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Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 10/20/2009 4:49 PM (GMT -7)   
Well, the new PM doc that my PCD sent me to finally got a script out to me yesterday. I can tell you that I burnt rubber all the way there, as I have been waiting for several weeks for this to happen. I have been on Percocet for over two years now, and I have built up somewhat of a tolerence to them #10 325mg, three times a day. The new med they put me on is MSIR (Morphine Sulfate) 15mg, twice a day. I know this is the lowest dosage of MSIR but, much to my suprise it worked like a charm! They told me to keep taking the Percocet and to take the MSIR while on the down cycle of the percocet. I have been going 6 to 7hrs on the percocet and struggling after the 4th hour on it. The MSIR was a welcome relief for me to take after 4hrs and held me until about 1:30pm today when I took another percocet. So far, Im pleased with the results of the MSIR and like it better than the percocet, and swear that I dont get the foggy fealing with it. Im sure someone is going to correct some mistake I have made in my statements here, so be nice, as this is all very new to me. I look to this forum for support as all of you do. I also have tendonitus in both elbows and its severe in the left one. I have had 4 cortizone shots in it, and only helps for a few months. The pain meds that Im on now does not help at all with it. When I go back in to see the PM I will ask him about it. I have been reading that Lyrica may help with this. Also can anyone tell me why a PM doc would give me a IR med and not a ER med. I hate the ups and downs of the meds, and would much rather have constant relief. I would take any other suggestions that many of you veteran members may offer me. I hate posting this stuff after reading PAlady's post. What a terrible mess she is in, and I feel for her. Also White Beard, I read many of your post too and enjoy reading them. Hope you are doing well since you had your surgery. And last but not least, Ally the crazycatlady, Thank you for all your help too! you are one Crazy Cat! :) *Forgot to tell you all that I have DDD upper and lower back.

Post Edited (Screaming Eagle) : 10/20/2009 5:52:20 PM (GMT-6)


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 10/20/2009 4:59 PM (GMT -7)   
Just wanted to say I'm really pleased you've finally got help. As for the tendonitis it really is a major hassle to get rid of. I've had it in my hips and feel i hang out until the next cortisone shot... I've tried PT and rest, ice, small steps but it just keeps coming back. The last lot of shots with the watertherapy gave me the longest pain free cycle I've had. You could always ask if that would help you. It allows you to build up the muscle strength without increasing the inflammation, but it still came back! Sorry no words of cure, but I'm thrilled you've got some pain relief finally, golitho

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/20/2009 5:15 PM (GMT -7)   
Thank you! I was going to tell all here that when my back pain started, I began sleeping on my back with pillows under my knees. This seemed to help, but I then started having trouble with my elbows hurting. I could not for the life of me figure out why it hurt worse after a good nights sleep. I tried everything just short of surgery, but nothing helped, until I realized that my elbows were hanging at my sides during the night and pulling on the tendon's. I then changed my sleep pattern to laying on my side and much to my amazement, they felt better. While they are not pain free, they are much better now. I can only hope that they continue to heal. Dosn't help my back though! :)

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 10/20/2009 9:27 PM (GMT -7)   
ScreamingEagle,
I don't know much about the MSIR, or why your doctor chose this over an ER. Maybe to see how it worked for you. I'd talk with your doctor about an ER med if this doesn't last long enough.

And don't feel bad about posting despite my thread. It's all relative; we all have our pain and challenges - mine may be worse at the moment, but then others' have it worse than me!

I'm glad you're getting some relief!

PaLady

pixie6976
Regular Member


Date Joined Oct 2009
Total Posts : 52
   Posted 10/21/2009 5:44 AM (GMT -7)   
about the sleeping thing, It took like 4 years to figure this out,but the only way I can sleep between the arthritis and ddd, is on my side with 2 pillows under my head (one flat and thin, and one fluffy), one flat pillow under my ribs, one fluffy pillow between my knees, and one small pillow to hug in my arms. This keeps my spine straight and keeps pressure off my joints - except that if i lay on my left side i have to have the left leg straight with right drawn up (fetal position) or else that left hip kills me that day. I have to wake up every hour and turn over left to right, right to left. Just try different pillow configurations until something works. I wish I had more helpful information, but I am glad you got the med help you need. I was on a morphine sulfate time release 60mg, but they told me when I started taking it that you can build up a tolerance very quickly on morphine, and the were right. I had almost no pain for about 8 months then it hit me like a ton of bricks. I guess every good thing has to end eventually.
Good luck and congratulations!!!
Degenerative Disk Disease, 3 deteriorated and 2 of those are also herniated in lumbar spine, also 2 herniated in C-spine. Psoriatic Arthritis, with the sholders, hands, left hip, and knees affected the most. Major anxiety and depression issues. Wishing I could learn to live with this.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/21/2009 4:03 PM (GMT -7)   
 
   Dear Screaming Eagle,
 
     Good evening! *huggs* How are you doing tonight? Still improving, I hope? I know nothing of lyrica, thou.. Wish I could help. I take a medicine that slows my response to pain... Called Amitryptaline. I hear most folks dont like it thou ?? In anycase, I wont chatt your eyes off! Just wanted to send a *high Five* and I sure hope your continue to improve!
 
*huggs*
  dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 10/21/2009 7:32 PM (GMT -7)   
I was wondering about you and if you'd had your appointment, I'm glad you got good treatment...
looks like it was worth getting to see a new doctor...I wish you continued success and hope you can get
more painfree days....How's your sister doing??
Keep us posted...and lots of soft hugz...
(((((((((((((((((((((((((((((((((((((Michael))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
Hope I got your name correct...
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/22/2009 5:17 AM (GMT -7)   
Well, after being on the MSIR for two days, I have changed my mind as to the help Im getting with it. I had a massive Heart Attack in 2002 and remember them pumping me full of morphine then, and it didn't give me much relief then. Im going to call my PM and ask him to bump up the dosge or try something else on me, as it is just not getting it. It is a very quick acting med and dosn't last but about 2.5 hrs. This was suposed to extend me percocet, but the problem is that the percocet's are not working that well anymore. I guess I will have to see what the PM says, and it is always a long wait.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/22/2009 6:52 AM (GMT -7)   
I think the reason I posted a quick responce to the new med is that, any relief was welcome to me at the time. Im mad at myself for thinking that it was the magic pill to give me a more permanent relief. I was wrong...and it tic's me off that I was so eager to report my findings. One of the members here tried to warn me of this, and like an idiot, I ignored the advice. Im so disappointed in myself and the med.

OnTheRocks
Regular Member


Date Joined Oct 2009
Total Posts : 117
   Posted 10/22/2009 6:55 AM (GMT -7)   
A big downside to oral formulations of morphine is that they don't compare to IV administration. The amount of morphine that actually enters your bloodstream when taken orally is very low, so that's part of the reason you see people on such high doses of it. Just a little interesting fact. Hope you figure something out.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/22/2009 7:01 AM (GMT -7)   
Oh, I almost forgot!...my sister has been off work for 6 weeks now with DDD. They recently found a Anular tear, and she just received her first Epidural a couple of days ago. It will be a few more days before we know how well she will react to that. She has had a very hard time of it latley, and I think she is also depressed, as I can tell her mood has changed greatly.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/22/2009 7:14 AM (GMT -7)   
GCoin, thanks for the reply! Its good information, and Im sure the PM knows this, and probably is sneaking up the meds so that I get only what I need and not what I want. I guess its just a process that I will have to go through until they find the right combination for me.

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/22/2009 7:16 AM (GMT -7)   
 
   Dear Screaming Eagle,
 
     Good morning! *soft huggs* How are you feeling this AM? Still a  roller coaster with pain? Or have the waves of pain lessened? Though I hope for the best.. I fear for the worst. Keep us updated, I know many of us care about you a great deal and HATE to know your suffering in extreme pain. shakehead
 
     I was thinking... I know it is a new doctor, but perhaps you could leave a message? Talk openly about the "inital" releif and then about how fast it wears down? I hope I am not being too forward. Maybe your docotr expected it, and can bump up the dosage a little bit? You mentioned a "inital low dose" , but maybe now that you know you can tolerate the type of medicine it could be "upped"? Again, if I am being to forward let me know!!! I know so little about the differant medicines.. its frustraiting at times.
 
    And please, do not feel like you need to apologize and please do not feel "angry or sad" about yout inital response to the medicine. I too had alot of hope when I recently started a new med to stop my bones, teeth, etc from crumbling. Just try to remember "baby stepps". Your a fantastic person with a personality that shines so bright!!!! When you share your experiences.. you are also helping others who are going through the some of the same aspects.
 
     I see I am starting to get off track.. Sorry :-)   I hope today bring less sever waves of pain for you, and maybe even a little rest.. *huggs!*
 
*huggs*
  dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 10/22/2009 7:28 AM (GMT -7)   
I was on the that medicine MSIR for all of 2 days and almost ended up in the ER, I took it as prescribed and had
a hard time waking up, it would knock me out, and did nothing for my pain levels...I was quickly taken off it...Have
you ever tried Lyrica, celebrex or cymbalta? as those might help...Cymbalta is for depression as well, but can also
help with nerve pain, make an appointment with your new pm doctor and tell him/her that the msir is not helping
and what else could be tried....
I'm sorry to hear about your sister, I hope the injections will help her and will says a prayer for her...
Lots of soft hugz...
Hope you can get a low pain day soon
(((((((((((((((((((((((((((((((((((((((((((((((((((((((Michael))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
hugz to your sister, too....
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/22/2009 7:45 AM (GMT -7)   
Dani, I always welcome responces and love to hear from members here. I want to do the same myself, but I have been so concerned about myself that I have just not done it as much as I would like to. I know that sounds so selfish of me, but I hurt and that wears on me a lot. I have been living this way for over two years now. Im trying to get ahold of my PM now, and will see if he makes an adjustment for me. I can only hope.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/22/2009 7:47 AM (GMT -7)   
Chartreux, good information there! I appercicate it very much. I will do some asking about it with my PM

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 10/22/2009 7:56 AM (GMT -7)   
Screaming Eagle
 
Every one always has their  hopes up high with their new doctor and the meds they prescribe,  that is  a natural  thing to do, but please don't get discouraged now, your meds probably need some tweaking done to them either by changing them or the dosage. I would recommend that you do not suggest to the Doctor that you want him to increase the dosage or even change it, but instead just tell him the facts, that it is not working and you are not getting the pain relief,  and then ask him if there is anything that he can do to help you! Doctors are notorious for not wanting to be told what to do, so  leave that up to them! Instead just tell them the facts, if the med is not helping control your pain then he needs to know that! But let him take it from there, but definitely be persistent, if what he is doing isn't helping then make sure he know that!
 
I do wish you well, and I hope they can get you pain under control!
Good Luck to You screaming Eagle
 
White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--   DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in  Sep 2009,  C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/22/2009 8:12 AM (GMT -7)   
  I dont know how some of you members do it! I really dont! To live in constant pain everyday 24/7 is beyond my understanding.  And some of, or let me say most of you are in a lot worse shape than I am.  My hat is off to you all here, as you struggle everyday. I would give anything to be young again and treat my body differently. I thought I was superman! I used to watch what I call the senior citizens when I was only in my 30's and think to myself, that I would never let myself get into that  kinda shape. Well, now here I am!...all broken up and slightly bent, hobble out of bed looking like its my first time at walking, turning my whole body to look the other way, taking metamucil to keep from blowing my rear out, and trying to explain to everyone why I look so good, but feel like a buss load of school kids just ran over me. I have more pillows on my bed than the shaw of Iran! The remote to the TV is stuck to my left hand as I spend more hrs in bed than Hue Hephner! I hope everyone got a chuckel out of this and maybe some of you can relate to it.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 10/22/2009 8:29 AM (GMT -7)   
WhiteBeard is so right on...that's kinda what I ment too...in explaining to your doctor...
you could ask about physical therapy or bring it into the conversation..I do PT physical therapy
twice a week..it's supposed to be 3 times...I also see a pain management psychologist and that helps
and my heating pads and home tens unit all work, but sometimes nothing helps we all have our
moments...somedays my little kitties are the only way to get my mind off the pain...you thing about the
pillows made me smile, ty..
Hope you can get a low pain day soon..
Hugz...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/22/2009 8:34 AM (GMT -7)   
 
   Ha ha ha! Hue Heffner, HAHAHAHA Oh my goodness my side hurts!! Hahahahahahaha!!!!
 
   *warmes huggs!!*
          dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/22/2009 8:35 AM (GMT -7)   
Hello Chartreux, I have done the PT and the Ten's unit, but did not help. I just have that constant lower back pain. I still do the streching exercizes at home, and it feels good to do them, but just does not help with the pain. I will take yours and White Beards advise and only tell the PM that the MSIR is not working, and let him take it from there.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/22/2009 8:41 AM (GMT -7)   
Dani, Im so glad to see you laugh! ...and I have been meaning to ask you about the little poem attached to you page. Can you explain it to me?

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/22/2009 8:57 AM (GMT -7)   
Of....course I didn't mean to forget Ally!.......Baby, you and I will always be conected at the hip! You have been a real Hoot! I wonder if medicare will write you a script to have those little kittens declawed, as this could be the reason for some of your pain! :)

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 10/22/2009 9:15 AM (GMT -7)   
 
 
ScreamingEagle,
Hey, I am so sorry that the MSIR isn't working for you...I tried to change from Methadone to the Morphine ER and that was a major mistake for me...didn't even compare.  So I went back...I have had MSIR before and it didn't help either...I am having the same issues with the meds not helping anymore and I don't know where to go next.. I have an appt. next Wed. and I think I'll bring it up...
 
Good Luck honey, and I'll send you some pain free days.....free of charge.
 
Me. tongue

I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/22/2009 10:20 AM (GMT -7)   
uniquelyme
  Can you tell me what dosage you were given? Mine was only 15mg the lowest they have. I was hoping they would try oxycotin on me, the ER type to give me more of a constant relief. I hate the ups and down of each med wearing off in about 3 to 4hrs. I was given Morphine when I had my heart attack in 2002 and it did little for me at the time, so I should have known better when they gave it to me this time. It makes me sleepy, but the pain is still there. One thing that I do like about it is that it seems like Im not as foggy with it as I am with the percocet. I read the same responce somewhere else about having a clearer mind while on it. I just called my PM and they said they would leave the Doc a note, so Im guessing it will be a long waiting game again. This group used to do alot of PM work, but has since droped doing it because they are so busy doing Epidurals now. They took me on as a special case at the request of my PCD, of which Im greatful for. My PCD just moved his office and Im going to let him get settled in before I make an appt for more Epidurals, of which he said he would refer me for. I have as yet to actually meet this new PM Doc and he agreed to write the first two scripts without seeing me, based on the information my PCD office sent them. They said they would require a visit after the second refill was written. So right now my PCD is writting the script for the Percocet and the PM is writing the script for the MSIR. I will be glad when the PM takes over my pain management completly. I will however, keep my PCD informed as to what is going on, as he has been an excellant Doc to deal with, and we have been with him for 15yrs or so. He is to the place to where he is uncormfortable giving beyond the Percocet script, so that is why he has refered me to this PM Doc. The state of Kansas is very strict on Pain Meds right now, and Docs are tucking their tail at the expence of their patients. I guess this is becoming a real problem across the whole country too!
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