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drjimmy
Regular Member


Date Joined Dec 2008
Total Posts : 110
   Posted 10/23/2009 4:36 PM (GMT -7)   
I haven't posted in a long time. I don't know why, I guess I just am tired writing the same things over and over again. I'm so tired of the constant pain. I'm so tired of saying that the pain is worse than ever, just to find out the next day that it got worse than worse than ever. 80 MG of Oxycontin 3 times a day along with 10 MG of Percocet 4 times a day and I'm still suffering with no end in sight. My family (Other than my wife of course...she is my hero and my salvation)doesn't understand what I go through. They see that I am strong and have overcome and fought through incredible amounts of pain over and over...So they question me when I finally can't do something they expect me to do because the pain is just to extreme. They wonder why sometimes I can push through and other times I just can't. I don't want this anymore...I want just 1 day with no pain, but it never happens. Nights are bad, mornings are the worse. Anyway how is everyone else doing? I'm hoping to hear SOME good news from some of you.
Herniated Lumbar Disks L5 S1, L2 L3
Herniated Cervical Disks C6 C7
Spinal Stenosis
Degenerative Arthritis Left Knee
Pes Planus Both Feet
Multiple Neuropathies
Brachial Plexus/Thoracic Outlet Syndrome
Nerve Pain in Arms, Hands, Back, Legs, Feet, Groin, Testicles


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 10/23/2009 10:37 PM (GMT -7)   
Hi Drjimmy:

I am so sorry that you are still doing feeling so badly. I could have easily written this post myself. It is impossible for anyone to understand what we go through. That is why this forum helps us all so much, people here really do understand.

I hope that you will come around and post a little more often (when you feel up to it), and maybe the interchange of encouragement and true understanding will help you through.

Lorie

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 10/23/2009 10:59 PM (GMT -7)   
Hi Jimmy!

We have missed you my friend. One thing I can suggest from experience is not to share very much with others who really have no need to know. Let me explain a bit.

Of course your wife needs to know. You are a team, one person in two bodies and your Angel! But as far as the rest of the family goes, I have found that if I tell someone about my pain or condition that all I usually hear is how awful THEIR pain is like it's a contest. Plus my confidential comments to a family member will make it cross country faster than a good internet joke!...lol

How much do they really need to know? Do they WANT to understand? Or do they want to 'fix' you or see that you are made whole again like you used to be? I don't mean to be rude to any family members...I don't even know them...but will it help or hurt you to share details of your health with them? If you think it will only be bad, then I suggest not sharing.

Think about surrounding yourself with people who bring your spirits up! It might involve some real changes in your life but what I think I might be hearing from you is that you feel like you are in a miserable rut and stuck for life. Maybe?? If so you are NOT stuck if you choose not to be. I will be hard, but you can get out from under the hurtful comments. If you do choose to share then what they need is education. Get them some simple books on chronic pain, steer them to Healing Well and let them see what it's like around here, or better yet, take them one at a time to your doctor appointments. Let the doc know what's up and he'll make sure he gets their attention.

Another thing I would do if I were you is to get yourself involved in a hobby or some sort. You need something to bring your spirits up! One thing that helps me the most is to help others..like here on the forum. I take time to greet people and share my experiences in hopes that maybe just one person might have less pain because of something I said. Or maybe you'd like to volunteer at a simple job like at a local library for a couple of hours a month. Get busy living your life! It's out there still...all you have to do it go get it and it's possible even with the pain...I promise.

Warm hugs,
Chutzie
Children will not remember you for the material things you provided but for the feeling that you cherished them.
Richard L. Evans

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 10/24/2009 4:46 AM (GMT -7)   
Hi Jimmy, just wanted to pop on and say hi and that you have been missed. Chutz gave you some wonderful info, hope you will take it to heart. You do sound as if you are stuck in a rut and really need to do something to pull yourself out.

What are your drs saying about your pain levels being so high? Has any of them ever mentioned possibly a pain pump? I have one and after almost 5 yrs I finally have started doing things that I have not been able to do in 7 yrs. I do alot of things differently than before but thats ok, I keep at it. Just work with what I have.

Please don't be a stranger.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 10/24/2009 8:27 AM (GMT -7)   
drjimmy
What you have posted we all have felt at one time or the other. I know that by saying that, that it does not take away or even ease you pain, but maybe it is helpful to know that you are not alone in this! Because your NOT alone! I was also wondering like straydog was , if maybe your pain  needs to be under better control? You are probably ahead of us in that area, and have already looked into that, but if not you might want to talk with your PM Doc about it! Anyway I know I can empathize with your feelings and sentiments that you posted, as I am sure everyone else can too! You know we are always here!

I wish you well my friend!

White Beard


Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--   DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in  Sep 2009,  C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

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