Trying Lyrica, got a couple questions.

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opnwhl4
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Date Joined Dec 2008
Total Posts : 4961
   Posted 10/10/2009 2:42 AM (GMT -7)   
Howdy everyone-
My doctor finally got my insurance company to approve Lyrica for my rib pain. After a couple days I have pretty much zero pain in my ribs, but I am very dizzy and have blurred/double vision. My doctor says it should clear up in a couple days to a week. I was wondering if anyone has had this side effect and how long it took to clear up? I had another kidney stone ordeal yesterday and wasn't able to get in my second dose of lyrica since I was in the ER and then transferred to another hospital.
I have resumed taking it and the dzzyness and blurred vision has returned. I am hoping this isn't a lasting side effect.

Take care,
Bill

Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 10/10/2009 8:13 AM (GMT -7)   
 
   Dear Bill,
 
     Good morning *warm huggs* I hope you are okay? Are you still in the hospital because of your kidneys? Gosh, you have so much pain right now, it doesnt seem fair to have even more on top of it all *warm huggs*
 
     I have never taken Lyrica. I dont know if thise will help.. I take a/n medicine called Amitryptaline for pain. It too has side effects very similar to those you mentioned. While it was being slowly increased in dosage, I had to "re live" the side effects each time, for about a week and half.  In the end it was well worth the trouble. but, in your case, I would think that if the side effects last longer than a week or so.. re contact the prescribing physician.
 
     I am so sorry that you are dealing with so much right now. I do hope things begin to ease up (and slow down!!) and try to take care. *huggs*
 
   *huggs*
      dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


pixie6976
Regular Member


Date Joined Oct 2009
Total Posts : 52
   Posted 10/10/2009 9:58 AM (GMT -7)   
I was on Lyrica for a couple of years for the sciatica in my left leg. When I first started taking it, i almost felt drunk for a while. Those types of side effects do go away, though, after a couple of weeks and the nerve relief was incredible. If you ever come off of it, though, do it slowly. I had to come off it all of a sudden and that nerve pain was worse than it was before going on lyrica. The extra pain lasted about a month and I cried every day. I hope this was helpful, and hope you feel better.
Degenerative Disk Disease, 3 deteriorated and 2 of those are also herniated in lumbar spine, also 2 herniated in C-spine. Psoriatic Arthritis, with the sholders, hands, left hip, and knees affected the most. Major anxiety and depression issues. Wishing I could learn to live with this.


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 10/10/2009 10:43 AM (GMT -7)   
Hi, Bill,
I tried lyrica for a brief time, and didn't stay on it only because the doctor who had my on it didn't know how to dose it correctly. I never was put on a high enough dose, so I ended up returning to the neurotin - which is kind of the older version of lyrica. I had the blurred vision for awhile with the neurontin, but it slowly went away in a couple of weeks. I do believe it still makes me a bit foggy, but I also know that when I'm late for a dose, the nerve pain in my feet starts to increase quickly.

One thing I would ask is what dose of lyrica are you on? It's only a couple of years old, and I found a lot of doctors didn't know how to dose it right. Even with my neurontin, my neurologist wanted me to increase it from 300mg/day to 900mg/day within a week's time, and I knew that would knock me out. I had to practically beg him for some 100mg neurontin tablets so I could ease my way up. Now I take 400mg of neurontin 4/X day, but it took a long time to get to this dose. Too low a dose of lyrica (which is dosed differently than the neurontin - so don't compare numbers!) won't help, but too high too fast may bring on more side effects than needed. Plus you've got the kidney issue going on, and I wonder if the medication is being flushed out of your system properly.

What dose are you on? I think they usually start you on 75mg once or twice a day. But you can work up to, I think, 600mg/day. So you might ask if you can decrease the dose and move up more slowly, until your body gets used to it.

My doctor had even wanted me on a higher dose of neurontin, and I tried it and I am convinced it contributed to a fall I had here in the house one night a year or so ago, so I went back to the dose I was taking. But the blurred vision went away.

Hope this helps a bit! I may not be on much the rest of today, but will be checking in tomorrow!

Say hi to everyone over on the GERD forum. Sorry I've not been over there for awhile!

Hugs,

PaLady

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 10/10/2009 11:12 AM (GMT -7)   
Dani, pixie6976, and PaLady-
Thanks for the replies. I am on 75mg twice a day. The neurontin had stopped working for me even at 600mg 3 times a day. This is working really well if I can usy get past these side effects. I never did have much side effects with the neurontin.
I tried the amitriptaline, but the side effects were so severe I couldn't function at all. After a week they took me off of it.
I did get to come home yesterday from the hospital after having the surgery for the kidney stone. I am seeing a different urologist than I initially saw in August. After the surgery yesterday I found out the first urologists damaged my duct very badly. When the take the tent out next Thursday he wants to go back in and look again to see if he needs to remove anymore fragments from the first stone that were pushed into the duct and are now embedded there grabbing anything that passes by and forming new stones. He tried to scape out as many as he could without doing too much more damage. He was very angry that the other urologist did so much damage and thinks he may have to do one to two more surgeries to get things healed. He said he either has to get all of them out of the duct wall or get it to encapsulate completely or it will continue to hurt and form stone clusters.
Anyway, that's a whole other story. PaLady, I will definitely tell everyone you said "Hi" at the GERD forum. We know you are busy here and will stop by when you can.

Take care,
Bill

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 10/10/2009 11:29 AM (GMT -7)   
Hi Bill,
 
I have been on lyrica twice and am still on it.  Both times taking the drug, I started out on 25mg three times a day and then 50 twice a day.  I did feel groggy at first and did a lot of sleeping the first week, but then it went away.  Had I not known beforehand that this could happen, I would have been quite concerned. Give it a good chance to have the symptoms abate. 
 
PaLady brings up a good point that maybe your urinary system may have been compromised, in light of your history stated here, and maybe the drug wasn't filtering properly.  It's a thought.
 
Good luck to you.  May you continue good pain relief from Lyrica.  I know it helps me as well.
 
Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 10/10/2009 1:12 PM (GMT -7)   
Linda-
I am definitely going to give it a solid chance. I very pleased with how it has lowered the nerve pain. I am off work now until the 19th at least due to the kidney stone and hoping that is enough time for the side effects to subside.

Take care,
Bill

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 10/10/2009 3:07 PM (GMT -7)   
Bill,

I sure hope your body can adjust to the Lyrica. I couldn't get past day 2. That and Cymbalta were murder on my. I literally had to hold my head up with my hands...even while resting in my recliner. And the head/neck pain was horrid! But I've read from many folks here that if you can get adjusted to it that it can be wonderful. I've read some of the studies and it seems about 50% of those who are trying it do get significant pain relief. BUT, what the makers of Lyrica don't tell you is that for most people is starts losing it's potency at about 2 years out. But you found that neurontin did something similar so it's likely not a surprise to you.

Best of luck...
Chutz
Play fair. Don't hit people. Say you're sorry when you hurt somebody.
~Robert Fulghum

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)


Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 10/10/2009 3:07 PM (GMT -7)   
I have been on it for 4 years. The dizziness got a little better, but the sleepiness never went away. I am not cleared to drive while on the medication, so I only take it at night (which is good anyways since I need all the help I can get to fall asleep & stay asleep). I think many people adjust to the side effects & they basically go away, but I have met other people who still struggle with sleepiness. I was on Provigil for a while to help with alertness, but my guess is that if your insurance is fighting on the Lyrica there is almost no change they will cover Provigil for an off-label use.

I sure hope they find out a way to make it work for you. Even though I'm only on 50mg once/day, I've found it really helps.

wishing you well,
Frances

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 10/10/2009 4:26 PM (GMT -7)   
Today I am seeing an improvement in the dizzyness. Still have some blurry vision though, but not as bad as it was. It is still keeping the rib pain down to a dull roar and that's way better than the lightning bolts I had. I thought i was gonna be a miracle for my shoulder also, but it has started in again. Guess they are right that the tendons are messed up.
I am only approved until Dec. 31st for the Lyrica. If it keeps working I hope I can stay on it. Thanks for all the responses. It is a huge help knowing I am not the only one who has had these side effects. Sometimes these new meds are kinda scary. I felt fine when I laid down for a nap the other day and when I got up I thought I had been drinking all night. Couldn't stand up let alone walk without holding the walls up. Good thing I got my sea legs while I was in the Navy.

Take care,
Bill

PaLady- We have missed you at the GERd forum, but Bea has gone MIA and we haven't heard anything from her in a couple weeks now.

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2283
   Posted 10/10/2009 4:57 PM (GMT -7)   
Bill,
If the blurry vision doesn't improve, you might see an eye doc. I had the same issue & was given some prisms to work with. the prob resolved.

i don't know why that happens, but my eye doc says she's seen it a number of times & the prisms help in most cases. :)

-frances

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 10/10/2009 7:20 PM (GMT -7)   
Frances-
Thanks for the idea. I am hoping it clears up, but if it doesn't I will definitely be seeing my eye doctor.

Bill

opnwhl4
Forum Moderator


Date Joined Dec 2008
Total Posts : 4961
   Posted 10/17/2009 11:54 PM (GMT -7)   
Hi all-
Well the dizzyness, double vision have cleared up. I still have some slight blurry vision when reading small stuff. Probably just old age.
Now that the side effects have subsided it doesn't seem to be working nearly as well. Has anyone had this happen also? I am not sure if I should call him Monday and explain this or give it some more time. I have only been on it about 10 to 12 days. The ribs pain is coming back a little more each day. I am back to having to take a couple lorocets a day to keep things under control. Until 3 day ago I only had to use the tramadol 3 times a day and all was great.
I also have been getting pretty dehydrated and having hand and feet cramps all day. I am drinking about 6 to 8 bottles of water a day and eating 2 bananas also. I read somewhere that the Lyrica can cause some urinary issues, but can't remember what ones specifically. Any help there would be greatly appreciated.

Take care,
Bill

PS. can anyone walk me through posting pics on here? I have a couple I would like to share of my kids from Homecoming tonight and can't figure it out. Thanks in advance.
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