Which is Worse?

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Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 11/6/2009 10:04 PM (GMT -7)   
One of the moderators said my previous thread was getting to long with over three pages or reply's, and I agree. However many of you have gotten used to easily finding me by the thread "Which is Worse?" ....so I simply reposted a new thread with the same topic. I hope this dosn't bother anyone that I have done this, and if it does, I will post a new topic here. now for a final note,.....I'm pleased to say that I'm still happy with the lower dose of meds that my PCD has placed me on. I have however been taking one to two of my Percocet's to help me throught the transition between doses. See you all tomorrow!....and get a good nights rest! :)

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 11/6/2009 10:44 PM (GMT -7)   
Screaming -- glad the meds are working out for you. I'm always glad to hear good news!! --Tina
Pain Issues: Neck/back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands, arms, feet; I also have POTS/dysautonomia; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Addison's Disease; Central Sleep Apnea; etc etc

Meds: MS Contin (480mg daily); Dilaudid (8mg/3x day); Actiq (1200 mcgs/1x per day); Soma (3x day); Atenolol; Midodrine; Phenergan; Effexor and on the list goes...

Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 11/6/2009 11:21 PM (GMT -7)   
Hi Screaming good news about your meds, lets hope it continues.

If I am remembering correctly if posts gets over 3 pages long I am thinking it causes problems with the server. Thats why a limt has been placed. Have a good weekend.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 11/6/2009 11:38 PM (GMT -7)   
Screaming, I am gladthings are till looking up. I am not going to wish yo a good day tomorrow. Have a GREAT day tomorrow.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/7/2009 9:23 AM (GMT -7)   
Thank you Stray, Mom, and Father! Yes,....things have been better for me lately. The roughest time of the day for me is in the early morning, when the meds have worn off over the night. It takes about 40min for the morning med to kick in, and it isn't anytime too soon, as I feel awful, from being stiff, with pain, and I'm sure a small withdrawal. I'm certainly looking forward to the surgery now, and hope with all my heart that it gives me some relief. I will also require the same surgery in my neck sometime in the future (fusion), and then I will have to deal with the elbow problem. In fact, my PCD said I might be able to have the surgery for the elbow 6 to 8 weeks after my lower back surgery. That way we can get it done while I'm off of work healing from the back. Kinda like killing two birds with one stone. (sorry, bird lovers) I wish the very best for everybody here, and am so grateful for the concern you all have shown. .....Now Scramo! Whamo! :)

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 11/7/2009 4:12 PM (GMT -7)   
If you can Screaming I'd try to get everything done in the same calendar year. I had my lumbar fusion first and covered all my out of pocket expenses (which were alot) then had my cervical fusion later in the same year for free.
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 11/7/2009 4:19 PM (GMT -7)   
Screaming... Mornings are the worst time for me, too... I have to "wake up" about 45 minutes before I actually "get up" - I take my pain meds, heart meds, anti-depression meds!!, etc....and wait for them to sink in so I can actually get out of bed. So, I feel for you!

I am all for getting as much done as possible. Although I know it's a lot for your body to go through, you'll know sooner whether it helps or not...and I'm sure praying for you that it does! Hope you are having a good day.... --Tina
Pain Issues: Neck/back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands, arms, feet; I also have POTS/dysautonomia; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Addison's Disease; Central Sleep Apnea; etc etc

Meds: MS Contin (480mg daily); Dilaudid (8mg/3x day); Actiq (1200 mcgs/1x per day); Soma (3x day); Atenolol; Midodrine; Phenergan; Effexor and on the list goes...

Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/7/2009 7:26 PM (GMT -7)   
  Tina, I do the same thing, if I can remember to put my med close to my bed at night. Isn't it the most rotten feeling in the morning? :(  I also take meds for my heart, as I had a massive heart atttack in 2002. I was counting how many pills a day I take, and it is some where around 11 to 12 including the poopy pills :) and several vitamens. Im doing pretty good now days, but don't think I will ever be the same again. In fact, I have never been the same after my heart attack. I was going to ask if you do Fackbook? I get on there quite a bit and love finding friends from long ago. If you do, let me know and I will send you an invite! Did you get on the Chat the other night? We had a blast there, and it was so much fun, seeing everybody there at the same time. Lots of funny comments there! You must have your hands full with 6 boys there. That is right isn't it? 6 boys? I have enough trouble taking care of 8 fingers and two thumbs! :) ....and I havn't said hello to my toes in several months. Give me a shout back if you want to talk......now Scram! :)

privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 11/7/2009 8:02 PM (GMT -7)   
Tina
I have the same trouble with my meds. I have an ileostomy so I get up and have to tend to it several times a night so I try to take my stuff in the early a.m. so I don't have the sleepies so late in the morning. I found out this week that Effexor IR that I have been on for months does not absorb because of the ileo so my antidepressant I have been flushing down the toilet three times a day, you'd have thought my doc would have know that. I'm now on a generic non IR type drug and maybe I'll not be so down. I told him one day that all these little balls were in my ileo bag and he you know that's the effexor....and shouldn't they be in my body? duhhhhhh. When I was in the hospital I took the oxycotin IR and the whole pill came out in the ileo he said....that's just the casing I happened to have a pencil in my hand and I poked it and it was solid and that was when he put me on the oxycotin elixir so I went a couple of weeks without pain meds, no wonder I was cranky. I guess it is all IR drugs that don't absorb.

Take care Tina, you really have your hands full if I was closer I'd try to help you out. I'm not near the help I used to be to my grown girls I hope someday they'll get their real momma back and I can pitch in and help them better.
Cathy

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 11/7/2009 8:22 PM (GMT -7)   
Hey Eagle!

Yes, we did have a blast in chat on Thursday. That's what it's all about. Sure, if someone wants to ask about medical stuff we do that too, but most of the time we just chat and enjoy ourselves. It takes the edge off of the misery for so many folks.

Oh, and the 3 page deal... when they get that long they tend to take up a huge amount of space so we try to avoid it. But you are welcome to start a new one. Just how the software works, I guess.

Take care!
Chutz
The three grand essentials of happiness are: something to do, someone to love, and something to hope for. — Alexander Chalmers

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


BionicWoman
Regular Member


Date Joined Jul 2008
Total Posts : 243
   Posted 11/8/2009 3:07 AM (GMT -7)   
Screaming Eagle said...
I was counting how many pills a day I take, and it is some where around 11 to 12 including the poopy pills :) and several vitamens.


Y'know what tickles me? I take 9 pills at bedtime and 7 are to fend off side effects... or ineffects, depending on your point of view.. redface
The difference between perseverance and obstinacy is that one comes from a strong will, and the other from a strong won't. ~Henry Ward Beecher


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/8/2009 10:24 AM (GMT -7)   
....I started taking the 20mg 3x a day of Oxycontin, and this has helped me so much in the mornings. I will try to stay this dosage for a while and see if I can handle it. My PCD told me to make what ever adjustment I needed, as long as I did not go over the origional dose perscribed of 80mg a day. Also....my wife and I decided to get a house cat to keep me company while I'm off for surgery. We decided on a Breed called a Ragdoll. It's a pretty large cat and is supposed to be very docile and loveable. I guess that it is supposed to love water, and may hop in the shower with it's owner as well. This type of cat is noted for sheding less that many other breeds, and is considered by many as a dog/cat, as it likes to follow it's owner around the house like a dog. Were pretty excited, and are supposed to go see one in a nearby town today at 1:00pm. My wife is about ready to pee her britches, she is so excited about it. We are already looking for a name for her. Yes, we do want a female! :)

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/8/2009 8:25 PM (GMT -7)   
Praying, I'm willing to bet that most of us here suffer the most at the morning hrs, especially if they are not on ER type meds. It makes the start of the day pretty rough, in fact I have missed many a day from work, just from feeling bad in the morning, and deciding not to go. I feel for all here, and it's something we may face for the rest of our lives. It's not a plesent thought, but it is the truth. Lets keep in touch, as I think that helps a great deal.

BionicWoman
Regular Member


Date Joined Jul 2008
Total Posts : 243
   Posted 11/8/2009 9:13 PM (GMT -7)   
With the morning I've had, it would really do my heart good to hear that you're shopping the shelters/rescues for a kitty and that she will be already or immediately be spayed..
The difference between perseverance and obstinacy is that one comes from a strong will, and the other from a strong won't. ~Henry Ward Beecher


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/8/2009 9:33 PM (GMT -7)   
Good evening Bonic! ...Well, we had a specific breed in mind, and found a local breeder close by. It looks like we are the now owners of a Rag Doll male kitty! He is only 6wks old and they won't yet release him to us, until he is 12wks old. At 4 months old we will take him to get fixed. They say this will help keeping him from getting started marking his area. My wife is so excited about him, and were now in the process of picking out a name. Right now, Tristian seems like a possibilty. He will only be a indoor cat, and they say this is one of the largest of the house cats, and could be close to 25lbs. I guess it is a known fact that this breed like water, and they have been known to join their owners in the bath or shower. My wife has been smiles all evening! :) I hope this has not upset anyone that we didn't visit our local shelter, however, we also see a puppy in the future, and visited a shelter last weekend. This breed of cat is also known for getting along very well with dogs as well. We will try to select our puppy from the local shelter, when were ready.

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 11/8/2009 10:48 PM (GMT -7)   
Hi everybody...

Screaming...Hey you. Congrats on the cat! I'm happy for you and your wife. We got a maltipoo puppy 10 months ago...and I love her so much. The boys think she belongs to them; but secretly she's my baby - and the only other "female" in my house!! I honestly didn't understand how much a pet helps somehow who is sick until I got her.

Yep, we have six boys - ages 14, 13, 11, 10, 8, and 5. I always wanted a big family - and I got it! I was healthy as we built our family...but I got really ill during my last pregnancy...and it's been that way since then! Not what I expected when I envisioned life with six kids! They are really good kids, though. Somehow, through all my limitations and the stress I've heaped on them by being hospitalized and sick....they've learned compassion, patience, etc. I laughed at you saying you have a hard enough time taking care of your fingers and toes!! lol...hey, I understand. Sometimes, I've got so many things going through my mind...I feel like I'm going to burst. But the one things my kiddos do is keep me going. No matter how terrible I feel, or no matter that I wake up each morning feeling like a truck hit me! - they get me out of bed and keep me going.

Re: Facebook....I am signed up and all, but hardly ever find time to get on anymore. I do love the concept and I love catching up and reading about what everyone's doing...but it's very time consuming! Re: chat...you know - as much of a computer junkie that I am, and always have been, I've never been in a chat (I'm slightly embarrassed to admit that!!). I would love to get on one of the chat's here at some point... Anyway, my e-mail is listed here on the site if you ever want to talk more...

Cathy (Privey)...Wow, that's amazing about the Effexor! You are right...you would of thought your doc would have known that...! I hope that the generic form kicks in and you feel better. Shoot, one day w/out the Effexor and I am a mess - lol. Anyway, I really could relate your comment about your girls getting their "real momma" back. That's exactly how I feel sometimes, and I wish the same things for my boys. How old are your girls?

I'm off to bed... Hope everyone here gets a good night's rest! --Tina
Pain Issues: Neck/back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands, arms, feet; I also have POTS/dysautonomia; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Addison's Disease; Central Sleep Apnea; etc etc

Meds: MS Contin (480mg daily); Dilaudid (8mg/3x day); Actiq (1200 mcgs/1x per day); Soma (3x day); Atenolol; Midodrine; Phenergan; Effexor and on the list goes...

Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 11/9/2009 4:32 AM (GMT -7)   
Sounds like alot of our members have excessive pain in the mornings but mine tends to be around 4 in the afternoon. I take my neurontin at 6am & 6pm then my oxycontin at 7am &7pm. I'm probably getting to the end of my pain meds at 4pm and normally have to take my oxycodone for breakthrough pain at this time. I'm gonna ask my doc to maybe increase my oxycodone up a notch to help with this.

The big kitty sounds great. Our siamese/tabby mix, Russell, is about 16# and I thought he was a big cat. 25# is a very big kitty, enjoy!!!
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 11/10/2009 1:41 PM (GMT -7)   
Tina,
My girls are probably around your age. Sara is the oldest and a teacher (2nd grade) and she is 38 and closer to 39. Kari is our youngest and she is a RN (works PACU Post Anethesia Care Unit) and she is 31. Sara's daughter is a senior and will be 18 in January and Kari has two kiddos Emily is 5 and in Kindergarten and Colin who is 8 weeks today. I've always been able to go and help them out with transportation, babysitting, cooking, etc. Since this last illness this past summer which resulted in an ileostomy because of UC and UC was new this summer because of c-diff and it is all related to my back surgery that I had in January 2008 I haven't been able to go and do as I always have. I retired in Aug. 2007 so I could provide an assisted living arrangement for my parents and help out my kiddo's and because I could retire. Heck I haven't even been able to carry Colin of course he weighed 9 lbs 10 oz at birth, I can hold him and love him but I wouldn't feel safe taking care of him alone because he might need to be transported from point A to point B and if alone I couldn't carry that little rascal. I still cook and can send left overs home with them but even that wears me out. You know what though??? It is going to get better!!! Someday I will be able to do what I used to do "the little engine that could". I will be me again.....I just keep telling myself that.....and it will happen.

Thanks for asking.
Cathy

babycakes-
Regular Member


Date Joined Nov 2009
Total Posts : 94
   Posted 11/11/2009 3:39 AM (GMT -7)   
Iv recently brought a chihuahua pappilon puppy to keep me company and he truely is the sweetest ever. Sometimes when im crying he just sits with me and cuddles.

As for pain, im usually up from 4.30-5.30 taking my pills, then i go back to sleep. The pain is at its worst then, or about 8pm.


Can someone please tell me what percocet is?

Thanks :)
Loin Pain Haematuria Syndrome - A Painful & Rare Kidney Disease.


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 11/11/2009 5:14 AM (GMT -7)   
Percocet is the same as Oxycodone but without the tylenol added. I use Oxycodone for breakthrough pain. Tylenol can be hard on the kidneys & liver if taken in excessive amounts or for anyone with hepititis or kidney disease.

Babycakes, it may help you get more responses if you start a new thread with your questions. I don't think I welcomed you to the forum, glad to see you here!!!
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 11/11/2009 4:54 PM (GMT -7)   
 
   Dear Screaming,
 
     Oh the new additions to your family have me green with envy! Ive wanted a new puppy for so long! As for the cat, WOW! What an awesome stroke of luck! I always wanted on myself, but my daughters "stumbled" on our two cats. Both previously homeless, but one the male, has turned out unusually large. Hes a long hair and literally as big as a small dog. Not fat, you know, hes healthy, just gosh unusually big! OooOO The idea of new puppy and kitty for the holidays!! How exciting.
 
     I really hope the med decrease is still working well for you? Or are you still waking up in early morning hours in extreme pain? Okay, wont chatt your eyes off
 
*huggs*
  dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/11/2009 5:58 PM (GMT -7)   
      Dani, I'm wondering if the very large cat you have is a Rag Doll? They are one of the largest breeds of house cats. Look up the Rag Doll on the internet, and you may find that you have one. If you pick it him up and flip him on his back and he goes completley limp, I would venture a guess that you have a Rag Doll. The puppy is on hold for a while, and I don't see that happing for a long time. In answer to your question about my med, I have to say that it is better than before, the decrease, and my pain level is at a very liveable rate. I do however hate taking the pain meds all the time, and never feel like myself, but I'm not really complaining, just miss the good old healthy me! :) I should have bought stock in Metamucil! :)  How are you doing these days? The little BumbleBees doing ok as well? I'm ready for another Chat night, how about you? :)
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