Does anyone remember snowflake?

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White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 9/11/2009 12:18 AM (GMT -7)   
I was just wondering if anyone remembered Snowflake and if anyone knew what happened to her?
 
White Beard
 


Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/11/2009 12:38 AM (GMT -7)   
White Beard,
Yes! I do remember her. I haven't seen her post in a long time. To say she was facing huge challenges would be putting it mildly.

Snowflake - if you're still reading, please post and let us know how you're doing. You see, we haven't forgotten you!

PaLady

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 9/11/2009 12:45 AM (GMT -7)   
PALady

I started this post because I saw her name on the bottom as being on line here, I was hoping she would see this thread and post but by the time I got the thread started she was gone. But I did find that she has posted over on the Depression forum! I have sent her an E-mail in hopes she will come and visit with us here!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/11/2009 12:47 AM (GMT -7)   
That's great WB! Really thoughtful of you!

PaLady

snowflake
Veteran Member


Date Joined Feb 2007
Total Posts : 595
   Posted 9/12/2009 8:50 PM (GMT -7)   
Thank you i`m still with the land of the living but someday want out like a lot of people .
I`m not sure where i was the last time i was in this topic but in April i had surgery to remove the septum in my nose and the lining of my nose where the cancer was .
This i now regret as all i have had is one problem after another .The surgeon had repaired the septum with bone cartliage and skin grafting and within a couple of weeks there were problems .to cut the story short the grafting had died and was rotten ( explained the terrible smell i was experiencing .The gp out here had no answers but to put me on numerous courses of antibiotics ( mind you he never once looked inside to see why the thing was smelling ) in the end i went back and saw the surgeon who had to remove the grafting in his rooms ( never again will i go through that ) .
It seems my nose will never be the same oh i can smell alright infact just a tad too good the family hate me now as i have banned all deoderants and cleaning products from the house .I just can cope with the smells and the pain they cause even though the oncologist told me my smell will be considerably decreased well i`m stilll waiting .
I have no immunity in the nose now and have constant infections .
Nose bleeds well they are worse than before the oncologists tells me it`s because my nose can`t produce the normal moisture like a nose should so to get around that i have to spray normal saline up it every twenty  minutes but even that is still not enough .It`s going to be an interesting summer considering i live in a very hot dry area with little prostects of rain .
I am on Morphine twice a day and endone for the pain but most days even that doesn`t touch it .The surgeon tells me it`s nerve damage thats now causing it as a result from the surgery .
Most of all i am so depressed as to the look of it all the surgeon told me he would repair it if it did collapse due to not having a septum ( the middle part of the nose inside ) when i asked him last visit he told me he will reapir it when it totally collapses i`m not impressed one bit as it has collapsed considerably ( one little girl who had down syndrome told me my nose was ugly she was telling the truth ).
When i saw the oncologist a couple of weeks ago he said that the surgery to be done was extensive and it had to be done at a certain time all right for him to say it`s not on his face .
I`m due to see the orthopedic surgeon in a week or so as the arthritis in my back has been so bad the collapsing bones are squaching the discs causing them to press on the nerve which runs down my right leg .On several occassions i have fallen due to the problems this has been causing .With all this i just want out  i have had enough ..
I do not get into the forum that much anymore just sitting causes so much pain but then trying to stand up causes even more .I feel as though i`m 100 yrs old .I wanted my life back and all i see is it being taken away bit by bit .
Thank you Whitedeard for your concern and your email i will have to remember to drop in when i am home as all i seem to do is travel to see drs some are 500km away and the others are 900km away with fortnighly trips to see one or the other it`s been hard .
Snowflake sad

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/12/2009 10:05 PM (GMT -7)   
Snowflake,
I am so sorry for all you have been and continue to go through. I wish I had some magic words to say, but I know I can't really know all you're experiencing and I don't want to say the wrong words.

I try to put myself in your shoes, and I would probably have many of the same feelings you do. Yet you keep fighting, so something tells me there's a stronger part of you that wants to go on than maybe even you feel at the moment. I know it can't be easy - that's putting it mildly.

But April isn't that long ago, so there may still be a lot of healing left. I hope you can get more pain relief, though, because at least that might help make this period of time more bearable.

Just know I am thinkiing of you. And, for what it's worth, sending warm hugs your way.

((((((((((((Snowflake)))))))))))))

PaLady

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 9/12/2009 11:24 PM (GMT -7)   
snowflake
 
I am so glad you came and posted, I have read your other post in the Depression forum, I have so often wondered what had happened to you and how you were! I am so sorry that things have turned out the way they have for you! Like PALady I do so wish I had some magic words or something,  that could help you! I honestly am concerned about you! I have been since I first read your post quite a few months ago! I remember what a rough time you were having then! I felt so bad for you, and and I still do! I do understand your feelings, but PALady has sensed your inner strength just as I have, you are a fighter, and I sense that no matter how bad it gets, and when you think that you just can't go on and want to give up. You won't! You have an inner strength about you, that just won't quit fighting! I admire that so much!!! as I know so many others do too! I have seen some of the others post to you! There are so many people that suppport you! and you deserve all of the support you can get!
 
 Again I Thank-You for posting! I can only imagine how difficult all this is for you, with all your traveling that you have to do, not to mention what you have been through! Snowflake I am so concerned about you, Please be carefull when you travel especially when you drive!  I will keep you in my prayers and keep praying that you will continue to  remain safe and to stay strong and fight and win and that you will get better!
 
As hard as it is for you, Please do try an drop us a line if you can! I do Thank You for sharing  with us how you have been!
 
Peace be with You Snowflake
 
White Beard


Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Post Edited (White Beard) : 9/13/2009 12:28:13 AM (GMT-6)


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 9/13/2009 5:45 AM (GMT -7)   

((((((((((((Snowflake))))))))))))))

You are in my prayers!!

XXOO
Patti


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 9/13/2009 11:12 AM (GMT -7)   
Awe Snowflake
Prayers and well wishes being sent your way!
Lots and lots of soft hugz...
((((((((((((((((((((((((((((((((((Snowflake)))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 9/13/2009 11:37 AM (GMT -7)   
Snowflake thank you so much for taking the time to post. I know how hard it was to sit and type this to let us in on what is ging on in your life. I really cannot add anything more than what has already been spoken. You are a fighter no doubt. When you get a moment from time time and feel up to it, please let us know how you are doing
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.

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