OKay!! Off to change the world! or..atleat MY world   smilewinkgrin  
 
*huggs!!*
  dani
 
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Angel_Who_Cares
New Member


Date Joined Sep 2009
Total Posts : 8
   Posted 9/14/2009 6:03 AM (GMT -7)   
Hi Dani,

Sorry, I could not reply sooner. Hope you are doing good today.

Nope, no reasons. That's the beauty of it. Lol! My X-rays have always been as clean as they could be. (As in "Sienfeld", they say, "The X-rays are all negative.") But when I am given the injection, it's under flouroscopy (X-ray) and the doc shows me the nerve (I just nod intelligently, dont really understand anything).
They say pregnancy brings about weird changes in the body, don't know what all goes haywire during that.

Perhaps you won't believe but I feel, that condition was also spiritual along with physical. Some karmic bondage with my son...

Anyway...

Huggs back,
Angel.
Everything is well in the end. If it is not well, it's not the end!


CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 9/14/2009 8:20 AM (GMT -7)   
Welcome to Healing Well! My names Chris. Crohns Disease, Asthma, Fibro and some minor things bring me to healing well. I think that anyone who can add to the conversations in the posts and forums is a plus for HW, its always good to get different veiws.

As far as you mentioning the holistic approaches. I dont post as much here in Chronic pain as I do in Crohns Disease, BUT I know lots of people use holistic approaches on Crohns Disease and Im pretty sure quite a few use it for Fibro, but ironically I myself have not seen that many people in this particular forum talking about holistic approaches THAT much. I mean we all are different.

about Radio Frequency specific microcurrent right? my pain management doctor recommended this for me, but we had changed my extended release pain medication from Oxycontin to Fentynal so I didnt need it anymore after that. But What is this 'RF Burns' I saw someone mention above? Ive never heard of any burns. I am going ot post this on its own post to try and learn more about it though, if you dont mind posting there also or jsut there please.

Anyways, Welcome again to HW, I myself and very glad your here to join us.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13481
   Posted 9/15/2009 12:32 PM (GMT -7)   

Hello Angel, and I too would like to welcome you to Healing Well. I am putting up with some medical issues of my own that prevents me from spending a lot of time sitting at the computer-so for now I am in & out here so to speak lol.

Its great that you finally found a dr that was willing to listen to you, willing to believe you, willing to work with you and willing to try to help you. I do not know why, but in the medical community, that seems to be a large problem with those people. This is problem that is growing in large numbers these days.

Many of us here on the forum have undergone many of the procedure routine, some of us it has helped and some it hasn't. It can be a real hit and miss type thing. I have done several of the injection type things, including having the R/F done on both my neck and back. It helped my neck pain incredibly and it also got rid of the soft balls that had been under my shoulder blades for years that no one could ever get rid of. I can't count the number of drs, chiropractors or physical therapist that tried, all without success. It did help my lower back pain for about 6 months and then it returned with vengence. We entertained the idea of doing it again, but my ins would not approve it. Instead we did several rounds of trigger point injections and that seemed to calm things down a bit. The bad part is all of this stuff is temporary, like putting a bandaide on it. But, sometimes if we are desparate enough, and many of us are, we are willing to try pretty much anything, I know I was. I was at the point if my dr had said go jump out that window over there it will cure everything, I may have really given it some serious thought. lol. Thats pure desperation.

I do hope you will keep posting and let us know how you are doing.


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.

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