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Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/11/2009 12:49 PM (GMT -7)   
Hello! Im new here and not sure what Im doing is the right thing for me. I have degerative disk deasise, very sorry for the poor spelling! Im on Percocet #10 two a day and its not getting the job done. My doc is sending me to a pain management doc. I do not want surgery, so is this the way to go? Hurting here!

CrohnsPatient
Regular Member


Date Joined Feb 2008
Total Posts : 314
   Posted 9/11/2009 2:47 PM (GMT -7)   
You say you take 2-10mg percocet? Im assuming their 10/325mgs then. Thats actually not that much. its actually only have that the average person gets. not what a chronic pain patient uses normally. the average person when in pain will get to take up to 8-5/500mgs which comes out to 40mg a day, and your taking 20mg a day? so I wouldnt worry about going up, especially if they allow you to or bring it up, because I know that I wouldnt jump to a major surgery when Im only taking half of what the AVERAGE person takes for pain. Just my opinion. to me its almost like not trying any medications for an illness then just opting for surgery before trying medication. Doesnt it almost seem like that to you?

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/11/2009 3:02 PM (GMT -7)   
Hi, ScreamingEagle,
Welcome to the Chronic Pain forum of Healing Well. This is a great place for support, although we're not doctors and can't give medical advice, we can share our experiences.

There are many, many things to try before surgery, especially if your only diagnosis is DDD. Actually, pretty much everyone gets degenerative disk disease as we age. But there are many things like physical therapy (and a number of modalities that physical therapists use), massage, acupuncture, along with a variety of pain medications that can be tried. So yes, I think going to a PM doctor is the right direction, and also ask about a referral for physical therapy - if your doctor thinks that's appropriate.

Others will probably be along to add more.

Hope this helps a bit.

PaLady

Hara
Veteran Member


Date Joined Mar 2009
Total Posts : 900
   Posted 9/11/2009 4:21 PM (GMT -7)   
Screaming Eagle said...
Hello! Im new here and not sure what Im doing is the right thing for me. I have degerative disk deasise, very sorry for the poor spelling! Im on Percocet #10 two a day and its not getting the job done. My doc is sending me to a pain management doc. I do not want surgery, so is this the way to go? Hurting here!
 Screaming Eagle, I also have what you have and i've asked several doctors what degenerative disk disease means and each one I have asked has said, "Arthritis." I just found out I have it in my neck from C5-T1 and L5 down to my tailbone. I'm on Indomethcin and Baclofen. I don't even have Perk's anymore. I am feeling better after only being on the Indo and baclofen for 2 weeks.
Perk's stopped working for me to. So I had to resort to something different. I would have you DR get you on an anti-inflammatory and muscle relaxer. Just suggetion.
HARA

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 9/11/2009 7:40 PM (GMT -7)   

Post Edited (mrsm123) : 9/17/2009 9:03:09 PM (GMT-6)


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 9/11/2009 9:14 PM (GMT -7)   
Screaming Eagle

Welcome to the Healing Well Chronic Pain forum! You have definitely came to the right place if you are having problems with pain! We can't fix of course, but we can listen to you and support you, and if nothing else sometimes it just helps to know that you are not alone in all this! Seeing a Pain Management Doctor is an excellent idea! I can not praise mine enough! A good PM can change your life and make it so much better for you! PM Docs just don't give out pain meds but they evaluate you and determine what is best to treat your pain, maybe epidural steroid injections might help you, or possibly a TENS unit, or even PT a good PM Doc has a whole big bag of tricks to treat pain with! You might be pleasantly surprise at all the things they can do. Who knows maybe your PM will want more test done to more accurately determine how to treat you? Anyway I do think seeing a PM Doc is a Good thing!

I do hope you keep posting and let us know how you are doing!
Good Luck to You!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 9/12/2009 11:14 AM (GMT -7)   
Yes, seeing a Pain Management doctor is the right step. Give this one a chance and if s/he doesn't do anything to really help then find another one. Like everything there are good ones and bad ones.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 9/13/2009 1:34 PM (GMT -7)   
Hi Screamin and welcome to Healing Well. You have come to the right place because all of us here suffer with CP. It more or less takes one to know one when dealing with CP.
I am sorry to see another person afflicted with this disease but please know that you are not alone, there are many of us out there in the same shoes.
 
A pain mgt dr is a really good direction to take when dealing with CP. Those drs are better versed in what meds work the best for pain. Some times it takes a combination of medications to be effective or just one medication. The dr has to find what suits you the best in controlling your pain. We all react differently to medication so we really cannot say one drug helps us all. Many times a dr may do procedures in addition to medication and some pain mgt do procedures only. Be sure to find if the pain mgt dr rx's medication too.
 
Keep us posted on how you are coming along. When is your appt scheduled?
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 9/13/2009 7:50 PM (GMT -7)   
Hello Screaming Eagle,
I think going to a pain management doctor is a step in the right direction and I would not worry about surgery just yet..
Probably the first thing you'll have done is MRI's to see what is going on, so don't worry just yet...
nice to meet you sure wish it was under better circumstance and for now I'll offer up soft hugz
and lots of them and post back when you can...
((((((((((((((((((((((((((((((((((((Hugz)))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/14/2009 8:31 AM (GMT -7)   
Thank you all here! This helps my mental decission! I have had multiple MRI's and at least 5 epidurals. I pretty sure now this is the right direction to go. I have been told many times that surgery is the last resort and to avoid it at all cost. I know there are many of you with conditions a lot worse than me. Blessings to you all! Its wonderful that I now have a place to come and share and compare! Thanks!

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/14/2009 8:33 AM (GMT -7)   
Again Thank You for all your coments! I cannot tell how wonderful it is to be able to talk to people who are going through this!

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/14/2009 9:32 AM (GMT -7)   
Just got a call from the doc, and appt is this thursday. I think this is good news as I need some relief. Sitting is what hurts the most at L4 & L5 in my lower back.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/18/2009 7:48 AM (GMT -7)   
went to PM Doc and said my PCD did not have the paperwork filled out correctly, so they refused treatment. It all has political undertones as the Docs know each other, and I could tell that the PM had reservations about the care I had been getting. So right now I continue to suffer here. One thing I did notice, was that they are a very strict office with lots of rules and contracts to agree to.

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 9/18/2009 2:08 PM (GMT -7)   
 
 
Hi, and welcome to the forum...Sorry to hear that you're suffering.  I don't understand why most Dr.'s only give meds that are for short-term pain relief...When they know that it is not a short-term problem... Ask for something that is long-term....
 
Me.

I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 9/18/2009 2:15 PM (GMT -7)   
Welcome Screaming Eagle. You are correct there are alot of rules and contracts with most PM clinics. It kinda comes with the territory. I remember doing my paperwork it took me over a month to get an appointment.

Just take long and deep breaths you will get through this. We here on HealingWell will be here for you every step of the way.

Best wishes
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 9/18/2009 3:47 PM (GMT -7)   
Oh Laurie I too remember the first time I had my appt!!! I was drowning in paperwork for two weeks and when I finally finished it I swear I wanted to scream cause my wrist hurt soooo much from all the writing LOL!! It was a full month and a half before my appt came along and I had to get my pain meds from my MD, which as you all know are stingy when it comes to dishing out pain pills for anything!

Screaming: Just wanted to welcome you to the forum. I am so sorry that you have to join us here on the CP boards. It's very sad to know just how many people are dealing with CP and makes me want to cry for each of you. But....you will find a sea of listening ears to help when the pain is bad and a wealth of knowledge that will aide you in decisions. But do remember that we are not doctors here. All we can do is give you our experiences. That said....I do want to welcome you aboard and tell you that I had S1 through L4 fused and know the pain that you are experiencing.

Hugssss and hope you stay.

Scarred
What doesn't kill us only makes us fight back harder! :P


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 9/18/2009 4:14 PM (GMT -7)   
when, I go to a new doctor I usually have them mail me the paperwork or my husband will go and pick it up,
so I can have time at home to fill it out, without all the pressure, makes it a little easier..

call your PCD and ask why your forms where not sent and why or go in person, but be nice to the receptionist,
sometimes those receptionist well they hold a lot of power...

I agree with scarred it makes me sad to know just how many people have chronic pain...
oh and please don't worry about spelling errors, post anytime you need too, sure
hope you can get a low pain day..

Lots of soft hugz...
(((((((((((((((((((((((((((ScreamingEagle))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 9/18/2009 5:40 PM (GMT -7)   
Hi Screamin so sorry to hear what happened at your appt. But, lets hope its all worked out soon.
 
Yes pain mgt dr are strict when it comes to their patients for many reasons. Not every patient that walks thru their doors are legitmate patients. Some are there to get scripts of meds to sell and do illegal acitivity with, ok. Thats why the strictness. Most pain mgt will require you to sign a Contract and be sure to read it very carefully. Do not take this personal this is something that is part of his office policy. It will state things like you will use only one pharmacy, you will not obtain pain medication from any other dr, random UA's, they will not fill pain pill refills early, thing like this. None of this is directed at you totally. Alot of this is to cover the drs behind as well. Most people that are drug seekers use more than one pharmacy, see more than one dr, go to many different ER's seeking pain pills, things like this. Pain mgt drs try their best to weed those type of people out of their practice but every now & then one will slip thru.
 
Did you find out why your PCP did not have your paperwork there? I know sometimes my PCP says they will send my records to the dr, then I get there for the appt and they have nothing. GRRR.
 
Let us know how its going.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/21/2009 8:38 AM (GMT -7)   
Well, now my PCD is fighting with the PM office over paperwork, all the while im sitting here in pain. Guess they got into a shouting match, so now Im a little concerned about my treatment once I get in there, if i do! confused

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/21/2009 8:41 AM (GMT -7)   
I took myself ofF of my meds for 24hrs to see if I was hooked on them, and all I got was more pain. so I guess Im ok right? cry

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 9/21/2009 8:41 AM (GMT -7)   
What is the problem over, copies of medical records? Its very reasonable for the pain mgt dr to want to see your prior medical records. What exactly are you being told?
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/21/2009 8:50 AM (GMT -7)   
they say they will not take on new clients who are already in a pain magement program of which Im not. But because I have had several epidurals from another doc, they claim that is a paim management program. Also my PCD did not check the little box that says to treat me for pain management. My PCD says their making way too big a deal out of this. shakehead

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/21/2009 8:52 AM (GMT -7)   
Im stuck here in the middle, and do trust my PCD. I do not want to burn any bridges with him.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/21/2009 8:55 AM (GMT -7)   
My PCD will only go so far with pain meds and he is at his limit with what he will give me. #10 325mg Percocet. I take one at 6:00am and by noon Im in trouble with pain again, and have to wait until around 5:00pm to take my second one. Only getting two a day. I have been on these for 2yrs now. When I first started taking them, they were the trick, but now not as effective

Post Edited (Screaming Eagle) : 9/21/2009 10:02:19 AM (GMT-6)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 9/21/2009 9:35 AM (GMT -7)   

Eagle, can your PCP refer you to another pm dr? It sort of sounds like they are trying to make a mountain out of a mole hill. If they were needing to know if this was a consult only why not have someone call the PCP & ask instead of screaming matches, makes no sense. I can see why you would be a little concerned about seeing them. So what if you have had eppie's in the past, big deal. The more I think of this the more I think I would ask for a different PM dr. They seemed to be way too controlling. Not a group I would be willing to see.

Can you call your PCP and ask them to find someone else? Its sure worth a call. Meanwhile you are stuck.

Its not a good idea going off of your meds w/o drs supervision. There is a big difference between tolerance to a medication versus addiction. Tolerance means simply the medication is no longer working and either an increase is needed or a change of medication. I become tolerant to my blood pressure medications. After being on the same ones for a couplr of years they stop working, same with my antidepressant. Addiction is the people who take the medication for highs, not for medical purposes, big, big difference. A person addicted see's more than one dr, will obtain the drugs illegally, uses multiple pharmacies, they will even use bogus names. Some obtain the pills to sell on the streets. But those people are not taking the drugs for medical reasons, please understand this. In fact, recent, studies have shown CPer's do not become addicted to their pain medications, as long as they take their medications as prescribed even when used long term.

None of us like taking pain medications, but for many of us this is the only way we can have some semblance of a life. This does not mean we are addicts or hooked on our medications.


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.

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