Okay, I have been here at HW for a while now...and I have posted about so many things, good and bad...and I appreciate all of my family here giving me advice and sending well wishes... So, here I go again.
This CP is just getting worse and worse... The pain meds I take seem to be having very little effect anymore and I really don't know what to do. I go back on the 28th and will discuss switching pain meds.....again. I have read that a lot of CP patients say that their Dr. switch their meds around faithfully....just so they don't get too tolerant... Mine has never done that. The only time they change anything is if I ask....a lot. So, I take Methadone 120 mg. a day..and Oxy IR 30 mg. 4/day for BT pain..I know, you already know that....but what in the world could I even change to?
As you all remember I tried, very unsuccessfully, to change to Morphine from the Methadone.... the last visit I mentioned changing the Oxy IR and she said to take Tylenol or Advil with it to "BOOST" the effects...(never heard of that) and if it didn't help we could change it next time....ok...what's next?
I know that everybody here is taking something different then the next. So I know that you have to have some ideas for me...
I am so sick of these meds working for a few months then (&^*^**&).....they stop. It makes for a very unhappy ME., So? What should I consider? I always have suggestions for the Doc, never ask for something specific though...so give me an idea my faithful CP family.... I need help.
I have been a spectator for so long..Now it's time to participate.......
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/ 30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen
I do the same as PAlady, I'll take ibuprofin although not often as I can't really take anti-inflams because of the stomach. With what you are on, I wonder if the fentanyl would help. For me it's all I've ever been on, but for me it works great. Do you notice if it's more the LA or the BT med, or both?
Carmen~*~*~Chronic Pain Moderator
DX-Chronic Pain due to two freak car accidents, Pancreatic Divisum,Fibromyalgia, Asthma, Depression w/anxiety, Migraines
Meds- Suboxone 16mg for pain, Cymbalta 60mg, Lyrica 50mg, Imitrex 100mg PRN,Ibprofen 800mg PRN, Ventolin Inhaler PRN, Visteril PRN
Wow!! As usual I am not disappointed by the responses...I knew I'd get some great advice. So, where to begin? I know that when I was researching Methadone I read NOT to take grapefruit juice with it...that it would send you into WD's fast!! I haven't heard of the tonic water thing... That scares me a bit.
As far as just changing the Methadone...that scares me..I tried to change to Morphine and that was a mess...I was given a script for Opana once when it was hard to find Oxy IR...they wanted $700 for them...of course I didn't have insurance then.but OMG!!! I can only imagine what the ER kind costs
The Oxy IR's may actually be helping, it's just hard to tell because the Methadone isn't cutting it anymore.
I did ask about Dilaudid and she told me that it was for Cancer patients only...same with Fentora. I have tried MS Contin one time...can't really remember if it worked or not...can't even remember why?
I am just so tired of the Hit and Miss of it all...ya know? I would love to find something that really works and keeps working for a long long time...
I do take Advil with my pills, I just can't do it very often because of my stomach problems... I also have to worry about acid reflux..that's fun!!
I guess i"ll just have to talk to the Doc on the 28th and see what she recommends...if she does at all. I'm afraid that she'll say that she can't help me anymore if I complain... we are always looked at funny anyway, so who knows what she'll do..
Hello....and yes I have thought about the pump...I have been scared of it though. Of course I don't know much about it so I guess I should research it first. My appt. is next week so I'd better come up with something to ask about. The Fentanyl Patch...I have tried it before...before i was put on Methadone. It caused me to have a rash and I couldn't keep them on. So I gave the remaining back to the Doc and he put me on Methadone. Haven't tried Oxycontin...it's way too expensive and TennCare doesn't cover it. I think they cover the MS Contin...is that the same thing just generic? I have no idea.
I agree about the Dr.'s saying that certain meds are for Cancer only...that is not really true. I think that certain Docs just don't want to give it to you...no matter how long, or how bad your pain is. I know that other CP patients are given Dilaudid and Actiq and Kadian...my Dr. won't give that...says it's for the big C....
I know that Morphine is a big "no" for me...it didn't work. So I'm not left with much. I think I am on the highest dose of Methadone that my Dr. will give...I did ask about increasing the dose and she said no. I am terrified of changing from Methadone due to WD's...they are not fun...but I may have to bite the bullet and try it anyway...if they titrate me correctly it may not be that bad...so what's next for me? I don't know..the pump?, taking me off the Methadone?, trying Oxycontin?
I guess I'll find out next week....
It's funny that you mention Opana...I have been reading alot of posts about it lately and I have been wanting to talk to my Dr. about it...
Do you take Opana ER? What a dumb question...of course you do if you changed from Methadone....So? Tell me all about it.....How much Methadone were you on? How much of the Opana ER were you started on? Did you have to taper the Methadone first?
Sorry about all the questions, but my appt. is in 3 days and I need all the info. I can get..