Severe Cervical and Lower Lumbar Radiculopathy

SHOULD YOU WRITE OFF FRIENDS WHO FAILED TO BE THERE FOR YOU WHEN YOU FELL ILL?
6
FORGIVE AND UNDERSTAND THEY HAVE NO IDEA WHAT CHRONIC PAIN IS - 85.7%
1
REFUSE TO BE THERE WHEN THEIR TIME COMES - 14.3%
0
COMMUNICATE YOUR FEELINGS OF ABANDONMENT - 0.0%

 
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overthepain
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/25/2009 3:39 PM (GMT -7)   
I FINALLY JUST GOT IT TOGETHER ENOUGH TO JOIN ONE OF THESE THINGS. I HAVE BEEN SUFFERING FROM SEVERE CERVICAL AND LOWER LUMBAR RADICULOPATHY SINCE 2006. IT HAS BEEN UTTER ABSOLUTE HELL. THERE WAS A TIME WHERE I WOULD ONLY HAVE A FLARE UP EVERY ONCE IN AWHILE..LIKE WAKING UP WITHOUT BEING ABLE TO TURN MY HEAD FROM SIDE TO SIDE OR REACHING FOR THE NEWSPAPER AND ENDING UP IN BED UNABLE TO WALK FOR TWO WEEKS. WHEN I BEGAN TO SEEK HELP, I WAS IGNORED BECAUSE I WAS SO YOUNG (IM NOW 32) NO ONE TOOK ME SERIOUSLY ..DRS...NURSES..ER'S SPECIALISTS. I COULD STILL BEND AND TOUCH MY TOES i COULD WALK FOR CHRIST'S SAKE AND WAS TOLD BECASUE I WAS NOT WHEELCHAIR BOUND I WAS NOT WORTHY OF MEDICAL HELP...BUT I WAS A GYMNAST MOST OF MY LIFE AS WELL AS A SECOND BLUE BELT IN TAE KWON DO. I WILL BE SUPER FLEXIBLE TO A DEGREE FOR THE REST OF MY LIFE. IT DOESNT MAKE ME ANY LESS DESERVING OF PROPER CARE NOR DOES IT MEAN THAT i ENDURE LESS PAIN THAN ANYONE IN A FRICKEN WHEELCHAIR.

IM INFURIATED WITH OUR GOVENRENMENT'S HEALTH CARE POLICIES. I BEING A STUPID NAIVE KID NEVER THOUGHT THAT AFTER MY MOTHER'S TEACHER UNION INSURANCE RAN OUT AFTER I LEFT COLLEGE, THAT I WOULD EVER NEED SERIOUS COVERAGE. NOW HERE I AM SMACK RIGHT IN THE MIDDLE OF THE DARK DISGUSTING HOPELESS WORLD WHERE THOSE WITHOUT INSURANCE GO TO ROT. i AM AWAITING DISIBILITY AT THE MOMENT WHICH IS TAKING AN UNGODLY AMMOUNT OF TIME AS I SUFFER DAILY IN EXCRUCIATING PAIN. I AM PAYING ANYWHERE FROM 2-300 HUNDRED DOLLARS PER DOC VISIT AS WELL AS THOUSANDS FOR PAIN MEDS. OH AND THE PAIN MEDS! THE EQUIVILENT OF A DAILY TRIP TO A GREY BLEAK RAINY HELL!! IFORGET THINGS MY PERSONALITY IS GONE I HAVE NO INTEREST IN THE THINGS THAT USED TO MAKE ME HAPPY MUSIC COOKING DRESSING UP ETC I AM EDGY AND CRUEL TO MY HUSBAND IM FOREVER CONCERNED about RUNNING OUT OF THEM OR NOT BEING ABLE TO AFFORD THEM ...WE ORDERED OXYCONTIN AT A DISCOUNT WEEKS AGO AND THEY ARE NOW JUST PROCESSING MY APP TODAY!!

THE WORST PART OF THIS WHOLE THING IS NOT ONLY THE FACT THAT I WAS MARRIED JULY 21ST TO TJHE LOVE OF MY LIFE, BUT WAS SO TORTURED AND SICK DUE TO THE PAIN THAT I ATTEMPTED TO COMMIT SUICIDE WITH BOTTTLES FULL OF XANAX AND SOMAS A MONTH LATER. I WOKE UP IN THE ICU TO TO FIND OUT THAT I WAS PREGNANT. SOME FANTASY RIGHT? I HAD CONCEIVED THE DAY AFTER OUR WEDDING! A HONEYMOON BABY! HOW ROMANTIC RIGHT!!!! NIGHMTMARE IS MORE LIKE IT! HOW THE HELL AM I GOING TO CARE FOR MY BABY WHEN i AM HALF COCKED ON PILLS AND CAN BARELY GET OUT OF BED SOMEDAYS...THE SWEETEST PART OF THIS STORY IS THAT ASIDE FROM HAVING MY HUSBAND I AM UTTERLY AND COMPLETELY ALONE. MY MOTHER REFUSED TO STAY WITH ME AS SHE IS THE ENABLER AND MAIN ENERGY SOURCE FOR MY SCHIZOPHRENIC BROTHER, MY 93 YR OLD GRANDMOTHER, MY MENTALLY ILL CO-DEPENDENT UNCLE, AS WELL AS MY 15 YR OLD SON WHO REFUSES TO SPEAK TO ME. ACCORDING TO HER ALL OF THESE PEOPLE ARE WAY WORSE OFF THAN I WILL EVER BE WHICH IS UTTER CRAP! IN ADDITION TO MY MOTHERS DESERTION OF THE ONLY FUNCTIONAL PERSON SHES EVER HAD IN HER LIFE...ALL OF MY SO CALLED FRIENDS DUMPED ME WHEN I COULD NO LONGER BE THE LIFE OF THE PARTY. i RECEIVED HATE MAIL DECLARING I WAS SELFISH AND BANISHED FROM CERTAIN PEOPLE'S LIVES. THESE WERE PEOPLE I THOUGHT WERE TRULY DECENT PEOPLE TOOK OFF LIKE BATS OUT OF HELL WHEN I GOT SICK AND NEEDED SO BADLY FOR THEM TO BE THERE....SO FUNNY CONSIDERING I WAS ALWAYS THERE FOR THEM. I AM OVERLOADED AND EXTREMELY LONELY I FEEL LIKE I HAVE THIS CONTAGIOUS DISEASE AND NO ONE WANTS TO BE AROUND ME OR MY HUSBAND. GOD FORBID ANY OF THOSE SO CALLED FRIENDS SHOULD GO THROUGH WHAT IM GOING THROUGH ALONE. IT IS UTTER AGONY. I WISH I could just wake up from this nightmare

Splashdancer
Veteran Member


Date Joined Aug 2009
Total Posts : 927
   Posted 9/25/2009 3:52 PM (GMT -7)   
Ok, now take a slow, deep breath. And that isn't sarcasm - it's obvious how upset you are and slow, deep breaths can help. In through your nose and out through your mouth........and do it a few times.
 
I've been where you are and I know how tough it is. This is a great place full of wonderful people with broad shoulders to lean on. Sometimes writing it all down can help alot - it gets all the crapola out of our brains. I'm in the middle of cooking dinner but I saw your post and wanted to respond. I'm sure you will get more responses soon. I'll check back in later. (I know you are frustrated and angry and "caps on" is one way to express that, but it can be kind of hard to read.) Hang in there.

overthepain
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/25/2009 4:15 PM (GMT -7)   
Sorry about the caps i can barely read my eyes arent so great. thank you im really not a mean vengeful whiner of a person im just so darn hurt and confused i dont know how to use this for good ive been through so much hell in other aspects of my life but this one boggles me. how do i turn this experience into something positive when all i can do is cry and feel abandoned? again I appreciate the quick response. you are the first person ive talked to besides my husband who Im sure is overloaded by all the demands i make on his time. thanks again!!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14412
   Posted 9/26/2009 12:02 AM (GMT 0)   
((((((((((((((((((((((((hug)))))))))))))))))))))))

We are here for you. Can you find a new doctor to listen to your problems? Sometime you can run across a stubborn one who believes everyone is a faker.

Joy

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 9/25/2009 7:17 PM (GMT -7)   
overthepain

Welcome to Healing Well Chronic Pain Forum, let me first tell you something overthepain when you come here you are not alone! So Please know in your heart that there is many caring and compassionate people right here, that knows what it is like to be in pain, and like you  have  had others abandon them because of it!  You know most of us have felt, at least some of your feelings, if not all of them,  at one time or the other, so we do understand how you feel!! We might not be able to make your pain go away, but we sure can listen to you and support you, as they say misery loves company and you have lots of company here!
 
Please tell us more about your pain and what type of test have you had and what type of Doctors have you seen? Have you ever been to a pain clinic or been seen by a Pain Management Specialist? Any more information you feel like sharing with us about your condition would help, allot of us have been treated for chronic pain for quite a while, and have been seeing a Pain Management Specialist, and maybe we can make some suggestions to you that you might find helpful. Anyway I am glad you have found us and desided to post. I hope you find the people here as caring and compassionate and helpful as I have! Again I Welcome you to the forum and our family.
I wish you well!

White Beard

P.S. On your poll I say both the top one and bottom one you should forgive them, as most people that have not experienced chronic pain have no idea what your going through, that is what makes the people on this forum so understanding, they have and are experiencing severe pain, they don't sympathize with you but they can actually empathize with you, and that makes a world of difference! But I also think you should tell your friends how you feel and how it hurts you when they abandon you. You know maybe they really don't realize that, and if they do then how much of a friend were they really to you? You will find you will have friends here. We all help and support each other. yeah


Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Post Edited (White Beard) : 9/25/2009 8:31:40 PM (GMT-6)


overthepain
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/25/2009 9:08 PM (GMT -7)   
Yes! I guess I should have been more specific about what it is that Im dealing with exactly right? ha ha. I was just so angry and hurt from the past couple of months I guess I just regurgitated everything without including more specific details. So anyhoo, I have been diagnosed with cervical radiculopathy..I called it radiculopulous the first time I heard the doctor say it. i thought to myself "only i would have a disease with the root word ridiculous in it" Plus it didnt help that the Er dr said " I really dont have anything good to tell you at all" thats always a great lead into something wonderful and fun. i was prescribed percocet and scheduled to see an ortho surgeon in the area in two weeks. well two weeks came and went and i get a phone call,,,"hello is this Allyson? Yes it is I reply. " Dr Phillips has canceled your appointment" " he chose to go inot surgery and your case is not as critical" what do you mean I am not critical!!! I proclaimed getting angrier and more shrill. ": he has never even met me How can he determine who is more worse off than me? Do you know what I have been through? I hung up realising I was getting no where with this ignoramous receptionist...In my day ive met some great receptionists but darn some are ice queens from hell.

So on to the reason im on here. I have disks c6 and c7 protruding in toward my (signal cord?)spinal column stenosis and osteophytes I also have the same kind of protrusion on my last 2 lumbar disks at the base of my spine. So these two areas like to take turns putting me in agony. Somedays I cant walk somedays I cant turn my head
I have been to two rounds of physical therapy I still do my excersizes..I have seen neurosurgeons and ortho docs..my current ortho doc seems like a total airhead. He is a typical surgeon Anything outside the realm of cutting into someone is a foriegn language to him. I asked him if there were options to keep me a little more comfortable and the man suggests yoga..yoga is fine and great and ever so chic but the man fails to realise Im on morphine all day long and feel like Im already doing underwater aerobics..and yes mind you im on a very low dose as I am pregnant plus im afraid to drive since im so spacey..yoga is out of the question.. Sure i do stretches to the best of my ability i use ice i have a traction device which seems to make it worse...Ive tried tempurpedic..firm mattresses etc nothing really works accept for being asleep. I just want to have the surgery and be done with it Ive heard all kinds of nightmare stories about cadaver bone replacement adn other kinds....do any of you have any ideas or knowledge on more modern treatments? heres reaching far what about pregnant women?\

thank you all for being here I feel a little better than I did a couple of hours ago when I FELT FRIENDLESS AND ALONE. THANK YOU!!!

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 9/25/2009 9:26 PM (GMT -7)   
ovethepain

I had what you had and I had a disk fusion at C6-C7 back in 1985, and now I am having problems again, and this Monday the 28th at 7:30 I am having ACDF Anterior Cervical Diskectomy and Fusion at C5-C6 the one above the one I had in 85, I also have a herniated disk at T12 and L4-5 so I can relate to what you are going through. Have they tried epidural steriod injections on you? I have had them but they only gave me a few weeks worth of relief, the only thing that can really fix it is surgery and that is the ACDF. The thing is this type of condition usually will only get worse as time goes on and you can end up with permanent nerve damage. I would definitely be trying to find another doctor and if nothing else try to get the pain treated adequately. Hang in there overthepain, I know what you are going through! Good Luck to You

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/25/2009 9:35 PM (GMT -7)   
Hi, Overthepain,
I also want to welcome you to the chronic pain forum of Healing Well, although I'm sorry you have reason to be here. None of us wants pain and all it brings to our lives, but each one of us struggles to figure out what options we have, and what we may have to accept.

It seems you've tried a lot of physical therapies but I wondered if you'd ever see a pain psychologist or therapist? I really think that could help you to find your way through the forrest you're in. Depression often comes with chronic pain for a variety of reasons, and a good therapist can help, along with possible anti-depressants - although being pregnant, I know you have to make medication choices with the guidance of your OB. But regardless of the medication issue, I would really encourage you to find a good therapist. Your pain management doctor may be able to recommend someone. We can provide support here, but having someone in person to work with is often a needed component.

Don't know if this helps, but I did want to welcome you.

PaLady

Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 9/25/2009 11:53 PM (GMT -7)   
overthepain,

I don't really have a lot to add other than to reiterate what the others have said. We all have been through that gamut of emotions and frequently we cycle through the whole thing again. Sadly living with chronic pain is a never-ending process as we find what we have lost and search for what we already have, and and have yet to, gain. Just the same as when first growing up, we gain more knowledge about our world and we adapt to the ever changing environment.

Even though I don't like what's brought you here, I'm glad that you have found 'here." These are some wonderful people, and I'm very glad that I found them as well. You will find there are many - if not all of us - that will identify with you and even commiserate with you. We have all been there, or are currently there, and people here are genuine. The ones that posted above are some of the nicest and most genuinely concerned people that you will ever meet - either in flesh or online.

Keep posting and we'll keep listening. Take care of yourself, and I hope to still hear more from you.

Lacey
Curious people are interesting people...I wonder why that is.
~Bill Maher


lavendar
Regular Member


Date Joined Nov 2007
Total Posts : 450
   Posted 9/26/2009 3:48 AM (GMT -7)   
I read and post everywhere ,because I have everything (It seems) wrong with me l I have felt the way you do about abandonmentl I FEEL AS if my so called friends and even some member of my family think they may get what I havel I pray they never even have one of my problems. Ruptured disks, osteoperosis ,degenrative arthritis, lack of cartliage on my knees, chronic pain, and now Cryptogenic Liver Disease, so now i'm on a transplant list. Because of the liver and tylenol probably being the cause. i am only allowed half a tablet a day, so I waite till the last minute to take it. The only medication that doesn't do as much damage to the liver is oxyconton, but wouldn't you know it I am allergic to it. I feel as if I have ants craawling under my skin. Last year I had bunion surgery and that went terribly wrong. I am worse of now than I was before. So know that you are not alone. Take care. june

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 9/26/2009 8:06 AM (GMT -7)   

Hi Overthepain,

Welcome to our family!!  I really can't add much to what has already been posted!  Except you mention that you are seeing a Orthopaedic Surgeon for your problems.  I would strongly advise going to a Neurosurgeon for the Cervical (neck) issues!!

Like everyone says unless someone lives in CP they truly cannot relate.  Most people (family and friends) are at a loss of what to say or do over our situations.  I have found that friends that left when I needed them most did so because they just didn't know how to help!  We understand and will be here for you!

Sending you warm hugs from sunny AZ!

((((((((((((((((((((overthepain)))))))))))))))

XXOO
Patti


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 9/26/2009 8:22 AM (GMT -7)   
june17
Maybe a little off topic but I haven't seen you post much here but I see you post alot at the Fibro forum, may I ask about your name "june17" is there any special meaning to it for you? I must admit it caught my eye because that is my Birthday!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 9/26/2009 8:37 AM (GMT -7)   

Hi OverthePain,

I too want to welcome you to Healing Well. Oh, honey, your plate is way overloaded to say the very least. You are so right, you need a break. But, the pregnancy pretty much puts it all on hold. I am just glad you have a dr willing to rx something for pain because many absolutely will not when someone is pregnant because of the addiction issues with the baby when its born. Also, please know they do have to be very careful what they have you on because of the baby.

Many of us have suffered many years with this ugly disease and it all I will tell you is pain is just that pain. It can rule your life if you let it, you can lose friends, your job, financial freedom, dignity, spouses, oh the list can go on & on of what we can get robbed of. Somewhere in the mix of all of this we just have to get a grip on it the best we can. What may work for me may not work for you. We just kind muddle thru all of it together the best we can.

Please know you are not alone and someone is usually around here at all hours of the day/night. Right now I have my days and nights mixed up so I usually am on here in the wee hours when most folks are zzing away lol.

Understand foremost here, the people on this forum that have had surgery, most did not do good for some reason or another, ok. So, don't expect any glowing reports on how well someone did from having surgery. If they had done well, they would not be here. Please keep this in mind. With a good neurosurgeon and a person doing exactly what the dr tells them after surgery you can have a successful surgery. I know you mentioned a neurosurgeon before and an appt with an orthopedic that was canceled. With you being pregnant right now you probably would be just wasting money getting in to seeing one of them. Even if they said ok, lets do surgery, no one will touch you until the baby is born. Since money is an issue I would hold off on an appt with one until the baby is born to save on money. If you have a dr rxing to you now, thats about all that can be done till the baby is born. I would urge you to seek another consult with an excellent neuosurgeon for your neck after the baby is born. I say this because those guys have much more experience with the nerves and such over an orthopedic. Your orthopedics are trained more for bones & joints. This is my own personal preference and I have seen the difference of a neuro & ortho doing neck's and there is a huge difference.

Pain medications have little effect on nerve pain. There are medications out there specifically for nerve problems, like Cymbalta, Neurotin & Lyrica to name a few. But these may be meds that cannot be rxd because of the baby.
 
I too have neck & back problems. I like to take a thick hand towel and wet it & wring it out real well. I then place it in the microwave and nuke it for a few seconds. Moist heat helps more than dry heat. Careful not to get the towel too hot so you don't get burned. I then roll the towel up and wrap it around my neck. I have cooked many of meals doing this lol.
 
Another situation that crops up with CP is depression. They seem to go hand in hand. Alot of times an antidepressant will also help with the pain. I went on a non-stop crying jag one morning and lasted about 8 hours. Knew then to get myself to my PCP  and get some help. I have been on meds for it on & off over the years. I can say it helps me alot. It helps smooth out the rough edges so to speak, it also helped calmed down the anger inside of me. That anger is no good, it drains us, really zaps the energy that we really need. Try to come up with a way to help calm your anger, you will be surprised how much it takes out of you. My PCP highly recom that I see a psychologist, I was really getting way out there. That was the very best thing I could have done for myself. I found one that was very knowledgable in auto-immune diseases too and she was a blessing in disguise. Our ins no longer pays for one, if they did I would still be seeing her.
 
When you feel you are at the end of your rope, tie a knot in it and hang on and come here and write to us and let us know how things are going. Sometimes like someone said, just writing it down helps at times. No one other than someone afflicted with this crap can understand unless they live it. Try not to take things out on your hubby and son. Men are use to being able to fix things, he can't fix you so he is just as frazzled by the whole thing as you are. Also, CP is not something that can be seen, like a cut or a bruise, its invisiible to the eye, so no, most other people do not get it. Don't expect them to. At best, set your hubby and son down and try to explain calmly what you are going thru and what it feels like. Make them realize you do not expect them to fix you. But, also let them know you need help, especially now with you being pg on top of everything else.  Tell them specifically things you need help with, do not expect them to know, you have to tell them gal.
 
Please keep us posted on how you are doing. Warm hugs coming your way.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


overthepain
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 9/26/2009 8:54 PM (GMT -7)   
A big Thank You to all of you. I feel as if I have stepped into a beautiful place where amazing articulate angelic beings coexsist. seriously! I never thought I could feel such a warm feeling from a laptop screen, but I really am enjoying hearing all of your comments and am soaking up the hugs like a sponge :)

White Beard,Straydog Susie and the others, I am so very glad I found you. I wish you the best on Monday White Beard. I am anxious to hear how it went . Its so nice to have someone forging ahead and cutting the pathway for me with a very sharp machete. My father suffered from this as well and he is no longer with us. He used to prime me for what I was about to endue.."never lift anytrhing over 20 lbs" He would often proclaim and "darnt allyson!" lift while bending your knees" he was murdered last October as a result of getting so caught up in the pain and survival. he was addicted to morphine IV in Mexico. he had moved there 10 years ago with the hopes of rebuilding his life and getting cheap surgeries (BIG MISTAKE) He seemed to be ever lost inside the pain and the drugs I believe he was shot over cartel coffee trade and drugs. I never wanted to end up like him or his mother, who laid in bed and gave up on life at 70. Here I am with their genes their crapty backpain DNA. The difference is thank god!!! that I have this I have people like you and I am finally seeing that I have something to be grateful about afterall. And for the first time in a looong tiome I dont feel like a pain mongering whiner pariah!

I am going to take your advice and see a neurosurgeon as soon as my benefits come through. i absolutely can no monger see a Dr who refuses to listen to me. I will use moist heat ill get my meds figured out Pain therapist! such a fabulous idea PA lady!!!!! Im on it Monday!!
Much love and appreciation to you all. thank you all for being angels

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 9/26/2009 10:07 PM (GMT -7)   
overthepain
You just take care of yourself and know that you are not alone in this! We are all right here to help and support you! When you feel down  and want to vent well come here and vent we will listen, and also come an help and support others that are in need that always seem to help, I know it does me anyway!
You have allot of people rooting for you and want nothing but the best for you!
 
Good Luck to You
 
White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 9/26/2009 10:22 PM (GMT -7)   
The biggest problem I think we all face is not the pain but finding the right doctor or doctors who will treat us with compassion, caring, understanding, and intelligence. Some of us have found doctors like that after long searches and others of us are still looking.

Like you I suffer from back pain. I have confirmed diagnosis of two bad discs in my lower back along with severe spinal stenosis and arthritis. I also think I have one or more discs that are bad in my upper back/lower neck area as that is now hurting the same way as my lower back. Up until this spring I was on 15 mg morphine pills and took 1 to 4 a day depending on how I was feeling. They helped but I also began to suffer from memory problems and as life's irony would have it those memory problems caused me to forget doctor's appointments which in turn led to my doctor kicking me to the curb as it were and I was basically blackballed by the "local" medical community. It took months before I found a nurse practitioner who would see me and she gave me referral to a new MD which I am still waiting to see as my first appt is not for another 3 weeks. Until then I have been having to deal with the pain pretty much through will power alone.

Anyway on top of all of that I am the primary care giver to a kid who just turned 4, and I have been his main care giver since he was 6 weeks old. Yep I am a stay at home Dad, and my back problems really cranked up not too long after quitting my job to stay home and raise my son. It is not easy, and some days I wonder how I am going to get out of bed and take care of him, but I always manage to somehow. They say God never gives us more than we can handle if we trust in him, and I believe that to be true as I do find the strength and courage to make it another day.

I can certainly empathize with you about your friends and family situation. I also have an older son (19) who rarely speaks to me and only when he wants something more often than not as he wants to blame me for all his problems in life, and I have been practically disowned by most of the family I was born into. With the exception of one uncle I have not seen or spoken to anyone on my Mom's or Dad's side of the family since my Mom passed away at the end of 2007. I also only really have one friend and we do try to get together when we can but he has his own busy life.

I am lucky though that my wife's family has accepted me fairly well so I am not totally isolated from family life as it were, but it still hurts to be an outcast in the family you were born into.

Anyway I am not telling you this to try to compete with you or to lessen your situation any or even to try to get sympathy from you or anyone else. I am only telling you to show that there are other who really do understand what you are going through and to hopefully give you some encouragement by showing you that the road you walk you are not really alone on.

Anyway as far as your pain meds situation goes there are a lot of other pain meds out there and don't be afraid to talk to your doctor about trying them. Even if something is supposedly "weaker" than what you are on now it may work better for you since we all respond differently to different medications.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 9/27/2009 12:17 AM (GMT -7)   
Dear Overthepain,
First, I wanted to offer my sympathies about your father, and the trauma that must have caused you. That sure doesn't help pain. But you are gaining wisdom from watching people go down what seems like dysfunctional paths, and sometimes that's the best we can do.

I've never heard us described the way you did, but I would agree this is a group of "amazing, articulate, angelic beings" and now you're one of us! This site has been a godsend to me, and many others for the very reasons you describe. I'm glad you found us.

And I will offer you more hugs......

(((((((((Overthepain))))))))

PaLady

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/27/2009 9:24 AM (GMT -7)   

 

   Dear Over The Pain,

     Good morning. My name is Dani. It is very nice to meet you. I am very glad you came to the Healing Well Community. I have found this forum to be of great comfort to me, I think you will too.

      I would like to start by saying "congratulations on your new marriage and pregnancy!". I know that those two factors alone, can be a tremendous adjustment. I have 2 children and breastfed both. LIterally 2-3yrs before I got "me" back for each child. Pregnancy will make it hard to "aggresivly treat" your pain and spine. That is a long road. I am truly sorry you are forced to "endure" through a majority of it till the childs birth and/or breastfeeding is done. *warm huggs*

     I am so very sorry that those you love the most have left and abandoned you. We all have this happen. Why? I do not know. I remember not so long ago when I joined Healing Well, I met a wonderful lady named Gretchen. I remember being oh so sad and mourning the loss of my friends. She said to me," When we become ill a clear line is drawn. That is of a friend and an aquaintance. And help will come from the most unexpected sources, if you let it." It rings so true in my heart to this day. Please, do not dispair. We are here. When ever you need us. How ever long you need us. *warm huggs*

     There is a thread about medical  resources that began recently. I will try to find it and *bump* it up. Perhaps the resources will help, perhaps not. The adivse you have been given about the complexities surrounding the treatment of nerve pain are correct. It is very diffacult to treat nerve pain, and most medication will do little to no good. A neurologist will be your best option, once you are able to seek the assistance of one.

     I saw a pain psychologist for a very long time. When I became ill, and my doctors were frantically (still are) trying to find the casues to the rapidly mounting problems with my body... I became (still am somethimes) very frightened. That is where a pain psychologist comes in. Mine, for instance, helped to "re-define me". We worked on everything. Physical, mental, emotional and social aspects of pain. Cognitive behvaioural therapy ~~> bio feedback. I would not be the "me" I am today without her assistance. If this is an option ( I know you have alot going on and my not even have the time to squeeze in ANOTHER doctor) or an option for your future, I strongly recommend seeing one. It is also my understanding they are a part of most Pain Management Specialists "programms / treatment plans".

     You have a tremendondous love for all those around you. And thou you feel alone, please, know that what *I* see in your posts is an increadibly strong, dedicated woman.  *warm huggs*

*huggs*

   dani

 

When you have once seen the glow of happiness on the face of a beloved person,
you know that a man can have no vocation but to awaken that light on the faces surrounding him.
In the depth of winter, I finally learned that within me there lay an invincible summer.
--Albert Camus (1913-1960)

    

    


TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 9/27/2009 5:10 PM (GMT -7)   
Dani I loved that Camus quote. I used to adore him in my twenties all that angst ridden prose so rich in imagery. But I'm digressing I also wanted to say hello to over the pain. You've already had the most wonderful replies so I just wanted to throw in some welcoming hugs. Pregnancy is pretty hard on the body even when its well so make sure you do lots of resting. A friend with a bad back wore a support belt to help carry the load but I don't know if thats going to help you? But I'm sending you a very hearty welcome, golitho

overthepain
New Member


Date Joined Sep 2009
Total Posts : 5
   Posted 10/17/2009 2:16 PM (GMT -7)   
Hello everyone! Im sorry I have been gone. My husband And I had a pretty terrible miscarriage scare a few weeks ago and my motehr was in town visiting us for a few weeks to help us emotionally get it together. My hcg levels indicated that my baby was dying according to my doctor. I was cornered in a room by two female doctors just barely out of med school, I think one had just gotten her liscence to prescribe meds the week before, they told me in a matter of fact way that they were more than sure that I was losing my baby. All of this based on some numbers on a piece of paper. They hadnt even bothered to do an ultrasound and check for a heartbeat before they started discussing wether or not I would like to have it removed surgically or if I wanted to pass it naturally at home!! Thank God they had the sense enough to send me to the hospital for a professional ultra sound tech to do an ultra sound!! We get there and wait for what seems like an eon!! when we finally did get the ultra sound low and behold there was a bouncing twirling baby on the screen with a perfect heartbeat! Thank god!! We have been releived but I am so upset with the care I have received since moving down to North Carolina. if you dont have tip top insurance down here you get treated like a lab animal. I have written to my congressman Schuler which takes some of the edge off of my feelings of powerlesness. I have been waiting for disibilty insurance for almost six months. I have been poked prodded and judged by countless disibilty doctors. I was refused for the medical aspect and am praying to god that I get it for the mental. Im definitely having a hate the system day today. its a long drawn out waiting game. its exhausting!
 
I have started the oxycontin and absolutely hate it. Im taking 60 mgs 2-3 times a day. I am having panick attacks every morning..I am ina viscious mood today as some of you may be able to tell. Im wondering if there is a medication that isnt so darn mood altering..that wont hurt the baby. Doc says methadone morphone and oxy are the best for the baby if taken properly. But Im considering the wean process or just going back to percocet as needed. I cant stand the way I feel alll of the time. The benefits of the medication certainly dont seem to outweigh toughing it out til the baby is born and I can have the darn surgery for once and for all. Ive done this before and have totally ended up right back in the seat im in now.  the drugs are so disgustng My personality is gone I have no desire to do anything creative Agggghh!!! WHY CANT THAY COME UP WITH SOMETHING THAT ISNT SO darn HARSH ON THE MIND???
Im 32 and married to a saint of a husband Toby.He has stood by me every step of this terifying journey. I  have cervical radiculopathy, I am 2 1/2 months pregnant Due April 27th I am currently awaiting disability benefits so I can pay for medications treatments therapy and a neurosurgeon. My goal is to make it through this so that I can be a bteer wife mother and friend and find myself again.


jeffro74
Regular Member


Date Joined Oct 2009
Total Posts : 29
   Posted 10/19/2009 6:44 AM (GMT -7)   
WOW! Do I know what you are talking about. I think everyone here has been in your situation before. I know there were times I felt like that, and I'm sure I will again. My pain increases in the winter, so my depression worsens. We are all here to help, and let you know you are not alone. we all hurt, have lost friends and depend on others for basic needs. It's rough sometimes. The drugs can make things harder too. You just have to try and keep yourself from getting so upset. Stress aggravates pain, and visa versa. We are all here to help however we can.
Jeffro

Undiagnosed low back pain after getting T-boned in a rental car. Onset: 03 Oct 2002, L4-L5 Fusion (No help) Neurostimulator Inplant Medtronic. scripts for Pain, Severe Gerd, Sleep, HBP, Super High Triglycerides, and Major Depressive Disorder secondary to chronic pain. Also 6-8 Vivarin a day just to stay awake from all the drug drowsiness, and all my caffeinated candy...Yummy!

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