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Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/17/2009 6:27 PM (GMT -7)   
 
 
   Greetings :-)
 
     I hope everyone is doing well. I have tried to catch up on my reading, but it seems, I have missed alot. *WARM HUGGS*
 
     First, a big "Thank you!!" to those who have emailed / messaged me. I do appreciate your support greatly! These last few days have been very hard on my soul, and I simply cannot put into words how much you all mean to me *warm huggs*
 
     I have finally, sucessfully, gotten my steroid injections. The degeneration of the bones in the spine has spread. *deep breaths*
 
       I still have a very persistant fever... along with other , odd, ailments. Veins "bursting / deep red brusing" in the leggs along with severe swelling of the leggs. Increase in swelling of joints throughout my body, but! On a positive note, I am becomming quite proficent in writing with my left hand. I now have a multitude of "black spots" in my left eye now, perhaps it felt left out and wanted to match the right. Again, on a positive note... I am no longer so afraid of flying buggs.
 
       Unfortunatly I have been loaded up with a concophany of doctors appointments yet again. Some with scarce time to travel from one ~~>to the next. My heart feels heavy. I had hoped and prayed the damage would stop. I wanted it so much... when the steroids were done and the injections had to be done even higher. Well? LOL? I felt betrayed some how. Silly? Perhaps... But Oh , I dreamed so much, and wanted it to stop so much. I dreamed of it, I dreamed of, just thought that maybe, just maybe. I want so much for the bone loss / degeneration to stop. Now, can no longer ingore the slowly progressing "other" ailments which started so seemingly small just a few months ago.
 
     I will not faulter. I will not stand down. I will embrace this too, thou my heart feels so very overwhelmed.
 
        ....and as awful as it may sound, in the back of my mind, all I can think?
 
~~> How did it come to this?
 
     Perhaps, with this "renewed" approach the "bone loss" can be treated more effectivly. Dare I even dream of the other ailments being treated too? A diagnosis? *sigh*  I find myself fast becomming allergic to men in white coats.
 
     Again!! I thank you all for your love, care and support. It means so much to me.
 
     *warm huggs*
         dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 9/17/2009 7:45 PM (GMT -7)   
Dani

Do you have a Diagnosis? Do they know what is causing the bone loss? I did not know that it was that bad? You are quite young to have such things going on in your body right now! Have you been to any specialist or any thing? I do hope they can find some treatment for you! Is this problem with the blood vessels breaking and and everything else all part of this thing that you have? You know I do wish you well!

Good Luck to You!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 9/17/2009 7:51 PM (GMT -7)   

Dani,

We have missed you! 

(((((((((((((((((DANI))))))))))))))))
 
XXOO
Patti

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 9/17/2009 7:59 PM (GMT -7)   
Hi Dani:

I'm sorry I haven't been around much - been going through a rough time myself, but I just wanted to say that I am so sorry for all you are going through! I hope that the doctors are coming up with a diagnosis or at least a way to stop the progressive bone loss. You are one tough lady!

I totally understand what you mean when you say that you feel your body is betraying you.

How are your husband and children doing with Mom needing to take some time to take care of herself right now? I hope that they are able to be a help to you.

Your whole family will be in my thoughts & prayers. I hope that you are feeling better very soon!

Lorie

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 9/17/2009 8:22 PM (GMT -7)   
Hi Dani,
So sorry to hear your bones are still misbehaiving. It sounds so dreadful. Are the steroids doing anything? Is it an auto immune thing going on?
Can you still see despite your black spots? OK enough questions! BIG BIG BIG HUGS!
You bring the most glorious humour into our lives, I just wanted to say I love reading your posts, your jokes and seeing that green text.
Best best wishes, golitho turn

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/17/2009 9:52 PM (GMT -7)   
Dani,
I, too, have missed you, and was just thinking about you and Skeye today, because I hadn't seen a post from either of you for awhile, and I see both of you have posted today. I wish you had better news, but I will continue to hope modern science has breakthroughs for young people like you and Skeye and others. It's so unfair to be saddled with so much!

(((((((((((Dani))))))))))))

PaLady

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 9/18/2009 6:55 AM (GMT -7)   
Dani
you we're missed, and I hope those steroid injections will help bring some relief to you!
Lots and Lots of big soft hugz..
Keep us posted as to how your doing..What's the up-date on the teeth???
(((((((((((((((((((((((((((Dani))))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/18/2009 9:19 PM (GMT -7)   

 

   Dear White Beard,

     Good evening! Thank you so much for your reply. I really appreciate your support. How are you doing? Is the pain in your neck /  back somewhat tolerable tonight? I sure hope you are able to find atleast a little comfort tonight.

     You had alot of questions, so im gonna try to answer them all :-)   Unfortunatly, no, I do not have a diagnosis yet. But they are working hard to find answers. Yes, it is severe bone loss. In less than two years time I have lost much in spine mostly, but have learned in the last 6months that "it" attacks all areas of the body (teeth , etc.) All joint areas are severly inflammed. Which is why my doctors must remain in constant contact and must work effectivly together. Yes, I have many specialists, all very skilled in their respective feilds. Spine specialists, endocronologists, eye surgeon, oral surgeon, etc.... And apparently a few new folks who I will meet this month. Yes, I too dream and hope of effective treatment and diagnosis. I fear I havnt much left to "crumble" to then have "remove". Though my body has decided to age at an extremly rapid rate I assure you my heart knows no bounds and no age! :-)   The "mounting / growing" issues with my leggs came on very recently. As did the "severe" bone loss in the other areas of my body (IE: I lost all my teeth in 3 months flat, for example). I found out that the rate was very high, then the next week joined you guys here at healing well in June 2009. I cannot put in to words what a comfort everyone here has been. At times I feel alone and frightened, but, then I come here and well... Im sure know what I am trying to say.  :-)

     Thank you so much for your kindness and support. It means so much to me.

 

   Dear Patti,

     Hey there! *huggs!* How are you doing? I came across another funny joke the other day. Hopefully I will remember to post it. I missed you too terribly! But after each surgical I have to take those dreaded meds that give me a case of the "lights are on, and noone is home!". Hehe I sure do appreciate the huggs!

 

   Dear Lori,

    Evening! How are you doing these days?? Dont worry about not being around much! I have been scarce myself :-)   Oh! You know my bumblebees have mommy talking like a pro now. Youd never know I just had all my teeth removed. Ill have to send a thank you note to Dr. Seuss! Oh, they make my heart smile as always :-) Thank you so much for your prayers and care. It means so much! *warm huggs!!*

 

   Dear Golitho,

     Good evening! How are you doing? Are you getting ready for Halloween? My girls are buzzing with excitement! I will have to bugg papa bear to dragg out our decorations soon :-)

      You had alot of questions and im gonna try to answer the best I can :-) I have steroids injected to relieve the inflammation in the spine. When it is out of control I have to consume alot of protein because my body burns up so much trying to accomplish seemingly small tasks. Yes, the steroid series are very helpful. I have been tested for many differant auto immune but have not turned up positive. Yes, I can "see". about 4 months ago I had a protein broken up in my right eye, but they knew and expected at the time that the "spots" might increase and would also effect the other eye. They were just waiting for me to "say so". When the protein was broken up out of the right eye, I had 3 very small black spots. Now they are in both eyes. Say 10 or so in right  and now 4 in left. Very small.  Again, as with everything else, it seems this too, was expected. I feel, at times, that Im the last to know.

      Your constant and unwavering support makes me wish more than anything that I could jump through the computer and tell you, in person, how much it means to me. Thank you so much! *warm huggs*

 

     Dear PALady,

     Hi there! I do hope you are relaxing this evening. How are things going with your tooth? .. I probably shouldnt ask since ill hopefully, catch up on the rest of my reading! but *warm huggs* And gosh, thank you for your kind words. I too, believe with all my heart that modern technology will soon provide the breakthoughs needed to effectivly treat someone in my position (dare I dream in my life time?). I do want you to know that though things are still progressing, the "inside me" is doing okay.

      I have reasearched ways to package my jewlery and a found trading company that will sell at the "bulk rate" to me for my supplies. I really hope that I will be able to atleast help with the grocers bill at first, small stepps. But feel like really big goals for me. I am excited to be able to truly delve in to selling my jewlery come the new year.

     You always have a way of bring a calm despite a hecktic world. Thank you so much for your care and understanding.

 

    Dear Chart,

      Hey There! *huggs* What are you up to? I am enjoying sitting on my #2 :-)   I might dip into the valerian root tea soon, its so nice to catch up with all of you.

     The injections have brought the stiffness and pressure, with moderate ache, thank goodness! It is nice to breathe :-)   The fatigue has loosened its gripp aswell. The oral surgey was doing good, or so I thought... But, since the bone loss continues, there is debate over "plain jane" dentures til the bone loss can be effectivly controlled. Do not worry thou, my husband answered the phone for that one. Good thing to, the moment I heard.... you know I turned to mush and just cried. But! I remain hopeful, and it seems, my bone loss and "other symptoms" are going to be approached with new doctors in the mixx. Perhaps this is a blessing in disguise?  So far thou, the jaw is "not showing signs of detioriation yet". *deep breaths* I have not lost hope the bone loss will eventually be controlled.

      Thank you ALL so much for your support. It truly makes my heart smile. You ALL seem to make each step of this sometimes frightning journey easier. *warm huggs*

   *warm huggs*

       dani


TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 9/18/2009 11:46 PM (GMT -7)   
Hi Dani:

It was so nice to get an update on your condition. I can tell that you are down (but not out), and I really appreciate the tremendous effort I know it must have taken to reply to each of us individually!

I just wanted to tell you how much I admire your strength - I can't say that I know exactly what you are going through, I know just the problems with your mouth & teeth can be so overwhelming. Because of being terribly sick (vomiting morning, noon, & night) through 3 pregnancies and then with a condition called gastroparesis which took the doc's a year to figure out and diagnose, all of the acid in the vomit ate the enamel off of my teeth, and despite having every tooth in my mouth root canaled and my being diligent in caring for them, I lost all but 3 up top, and 7 teeth on the bottom.

I went several months basically toothless, I got lots of shocking stares, and I just got the partial dentures about a month ago. After a couple of adjustments, they became tolerable. Since the top ones are only held on by 3 teeth that are over to one side, they constantly fall out and I have to keep pushing them up into place. I am going to get one of those "fixodent" type adhesives which I wasn't supposed to need, and see if that helps hold them in place better.

I wish I could have afforded implants, but they are just so darn expensive (I was quoted minimum $30,000) and I know what you have gone through is pure hell. They say they are worth it in the end, but I know for 6 months - 1 year, it is just plain a living hell. My hat's off to you!

I was wondering if there is somewhere where I might be able to view some of your jewelry. A few years back, my home nurse told me that I needed to find a hobby to take my mind off of the pain, and I got into making bracelets out of hemp, then I started adding some beads, and then I started making bracelets out of beads. I've made several hundred bracelets/anklets and a few necklaces. So far, I have just given them away, but everyone has really liked them so far.
I've gotten away from doing the beading, but I'm trying to get myself back to it. At one time, I was going to try to sell some on Ebay.

Anyway, when you are feeling up to it, if there is any way to take pictures of them and put them on-line I would love to see some of your work.

Again, I hope you are feeling much better, real soon.

Lorie

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/19/2009 7:53 AM (GMT -7)   

 

 

   Dear Lori,

     Good morning *huggs* it is good to hear from you. Your replay warmed my heart, I appreciate it so much! How are you doing this morning? Good I hope? I am glad it is morning here, the cold weather has come so suddenly and the evenings are down right chilly.

     I was supposed to get "astra mini dental implant system" much cheaper than "regular implants".  So, I was / am a bit sad by that.

http://www.astratechdental.us/Main.aspx/Item/782390/navt/72677/navl/72678/nava/72679

Much more cost effective.

    Well, I was going to try to upload some photos via the hey hubby gallery, but it seems ive lost my login information, again. So, instead, I will open my profile on "My Space" to public view. Just click on the "|pics|" portion under my photo and you should be able to view a few photos I posted over the summer. I think they are on page 2?

http://www.myspace.com/danihenson

    The jewlery was originally part of my treatment plan. It was one of the many things / goals I had to accomplish for pain psychologist. (distraction hobbie that isnt "physical") I would have never guessed in a million years that it would make me feel so complete and whole.

      Thank you so much for , well, being here. It means so much to me *warm huggs*

*huggs*

dani

    


TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/19/2009 7:57 AM (GMT -7)   

 

   Dear Lori,

     I tried to make my profile viewable by the public, it didnt work I dont think. It is, however, allowing me an option to send private link via email. I know that email address are very private, so if you would rather not share that with me, I completly understand.

   *huggs*

     dani


TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 9/19/2009 8:11 AM (GMT -7)   

Good morning Dani,

As usual I am behind on things here at the forum. I was wondering what was happening in your world. I am so glad White Beard asked if you had been given a diagnosis because I had planned to ask the very same question lol. What a an odd thing to happen so suddenly all of this "bone loss" and no one knows why. So, you are a medical mystery to your specialist.

I am still having to limit my sitting at the computer and after seeing the vascular guy I guess its going to be limited permanently. Have they mentioned osteoporosis or anything like that???

My heart goes out to you having all that dental work done, it is so painful I am quite sure. One thing I have not had alot done is teeth being pulled but remember the wisdom teeth being cut out really well. Not a good experience.

Take care and keep us posted when you can, you have alot going on.


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/19/2009 8:56 AM (GMT -7)   

 

   Dear Susie,

      Morning! *huggs* Thank youf or stopping by! I am so sorry to hear that your problems are getting so bad. shakehead   I hope you are able to find a little comfort today. I appreciate your endless amount of knowladge for all things "medical". Everytime I feel confused, there you are. Sharing all the knowladge you have reguarding anything. Thank you so very much.

     Yes, when I first met the endocronologist fellow (..4 or 5 months ago?) he sent me all over town for all sorts of tests. The easy "blood" ones were for various "thyroid". Apparently, when my regular specialist, and doctor did these tests they kept comming back extremly low, then months later.. very high, ec. So he wanted those all over again. He also sent me into the city for "in take" test for something called a para thyroid. That wasnt so bad, but took few days out of my schedual. It is silly, but I read about it on the internet at the time, and had hoped that would be the cause, becuase there was a way to "fix". So, when those came back within normal limits, he seemed greatly confused by this. And again, his blood test were opposite end of spectrum, again. I am due to give him more blood monday. The "body" doctors had to slow down and take a back seat, so to speak, so I could get the oral surgery done. Now that the major oral stuff is over, for a little while at any rate, they are back to testing with full force.

     The oral surgery wasnt quite so bad. But!! I think that if someone had told me, then, that that time was to be my "physical doctor vacation" so to speak... I would have found a way to enjoy my time a bit better. But!! I was able to complete many jewlery sets and that always makes me feel complete and accomplished.

      I want so much to show you how much your care and support means to me. Thank you so very much. *warm huggs*

*huggs*

   dani


TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 9/19/2009 9:13 AM (GMT -7)   

Dani,

Yes, my rheumy sent me for the para thoid test the very first time I saw him (expensive test). The lab people are so use to him ordering every lab possible. Should have named him a vampire of some sorts lol. He sends me for labs every 6 weeks because the liver need to be check once again because of the lovely medication I am on lol. Dental work and you are making jewelry, well if nothing else, I am sure it did help get your mind off of things in a way. I, like you, do better if I can keep my myself busy even if I am not feeling very good. Its just best if I am ocuppied doing something. I am trying to come up with a new hobby with winter coming. I become a hermit because my immune system is shot due to various medications. The drs tell me to stay home inside. I use to crochet but cannot use the hands like that anymore, arthritis and carpal tunnel in both, can't hold a dang crotchet needle.  I would truly love to start sewing again, its been a few years and I love doing it-but the eye sight is another problem. I cannot see well enough in artifical light and must have natural lighting. So, I am just not sure what i will come uo with lol.

I do hope they can come up with answers soon. Are you on any mega vitamins because of this bone loss? Have they found much arthritis in your joints? Sorry, asking too many questions,lol. Take care.


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 9/19/2009 6:28 PM (GMT -7)   
Hi Dani:

I didn't look far enough down the page to see that you had posted a second message, so my son sent you a friend request through his myspace and he thinks if you don't mind accepting it, I would be able to view the pictures through his page. I don't mind one bit sending you my e-mail address, so if you'd rather do it that way, just let me know.

I'm still having a pretty rough time of it - I just started a search for a new PM doctor, since mine is just not willing to make any changes to my meds no matter how bad off I am.

I also just went through quite a scare - I had found a lump in my breast, and after a mammogram, I was told that there were 3 "suspicious" areas that needed biopsies. I was scheduled to have the biopsies done in the operating room last week. A radiologist was supposed to pinpoint the suspicious areas by mammogram and put a guide wire in my breast to show the surgeon where to go. For 2 solid hours I had my breast stuck in a mammogram machine while the radiologist was taking pictures to help him decide where the wire needed to go, and she could get one view that showed her the spots were there, but she could not get the 2nd view to show the depth of the spots.

To make a long story short, the person who did the original mammogram took the same view twice, and labeled them as 2 different views, and the spots they were seeing were just under the skin, not in the breast tissue as the radiologist had reported, and when they are just under the skin, they are always benign.

My family and I went through 3 weeks of being scared to death, I spent over $300 in co-pays for surgeon's appts., pre-surgical testing, etc., and my husband had to take time off from work, all because this person "mislabled" a film.

I hope you are having a low pain day! I look forward to seeing your jewelry pics.

Lorie

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/19/2009 6:57 PM (GMT -7)   
Lorie,
OMG! I am so sorry you had to go through this. As if two hours in a mammogram machine (guys, think of putting various parts of your anatomy in a vice) wasn't enough, all the anxiety and the money! Is there anyone you could talk with to try to get some of these costs refunded? At the very least, maybe write a letter to a supervisor to tell them what you were put through.

(((((((((Lorie)))))))))))

And for Dani, hugs, too!

(((((((((((Dani))))))))))

PaLady

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/19/2009 8:16 PM (GMT -7)   
 
   Dear Susie,
 
     Good evening *warm huggs* How are you doing tonight? Good I hope :-) Atleast somewhat relaxed? :-)   My family is all sedated with fajitas and tacos right now. It is nice to have a moment of quiet. :-)
 
      I am sure that no matter what you create, it will be beautiful! I too, cannot sit "idle" for too long. I dont know about you, but I hear quite often "just relax" or "don't worry about XXX". I wish I could make those around me understand that I NEED to fuss and clean and create. *sigh* I suppose I wouldnt really want them to understand afterall.
 
      I have recently had issues with type of light aswell, but, my husband bought me some... lemme ask him.. "Halogen lamps". They get very hot. So,  they make me a bit nervous. But OOooo it is nice to see clearly.
 
      I dont mind questions at all! *huggs* Yes, I take 50,000 vitamin D IU once weekly, and it was supposed to stop the bone loss.  I began taking it almost 4 months ago? I am sure they will have more ideas. Yes, I have been tested for arthritis many times, and for some reason they continue to re test it? They call it an "arthritis panel".  But, it is just more "blood test". I do have many "arthritic areas".  Most in my spine where the levoscoliosis / degeneration is.  I have a funny feeling I will find out soon, just how much more damage has gone on in the rest of my body, while I was busy getting dental issues taken care of.  At times, I wish I had "One super doctor". Instead of all these folks only trained in specific areas. Not only is it financially draining, but at times, physically taxing aswell.
 
      And here I go chatting away! *warm huggs* 
 
   *huggs*
      dani
 
    
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/19/2009 8:35 PM (GMT -7)   

 

   Dear Lori,

     Good evening *warm huggs* I am very glad you stopped by. How are you doing tonight? Are you able to relax a little? I sure do appreciate hearing from you. I am sitting firmly with warm tea and great company, so I simply couldnt ask for more *huggs*

      I hate to hear you have to find a new PM after having to spend so much on the "new specialist" doctors / surgeons. With a new PM, I am sure, will come new fees. THAT you really dont need or deserve. I have such a hard time digesting that medical care is truly a "business". I mean, yes there are those who "help" and yes I understand that they too have bills to pay.... But goodness must we make such huge sacrafices just to survive? I was so nieve to it all just a few years ago...

     Though I am glad that they were finally able to attain answers.. !!!To go through so much?!?! You MUST be exhausted, inside and out *warm huggs* I agree with PALady. If there is anyway atall to recover some of the fees, it would be worth a try. Though I do not know how someone would go about doing it.

     I did get the friend invite and accepted it. I am very sorry I wasnt able to figure out the privacy settings. Just when I think I know it all... here comes my 8yr old daughter with her "fairy tale power point presentations" to remind me, she really is far more advanced than I am. *sigh* I hear from her "Oooh MOOOOOM! Not like THAT, like this!" "Dont you know ANYTHING about computers?" She sure does make my heart smile :-)

     How do these replys end up so long? Good company I think *warm huggs!!*

*huggs*

  dani


TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/19/2009 9:24 PM (GMT -7)   
Dani,
That is so sweet about your daughter! Power point at age 8! She's ahead of me, too! WAY ahead!

Hugs,

PaLady

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 9/20/2009 4:24 PM (GMT -7)   
Hi Dani:

I absolutely love your jewelry - it is absolutely beautiful! If you don't mind me asking, where are you going to sell it? As I told you earlier, I was making mainly bracelets & anklets, and a lot of it, I gave away, but I remembered this morning, after showing my brother-in-law what I was making, he asked me for several pieces and took them back home to a little cafe that had a small gift shop and asked if they would be willing to sell it, and the owner was thrilled to.

She charged $8 - $10 depending on how elaborate the piece was, and she sold them all in a matter of days. She kept 20% I think, and was very interested in continuing to sell them, but my brother-in-law never followed through and it was too far for me to travel to bring them to her. I just thought I'd mention it as a possible avenue you could look into if you have any small shops in your area. I hope that you will find an avenue on-line as well, as I'd love to see more and would definitely be interested in buying a set.

Thank you for allowing me to vent about my experience with the "cancer scare". I am going to write a letter to my PCP, as the original mammogram was done at his office. He has every kind of "specialist" available through his practice as well as the ability to do any kind of test/procedure the hospital does - the only thing he can't do that the hospital can is admit patients or do major surgery. I don't think he will reimburse me for any of the cost I incurred, but hopefully I can save someone else from a similar experience.

I can just picture your daughter chastising you about the computer - I used to teach computer courses before I became totally disabled, and still my children know much more than I ever will.

I hope you are feeling better! Lot's of soft hugs to you!

Lorie

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/21/2009 5:35 PM (GMT -7)   

 

   Dear Lori,

     Good evening *warm huggs* How are you doing today? We are good here, but after a full day of testing I am a little tired.   :-)  

    Thank you so much for your wonderful compliments! It makes me want to work that much harder at it! When I first approached my husband about selling it.. I had thought, perhaps, an out door flea market. But, I dont know what I was thinking! Soon my friends and nurses reminded me that physically, I wouldnt be able to do it that way. Then, another friend, said he was able to sell all sorts of stuff on a web site call Craigs list. I was sure he had lost his noggin, that is where that man on the news stalked his victims. Then!! My husband said he would build me a website or, if I wanted to start small, start an EBay account. But!! I like your idea much better! When I spoke with my friends they all said "Oh! Yea! Con signment shopps can help you sell!" .  So, thank you so very much for the idea. I will have to give that some serious research.  I really want to contribute, you know, financially. Even if it only helps with the grocery bill, that would suit me just fine. My husband says I do more than he could dream and "Do the jobs of 5 people all in one" but, I think he just says that to make me smile. Reguardless! You guys will be the first to know! :-)

     We have a "care center" here too. They are still opening up testing areas, and working out the "kinks" so to speak. So, more often than not, I am sent to the city for specialists. I think your on the right track as far as making sure other people dont have to go through the same heart wrentching process. Maybe an amendment to their policies, or having someone else "over see" / "double check". Initally when I went to our "care center" here a few years ago, someone "miss read" my X ray. It is my understanding they have since changed their policy  to include some who "over sees" all X Ray findings, not just a select few. I think you could bring about some very positive changes  :-)  

     Children... I am constantly amazed at the speed that they absorb knowladge. I dont remember being that smart at their age! I was pretty sure my favorite game was "Red Rover" and our amazing feats depended on who could stand on their head the longest!

     Here I go chatting away again! *warm huggs*

*huggs*

   dani

        


TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 9/21/2009 8:36 PM (GMT -7)   
Hi Dani:

I am so excited that sharing my experience may help you get your business up & running. I think that you are going to do a lot more than help with the groceries as your pieces are truly beautiful. I think that you will have more success in the small shops as you won't be going up against the thousands of pieces of jewelry being sold on Ebay & Craigslist. I wouldn't give up totally on those avenues of sale, but I think the small shops will give you a lot more exposure.

In addition to consignment shops, I was thinking that maybe you could approach hair salons, day spas, gift shops in hotels, etc. We have a shop in town that sells beads, incense, candles, etc. and a while back I ran into the mother of the owner of that shop at a flea market where I was buying some hemp. She started asking what I used the hemp for, and my husband started telling her about my jewelry she got so excited - she said that her daughter loved to sell locally made jewelry & that I should stop by with some of my stuff. Maybe you have some shops like that in your area as well?

I totally understand your comment that you never dreamed that making jewelry would make you feel so whole/complete. I remember going to visit a friend of mine at her job (she sells appliances at Home Depot) to buy a dishwasher, and she was wearing a bracelet I had made and given to her. At first, I didn't realize it was one of my creations, I was telling her how much I liked it, and she reminded me that I had made it. She was telling me how many complements she gets on it every day, and it just made me feel so wonderful.

Please keep us updated on how you are doing with it. I wish you the best!

Lorie

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/22/2009 3:46 PM (GMT -7)   
 
   Dear Lori,
 
    Good afternoon *warm huggs* How are you doing today?? We are good here. The girls are so excited that Halloween is comming, I think I might put up decorations a little early. Oh, and I have finally finished another round of the same tests, again. Arthritis panel, thyroid, calcium, immune and apprently some stuff for kidneys. Next week should be last of para thyroid re test. Ill be honest, im very tired of doing some of these over and over again. But, it sure is nice to hear from you! *huggs*
 
     Thank you so much for your kind compliments! I had a smile from ear to ear half the night, day-dreaming of possibilities. I will have to give the ideas some serious research as soon as the "medical folks" are done poking and prodding.
 
     I would love to see some of your jewlery too! I was thinking that if we play our cards right, we could both have some extra cash on hand come next summer. THAT, is always nice :-) I had to giggle at your story about your friend. That must have felt so good!! I find myself constantly looking at other people and their jewlery and contemplating what what would look good on them. Then idea after idea seems to jump out of my brain faster than I can draw it!
 
     I should get started on supper, running a little late (have a BIG case of lazyness today) *warm huggs* Take care of yourself! Hope you have a good evening :-)
 
   *huggs*
     dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 9/22/2009 8:16 PM (GMT -7)   
Hi Dani:

I'm sorry you have to keep going through these tests over and over and yet still have no real answers - I went through a similar experience and I know how frustrated you must be, not to mention how sick you must be of there poking and prodding!

I'm glad I could put a smile on your face for a few hours - I do believe you will be very successful! If I can figure out how to put pictures on my computer, and then figure out how to send them to you, I will do so. I need to ask my children how to do it, lol.

I'm still struggling with my pain being at a 8/9 every day. I have an appt. with my PM next week, and I always get hopeful that he is going to understand that I need for him to do something to help me, but every time, I get disappointed. That is why I've started the search for a new PM, but it's overwhelming and scary. He used to be a wonderful doctor, very aggressive, and available at any hour. He even gave me his personal pager number and his home phone number so that I could always get a hold of him, but now he's completely the opposite. I keep hoping that the old Dr. Winne will come back, but something in him has changed, and unfortunately, the new Dr. Winne seems like he's here to stay.

You will continue to be in my thoughts and prayers - I hope that the doc's will figure out the source of your bone loss, and find a way to ease your pain.

Lorie

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 9/22/2009 11:44 PM (GMT -7)   
Dani

I must admit I am amazed at what an excellent outstanding attitude you have with everything you have went through and continue to go through, and then still not having a diagnoses! Honestly for being so young I am not sure how you do it! But YOU are definitely an inspiration for us all!
I do hope they can find out what is going on with you and be able to come up with a treatment! I keep you in my prayers and wish you all the best!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

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