rain rain go away

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beeble
New Member


Date Joined Sep 2009
Total Posts : 12
   Posted 9/26/2009 4:56 AM (GMT -7)   
shakehead oh am fed up today its not stopped raining here in soggy england joints are driving me to distraction, dont want to take morphine top up (a, only lasts 4 hrs. b, stops my appitite) as ive crohns aswell do any of u hate their wheelchair, coz i do , i even row with it, havnt an electric one but in need as i can only go in circles as have had end of collar bone removed in right side and no tendons attached there so fulcrum bone growths playing havoc with nerve ball in shoulder agh!!!!. Damp , soggy weather gets into my joints and dances the fandango on my pain receptors any one else have same/similar ?
am 45 with crohns ( awaiting surgery for stricture) ,have elhers danlos( just means im hypermobile,ie so called double jointed,but means ligaments are to big and i dislocate very easily hence slipped discs permanent.) carpel tunnel and tenosynavitus, also stenosis spinal (feet driving me potty) frequent frozen joints. have at least two prolapsed discs one at either end of spine , arthritis spinal and other little niggles if u take my meaning.
morphine sulphate 160mg x2 slow release, hyoscine butylbromide x3 @20mg, calcium supplements , vit b12 inj, amyltriptoline at night for feet , dolsepine ,vitamins and now omacor 100mg of omega 3 and to top it off zolpedin to sleep


beeble
New Member


Date Joined Sep 2009
Total Posts : 12
   Posted 9/26/2009 4:58 AM (GMT -7)   
ps thanks for the space to have a little rant x
am 45 with crohns ( awaiting surgery for stricture) ,have elhers danlos( just means im hypermobile,ie so called double jointed,but means ligaments are to big and i dislocate very easily hence slipped discs permanent.) carpel tunnel and tenosynavitus, also stenosis spinal (feet driving me potty) frequent frozen joints. have at least two prolapsed discs one at either end of spine , arthritis spinal and other little niggles if u take my meaning.
morphine sulphate 160mg x2 slow release, hyoscine butylbromide x3 @20mg, calcium supplements , vit b12 inj, amyltriptoline at night for feet , dolsepine ,vitamins and now omacor 100mg of omega 3 and to top it off zolpedin to sleep


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13477
   Posted 9/26/2009 5:33 AM (GMT -7)   

Good morning Beeble and welcome to Healing Well,. Wow, you have alot on your plate!! I am so glad you found us, you have come to the right place. Yes, many of us on here know exactly what you are talking about. I live in Texas and we just finished up about 9 days of rain which is unusual for us at this time of year. Between the cool fronts and the rain, I know exactly what you are saying . It feel like someone beat the tar out of me lol. I do not need a wheelchair but from what you have described it must be very difficult for you trying to manage gettting around in the darn thing, I am so sorry about that.

I too am a crohnnie and can relate to the problems in that area as well. Ain't life just a ton of fun living with crohns.  For the crohns I take Humira shots, Imuran, Entocort and Lialda. What are you taking to keep yours at bay?  I take alot of Lomotil for the trots, 8 a day, thats the max. Knock on wood no strictures,  just some fistulas and I had 12 inches of the small bowel removed and a resection done.

I hope you will hangout with us here at the CP forum. Do you visit the CD forum too? Keep us posted on how you are coming along.


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


beeble
New Member


Date Joined Sep 2009
Total Posts : 12
   Posted 9/26/2009 5:49 AM (GMT -7)   
thanks for ur message nice to knowim not alone if u see what i mean in a way wish i was as dont like to think ofany one else going thru same thing,.Have tried entocourt and pentassa but neither agreed with me severe chest pains, im asthamatic bronchial. so nothing exept diet and just started on omecor 1000mg of omega 3, but am waiting to speak to specialist about surgery at terminal illium as ive got a stricture. hope u have a great day so the bad ones wont be so grey x
am 45 with crohns ( awaiting surgery for stricture) ,have elhers danlos( just means im hypermobile,ie so called double jointed,but means ligaments are to big and i dislocate very easily hence slipped discs permanent.) carpel tunnel and tenosynavitus, also stenosis spinal (feet driving me potty) frequent frozen joints. have at least two prolapsed discs one at either end of spine , arthritis spinal and other little niggles if u take my meaning.
morphine sulphate 160mg x2 slow release, hyoscine butylbromide x3 @20mg, calcium supplements , vit b12 inj, amyltriptoline at night for feet , dolsepine ,vitamins and now omacor 100mg of omega 3 and to top it off zolpedin to sleep

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