New to this site, desparate for help!!!

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pixie6976
Regular Member


Date Joined Oct 2009
Total Posts : 52
   Posted 10/7/2009 6:36 AM (GMT -7)   
Hi. I have been dealing with degenerative disk disease and psoriatic arthritis (a form of rheumatiod arthritis) for 8 years. For the first 6 years I had medicaid and doctors that just threw drug after drug at the pain, and I just kept getting worse and worse. about 2 years ago, I became ineligable for medicaid. Now there are no doctors and no medications. Since then, some things are actually a little better. I have relearned how to walk, sit, sleep, and stand in different ways that at the very least dont intensify the pain too much. When I clean the house I work for 10 minutes, then rest for ten minutes. It is quite rediculous. The problem is that the pain is always there no matter what. Every activity I do makes it worse. My life has been nothing for 8 years now. I hate everything, including myself. I am worth so much more, but my whole world is controlled by pain. I cant afford a doctor, i havent worked in about 6 years. I now have a husband and a 1 year old son who are perfect. They are being affected by the things I cant do, and the depression I am now controlled by. It is not fair to them, and to know that they are being hurt by this is killing me inside. I need help...I am drowning, and I dont know how much longer i can do this.

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 10/7/2009 7:37 AM (GMT -7)   
Your post really moved me. Welcome to Healing Well...I hope you can find the support you need. I can empathize with the pain you are in, as I have a rheumatoid type of arthritis myself (it's one of my Crohn's disease manifestations). I can also empathize with the loss of work and how even the most smallest of chores takes real thought and planning. There are people on this site who've been through the system of getting some type of help...I'm sure they will come and offer suggestions...in the meantime (((((((((((((((((((hugs)))))))))))))))))))))))))))))))))))
"The earth laughs in flowers"


pixie6976
Regular Member


Date Joined Oct 2009
Total Posts : 52
   Posted 10/7/2009 7:56 AM (GMT -7)   
Thank you so much. I have been feeling so depressed, helpless, and hopeless, and its nice to know that there is someone out there. My husband is very supportive, but cant relate and is at a loss of what to say or do. I cant express how much he helps me and does for me. I dont know what i would do without him. Even doctors told me that there was nothing they could do except medications and now there is not even that. I get what i can from friends when i can, and i know its wrong, but i dont know what else to do. I dont want to sound rude, or messed up, but to see what everyone else is going through kind of puts my problems in perspective, but it doesnt help me get through each second of pain. Ive been reading through some of the other discussions, and i love the responses and their positivity. I, for once, feel a little hopeful that at least I might be able to find a positive attitude through this forum, and i have not had that for a long time. Thanks again.
Degenerative Disk Disease, 3 deteriorated and 2 of those are also herniated in lumbar spine, also 2 herniated in C-spine. Psoriatic Arthritis, with the sholders, hands, left hip, and knees affected the most. Major anxiety and depression issues. Wishing I could learn to live with this.


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 10/7/2009 8:05 AM (GMT -7)   
Pixie..
 
First I want to welcome you to our family.  You will get all the support and advice you will need to make it through this time in your life.
 
Ok I will start by saying there are a few member who have or are in your same situation.  One of them is PAlady and she will be along this afternoon sometime.  She will be a fountian of information for you.  I will let her tell her story but shes got the hook ups on alot of program information.  On medications and so on.
 
We also have a thread on here somewhere about drug companies and deals they give people who can't afford there meds.
 
Now onto how you feel.  I have felt the same way.  Main word Felt.  I went to my pain clinic the first time and they put me on an anti depressant even though throughout my life I was never a depressed person.  The doctor expained Chronic pain makes you feel depressed and that the world is NOTHING.  So he put me on two different ones.  WOW it helped so much.  Yes I still have the pain everyday all day but I can smile and laugh.  After awhile I felt some of the pain lessening.  Another attribute to taking an anti depressant.
 
Just recently I was having issues about getting a cane.  I'm 39 and never thought I would need or want one.  Instead of crying and crawling into bed to hide I laughed about it and talked with everyone on here about it.  It was one of the funniest threads.  But it helped me make my decision.
 
Just remember how you feel mentally will always affect your presious family.  I'm so glad you came to us for some advice.  Its hard on my family and they are teenagers.  But they willing help me I'm not allowed to do certain things.  Can't mow the lawn and I miss that.  But you on the other hand have a small baby.  That is a HUGE task when dealing with Chronic Pain.  We also have alot of members with small children who feel just like you.  Overwelmed and overworked.
 
Please stay with us and keep us updated....
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 10/7/2009 8:11 AM (GMT -7)   
I read the next post from you that you put up when I was writing mine.
 
I'm so thrilled at least your husband is so supportive.  Yes most spouses can't and won't ever (hopefully) know what you are feeling.  Having a husband who is there to help is HUGE!  I hope you hug  and tell him you love him everyday  yeah
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/7/2009 8:29 AM (GMT -7)   
I agree, with the supportive spouce thing. My wife wasnt very supportive, until she recently had back problems herself....then the light went on....and she is much more supportive. as for how you feel, I understand totally...and have complained about feeling wothless all the time....I have never in all my life felt this way...and have always thought Iwas a stud of some sorts. This kills me mentally...and then to live every waking moment in pain is more than I can bare at times. So I really feel for you. I dont have any answers for you, and Im hoping that someone here can help you out. One thing that makes me feel better is to read of others problems. For example read yesterdays coment that Dani Henson made and by the time you get through reading it....I swear you will feel like a million bucks! I have DDD also. and know the type of pain your going through...and its a real drag. Im guessing laying down helps a little, and have you done PT?


Michael

Post Edited (Screaming Eagle) : 10/7/2009 9:36:34 AM (GMT-6)


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 10/7/2009 11:01 AM (GMT -7)   
 
Pixie,
For about 2 years I had to scrape, borrow, and do whatever I had to just to get enough money for PM appts. and prescriptions..I didn't have insurance and I suffered greatly.  Finally, after going through this I signed up, and received TennCare.  Now, that 2 years was horrible, and I don't wish that on anyone, but thank God I got my insurance back.  Why can't you qualify for medicare?  Does your husband make too much money? I live with my mom, have for a while, and they don't include her income...why? I don't know, but I am greatful.  There are other options in whatever state you live in.  I know that Doctor appts. are expensive, but not going can cause bigger problems.  I wouldn't be able to function without my pain meds. I don't know how you do it...
 
Me.

I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 10/7/2009 11:42 AM (GMT -7)   
Hi, Pixie,
Welcome to the chronic pain forum of Healing Well. I'm so glad you found us, although sad for all you're going through.

Like LLPLUV mentioned, I've been coming up with info. about medications because at the moment I have no insurance and unemployment has run out, so I am in the process of applying for SSD. I'm not sure if you ever did, but some form of disability may be an option. I'm not sure why you don't quality for Medicaid, but my guess is it might be your husband's income. IF he has or can get health insurance from work, is it possible for you to be put on that policy? I also know here in PA there is a state program for people who aren't eligible for Medicaid, but still meet some low income guidelines. Problem is there's about a 2 year waiting list. I have applied for a low cost policy and am waiting to here, but it still won't have prescription coverage. There's a thread that several of us added resources to and I'll find it and bump it up to this first page. Right now I am actually getting most of my medications at no cost - but I did have to send them my taxes and other income information, along with an application for each different pharmaceutical company. Worth it, though. The place I started was
www.pparx.org
which is the site Montel Williams advertises. You have to work with it, though, as it links you to the various programs depending on the medications you're on. And then you have to fill out applications.

But there are also a number of discount cards that you can get even if you're not low income. I'm getting my generic percocet from WalMart for $22 thanks to a discount card another forum member told me about. I was also shocked when I called around to price each medication at the chain pharmacies versus WalMart and other places now offering pharmacy services. A lot of this info. is on this thread.

Of course you'll need a doctor to prescribe the medications. In a nearby city we do have a small clinic started by doctors and nurses volunteering their time for people who are uninsured. Ask around. Or you may be able to negotiate with at least a local doctor for a low rate for an office visit to at least get things like an anti-depressant, and maybe some help with pain medications. And then you can use the resources to get them at low cost.

You've done an amazing job managing without any medications, so maybe it won't take a lot to give you some relief. Keep searching. Look for local community centers, call your local Red Cross or even the E.R. and ask if there are any clinics for the uninsured. And see if your state offers any alternative programs for those not eligible for Medicaid. Call one of your state representatives and ask.

Anyway, I'll look for the thread with the info. about medications.

Glad you joined us!

PaLady

pixie6976
Regular Member


Date Joined Oct 2009
Total Posts : 52
   Posted 10/7/2009 4:54 PM (GMT -7)   
Thank you everyone for your responses, I'm emberassed to say that it made me cry just to know that you guys are out there. I have felt so alone lately. I know a few people with similar problems, but no one talks about it, and for some reason they all seem to  be doing better than me.
 
There seemed to be a lot of questions, so I will start from the beginning. I was on SSI partial disability from the age of 17, because I was diagnosed with bi-polar disorder. I had a good social worker, who applied and got it for me. I went through life, sometimes i worked, sometimes I didnt. When I didn't, I went back on SSI. Being on SSI automatically qualified me for medicaid, and I got to keep the medicaid whether I worked or not. As I grew up, I got better, made better decisions, etc. Anyway, I moved to St. Petersburg, Florida 13 years ago. Eventually I went to St. Pete Junior College (which is now a real college) and get an AA and an AS in graphic design. After working in the field for a year and a half, the lower back pain started. Small at first, but it wasn't long before it got worse, and worse, and worse... I still had medicaid from SSI, so I had all the specialists, and all the meds that go with it. I did traction, PT, trigger point injections, ESI, massage, and probably some other stuff that I can't remember right now. Some of it helped, but nothing made the pain go away. My Dr. said that working was making it worse, so I quit and went back on disability. For about 6 years I was on disability, on every med you could think of. Drs said that I need surgery but, "I would never do a 3 level disk fusion on a 30 year old." Five different surgeons said exactly that. I really thought that there was no reason to have that much pain while on all those meds. As time went on, I came up for review on my disability based on bi-polar disorder. I had a psychological evaluation, and the state declared me in remission. While I was happy that I was no longer crazy, (which I kind of already knew) that meant no more medicaid, or money. I tried to fight it, then I tried to get the reason for the disability to be switched to DDD and RA but I was denied. While I was in appeals with SSI, they kept paying me and covering me with medicaid with the agreement that  it would be payed back if I lose the appeal. After aa year of this and a couple of denials, I owe social security ALOT!!! So, for the past two years I've been on my own.
 
In the past two years I have learned that nothing will get rid of all the pain, not even all the meds in the world. But I did learn that if I'm careful of how I sleep, sit, walk and stand, and keep my activities to a bare minimum, it can be somewhat bearable. I just cant do anything.
 
Lately, with my 1 year old, those activities are increasing and its become very difficult. My husband is in construction, which is a very bad field to find work in right now in Florida. When there are construction jobs available, they never offer insurance. I've tried the free clinics, but they all say that I have too many medical problems (I also have asthma and acid reflux) and that I need a primary care physician. They only treat my asthma. I applied for medicaid, they said that the income cutoff for a family of 3 is $300 per month.
 
Anyway, thats pretty much the whole story, sorry its so long. I want to thank everyone again for your touching and helpful responses. I think it might help to know that there are other people to talk to.
Degenerative Disk Disease, 3 deteriorated and 2 of those are also herniated in lumbar spine, also 2 herniated in C-spine. Psoriatic Arthritis, with the sholders, hands, left hip, and knees affected the most. Major anxiety and depression issues. Wishing I could learn to live with this.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 10/7/2009 5:48 PM (GMT -7)   
pixie6976
I am sorry for what you are having to go through! Whith your age so many Doctors are very reluctant to do allot of the fusion surgery that you need. I think one of the reasons is that when ever they do a disk fusion it puts allot of stress on the disk above and below the fused area, and there is a very good chance that within a few years you will need to get those taken care of. If they have to fuse several in a row the stress is all that much more on those other disk and the sooner they will have to be fixed. But with that said, that doesn't help you at all!! Unless they do something to take the pressure off the nerve roots your going to have continued pain! I really think you need to talk with a lawyer about trying to get SSD because of your back! Have you talked to your SS rep. and have you applied for SSD because of your back problems? If you can get a Doctor to support you on this, and from what you say you should not have much of a problem on getting documentation. If they say you need surgery but the Docs are not willing to do it, well then what are you suppose to do? Maybe you have already tried all this things. But if you haven't it might be worth your time to do so.

You should not have to live your life in constant pain. And you should be able to take care of your little one. If it is hard for you now, the next few years is not going to be any easier, and those disk can get worse!

Pixie I do hope you can find the help that you need! I am glad you found us here, and hope you stick around. You are not alone in this!
Good Luck to you and wishing you only the best!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 10/7/2009 7:45 PM (GMT -7)   
Pixie,
Those income limits for a family of 3 are absurd, aren't they?! I would suggest the same thing as White Beard - consider finding an attorney. I think you're talking about SSI rather than SSD, but I still think there are attorneys who will take that case. That was a lousy deal they made with you as they well know there are repeated denials - that's commonplace!

Are there any charitable hospitals in the area who have clinics who would treat you - at least to some extent - even for a small fee, if not for free. Sometimes those that have a religious affiliation are a bit more open to sliding fee scales, etc., and maybe even might have a social worker on staff who could help you reapply. Sounds like you also may have some depression (which I know is part of bipolar). You may have been in remission when you were able to take medication, but if you can't afford your medication even for the bipolar, let alone the pain, then you're not in remission anymore.

I'd try calling a few attorneys who specialize in this and see if you can get one to consider your case - of course, on a contingency basis.

I'm also glad you found us. I know most of us feel so much less alone because of the support that's created here!

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 10/7/2009 9:11 PM (GMT -7)   

Hi Pixie,

I too would like to welcome you to Healing Well. I see many of the others have jumped on board and given you lots of info. I am so glad you found us but very sorry to see another person show up with CP. I think you will agree this is a terrific group of caring people. Many have been in your spot at one time or another or may be standing right there beside you now. The main thing is to know you are not alone in this and thats imporant for someone struggling with health issues because many times we do feel alone.

Its great that you have a supportive husband. Many spouses find it hard to deal with CP, men think they are suppose to fix things and CP is one thing those guys cannot fix. So, yes, it does affect them as well. Others flat do not get it and cannot understand it. CP is not something you can see like an open wound or a broken arm or leg in a caste. The only people that can truly appreciate CP is another CP patient. Its hard for us to understand at times, so naturally someone not directly involved is not going to understand it.

Depression and CP go hand in hand, thats a given. Many times if a person can get on medication for the depression they find that the pain has lightened up a little too.

Three level fusions are not done very often for reasons WhiteBeard gave you too. Also, another factor fusing three levels pretty much makes the lumbar spine like a broom stick with very little movement and most flexibility would be gone and drs really do not like going down that road on a person.

By chance where you live do you have a "county hospital" that provides indigent care. Simply meaning people with no insurance, people with no insurance and income. These places operate on a sliding scale to free care if the qualifications are met. We have one here in the town I live in. Might be worth checking into if you haven't already.

I think if I were in your shoes, I would consult with an atty that handles SSI & SS claims only and get an opinion on re-applying, however, I would be inclinded to try first for SSD if you have met the earning requirements.  You may be able to qualify for both. A call to SS can tell you that. That was a rotten trick pulled on you over the SSI benefits. Typical government BS.

Please understand that you are worth alot more than you are giving yourself credit for. You feel this way because you are depressed, in pain, not getting any relief with your pain and a slew of other factors are weighing heavy on you right now. One thing you need to realize is you are much stronger than you think. Most people with chronic health issues are extemely strong individuals because of what they have to deal with on a daily basis. Not everyone can handle this stuff.

As one of the others said, you just keep knocking on those doors, one of them will open up for you. I hope you will continue to come here and post and hang out with us.

 


Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 10/8/2009 4:48 AM (GMT -7)   
Hi Pixie, everyone has given you such fantastic advice. I just thought I'd send you a BIG cyber HUG, you're most welcome to come and rant or rave to us at anytime, golitho

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 10/8/2009 5:55 AM (GMT -7)   

Hi Pixie,

I agree with Golitho, I can't add anything to what already has been posted....just wanted to say WELCOME and let you know we are here to support and hopefully lighten your load.

(((((((((((((((((((((((((((((Pixie)))))))))))))))))))))))))))))))))))

XXOO
Patti


pixie6976
Regular Member


Date Joined Oct 2009
Total Posts : 52
   Posted 10/8/2009 7:46 AM (GMT -7)   
Wow! That was a lot of really good information. I will take the next couple of days to look into this. The fact is that when I quit my job I gave up on life. Even though I tried for a while, I just quit. Even after I hooked up with my husband, I just didnt have it in me to want to do things. I dont go anywhere, I just sit around. But since we had our son, I feel like I have a reason to want life again. To be fulfilled, not just for him, but for myself and our family as a whole. I cant do that if I am obsessed with pain. My husband and I have talked about some of the things youve said, and we have formulated a plan. I will keep you updated with how it is going. I cant tell you how much all of your support means to me.
Degenerative Disk Disease, 3 deteriorated and 2 of those are also herniated in lumbar spine, also 2 herniated in C-spine. Psoriatic Arthritis, with the sholders, hands, left hip, and knees affected the most. Major anxiety and depression issues. Wishing I could learn to live with this.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/9/2009 9:36 AM (GMT -7)   
 
   Dear Pixie,
 
     Good morning. My name is Dani. It is very nice to meet you *huggs* I am terribly sorry I didnt introcuse myself sooner. Things are a bit.... well the days are a bit long. I am sure you understand what I mean.
 
     How are you feeling today? A little better I hope? It is cold here, and for some reason the cold seems to shoot straight through to my bones. Is it cold out where you are?
 
     I read through all your posts and I am afraid I havnt much advise to offer or mush to add that hasnt already been said.  All the members here are an endless wealth of knowladge and support! but!! I did want to stop by and introduce myself and send a warm welcome *warm huggs* It really is very nice to meet you *huggs*
 
*huggs*
   dani
 
 
 
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/9/2009 9:38 AM (GMT -7)   
 
 
Oh! Michael! *warmest huggs* hehe
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


pixie6976
Regular Member


Date Joined Oct 2009
Total Posts : 52
   Posted 10/10/2009 6:46 AM (GMT -7)   

Sorry I didnt go online yesterday, but my body just wasnt working right. You know, the usual cramping and debilitating pain, nothing spectacular. But I do have some fabulous news, and maybe some more questions if you guys are up for it.

First a little back story... My son was on medicaid for the first year and it had just run out (I didnt know I had to reapply until the last minute). Since my hubby and I both had difficulty finding our birth certificates, and you need them to get assistance, we just applied for the boy to get medicaid. I finished the application on thursday night, and would you believe that friday afternoon some one called me for a phone interview. Since my hubby got laid off a month ago and hasnt found a job yet, the three of us qualified immediately for foodstamps and medicaid. We knew that we would under the current circumstances, but when I called to find out what we needed, a birth certificate if you were not born in Florida was a must. During the phone interview the lady said that all she needed to do was look us up on the DMV. Anyway, the medicaid is good for a year, even if John does find a job. The scary thing was that usually when you get foodstamps and stuff they make you got to this work net thing every day to try to find a job. When I asked her about this, she said that she was not even allowed to refer people to this because there are already full and there are no jobs to be had. We just thought it was Construction that was down.

So that was the update, now for the problems that Florida medicaid will bring. When I was on it a couple of years ago it was hard to find doctors that will take new patients with medicaid because as one doctor told me, medicaid only pays like $25 per patient and someone with my medical history requires a lot of time and paperwork. Most Drs tell me that I have too many medical problems. The last dr that I saw on medicaid said that she would take be back whenever I wanted to give her $75 or if I got insurance again, so I can probably go back to her. She kind of sucks though. She goes too fast, doesnt explain things, or allow me to participate in my "recovery" if you will. But I know she cares. She always remembers things about me that are supprising, and she will refer me to any specailist I ask for. She doesnt like prescribing PM on a reg basis, but she will give me Tram and send me to a PM office. The problem is that I have never found a PM office in the tampa bay area that will take medicaid. The ones on the list usually say that they are not taking NEW pts. Anyway, I guess every door has a lock on it, maybe even some barbed wire sometimes. At least I can go to the doctor. I know it wont fix the problem, but I will be more than happy to mask it for a little while!

I am overwhelmed by all of your support, and glad that I can come here.


Degenerative Disk Disease, 3 deteriorated and 2 of those are also herniated in lumbar spine, also 2 herniated in C-spine. Psoriatic Arthritis, with the sholders, hands, left hip, and knees affected the most. Major anxiety and depression issues. Wishing I could learn to live with this.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 10/10/2009 8:08 AM (GMT -7)   
Pixie great news and yes go back to that dr. But be sure to explain the difficulty finding a pain mgt dr willing to take Medicaid and maybe she will be more lenient. My posts are short because I broke my arm 2 days ago, hugs.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Denim
Regular Member


Date Joined Apr 2007
Total Posts : 428
   Posted 10/11/2009 12:36 PM (GMT -7)   

Dear Pixie,

I just wanted to welcome you and tell you that you couldn't come to a better place. The people and the moderators are the best.

Your back problems sound very similiar to mine. I know whatever advise given to you was good and from their hearts.

Unfortunately for myself and husband who is truely sick with chronic fatigue we can't even get disibility because our credits ran out. It really stinks considering all the money we gave to SS and now we need it, are qualified. The thing I can say is don't wait and get a lawyer who agrees not to accept payment until you can receive.

I know the pain well and in my state can get medicine but nothing is helping.

Sorry--this isn't about me, but I welcome you and will pray for you right now and wish you the best. I have heard of women who aren't getting support. I know my husband is filled with pain and still shows me do much love and attention. I thank God for him and I am sure you are grateful too.

Bless you. And I wish u well.

 

 

 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 10/11/2009 1:58 PM (GMT -7)   
Pixie,
I hope this works out for you and that maybe the new year will bring more jobs...
lots and lots of soft hugz and prayers
(((((((((((((((((((((((((Pixie)))))))))))))))))))))))))))))))))))))))))))))))
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* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

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pixie6976
Regular Member


Date Joined Oct 2009
Total Posts : 52
   Posted 10/12/2009 9:28 AM (GMT -7)   
ThanksChartreux. And Denim, i know all about the nothing working. When I did have drs and all the meds in the world, I too had the prob of nothing working. They threw drug after drug at it. But since I have spent 2 years without a dr, I think that part of my prob was that i was doing too much. I am hoping that this time around I can find a good balance between activity and rest and find a way to make this work.
Degenerative Disk Disease, 3 deteriorated and 2 of those are also herniated in lumbar spine, also 2 herniated in C-spine. Psoriatic Arthritis, with the sholders, hands, left hip, and knees affected the most. Major anxiety and depression issues. Wishing I could learn to live with this.

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