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in4thewin
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 11/8/2009 5:50 PM (GMT -7)   
Hey everyone,
 
I'm new to this site and I'm kind of looking for some people to talk to. I have been suffering from chronic pain for 4 years. It started with a sebaceous cyst in my left arm. I had it drained but got a serious infection. It took several weeks for the infection to clear up but long afterwards I was still having serious pain. I saw 5 or 6 doctors over the next 2 years, none of them giving me a diagnosis but saying I needed to get over the trauma and move on. I was on and off of pain killers during this time, but they didn't help much and only took the edge off.
 
After two years the pain starting causing other serious health problems and I started seeing new specialists. I was referred to pain management and finally was diagnosed after having pain for two and half years with Type II Complex Regional Pain Syndrome (very similar to fibromyalgia). My symptoms have changed even since then and I have serious problems with migraines, muscle problems in my back, sleep issues, and basically have no immune system. I am currently only taking one medication for my pain which has worked pretty well. I am only 21 so the doctors feel, and I agree that I should try and stay on as few drugs as possible since I have a lot of years of having this disease. My health and pain have been really bad recently. I'm just looking for a little support and maybe a little guidance. I just want to get through this flare up so I can enjoy life before I have to deal with the next one...
 
Thanks!
 
in4thewin

Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 11/8/2009 6:07 PM (GMT -7)   
Welcome....
 
I am glad you posted.  You will find a very caring group.  Most everyone here suffers from some type of chronic pain and the associated issues.  I am sorry that you have had to good through so much at such a young age.  I think medical staff and people in general tend to trivialize chronic pain in younger patients.  I have heard some callous remarks - basically telling people that the younger you are the easier it is to "shake off" your pain.  Since when did pain and age ever run hand in hand.  If you older, it's ok to have and be treated for pain.  I guess younger people should just buck up while you are in intense pain.  I never realized a cyst can cause such pain post-infection. 

Stella Marie

Co-Forum Moderator for Chronic Pain

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump  & neurostimulator.  Extra features: O2 & wheelchair

 


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 11/8/2009 6:47 PM (GMT -7)   
In4thewin,

Welcome... Sorry that you are dealing w/ chronic pain, but I'm glad you are here. I have many of symptoms that you do, including "no immune system"...it's frustrating. I was sick in my early 20's, too... but, I got better...then have been dealing w/ pain/health issues since 30. So, I do know what it's like to be young and have a multitude of health issues. I don't have any really advice to give...but, more that I just understand where you are coming from.

From my own experiences, I agree that the more you can wait to start on meds., the better. Or at least use the least that you can. That being said, I also know how chronic pain can be and that meds do play a role w/ many people (including me). Do you have a pain management doctor?

Again, I'm glad you posted, and hope to see you here and get to know you. --Tina
Pain Issues: Neck/back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands, arms, feet; I also have POTS/dysautonomia; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Addison's Disease; Central Sleep Apnea; etc etc

Meds: MS Contin (480mg daily); Dilaudid (8mg/3x day); Actiq (1200 mcgs/1x per day); Soma (3x day); Atenolol; Midodrine; Phenergan; Effexor and on the list goes...

Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 11/8/2009 7:06 PM (GMT -7)   
Welcome In4thewin,

I am so happy you posted but of course sorry for your plight. I have fibromyalgia and have had it for 28 years, so I know something of chronic pain. I know you will find many folks on here who are both caring and knowledgable, who will listen and support you throughout your good days and your bad.

So post often and let us get to know you and you get to know all of us. You have found a home if you want it, somewhere you can retreat to if you want someone to listen or if you just want to vent. You can count on us.

Hope you have a low pain day. God bless.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/8/2009 9:13 PM (GMT -7)   
  Hello In4thewin! Welcome to the HW forum's You will love this place! thare are many wonderful people here, and lot's of good advice an support. I cant imagine starting at such a young age with CP. I think if I had any advice to give you, it would be to stay on a dosage of pain meds thats as low as possible. Becareful with them, as they can take a toll on you. Please  keep us informed here, and visit as much as you want. Don't be afraid to ask what you may think are sill questions. Knowledge is a big part of either winning the battle of CP or at least learning to live with it. Remember to visit often, and welcome to your new family. There are really come pretty cool people here. .......now Scram! :)

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 11/8/2009 11:35 PM (GMT -7)   
In4thewin
I also want to extend a very warm Welcome to you, I am sorry that you have had to experience what you have at such a young age, but Pain has no boundaries and unfortunately some Doctors don't realize that! But like every one is telling you, You definitely have found a good place to come with your pain and all of its complications and complaints that usually go with it! Your not alone with your pain when you are here! We willl listen to you and share in your burden and give you as much support as you may want! You will find we all care about and support each other here on this forum, we are ........well.........Family! I do hope you join us and become a part of our Family!

I do wish you all the best!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--   DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in  Sep 2009,  C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 11/9/2009 5:02 AM (GMT -7)   
Welcome to the forum Win!! You've stated that you are only on 1 med for the pain. I hope your doctor is helping you to deal with your other issues, migraines, the sleep & muscle aches. Have you had any sleep studies done? Lack of a good nights rest can really affect ones pain levels also some physical therapy may help with the muscle problems in the back. I don't get migraines but I've heard that alot of times that there are certain things that can trigger them. These may be a few things you could discuss with your doctor. Hope you find some relief soon.
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 11/9/2009 5:45 PM (GMT -7)   
Hi and Welcome!!

This is such a wonderful family of people here...I'm sure you'll enjoy the friendship and help as much as I do. Without the people here I'm not sure how life would be right now.

One of your first comments on your doctor just stunned me. "needed to get over the trauma and move on." GET OVER IT? Since when did that prescription ever relieve anyone's chronic pain? Sorry, but I'm afraid I would let go on someone who said that to me...but at age 21 there is no way I would have talked back to any doctor. Even at my age...um, almost old enough to be your grandmother..lol...I still have a bit of trouble talking to specialists I have only met once.

I'm glad you have ways to connect to others, like the internet. Back when a lot of member's pain started the internet hadn't been brought to the general public yet. For me it's the best way to connect.

Hope you find some relief just knowing that a lot of people here do truly care about you.
Chutzie
The three grand essentials of happiness are: something to do, someone to love, and something to hope for. — Alexander Chalmers

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


in4thewin
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 11/9/2009 8:53 PM (GMT -7)   
Thanks to everyone for responding! It is such a relief to know that people understand what its like to have CP. I know there are a lot of us but all of the advice really helps. Thank you!

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 11/10/2009 2:29 PM (GMT -7)   
 
 
in4thewin
Hello...so sorry that you are here.  Or rather that you have to be here...WOW!!  Having such pain at such a young age is horrible... I truly hope that you don't have it for along time.  But you have your age as a plus... I'm 42, so I don't heal as quickly or as easily as you would.  Just know that we are here for you whenever you need us.
 
Rhonda

I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 11/10/2009 2:59 PM (GMT -7)   
I just wanted to say "Hello" and that I like"In4thewin" so cool and very hopeful..
there are a lot of nice people here...Have you had a brain MRI ??? just to rule
out other things that could cause headaches...Hope you can get a low pain day, soon!
(((((((((((((((((((((((((((((in4thewin)))))))))))))))))))))))))))))))))

hugz
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