Post Edited (Screaming Eagle) : 10/7/2009 9:36:34 AM (GMT-6)
For about 2 years I had to scrape, borrow, and do whatever I had to just to get enough money for PM appts. and prescriptions..I didn't have insurance and I suffered greatly. Finally, after going through this I signed up, and received TennCare. Now, that 2 years was horrible, and I don't wish that on anyone, but thank God I got my insurance back. Why can't you qualify for medicare? Does your husband make too much money? I live with my mom, have for a while, and they don't include her income...why? I don't know, but I am greatful. There are other options in whatever state you live in. I know that Doctor appts. are expensive, but not going can cause bigger problems. I wouldn't be able to function without my pain meds. I don't know how you do it...
I have been a spectator for so long..Now it's time to participate.......
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/ 30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen
I too would like to welcome you to Healing Well. I see many of the others have jumped on board and given you lots of info. I am so glad you found us but very sorry to see another person show up with CP. I think you will agree this is a terrific group of caring people. Many have been in your spot at one time or another or may be standing right there beside you now. The main thing is to know you are not alone in this and thats imporant for someone struggling with health issues because many times we do feel alone.
Its great that you have a supportive husband. Many spouses find it hard to deal with CP, men think they are suppose to fix things and CP is one thing those guys cannot fix. So, yes, it does affect them as well. Others flat do not get it and cannot understand it. CP is not something you can see like an open wound or a broken arm or leg in a caste. The only people that can truly appreciate CP is another CP patient. Its hard for us to understand at times, so naturally someone not directly involved is not going to understand it.
Depression and CP go hand in hand, thats a given. Many times if a person can get on medication for the depression they find that the pain has lightened up a little too.
Three level fusions are not done very often for reasons WhiteBeard gave you too. Also, another factor fusing three levels pretty much makes the lumbar spine like a broom stick with very little movement and most flexibility would be gone and drs really do not like going down that road on a person.
By chance where you live do you have a "county hospital" that provides indigent care. Simply meaning people with no insurance, people with no insurance and income. These places operate on a sliding scale to free care if the qualifications are met. We have one here in the town I live in. Might be worth checking into if you haven't already.
I think if I were in your shoes, I would consult with an atty that handles SSI & SS claims only and get an opinion on re-applying, however, I would be inclinded to try first for SSD if you have met the earning requirements. You may be able to qualify for both. A call to SS can tell you that. That was a rotten trick pulled on you over the SSI benefits. Typical government BS.
Please understand that you are worth alot more than you are giving yourself credit for. You feel this way because you are depressed, in pain, not getting any relief with your pain and a slew of other factors are weighing heavy on you right now. One thing you need to realize is you are much stronger than you think. Most people with chronic health issues are extemely strong individuals because of what they have to deal with on a daily basis. Not everyone can handle this stuff.
As one of the others said, you just keep knocking on those doors, one of them will open up for you. I hope you will continue to come here and post and hang out with us.
I agree with Golitho, I can't add anything to what already has been posted....just wanted to say WELCOME and let you know we are here to support and hopefully lighten your load.
Sorry I didnt go online yesterday, but my body just wasnt working right. You know, the usual cramping and debilitating pain, nothing spectacular. But I do have some fabulous news, and maybe some more questions if you guys are up for it.
First a little back story... My son was on medicaid for the first year and it had just run out (I didnt know I had to reapply until the last minute). Since my hubby and I both had difficulty finding our birth certificates, and you need them to get assistance, we just applied for the boy to get medicaid. I finished the application on thursday night, and would you believe that friday afternoon some one called me for a phone interview. Since my hubby got laid off a month ago and hasnt found a job yet, the three of us qualified immediately for foodstamps and medicaid. We knew that we would under the current circumstances, but when I called to find out what we needed, a birth certificate if you were not born in Florida was a must. During the phone interview the lady said that all she needed to do was look us up on the DMV. Anyway, the medicaid is good for a year, even if John does find a job. The scary thing was that usually when you get foodstamps and stuff they make you got to this work net thing every day to try to find a job. When I asked her about this, she said that she was not even allowed to refer people to this because there are already full and there are no jobs to be had. We just thought it was Construction that was down.
So that was the update, now for the problems that Florida medicaid will bring. When I was on it a couple of years ago it was hard to find doctors that will take new patients with medicaid because as one doctor told me, medicaid only pays like $25 per patient and someone with my medical history requires a lot of time and paperwork. Most Drs tell me that I have too many medical problems. The last dr that I saw on medicaid said that she would take be back whenever I wanted to give her $75 or if I got insurance again, so I can probably go back to her. She kind of sucks though. She goes too fast, doesnt explain things, or allow me to participate in my "recovery" if you will. But I know she cares. She always remembers things about me that are supprising, and she will refer me to any specailist I ask for. She doesnt like prescribing PM on a reg basis, but she will give me Tram and send me to a PM office. The problem is that I have never found a PM office in the tampa bay area that will take medicaid. The ones on the list usually say that they are not taking NEW pts. Anyway, I guess every door has a lock on it, maybe even some barbed wire sometimes. At least I can go to the doctor. I know it wont fix the problem, but I will be more than happy to mask it for a little while!
I am overwhelmed by all of your support, and glad that I can come here.
I just wanted to welcome you and tell you that you couldn't come to a better place. The people and the moderators are the best.
Your back problems sound very similiar to mine. I know whatever advise given to you was good and from their hearts.
Unfortunately for myself and husband who is truely sick with chronic fatigue we can't even get disibility because our credits ran out. It really stinks considering all the money we gave to SS and now we need it, are qualified. The thing I can say is don't wait and get a lawyer who agrees not to accept payment until you can receive.
I know the pain well and in my state can get medicine but nothing is helping.
Sorry--this isn't about me, but I welcome you and will pray for you right now and wish you the best. I have heard of women who aren't getting support. I know my husband is filled with pain and still shows me do much love and attention. I thank God for him and I am sure you are grateful too.
Bless you. And I wish u well.