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skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 10/25/2009 3:38 PM (GMT -7)   
Hello HW family,

I thought it was about time that I post something! I apologize for having been so scarce the last month or two, but, well, life is hectic with school & all. I know you all understand. I've missed you all! I try to at least read a little when I can, but that's been a major task for me lately. Pain-wise, everything is the same; still miserable to say the least, but I'm hanging in there. I do think that the coordination of my eyes has gotten a little worse again, though. Maybe it's just because I'm always so exhausted; that always makes my eyes a thousand times worse. Plus I'm using my eyes very heavily at the moment. Whatever the cause, there isn't anything that can be done about it & I'm sick of being let down by my doctors, so I'm doing my best to ignore it & move on. But that has been a contributing factor to my lack of contribution, as it's been harder for me to get through a lot of posts.

I'm still waiting to hear back from the neurosurgeon. It's been over two months since I've seen him. I called his office about 3 wks ago to let them know that I'm still here & waiting/see if he'd made any progress in his research. I was told that he still had my chart & that someone would check on things & let me know. Well, I never heard back, so I called again last week & spoke to his secretary. She remembered me & promised that he'd give me a call this week. So, we'll see. I'm not letting myself get my hopes up about anything, because more than likely there isn't going to be anything that he can do (if you remember, he's researching the possibility of a nerve stimulator and/or gamma knife surgery). But maybe I'll be pleasantly surprised, in which case, I'll have a lot to think about.

I think some of you may also know that I had to suddenly have all my wisdom teeth taken out about a week & a half ago, thanks to a persistent & nasty abscess. The surgery & the recovery have so far gone very smoothly. It was a piece of cake compared to everything else I've been through over the last several years! My teeth actually felt a lot better after the surgery than before it, when I had the abscess! I'm glad that something health-wise has finally gone right for me! :-)

I hope you all are doing well! Hugs to everyone.

Skeye

Oh, we also had some major excitement here on campus the other night. Lets just say it involved over 3 hrs of lockdown, the campus being searched by multiple police choppers w/ search lights & infrared cameras, armed state & city police, search dogs, and the SWAT team. Fortunately, when all was said and done no one in the campus community was harmed, but it was pretty scary for a while. Fortunately (or unfortunately) thanks to the Virginia Tech incident a few years ago, we now have a fantastic emergency alert system in place & the school did a really good job of keeping everyone safe & informed. I can't wait to get out of this city. I am NOT a city girl!

Post Edited (skeye) : 10/25/2009 4:54:11 PM (GMT-6)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 10/25/2009 5:28 PM (GMT -7)   
Thanks for the update!  Wow the lock-down sounds scary.  I am so glad your wisdom teeth extraction went well and you are feeling better there.  I am the proud owner of all my wisdom teeth!  Weird......I am not all that smart.  Sigh.
 
Good to hear from you!
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 10/25/2009 5:54 PM (GMT -7)   
Skeye,
So glad to see you post, but you're right - we do understand all you're juggling, especially with the eye problems and all the reading you have to do for school.

But it's good to hear from you now and then and at least know you're still hanging in there! At least there was a little good news with the wisdom teeth! And let's hope one of these days you're going to post here really excited about a possible avenue of treatment for you!

Hugs and Cheers to you!

PaLady

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 10/25/2009 6:44 PM (GMT -7)   
skeye
It was really Great hearing from you! I am glad the wisdom teeth extraction went so well for you!  Often times they can be such a Pain! It really is so nice of you to take the time to keep us all up-dated but definitely the best thing you can do for your family here at this forum is study real hard and just do your best in school! Which I am sure you are already doing! I do wish you well! I know how hard it is to wait to hear from your Doctor, but keep hanging in there! Hopefully it will all work out for you
 
Study Hard and do Good Skeye We all support you!
 
White Beard 
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--   DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in  Sep 2009,  C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 10/26/2009 8:56 AM (GMT -7)   
Skeye,
sure nice to see your posts, have missed ya, but understand with you at school and all...
the lock down might have been a practice drill, they do those sometimes, glad everyone was okay...
Sure hope you can get a low pain day before going into mid terms...
Good luck on those mid terms...
Lots of soft hugz and prayers...
((((((((((((((((((((((((((((((((((((Skeye)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines

********>^..^<********>^..^<********>^..^<********


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 10/26/2009 12:33 PM (GMT -7)   
Wonderful to hear from you and that you are past the wisdom teeth extraction. Thanks for keeping us posted on your progress!!

Hugs,
Chutzie
Children will not remember you for the material things you provided but for the feeling that you cherished them.
Richard L. Evans

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 10/26/2009 6:38 PM (GMT -7)   
Char,

I sure wish the whole lockdown thing had been a drill, but sadly it wasn't. My school is in the worst section of the worst neighborhood in town. The campus is beautiful & generally safe during the day, but I won't set foot off it or walk alone at night! There is very heavy gang activity in the area & it's not uncommon to hear about a murder on the news that happened within a street or two of campus.

The incident started with an armed robbery. The suspect fled to our campus, resulting in an intense manhunt, minor shoot-out, and ultimately his suicide. Apparently the police knew that the guy was suicidal & I think that they were afraid that he'd hurt or kill people before he tried to take his own life (especially since he bee-lined for a college campus).

Scary indeed, but fortunately, it ended well enough. It's sad about the guy though. He was my age.

Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 10/26/2009 8:29 PM (GMT -7)   
Skeye,
Sad and scary, indeed. I am glad no one else was hurt, and that it wasn't any worse.

When I was in college (back in the dinosaur age! LOL) I spent my first year at Case Western Reserve in Cleveland, and it at that time was surrounded by an extremely high crime area. Same as you - no one went off campus - even during the day, we had someone with us. It has become so much worse since then, though, but I do remember the feeling. But it was back in the 60's when there were a lot of protests and violence on campuses, too.

On a lighter note, you realize we're all coming to your graduation, don't you? :-) At least in a virtual sense! And boy, will we ever through you a party!

Hugs,

PaLady

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 10/27/2009 2:48 AM (GMT -7)   
>>>Skeye<<<
Holy Smokes! It seems like forever since we have talked! I've missed you! Sorry to hear about your wisdom teeth >Ouch< and the scarry stuff on campus. These times we live in it seems like you can't get away from the violence & crazyness! I'm sure the rest of your fan club will be praying that this neurosurgeon will find something to help you! I have you high on my list and have thought about you often wondering how school has been and how you have been dealing w/ the eye pain?
You may not know but I've not been posting much either. I made two trips north in one month and now am working like crazy to get the electric done in the new barn so my spouse will have lights for the short winter days. It's a long story but there was a huge fight when I got home from my first trip north and my wife had hired an electrician to do the work for tons of $$$$$ after I told her I would do it. Not working anymore it really hurt me her going behind my back like that. Now I know that she just didn't want me to hurt myself but back then my selfworth was in the toilet. Anyway, the job is almost finished and I got beutiful fixtures and suplies from old friends and conections as I worked in electrical supplies sales and construction for over 20 years. I did the whole job for less than $250. and everything is weatherproof. The wiring is all run in PVC and flexible liquid tight conduit running into weatherproof switch boxes, something her electrician wasn't going to do! I hooked it up to my generator last night while my wife was cleaning the stalls. Everything worked! All the lights came on through the right switches and my wife looked shocked! She ran over and gave me a big kiss and thanked me! All the agony I put myself through getting it done was worth it right then! I was her Knight in shining armor again! It felt soooo good! I felt like a man again!
Oh Skeye, I'm so sorry I've jacked your post! It was 4:00am and I got up in pain and I'm rambling on about myself as usual! Geeeeze!
Please know that I think so highly of you my little swimmer sister and you are always in my prayers! You are one tough cookie!
Big Hugz>
Pete
When I was young, I broke almost evry bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men. They are both serving in the US Navy, My oldest is serving on a aircraft carrier but is currently in advance radar school. The other is a Asault Ship "The Jaws of the Fleet" somewhere in the Persian Gulf w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/27/2009 7:59 AM (GMT -7)   
 
   Dear Skeye,
 
     Good morning *warm huggs*  It is ever so nice to hear from you. How are you doing this morning? I hope today proves less tressful for you!! And gosh, the scare on campus! Holy cow smhair
 
     I am so to hear your NS hasnt gotten back to you yet. That seems like an awfully long time to wait on an answer. It seems to me you need his help now, more than ever! With classes, homework, research... you must be down right exhausted!!! *warm huggs* I hope he can get back to you soon. And more so, with a plan.
 
     *huggs*
        dani
 
 

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 10/27/2009 7:13 PM (GMT -7)   
AWE Skeye,
sorry it wasn't a drill..was like holy smokes...scary for sure...but it's over now
and life goes on for us as usual...Hope your days get better after mid terms
and that you'll be able to get a few breaks...My daughter is leaning towards Music
Education and will be taking Cello lessons...for ME you need a few instruments
under your belt, so to speak..
Hope you get a low pain day soon...
Lots of soft hugz...
(((((((((((((((((((((((((((((((((((((((((((((((((SKeye)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 10/28/2009 7:15 PM (GMT -7)   
PAlady,
I am NOT a city person. In fact I initially refused to look into the college I go to, because of the city it's in. It is a fantastic school with a gorgeous campus, I just wish it was in a different location! I certainly won't miss this city when I graduate!

Pete,
Boy oh boy, it sounds like you've been really busy! You're not working, but you still seem to be constantly on the go! Have the horses made the move yet? I'm sure they'll love their new place, especially after all the work you put into it!

Dani,
I am pretty run down, but that's nothing new sad. It doesn't help that my pain keeps me up most of the night at best every night. Just part of CP, I guess.
As for the neurosurgeon, I'm not all that surprised that I haven't heard back yet. I know he's really busy (& I'm probably low priority, since I don't have something horrible that needs to be taken care of immediately, like many of his other patients) & he did warn me that it might take a little while for him to get responses back from colleagues. I honestly don't care all that much if he hasn't finished yet (I've waited this long, another month or two won't make much of a difference, especially since I probably wouldn't be able to have anything done until January or this coming summer if it is even a possibility). I just want to know that they haven't forgotten about me! Hopefully someone gets back to me this week.
How have you been doing? I've been thinking about you! I know you were having a rough time! Things must be busy in your household with Halloween coming up this weekend! Do your girls have costumes picked out?

Char,
It's great that your daughter is finding something that she is interested in! My grandmother was a music teacher before she became an elementary school teacher. My family is very musical. Everyone except my sister plays/played an instrument. My mother actually almost became a concert violinist. She started off at music school, but then decided that she didn't want the lifestyle of a musician & transfered to another college. She was really really good! I played the flute & piccolo for a while. The cello is a beautiful instrument, your daughter made a good choice :-).

hugs to all,
Skeye

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 10/28/2009 10:31 PM (GMT -7)   
Skeye, it was good to read a post from you. I know you are pushing hard to finish this part of the race so you can take a little time off before the next one starts. It would be great if the pain would take a break so you could concentrate a little more and get the rest you need. I am glad to hear that you recognize the danger of the area you are living in and events like the lock down hopefully helps all to rcognize the need to keep alert and aware of your surroundings at all times. Where are you going to put us all when we come to your graduation? Keep pushing, there is a break ahead.

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 10/29/2009 2:47 AM (GMT -7)   
Skeye, Yes, the horses are here! We brought them over a couple weeks ago! Oh how I love having them here! They are such funny people! They come over to me all the time to see what I'm doing. El Dorado is my big buddy! Lily isn't sure about me yet but she's trying. There black silluets (sp?) against the green pasture as the sun sets behind them is really something! Lisa & I watch it every night. The back of the house faces directly west and the sunsets are amazing sometimes w/ the clouds forming over the Gulf of Mexico!!! A back porch on the house is a definite! It's on my very long list of Honey-do's!!!
Geeze, I'm so hopuing the N.S. will call you soon w/ some optamistic news! I don't know how you hold up after all the let downs and all that pain! You are something else! My Hero for sure. Some say I push myself, I do nothing compared to what you are accomplishing in your life w/ the lousy hand you were delt!!!
Gots to go now but please know we are praying for you!
Much Love and El Gordo Hugz!!!
Pete
PS> Put me on the list for graduation too!!!
When I was young, I broke almost evry bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men. They are both serving in the US Navy, My oldest is serving on a aircraft carrier but is currently in advance radar school. The other is a Asault Ship "The Jaws of the Fleet" somewhere in the Persian Gulf w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 

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