Post Edited By Moderator (Chutz) : 10/11/2009 5:47:52 PM (GMT-6)
Hi WV. Girl and welcome to Healing Well. Wow, no wonder you are in alot of pain, goodness, with what you have been through and still going through. You have an awful lot on your plate right now. I am so very glad you found us and hope you will decide to hang out with us here at the forum.
I have a Medtronic pump, inplamted June of 05 for low back pain. I had a rough first year trying to get the pain under control with the pump. I have other health issues that had my PM dr extememly conservative when it came to ramping up my pump. I am not blaming him as he was looking out for my best interest no doubt.
Other than Dilaudid what else is in your pump? What is the concentration dosage of the Dilaudid? By that I mean like mine is 37.5mg , (I have Dilaudid and 3 other meds in my pump), my settings are 8.5mg a day. I have 4mg Dilaudid for BT pain that can betaken 1-2 at a time. Besides the Dilaudid, I have Clonodine 150mcg/ml, Sufentanil 15mcg/ml and Bupivacaine 7.3mg/ml. The PM dr I was seeing that recommended my pump was good to a certain point with pumps, but after he reached his limit of knowledge it all went down hill. That is a big problem with many pump drs, they are under-educated in pain mgt, under-ediucated in pumps and under-educated in medications that can be used in pump. If your dr falls in this category you are in trouble. I have been there. My PM dr decided to quit PM and go back into anesthesiology. Little did I know that was a blessing in disguise because I truly liked my dr. When I complained to him I was in terrible pain his comeback was " well you have the strongest pain drug there is in your pump." I accepted that answer but kept complaining lol. He had 45 pump patients that he referred to a dr here in my town. I was not happy changing drs, I was not happy that I was in severe pain but I had become use to the pain and I accepted it as this is how things will be. I saw my new dr Jan of this year. By the time I got to her I was bent over, I could not stand straight any longer and hanging onto my cane for dear life,lol. She was horrified when she saw the shape I was in. She was even more horrified when she asked her nurse to scan my pump and get my readings. My dosage was so low that a person could go to ER and get a shot of Dilaudid for pain and they would be getting more in a shot than I was receiving in my pump. She doubled my Dilaudid concentration dosage for starters, and increased my BT meds from 2 mg to 4mg and allows me to take 8 mg at 1 time if needed. I still walk with a cane because of balance problems but I am not walking like an ape with my knuckles dragging the ground any longer,lol. My pain is very well controlled until we have a front come thru but that temporary.
My new PM dr has over a decade of experience when it comes to pumps so she is not a rookie. She is a retired neurosurgeon. She also mixes her own compounds there in the office and and has vast knowledge of the drugs that can be used in these pumps and she believes in using the pumps to their full capacity, she says thats what they are designed for. She assures me that I am not even close to being maxed out on my dosage with the Dilaudid, other dr said I was lol. She has one patient that she uses 8 different medications in his pump. She is a firm believer in the pumps giving people their life back. You may not get 100% of it back but I am very happy with where I am at. I am doing things now that I have not been able to do in the past seven years. She is not stingy with increases and relies on the patient to tell her when an increase is needed. I know that I am one lucky person to have this dr taking care of me and I thank God every day for her being in my life.
Please make an appt and go in and see your dr and tell him what is going on with you. By the way, how long have you had the pump? If I can answer any questions you may have please let me know. If I can help you I will sure try.