New to forum, looking for any suggestions

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

nowjustsurviving
New Member


Date Joined Oct 2009
Total Posts : 4
   Posted 10/4/2009 7:00 PM (GMT -7)   
Hello to all of you, I am new to the forum world. After having seems like my worse day ever, well one of them, per some recommendations and the many times I've thought of seeking suggestions from any place else I thought what's to lose? So here I am. I'm not very familiar with Fibromyalgia, I have been officially diagnosed with in the past year but believe to been experiencing symptoms for years. My past consist of, after experiencing 8 years of major chronic back pain/degenerative disc disease I had back surgery (anterior/posterior spinal fusion L4-S1) at age 31, after approx. 3 years of healing, rehab and being to the point I can say it was the better of the alternate choice of living on pain meds for the rest of my life. Had my second child after 15 years, she's a handful but also the joy of my life, preg.and deliver went well. And needless to say, never a problem with my back. A year after my dtr. was born in 2006, I had a full hysterectomy, decided after finding my uterus never went to "normal" and I had fibroids and ultimately Endometriosis. Surgery and all to that point went well. But since I have never felt "GOOD" again. I currently experience daily pain throughout my body, hands, wrists, ankles, hips, arms - basically the only thing not hurting daily is the top of my head and that's when I don't have a headache the chronic pain I'm experiencing is confusing to me also due to the major surgeries I have had I don't understand how it could get to this point and to find a well not even a cure but some relief would be like ?heaven...and now something new I seem to be having some vision problems, hard to see the screen so typing this was a little challenging, forgive my sp...

I'm currently on the following medications:
Cymbalta 60mg/1xday - been on over a year
Estro-test?sp 1xday (which I know is for hormone replacement) - been on over a year
Klonopin .01/2xday - been on about 2mths
Lipitor 600mg/1xday - been on over a year
Lyrica 175mgs/2xday - started about 6 weeks ago, worked upto 300mgs/day

Along with the meds I am currently on I have been on some many others over the years, prior to my back surgery, during, after and than changing and stopping all the pain meds I was having daily. I unfortunately have found that when i have had to take any pain meds. for something minor, it has helped with the chronic pain I'm experiencing but I hate to have to think of having to live like that again and if so fo how long,, grrr, did that and want to really be done with it.....I am seeing a rheumatologists who started my on the lyricia, I began water therapy and than discontinued because it was not doing anything, i was evaluated for PT specifically for Fibromylgia and was d/c before I began, due to my flexibility and strength non issues and as far as I've been taught and do in general daily stretching - I suffer daily no matter what I have tried it seems to be getting worse when I have those horrific days and lasting longer, I return to see my rheumatologists this week and right now am left with no words, but HELP...Anyone have any suggestions?? Experiences? I am 38yrs old have a wonderful and supportive husband and terrific kids, I'm sick of feeling like this and I can't imagine living into my 50's??? OMG, can you imagine..

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 10/4/2009 7:39 PM (GMT -7)   
nowjustsurviving

Welcome to Healing Well Chronic Pain Forum! I really am sorry that you have reasons to have come and post here! But with that said you could not have found a better place to come for support and understanding! We are not Doctors here and we sure can't cure you, but we can give lots of compassionate, caring support and understanding! If nothing else to let you know you are not alone in having chronic pain, and we can empathize with what you are feeling! I would like to suggest that you talk to your Doctor about your chronic pain and possibly needing to see a Pain Management Specialist who could help you with managing and controling your pain! A good PM can do so much more than just give you pain meds, from giving epidural steriod injections to TENS units to having you see a pain psycologist, there are many different ways of getting your pain under control, and a really good pain management doctor will find what is best for you! And of course come here and share with us your pain and frustrations and we are all here to listen and help support each other!

So again I Welcome you to our Family

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


nowjustsurviving
New Member


Date Joined Oct 2009
Total Posts : 4
   Posted 10/4/2009 8:00 PM (GMT -7)   
White Beard, thank you for your support. I have used a TENS unit in the past after my back surgery and found it to be very helpful and have been considering getting one for my chronic pain I'm having now. Thank you for welcoming me into the family. I haven't learned alot as to what to do with what's going on but hope to find some helpful information. And good luck to you!!! Laurie.

Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 10/4/2009 8:48 PM (GMT -7)   
Well, you learned where to type, and that is 50% of the battle LOL

Tony McGuire
Regular Member


Date Joined Feb 2009
Total Posts : 483
   Posted 10/4/2009 8:48 PM (GMT -7)   
Well, you learned where to type, and that is 50% of the battle LOL

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 10/4/2009 8:55 PM (GMT -7)   
Hi Laurie!

I too am very glad you have joined us! Even with wonderful spouses we can feel very alone when we live in pain 24/7. I too have fibro and it took me quite a while to understand what was going on. Once I did then I was able to deal with it much better.

It's very common for people with fibro to have it 'show up' after a major surgery or other insult to the body. Popular theory is that it may be laying quiet for many years, even possibly genetic, and when something shakes up the system like surgery, having a baby, a car accident or severe emotional trauma it takes off like wild fire. Rarely do you find someone who can't trace it back to some significant point in their life but...with that said, we do have people over in the fibro forum who have had it since birth!

I couldn't imagine living to 50 years old with fibro either but here I am about to leave the 50's and the pain isn't going away any time soon. I personally feel that the best thing you can do is to educate yourself. Join in forum posts, read all you can and ask questions. If you find yourself in the care of a doctor who believes your pain is "all in your head"...turn and run! Sadly there are still doctors who are in the dark ages when it comes to fibro. There are a lot of great books out there. My style is to check out the library and see which are good. If I find one that if very good I will get online, like to Amazon or something, and buy it used. Always trying to save a few pennies. I would suggest that when you are researching to be cautious about the sources. Just like diet plans and pills, there are plenty of people ready to relieve you of your hard earned money with promises of a 'cure'...lol Mighty silly to claim to have a cure for something that doesn't even have a known cause or route of transmission. Fibro is a syndrome...a cluster of symptoms and as of yet the medical community has not come to terms with what is happening or why we have pain 24/7.

Many of the university/medical sites have good information about the latest research and ideas on treatment. No, there's no cure but you know what??? That's not about to stop any of us from leading a great life! So, if you like....take my hand(extending hand) and we'll walk this path together. We will enjoy each day and cherish those we love. Our lives will be different than before but they will be rich and rewarding.

Ya ready???
Chutzie smilewinkgrin


ps....please join us for Koffee Klatch each day either here or over in the fibro forum and we have Chat Night on Thursday evenings at 6 PM Pacific time, 9 PM Eastern. This will be posted before the chat with instructions on how to get to the chat rooms and use them.
Play fair. Don't hit people. Say you're sorry when you hurt somebody.
~Robert Fulghum

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 10/5/2009 3:37 AM (GMT -7)   
Welcome to the forum.  I don't have fibro but do have chronic back & neck pain.  I'm 52 and have resigned myself to accept the fact that I will be taking pain meds for the rest of my life.  Without them there is no life cause all you can think of is the pain and living like that is no fun at all.  A good PM doctor can help you feel better and will enhance your quality of life.  With the right mix of meds or other non-invasive treatments I hope you will get your life back and improve your outlook on life.  It does take time though and alot of trial and error to get to where you need to be so try to be patient.  I don't think any of us will ever be 100% pain free but we can get it to the point where it is bearable.  Good Luck and again welcome! 

---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 10/5/2009 6:21 AM (GMT -7)   

Hi nowjustsurviving,

Welcome to our HW Family!  You have been given great advice from all who have posted.  It is a sad day when we realize pain has now become Chronic.  The best thing you can do like Whitebeard says is find a Pain Management Dr.  They understand CP and know how to prescribe an appropriate PM regimen.  None of us here wanted to give in and take PM BUT it does make life liveable and more bearable. 

Do like we do, we share our frustrations, bad days, good days and genuine friendships here on HW.  It makes a difference in my life even if I just come on to read the posts.

Look forward to your future posts.

XXOO
Patti


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/6/2009 8:01 AM (GMT -7)   

Dear Laurie,

Good morning! My name is Dani. It is a pleasure to meet you. I too, am glad you have come to find Healing Well Community. I am unable to stay long and chatt, but did want to send *warm huggs* and Welcome!

*huggs*
dani

TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 10/6/2009 8:08 AM (GMT -7)   
Hi and welcome to the family... I understand about the pain... I too have had Fusion surgery a laminectomy, and I had a Hysterectomy at age 29...I want to comment about the vision thing... I was DX'ed with Type 2 Diabetes in March of this year...one of the symptoms that made me think I was diabetic was my vision was getting really bad really fast. So, it may not be Diabetes, but please ask your Dr. to check your blood sugar...I am thankful that I found out when I did, it can do serious damage...and Congrats on your daughter...

Me.
I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 6:57 AM (GMT -7)
There are a total of 2,732,023 posts in 300,982 threads.
View Active Threads


Who's Online
This forum has 151148 registered members. Please welcome our newest member, Bui.
261 Guest(s), 4 Registered Member(s) are currently online.  Details
2ndgenirish, getting by, Bosco, eat2bwell


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer