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golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 10/20/2009 5:14 PM (GMT -7)   
Going through a bad patch yet again. Just when I thought my joints were going to handle the lack of meds with no problems. Strangely started to flare once I was back on them again. I'm not sure if I've hurt my wrists or its just the arthritis but they are really sore. Even the pain meds aren't touching them. Wearing my splints for carpel tunnel but this is different pain.
Plus both hips are hot and swollen again and my right knee has decided to join the party.
I rang my rheumy but shes booked out and has so many people on her waiting list they won't put me on it! So rang my pcp to see if she can help and shes booked out till next wednesday. Everyone must be sick at the moment.
I only have 2 more weeks of term time for the university job so at least I can start winding down a bit.
Surgery wise I feel good, such a relief having no more period pains! Plus I had my bone density scan and my bones are dense!!! Yeah, so my low vit D hasn't affected my bones. But my white blood cell count has plummeted again. I had to go for another blood test yesterday so I'm crossing my fingers they climb back up again. Do you think the surgery would affect the white blood cells or would that have more likely made them increase in number? Theres always something happening... such is life.
But I had a good week away with the kids, the drive wasn't too bad, I took two breaks and apart from stiffness I felt ok. But maybe that has contributed to my state now.
PAlady, my husband may have the same condition as you. Barretts oesophagus? We hear today on the results.Best wishes to all, golitho

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 10/20/2009 5:29 PM (GMT -7)   
Has your Doc suggested Lyrica for nerve pain? Im curious about it if you have taken it. Hope you get to feeling better soon!

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 10/20/2009 9:35 PM (GMT -7)   
Golitho,
Sorry to hear about the flare, and increase in WBC. Possibly they're related, but you won't know until a doctor can look at all the pieces. Too bad you can't get in sooner to your Rheumy. Does she/he have a nurse practitioner you could get in with? Sometimes they can be pretty good, especially if they've worked with the doctor a lot.

Glad to hear about some positive pieces of news, though!

And yes, I have Barrett's esophagus, along with mild dysplasia, which basically means precancerous cell changes. So I've got to have surveillance endoscopies every 6 months. Let me know what your husband's tests show. I hope it's not Barrett's. It was a royal shock to me as I hadn't had chronic acid reflux or GERD.

PaLady

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/21/2009 3:33 PM (GMT -7)   
 
   Dear Golitho,
 
     Good evening *huggs* How are you doing tonight? Any better or is the flare-ups still raging on?? I am sorry your Rheumy have someone else they trust or can see you? I hate to know your going through flare-ups without any help cry   perhaps, they can suggest an alternative of some sort?  
 
      I am relieved to hear your bone density has come back within normal limits. Blessing! I hope you get good news on your husbands tests aswell :-)  
 
*warm huggs*
    dani
TWO roads diverged in a yellow wood,  
And sorry I could not travel both  
And be one traveler, long I stood


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 10/21/2009 7:52 PM (GMT -7)   
Unfortunately my hubby does have the Barretts, but its very early stages, hes also had no other symptoms and was only doing the endoscopy as a routine check. Thank goodness, as he had an uncle die of oesophageal cancer. His valve into his stomach is incompetent??? I assume not working properly?
My rheumy doen't have anyone with her, I can always go to an ER but I'd rather wait. I'll see my own doc and see what she thinks I should do, especially as the wrists are pretty bad. I had to work this morning so they're worse today, got my splints on to give them a bit of support, but they hurt abit because of the swelling. Can't win.
Swallow more pain meds and keep on going, I'm generating all this heat, I can feel the heat coming off my hips and knees in waves. Shame you can't link me up to a generator!!!
Hope everyone else is having a good day, golitho
 

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 10/21/2009 7:59 PM (GMT -7)   
Golitho,
First, sorry to hear about your husband and hope they caught it early, so send him my soft hugz..
I was wondering if the weather changes are having an effect on you and your wrist??? do you have
a heating pad you can gently wrap around your wrist??? or an ice pack, might help...keep us posted
as to how things are going for you...
lots of soft hugz..
(((((((((((((((((((((((((((((((((((((((((((((((((Golitho)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 10/21/2009 8:19 PM (GMT -7)   
Thanx Char, I've tried ice so I'll give the heat ago. It could be the weather, it is fairly changeable right now. Its just that its new pain that its bothering me so much. I get so use to all the old pains, always worrying when something new happens. Like whats next???

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 10/21/2009 8:30 PM (GMT -7)   
Golitho,
Sorry to learn of your husband's diagnosis, but glad it's been caught early. Was there any dysplasia? Yes, the valves not working properly can be a cause, and sometimes I think they can be repaired. I'm only beginning to learn about this, but I didn't have chronic reflux or really any GI problems except in the past year - and I was really eating a lot of chocolate at night. I thought that was the problem, and when the heartburn didn't stop after I changed my eating habit, I got a little nervous and decided to have the endoscopy, but never thought anything serious would be found. I've since learned a lot of people with Barrett's may have silent heartburn, especially at night. In addition, I'm learning about some new treatments - mainly the use of Radiofrequency to get rid of the Barrett's cells. Prior to this, everything I read said you could never get rid of the Barrett's, but could change the dysplasia.

Your husband may want to post to the GERD forum here, which I do on occasion, as I've met some others there with Barrett's. One of them also posts here, and maybe he'll add to this thread if he sees it.

I don't know if esophageal cancer runs in families. I knew very little about it until all this started, but now I know Barrett's is concerned a premalignent condition, and I've had to change my diet, eating patterns, etc. and willl have to have a surveillance endoscopy every 6 months. I do know the stats on esophageal cancer aren't good, so the Barrett's is nothing to ignore. Glad he got it diagnosed early, but sorry he has it.

Hugs to both of you,

PaLady

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 10/21/2009 9:02 PM (GMT -7)   
Thanks PAlady, he has ongoing health issues already with kidneys not working properly and an underactive thyroid and high sugars!!! But he seems incredibly healthy, he is in denial of course! The kidneys seem to be related to the autoimmune problem that affected his thyroid but our doctor is good and keeps him well monitored. We are already on diets for his various conditions so I will have to look up what to do about the Barretts!!! Its funny the rest of the family all have really low cholestriol because of his diet and he doesn't!!! I'm glad the cancer isn't known to be genetic, thats a relief. He also has to be screened again in 6 months.
Life seems to keep us very busy at times, best wishes, golitho

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 10/21/2009 9:09 PM (GMT -7)   
Golitho,
The most challenging thing I have found with the Barrett's is that you're not supposed to eat anything for about 2-3 hrs. before bedtime. And you're supposed to raise your bed up, so the acid from the stomach doesn't flow back into the esophagus at night. I've yet to do that last part, but I have stopped my snacking at least a couple of hours before bed, which often means I have to force myself to stay up later! Of course, the diet is supposed to be relatively healthy, and exclude spicey things or anything else that may irritate like citrus juices. I do miss my orange juice!

I wasn't sure if you misread my post about the genetic issue; I actually don't know if it's genetic in any way. I haven't read anything one way or another, but as I said I'm just learning about all this. I was pretty shocked by it, and it's even put the CP on the back burner to a certain extent.

PaLady

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 10/22/2009 7:24 PM (GMT -7)   
He wasn't told about not eating at bedtime, but is often up quite late on the computer anyway. They are very slack actually as he had that helicobacter pylori in his stomach and they were very slow at prescribing anti biotics for him then sent the wrong ones! He is allergic to penecillin. Some health care people are fairly useless. Lucky our local Dr is so good.
I'm glad its the end of the week, feel just so tired. Having pain in so many places can get very wearing, wrists are definately swelling. Made a call to try and get my splints adjusted, they're moulded plastic and are sort of digging in a bit, annoying as they do give relief and support.
Had to assess some of my drawing students today and feel a bit low. Some of them are wonderful and others sort of make do, very disappointing. Ended up failing 5 of them, I sort of shocked the class, I'm quite easy going normally. Anyway they all want to resubmit so maybe I'll have shaken them up enough to put in more of an effort for next week.
Some days I just sort of struggle to make sense of it all. I'm sure I'll bounce back again soon, golitho 

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 10/22/2009 9:13 PM (GMT -7)   
Golitho,
I can remember having to fail students when I used to teach. Students don't realize how painful it is for a teacher, plus you have to deal with their reaction. I do hope they produce better next time. You're right, sometime they do need a little shake up.

Sorry you're feeling so tired and hurting, but am glad you have the weekend coming up. As far as anyone helping me with the Barrett's, I have to say I've learned most of it myself by doing a lot of research. I did get one list of things given to me I think somewhere along the line, but I haven't seen my doctor since he did the endo. Just talked with him once on the phone, which is how he gave me the biopsy results. He said "it's not cancer, but..." and I don't think he had a clue what that sounded like to me. I never expected the Barrett's, let alone cell changes. So I've taken it upon myself to do research on everything from webmd to Medscape to people on the GERD forum here. You have to get proactive, as this stuff isn't something to take lightly.

Hope you get to relax!

PaLady
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