Welcome to my nightmare!!

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Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 11/10/2009 8:55 PM (GMT -7)   
The most horrible thing that I could think would be the outcome of me going to the ortho doc came true today.  Xrays were taken and I sat in a small room for 10 minutes before he finally came in.  After poking and prodding; asking many questions about my back pain and looking over the xray, he tells me that he doesn't see anything on the surface.  But that doesn't mean I am not in pain.  He asks if he can do a steriod shot to my knee and I gladly accept (now this is strange for me because I hate needles and will try to talk the doc out of it.  But today I was in some serious pain that felt like I was going loose control of my emotions from.) and he wants to start PT as soon as possible for four weeks.
 
 
Then I head back for another appt.  This one I am not looking forward to.  If the PT and shot has not worked, then its off to MRI and whatever that reveals could mean that I am looking at scope on the knee or possibly even a full knee repacement very soon.  The truth is, if it comes down to it and that is my only other choice and the pain is still horrible, then I will do what I have to toget back on track and leave this part of my life behind.  I won't deny that I'm scarred to death my friends, but I too have a strong will that will get me through this as well.
 
By the way: gosh I am talented!! I can shut my eyes while typing and actually knew what I have typed as well as no errors.
 
Hugssssss
 
Scarred
What doesn't kill us only makes us fight back harder! :P


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/10/2009 9:15 PM (GMT -7)   
   Hello scarred! I'm a little confused. Do you have back pain as well as knee pain. If so, and the xray did not show anything, I'm guessing they will do an MRI on the back. It may show quite a bit more than the xray. The steriod shot may also give you a lot of relief as well in the knee. I have had 4 of them in my elbow, and they did very well, but only for a time. Most people that I know that start with steriod shots in the knees, have surgery sometime in the future. Hopefully you won't have to have that. Please keep us updated on your condition.

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 11/10/2009 9:47 PM (GMT -7)   
Hi sweetie!

I'm sorry you're so frightened! But in the long run this could really be good news. One cause of your pain might be fixable. How great is that??? Do you have a bad time in the MRI tube? Until I learned the 'secret' it used to really bug me but I did it. But if you have them cover your eyes with a clean cloth/towel/whatever then you can't see where you are and there is barely any anxiety for most people. The place my doc uses now is new and they give everyone who wants one a new, flax seed eye pillow. They place it over your eyes and it's so comfortable. Just a small amount of weight sure feels good. And when they're done you keep the pillow to take home. Wow, a lovely little eye pillow and the insurance company only paid 3-5K for it.....hahahaaa

I know you are strong and you will make it through. But we all have a point at which we just can't take any more. That's why we're here girlfriend! We will all be standing right along side of you through every ordeal you have to go through. When you are there just mentally look around and you'll see us. ;-) This family takes care of each other!

Warm hugs,
Chutzie
The three grand essentials of happiness are: something to do, someone to love, and something to hope for. — Alexander Chalmers

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2280
   Posted 11/10/2009 10:00 PM (GMT -7)   
Hang in there, Scarred. You have made it this far! :)

((hugs)),
frances

PS -- Have you ever had a discogram? That how they finally dx'ed me with the pain running from my low back down my leg.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/11/2009 12:37 AM (GMT -7)   
Hi, Scarred,
I'm a little confused about what was the worst thing you heard - the possibility of knee surgery, the injeciton or that he didn't see anything in your back. If it was the latter, remember x-rays don't show much of what's going on with most of us.

But let's hope the injections help your knee. My cousin gets some kind of special injections (I don't know what the name is) which are given as a series of two a week or so apart. They last her for a few months, although she's contemplating knee replacement down the line. I think people do a lot better with knee replacement surgery than back surgery, at least based on the individual stories I've heard.

Anyway, I do hope you get some relief tonight.

Hugs,

PaLady

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 11/11/2009 4:46 PM (GMT -7)   
 
   Dear Scarred,
 
    Good evening *warm huggs* It good to hear from you. How are you doing tonight?? Did you ever get a chance to rest a little and put your legg up? I sure hope so. *hugg*
 
     I know all these shots and possible surgeries are scary, but I am so relieved the ortho is helping you. You ve been dealing with it for a very long time. I know you have put up with it and delt with it for as long as possible. *hugg* Gosh, your oh so strong. How soon can you get in for the injections? Did he mention how long after the shots, that you will know if it worked or not? I hope more than anything that the injections help!
 
*huggs*
   dani


 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 11/11/2009 4:53 PM (GMT -7)   

scarred I want you to think Positive and think of the final outcome when you are all well and have no more back pain or knee pain.  Anticipation can scare the crap out of most of us but the reality is we are stronger than that!!!

Positive thoughts your way,,,

Rhonda


Humour is always the Best Medicine!
 
Fibromyalgia, DDD, 2 herniated Lumbar discs, Migraine, Depression, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 11/11/2009 7:09 PM (GMT -7)   
Oh Scarred, what are we going to do with you girl, lol. If the dr was talking about a plain film xray of course its not going to show anything. Those type of xrays only show fractures, breaks, things of that nature. If we are talking about your knee here a torn meniscus or even a tear of the ACL will not show up on a regular xray. This guy should send you for an MRI and then decide what path to take. I know I am not a dr but I have had five knee surgeries and know a little of the drill.
 
The stuff PaLady is talking about is what they sometimes do for people that are bone on bone and need replacements done. I did the Supaartz injections after having both knees scoped in 2004. I need new knees but I am not ready for that. Another kind is called Synvisc, my dr is partial to Supaartz, it was 5 injections in each knee done every other week. This stuff puts a little cushion back in the knee.
 
Take Care.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 11/11/2009 9:52 PM (GMT -7)   
Hey everyone; Okay let me say first off, that right now at this point we are not sure it has anything to do with my back. That in itself is a seperate issue. But.....I am going to make sure that they investigate that option throughly so that I know for sure that it is a seperate issue from the back pain and left siatica pain. With that said...the knee pain came up here two months ago out of the blue and it started really messing with the way I was walking, so I decided to see an ortho and find out how come after 20 without any pain I am all of a sudden dabilitated.

He's dying to do an MRI on the knee, as he thinks that it might be an issue with arthritis under my kneecap, in which case....if it is I will be once again going under the knife to have the thing fixed. Your are correct PA they do Total Knee replacements for this problem and I was told many, many, many years ago it might come down to this one of these years. I've had 4 previous knee surgeries to correct my patella sliding to the left many years ago. This seemed to help for awhile, but now it looks like its gonna be another year of no hunting while I am laid up.

My ortho is so sweet! He is about my age and I asked him about all his credentials before we even got started. He told me that not many ask those questions and was quite happy that I was doing my homework. Now we shall see how the thing feels after 4 weeks of PT. By the way.....the PT people will know of my back problems so that I don't or are not expected to go thirty miles on the treadmill and am pulled this way and that.

Anyway, just wanted to send out bunches of hugs and tell you all what wonderful people you all are for making me feel a little better today. The steriod shot that I was given under my kneecap......did not work.

Hugsssss

Scarred
What doesn't kill us only makes us fight back harder! :P


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 11/11/2009 10:10 PM (GMT -7)   
Scarred

Thanks for clearing that up! Since you are an old hand with the knee surgery thing, I have seen allot of people have outstanding results with the total or even partial Knee replacemtnt! Of course the MRI is the thing to have to really find out what is going on with your knee, other than for broken bones sometimes I wonder why Doctors even bother with doing Xrays, the MRI is so much better and gives so much more information, and is not hazzardous to the patient either! Knees, Backs,(neck) and Shoulders I can relate to I have had surgery on all of them!

I wish you the Best Scarred!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--   DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in  Sep 2009,  C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 11/12/2009 3:56 AM (GMT -7)   
Scarred old friend,
So sorry yhat your knee is acting up again. I hope they can fix it and relieve your pain w/o having to going in! I guess you know the rotine as you have a history w/ knee problems. I do too but will not go into it, this is about you! I will be praying for a good outcome my friend and will be watching your post to see what happens!
Your Old Friend,
Pete

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 11/14/2009 12:14 AM (GMT -7)   
Thank you all for your responses, you guys are the best! Unfortunelly I have had a lot of experience with this knee surgery thing and am not looking forward to what lies in the future. The steriod shot that they did last Tue did seem to help a tiny bit and now I can bend my knee a little more without a whole bunch of pain sizzling through my knee. But (how come there is always a but in the life of a CP?) I feel it more while vacuuming and walking backwards still so I do know it is still there. :-(

Many years ago when I got into my first car accident I had a Ortho tell me that one day I would have to have a replacement, but I was so hoping I could put it off for at least another 30 years. But then again maybe this is a blessing in disguise cause in 30 years I'll be 75 and probably not a good candidate to have this surgery. Ahhh, the old "the glass is half empty kind of thinking, but that is me! :-) ) I'm glad I cleared everything up for all of you. When I re-read my post I realized that even I didn't understand most of that and would have taken it the same way that you all did. So that is why I clarified a bit.

Anyway, meds are kicking in so I will write more later.


Hugsssssssssssss

Scarred
What doesn't kill us only makes us fight back harder! :P


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 11/14/2009 8:18 PM (GMT -7)   
 
  Dear Scarred,
 
     Good evening *huggs* I am glad to hear from you. How is it feeling tonight? The knee and back? Is there still a small bit of relief in the knee or is it slowly returning?
 
     I hate to know you will have to go through knee replacement / surgery. How soon will you know when you need to get it done? I know you said you have alot of experience with knee surgeries but it still sounds scary to me! AAhh! *huggs* I wont keep tossing a hundered questions at you.    smhair    Know your in our hearts and prayers here.
 
*warm huggs*
  dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 11/14/2009 9:29 PM (GMT -7)   
Scarred,
I've had both of my knees replaced and did it at the same time so I didn't have a good leg to stand on. The recovery was tough but I have to tell ya that I don't have knee pain so I'm glad I did it. The reason I did them both at the same time was because I know me and knew if I did it once they probably wouldn't get me back to do the other. The one thing I wish I had known before I had mine done was to increase my upper body strength. I had a sedintary job and didn't have much muscle and you need it after surgery to help you move.
Take care, you are in my thoughts and prayers.

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 11/16/2009 10:46 AM (GMT -7)   
Hey all. Just wanted to update you on what is going on. Went to my first PT appointment and after much jerking my knee around (not good on the already painful back) the PT thinks that I have a torn Meniscus. He is doing anti-inflamatory patches for the rest of this week on me (every day) and then some more of them next week. Came home in horrible pain and I'm laying here trying to decide whether its even worth the pain to finish this! I'm losing hope more and more each day that I will even be out of pain anywhere on my dang body and that isn't good!

It's a wonderful thing that I see my psych next week eh? Anyway, if the knee isn't any better in two weeks....(no strengthening or range of motion required cause I'm already good in both areas) we head back to the ortho to discuss an MRI and possibly scoping the knee.

Hugs

Scarred
What doesn't kill us only makes us fight back harder! :P

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