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golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 9/23/2009 1:08 AM (GMT -7)   
My surgeon was able to just take my ovaries and tubes so I still have that wonderful uterus. My endo was moderate rather than severe but my left ovary had some cysts on that in his words looked funny. I woke up in oncology but there was no mention of the big C since. He says wait for the pathology.results. He managed the surgery through 5 portals and cut out all endo he could find. they have put me on oxyconton and morphine for break through pain so I feel pretty good. I just got home and they have sent me home with both oxyconton and oxycodone for breakthrough. The names are so similar how do you guys not get confused??? Anyway, I'm pretty tired but I thought I'd let you know I survived and have two weeks off work to recover.
I just wanted to thank you PAlady for putting into words some of my fears and allowing me to ask him the right questions before he started. I'm glad I questioned his decision to take out my uterus now.
Plus he stitched up my hernia so thanks to you guys I got that fixed up too. You're a wonderful bunch of people and I just wanted to say a generalised thank you for all your support leading up to this surgery. I feel great to have it behind me, just cross yourfingers the pathology comes back ok.
Goodnight for now, golitho

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/23/2009 1:29 AM (GMT -7)   
Hi, Golitho,
Guess we're both night owls tonight, although you have pretty good reason to be. I'm so glad I could be of some help, and that you feel good about your choice That's so important for us - feeling we have at least some control left over our bodies.

I will be crossing my fingers and whatever else will cross and sending good wishes that the pathology comes back negative. At least those suspicious cysts are out of you!

As far as keeping the meds straight, well, we all still get confused, but over time you get a little more familiar with what your own meds are. I find I've learned a lot from reading others' posts here, too. Learned many things I never would have about treatments.

Anyway, glad your home! Wishing you sweet dreams tonight!

Keep us posted!

Hugs,

PaLady

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 9/23/2009 5:36 PM (GMT -7)   
Weclome back Golitho, nice that the surgery seems to have gone good for you!
I hope you have a speedy recovery, but at the same time wonder if 2 weeks is enough time off...
Now, don't you rush things, little steps for now and I hope you got a support staff at home to help cook ect...
my fingers and prayers will be with you as far as the results...
Now rest up...
hugz and lots of soft fuzzy ones....
((((((((((((((((((((((((((((((((((((((((((((((((Golitho)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
hugz...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 9/23/2009 7:21 PM (GMT -7)   
Thank you Char and PAlady, I'm feeling quite good, better than expected, the pain killers really take the edge off and even my knees and hips are happy but I'm only sitting up in bed I'm not up cooking or anything! My friends are helping out and my older kids too, I pre-cooked lots of meals last week so we are slowly going through the freezer. I'm ignoring the mess, no point in worrying about it, I simply can't bend. Before my hips made it hard now I have the tummy and the hips I'm not going to try!!! They said to walk but going to the bathroom and back seems to be all I can manage for now. I'll just take it a day at a time.
I know it seems silly but I'm very happy I still have my uterus, I have no idea why I'm so emotionally attached but feels right that I still have it.
I honestly can't convey enough how much you guys have helped me through this so far, I keep repeating myself but I'm extraordinarily grateful to all your combined wisdom. I'm a bit of a dill when it comes to modern computer usage (chat rooms etc) and finding this site has been a life saver for me.
Obviously feeling very emotional must be those menopausal symptoms making me feel so strongly, but thanks again, golitho

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 9/23/2009 10:40 PM (GMT -7)   
Don't be surprised if you are still more tired than usual when it's time to go back to work in two weeks. It takes a while for the body to heal. You had a lot of work done inside that will take time to heal. Take it easy and rest when tired. Slowly increase your activity everyday but don't lift anything heavier than a gallon of milk (or less if your doc ordered it.)

If your doc didn't prescribe it already, you may want to start a stool softener ASAP. Pain meds are constipating and you don't want to strain after surgery.

I am glad everything went well, you should feel a bit better every day now.

I didn't know you can keep your uterus if they take your ovaries.

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 9/24/2009 4:02 AM (GMT -7)   
Glad to hear that you feel good about the surgery and that your spirits are up. With your doctors approval miralax was a god send for me with the constipation problems. After my body got used to the narcotics things got better too, back to normal actually. Take it easy and I'm glad you've got friends and family for support. The Grabber is an excellent tool when you are unable to bend over. It's amazing what you can pick up with one.
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/24/2009 7:57 AM (GMT -7)   
 
   Dear Golitho,
 
     Good morning! *soft huggs* I am ever so glad to hear from you! I am also relieved they were able to "save" your uterus. It must be a huge weight lifted off your shoulders, but, my heart and prayers in the hopes that pathology comes back with a "negative". You have been through so much already! In anycase, I wont chatt your eyes off, just wanted to stop by with *warm huggs* And try to relax the best you can (you are always so busy!!) Take care and stay strong!!!!
 
*warm huggs*
   dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 9/24/2009 2:12 PM (GMT -7)   

Thanks, Jag, Dani and Dagger, I'll take your advice, been using a mild laxative but still no movement yet...sort of dreading it as the waterworks was agony day 1 after the catheter removed. Jag the graber sounds great, I've been using my 9 year old!!! And Dani, thank you, my friends have been complaining about my impossible timetable... I just feel for as long as my kids want me I'll stay involved in the various activities. My daughter is 16 now and has basically given up all activities except soccer. I'm sure the boys will go the same way as they get older.

My parents never came to any matches or productions I was in, I want my kids to remember my support. I am naturally a high energy person so I prefer to be involved rather than waiting on the side lines! But I have pulled back, dropped all my committees this year. The RA has impacted on how much I can do.

I am being good, I'll try to walk today as they told me to walk in the hospital but I won't go far. My joints need some movement.

My specialist rang me last night to see how I was going, he seems a bit eccentric! He says, have you started the HRT yet. I said, no, you told me to start on Friday, but I haven't had any hot flashes or anything yet, should I wait? His response, some people never take HRT, you don't need to take it!!! I mean  I was just asking should I wait till next week??? I think I'll ring my GP. He told me to dry my portals with a hairdryer after my shower, I didn't dare tell him I don't own one! I've just been padding them dry and changing the dressing if its wet. One keeps leaking and he said you'll be most sore with the two left side portals. He seems a bit crazy, I'm glad the surgery is behind me. I'll just use common sense to deal with them I think.

Wierd huh? golitho


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/24/2009 2:24 PM (GMT -7)   
Golitho,
Just a few random thoughts.

First, you may NOT need HRT. So I'd lean on your specialist's opinion for now. Afterall, you can always start a low dose later. And if your menopausal symptoms aren't severe, it's not worth HRT anyway. Many women get through this without severe symptoms. I remember after the bleeding from my fibroids calmed down (and that was only for a couple of years), which indicated my hormone levels were dropping, I had a very brief time with what I'd call mild hot flashes. They only lasted a few months, and were hardly noticeable. I just noticed I kept taking my sweater off and on and needed to wear a lot of twin sets! LOL But some women, of course, have severe symptoms, and if you get those HRT for a time limited period may be worth it. It sounds like you're more afraid of what might come than what is presently happening? Menopausal symptoms won't kill you! And again, they may pop up much later, and then you can decide what to do. For milder symptoms, there are a lot of natural remedies. Reading Dr. Christianne Northrup's book The Wisdom of Menopause can be helpful. It's a few years old, but she gives many details on natural approaches - including the pros and cons - and perhaps this would help you to feel you had choices (just like you did with the surgery).

As far as the constipation, I had a huge problem with that after my lumber fusion surgery, and thank goodness for my community nurses, who suggested sepositories. And they really helped. This was after the laxatives and such weren't working. I don't think it can hurt to try them, but you might ask your doctor, or if you have home visits from nurses (or can get them) they can help greatly with these things. One thing you don't want is to strain. BTW you may have more pain/problems with one side if that's where the cysts were, and more internal work had to be done. Remember just because you can't see the sutures doesn't mean they're not there!!

Hope some of this helps a bit!

Hugs,

PaLady

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 9/24/2009 2:36 PM (GMT -7)   
PAlady, you really are a gem! I sort of like to trust my body, so my gut tells me take nothing unless I need to, so I won't start HRT, yet! I'll get that book.
How long do you think I should wait for the laxatives to work before trying suppositories?
I don't get home visits, just have a follow up appt next wed,
thanks PAlady, I don't know what I'd do with out you, golitho

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/24/2009 2:46 PM (GMT -7)   
Glad I can be of some help! Yes, trust your body re: the HRT. Remember you can start it later and if you can go through some mild symptoms without it, all the better.

As far as the constipation issues, I'd call your surgeon's office (probably make sure his nurse knows what's going on) and ask. You know I didn't request community nurses at first. I didn't think I'd need them, but I had a minor infection around my incision so then I asked them to come (insurance paid) and they were like angels. They were the ones who noticed and helped with the constipation - because it became a huge problem for me. They should have never let me leave the hospital in that shape, but that's history now. So if you have any option for a community nurse (visiting nurses, etc.) you might want to ask about it. They really know about all this stuff. But I would think your surgeon wouldn't want you to wait until you have to strain, so I think it's worth even calling the "on call" physician over the weekend to ask.

Thanks for the kind words!

Hugs,

PaLady
p.s. That book should be available at your library, or used copies on amazon.

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 9/24/2009 5:46 PM (GMT -7)   
Hi Golitho,

Glad to hear that you made it through your surgery alright & that the surgeon didn't have to remove as much as he expected! I hope your recovery is smooth, quick, and painless!

hugs,
Skeye

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13479
   Posted 9/24/2009 6:31 PM (GMT -7)   

Hi Golitho,

So glad to know the surgery went well and you are doing well. It still blows my mind some of the surgeries they are now able to do by way of laproscopic surgery. My hysterectomy was an open abdominal surgery, but my gallbladder was done by lap. Only off two weeks? Gee, my surgeon made me stay home 6 weeks from the gallbladder. He said not to confuse the surgery because it was done lap, its still considered a major surgery.

Everyone has their thoughts on HRT. Some need it, some don't. Some potential things to look  out for is vaginal dryness, hot flashes, fatigue, mood swings, lovely things of this nature. I didn't have hot flashes, I had heat waves that started from my toes and went on the way up lol. It was awful. My surgeon was an idiot and did not put me on anything so I suffered for one stinking year. I finally discussed it with my PCP one day and he was floored that I was not placed on anything. He took care of that real quick,lol.

The reason you need to be walking is to wake the bowels up and get them going, walk get them going. Also you know the walking will also help get rid of the gas. The gas used to blow you up during surgery can become very painful if it becomes trapped, so walk in your home as much as you can.  you probably might consider a stool softener at this point, something like Miralax, you sure don't want major constipation going on. Again, walk gal, wake the bowels up.

Take care and let us know how you are coming along. Don't worry about the house, it will be there for later. Remember you just had major surgery-be kind to yourself. Hugs.

 


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 9/24/2009 8:14 PM (GMT -7)   
Two weeks may not be enough time. Depending on your job and your recovery, you may need more time. If you have to return to work before you are ready, see if you can cut back your hours for the first week. Don't plan on doing much (except resting) after work. Doing too much too soon will not help you heal. If you get too run down, you are at a greater risk of getting sick.

After my last surgery, the note with my discharge papers said I could return to work six days after my surgery. That was crazy. Fortunately, I didn't have to go back full time for three weeks and the first week back was rough. I was sooo sore and tired at the end of the day. I teach but I only had to do individual student assessments the first two weeks back and even that exhausted me at first.

You should be fine without the hair dryer (I don't have one either.) I was told to pat them dry with a freshly laundered towel.

It's normal not to have a bowel movement for a few days after surgery especially if you did a bowel prep. My surgeon had me start taking colace the day after surgery. I remember being told that two days is ok but five days is too long. You may want to call your surgeon's office before the weekend to find out what they want you to do.

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 9/24/2009 10:03 PM (GMT -7)   
Thanx again for your combined wisdom! I agree it seems silly to take HRT if I don't need it but if the symptoms become too much I have it to fall back on.
As for the BM they said the opiates are probably constitpating me but just to carry on with the gentle laxative, they don't seem concerned. Told me to walk so I will go walk, do the hall shuffle! I forgot about the gas, probably the cause of some of these cramps I'm getting. They also said drink lots of water, which I also forgot about, so all in all a good phone call,
thanks for your care, golitho

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 9/24/2009 10:28 PM (GMT -7)   
Golitho
I am glad your surgery went well and you are doing alright, getting up and walking is important! But do avoid the bending over and lifting and straining! Keep an eye on your surgical ports for excessive redness and or tenderness and pain, and of course if you start running a fever call your doc right away. I am sure you have already been told all this anyway!

Do take care of yourself, I do wish you well!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Draka
Regular Member


Date Joined Jun 2009
Total Posts : 256
   Posted 9/24/2009 11:16 PM (GMT -7)   
Hi Golihto...... glad to see you back.... my fingers crossed for you too....

Color the tops of you prescriptions bottles with magic markers in different colors so you don't get confused:)

Feel better!
Lisa


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 9/25/2009 2:43 AM (GMT -7)   
Hello my Friend Golhto!
I'm sorry I wasn't around to give you any support w/ your recovery. I missed a lot while I was gone. I'm happy to hear that everything went well or at least as well as could be expected I guess. I hope the pain leaves you soon and those ports dry up and dissapear! You are one tough Gal for sure! Take it easy and get well> OK??
Your Buddy,
Pete
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, Joseph is serving on the aircraft carrier USS John Stennis but is currently in advance radar school in Va. Bch. Va. and Pete Jr. is on The Asault Ship USS Bataan "The Jaws of the Fleet" somewhere in the Persian Gulf w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 9/25/2009 7:44 AM (GMT -7)   
As you heal, if you notice something like fishing line sticking out of a port, don't worry. You may not want to pull on it though. I had a tiny bit sticking out and pulled it, and pulled it, and pulled it some more. I ended up with about two inches sticking out and then got a bit worried and called the surgeon. I started to imagine that I was unraveling my insides! She recommended I just snip it off.

It's the disolvable stitch material and won't hurt you.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/25/2009 10:58 AM (GMT -7)   
Dagger,
I've got that going on in my mouth now from the tooth extraction. The strings are driving me batty! I keep wanting to pull on them, but figure the dentist can snip them off when I see him next Tuesday. I don't think it would be a good idea to try putting scissors in my mouth on my own! LOL But Golitho can likely see hers a bit more clearly!

You make an interesting point though, about all the internal "stuff"!

PaLady

Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 9/25/2009 11:38 AM (GMT -7)   
Something else that you may want to try is adding more yogurt into your diet right now. The probiotics will help with both the constipation and the prevention of infection. It was something that was suggested to me when they had to go in and do an emergency appendectomy. They suggested at least 16oz of yogurt per day to help with getting the bowels moving again. And yes, the walking is critical for the same reason. Those muscles help to stimulate the bowels to work.

Sorry, just a random thought, but figured it might help intervene before having to try suppositories.
Curious people are interesting people...I wonder why that is.
~Bill Maher


Splashdancer
Veteran Member


Date Joined Aug 2009
Total Posts : 927
   Posted 9/25/2009 12:13 PM (GMT -7)   
I am so happy to hear that the surgery went well and you are feeling better! I've had 6 abdominal surgeries and I remember well waiting for that first bm after surgery. Walking definitely helps to get things started - your insides basically have to 'wake up'.  Every day you will feel a bit better and you'll be back to 'normal' before you know it (of course, how many of us are really 'normal' anyway! smilewinkgrin ). Over the past year, I've been having alot of "hot flashes" and I take clonodine 2-3 x/day - it works really good at stopping them. I believe its on-label use is for blood pressure. Hope you keep feeling better each day!

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 9/25/2009 3:06 PM (GMT -7)   

I feel quite overwhelmed with all this attention! Thanks everyone, Decided to go back to my normal meds today, thats how much better i feel. Even managed a walk around the block with DH. So finally managed to go. I'm a bit crampy, seemingly I have a mixture of dissolvable and real stitches because he did stitch up my hernia. Thats why I have 5 ports instead of the normal 4, extra one up by my left rib so they could see to stitch the hernia. That was near my belly button.

Had my first hot flashes last night, not too bad. I'll ask my doc about clonodine, Splashdancer. I think if I can manage without HRT it will be better for the endo. We shall see anyway. I'm going to try and get that menopause book PAlady mentioned. Funny being thrown into it so suddenly, next phase of my life coming up!

I'll get the yougurt too, Piercings. I actually was craving yougurt yesterday. Maybe my body knows more than I do? I love the idea of pulling out the fishing line, Dagger..ouch..must be pretty tickly for you, PAlady. Thnks for your thoughts Pete and WhiteBeard. I feel quite well amazingly. The oxycontin wiped out all my hip and knee pain, it's only just coming back to me now but I can't stay on those meds. Thanks too Draka for the tip on marking the tops, I had to keep putting my glasses on to make sure I was taking the right pill from the right box! My left side is definately had more work, really like a stitch pain quite low down, if it gets too much I'll take another endone but I'm going to try and tough it out a bit today. I don't want to get too soft.

I'm mad I know, lots of love to everyone, you have been my little life line these last  2 weeks. golitho


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 9/25/2009 7:39 PM (GMT -7)   
golitho

You just take care of yourself, you know everyone here cares about you, I do wish you well and hope you heal quickly and your "transition" goes smoothly! Good Luck to You!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

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