Mrms123 please read

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13466
   Posted 11/11/2009 6:57 PM (GMT -7)   
Hi Sandi,
 
So glad to see you posting again and hearing from you.  How have you been? I know you do more lurking than posting sometimes,  however, when you do post it is worthy reading and you have been missed.
 
I am struggling with cellulitis in the legs one more time, started IV therapy today, plugged right into my port in my chest no big deal. I have a new twist on a very old skin condition thats just rampant, psoriasis, psoratic arthritis and possible pustular psorasis. The two are driving me nuts. But did find out if we can get the[psoriasis under control it will probably make a big different with the cellulitis problem. Now, getting it under control is not happening as planned.
 
Welcome back friend.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 11/11/2009 7:36 PM (GMT -7)   

Hi Stray,

Oh hon, I am so sorry that you are dealing with so much. My husband and I have both had cellulitis in the past and it is so painful and seems to take forever before it goes away. With the psoriasis on top, you really are dealing with a huge physical problems right now. I hope that the new meds will help to clear it, but make sure that if you aren't seeing signs of the cellulitis clearing up some each day or so, that you go and have them change the antibiotics if they seem to be ineffective. I know that I needed 4 different antibiotics when I had it . Hopefully, they can do something to help clear the psoriasis to stop the spread of the cellulitis any further. I'm sorry for adding to what you have to deal with here, although starting trouble was not my intention.

I took a break for a bit but read almost daily during my absence in posting. I developed some weird thing in my wrist called avascular necrosis. It seems to come from having too much prednisone/cortisone type of medication. With the pneumonia thing this past spring/summer, and being given it for that, along with the other times for my back, it cut off the blood flow to a bone in my wrist and the bone is dying. Now I am waiting for a MRI to be done to find out whether I can get away with  just having a cast for three months or I need surgery to get the bone taken out, or my wrist fused. They can't reestablish the blood supply to the bone at this point. It may also be in my hips, since I am having trouble there as well on both sides.

Next Tuesday, I am going to for a cardiac cath. Honestly, I am a bit concerned. I woke up one night early in the morning with chest pain and it went to my jaw. I couldn't breathe either so it really scared me. So that resulted in a trip to the cardiologist. There is some weird thing with the S-T waves and now in the III lead on the ECG, so he wants to do this to make sure that there are no blockages. If you are inclined, send  up some good wishes on Tuesday morning....

Anyway, I didn't mean to ramble on. I wish that I could do something or had some secret remedy to help you heal the psoriasis so that the cellulitis would go away too. Have you ever used black tar? Or Pine tar? There was an old remedy for skin conditions that used pine tar that worked really well to heal that. I am going to see if I can find the name of it. I know that I have seen it in mom and pop type pharmacies.

Anyway, thank you for the welcome back.....I've missed posting.

Sandi


PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
[url=http://dragcave.net/view/xdyP][img]http://dragcave.net/image/xdyP.gif[/img][/url]


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 11/11/2009 8:45 PM (GMT -7)   
Sandi,
so very sorry you've gone thru a lot, I sure hope you and Susie can catch a break and
have a good winter...
Lots of soft hugz...
(((((((((((((((((((((((((((((((((((Sandi)))))))))))))))))))))))))))))))))))))))))))))))
and wb...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/11/2009 8:51 PM (GMT -7)   
Susie hope you don't mind if I say hi to Sandi here.

So hi, Sandi! I saw mentioned somewhere about how you were treated here, that there was some reason you weren't posting (not just your wrist)? Anyway, I may have seen it all and have no memory of it (becoming way too common these days) and you don't need to go back and detail it now! I'm just glad to see you post. And hope some solution can be found for your wrist.

I am coming to believe more and more that the stress and chronic inflammation from CP leads us all down a path of increasing health issues that otherwise wouldn't have darkened our door. But it is what it is, I guess.

Hugs,

PaLady

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 11/11/2009 8:57 PM (GMT -7)   
Thanks Chartreux. I hope so too but am more concerned for Susie than me. I know that cellulitis is difficult to get rid of and it can be really dangerous if it is not cleared up. I am still searching for that remedy with the pine tar in it. I swear, it is supposed to be the best stuff in the world for skin conditions.....
How are you doing?
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
[url=http://dragcave.net/view/xdyP][img]http://dragcave.net/image/xdyP.gif[/img][/url]


mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 11/11/2009 9:05 PM (GMT -7)   
Hello PA Lady,
It was a while back now and I decided to take a break due to it. We all need them from time to time and it wasn't anything that had to do with you or the other regulars back then. Kind of a long story that doesn't need re-telling at this point....This thing with my wrist came about recently. I thought that I had sprained/strained it picking up something that I shouldn't have ( too heavy of a grocery bag) and my wrist started to swell and then fingers, and then strangely up my forearm.. Anyway, I saw my regular doctor who thought that I had managed to break my wrist so he took some xrays, splinted it and told me to return in a couple of days. The radiologist report came back , no break but this avascular necrosis. Of course, I looked it up, and there are 4 stages, stage 1, they cast it for three months and hope that the blood vessels will return to giving a blood supply to this bone. Stages 2, 3 and 4 require the removal of the bone, or replacement, or finally fusing it. I am hoping it is not any of those stages, although the ortho I saw seems to believe that is further along than stage 2.....I really am dreading this MRI.....even more than the cardiac cath. At least I know what to expect with that....
I am in agreement with you, it does seem that our Chronic problems seem to lead us down a slippery slope to others. Even those that are supposed to be so rare. I never heard of this stuff before, but boy am I getting an education. Seems that AVN is caused by the very steroids that I was on.
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
[url=http://dragcave.net/view/xdyP][img]http://dragcave.net/image/xdyP.gif[/img][/url]


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 11/11/2009 10:47 PM (GMT -7)   
Sandi
It is nice to see you back posting, boy when it rains it pours doesn't it! I will send you some good wishes, vibes , prayers whatever it takes to make your visit the Cardiac Cath Lab a complete waste of time! ( meaning that they find nothing seriously wrong with you, as in no blockages or even narrowing of any the arteries in your heart! and fing your heart healthy and in Great shape!) With everything else you definitely don't need any heart problems!

I also hope everything goes well with your wrist! that deos not sound good at alll! You know steroids such as Prednisone are really double edged swords, one side of them they can do so much good and they really are miracle medications! But as I said they have a double edge, and using them can also cause problems and some the problems can be as bad or worse than all the Good that they do! Anyway I sure do wish you all the best!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--   DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in  Sep 2009,  C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 11/11/2009 10:47 PM (GMT -7)   
Sandi
It is nice to see you back posting, boy when it rains it pours doesn't it! I will send you some good wishes, vibes , prayers whatever it takes to make your visit the Cardiac Cath Lab a complete waste of time! ( meaning that they find nothing seriously wrong with you, as in no blockages or even narrowing of any the arteries in your heart! and fing your heart healthy and in Great shape!) With everything else you definitely don't need any heart problems!

I also hope everything goes well with your wrist! that deos not sound good at alll! You know steroids such as Prednisone are really double edged swords, one side of them they can do so much good and they really are miracle medications! But as I said they have a double edge, and using them can also cause problems and some the problems can be as bad or worse than all the Good that they do! Anyway I sure do wish you all the best!

White Beard
Moderator Chronic Pain
 
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--   DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in  Sep 2009,  C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13466
   Posted 11/12/2009 4:25 AM (GMT -7)   
Sandi,
 
OMG, yes I am very familiar with AVN. Several members on the crohns forum were on the evil predisone for many, many years non-stop. Back then that was the only treatment available and yes they ended up with AVN and several required surgery for joint replacement mainly hips. That is ne of the evil drawbacks to steroids causing this very problem. I did the steroid routine for many, many years non stop and that has been the culprit of the osteoporosis in my lumbar spine. I became very ill while on the steroids and was stroke line and spent a week in the hopsital. My old dr advised me and the neuro to never give me another shot unless he intended on killing me lol. Now, give me steroids and its congestive heart failure by day 3. Steroids can be wonderful for many things but only for very short, short periods of time if a person can tolerate them. When I hit bad flares with the crohns or the COPD my drs would love to give me steroids but wouldn't come near me with a ten foot pole with that stuff. I always say you can have a love hate relationship with steroids, lol.
 
Yes, I will be saying prayers come Tuesday when you go in for the cath. I had one back in the early 90's. I ended up in ER with the very symptoms you described, my EKG's were out of wack. They brought in the cardiologist I had an appt scheduled with the following week. He said well since you are here and this is going on lets go ahead and do a cath. I come from the bad gene pool, both parents had heart problems. I have aortic heart valve insuffiency from uncontrolled high blood pressure so off to the cath lab we went. It was totally painless, you are somewhat sedated but able to talk a little. I tried watching the screen but it was too far away and they took my glasses from me. Take my glasses and I am blind as a bat. lol. They make you lay flat for so many hours afterwards and they put a little collegen plug in your leg where they go in. I was scared to death too. I passed mine too and lets hope the very same for you. It was a fluke deal.
 
Take care.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 11/12/2009 6:18 AM (GMT -7)   
Thank you White Beard. I appreciate the good thoughts/prayers. I hope that it shows nothing too but you never know. At least if it does show something, they can do something about it right then.
I've had this S-T wave thing for years, but the thing with the III lead is new, so I think that might be where the difference is coming from and the cardiologist's need to do this. I had one years ago when I had a hysterectomy, so at least I know what happens during this cath procedure. Doesn't mean that I won't be worried or nervous, just that I know what to expect.
Boy, for someone who likes to avoid doctor's all together, I sure am spending far too much time with them this year. LOL
I told my pulmonologist that we need to avoid steroids all together and he told me that if it comes down to me being in the shape that I was in this past spring/summer with asthma/pneumonia, and not being able to get it to clear, that I will have no choice but to go back on steroids, and risk the avn returning. I don't know, but there has to be a better way of dealing with severe respiratory problems then throwing steroids at them at every turn.....but what it is, I don't know. I know that I am going to avoid getting sick, as much as humanly possible. I don't want to chance this avn stuff going anywhere else than it already is.
I hope this MRI shows something better than the ortho expects. The idea of surgery on my wrist, especially since this is in my dominant hand, really worries me.
I don't want to loose the ability to bend and flex my wrist or have to worry about hip replacement at 45/46. ( I will be 46 in January).....
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
[url=http://dragcave.net/view/xdyP][img]http://dragcave.net/image/xdyP.gif[/img][/url]


mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 11/12/2009 6:35 AM (GMT -7)   
Morning Susie,
Yes, the ortho said that if it is in my hips that a hip replacement may be necessary. That there aren't other options other than surgeries is really scary but he said that they can not leave the bone in unless they do some drilling procedure that implants a bone graft with a new blood supply but that doesn't work very often in the hips or the wrist and that it usually winds up requiring hip replacement. I know that with the modern technology, hip replacement is not as difficult as it once was, but geez...and with the wrist, they may be able to put a piece of plastic in to replace the missing bone if they remove it, or they can remove that row of bones in your wrist, but that creates it's own problems or they simply fuse the wrist. I won't know anything until the MRI is done and I see him again, so I need to schedule that today since they finally got my insurance approval.
I really like the cardiologist, at least he hasn't just told me that this chest pain stuff is in my head or due to anxiety. I think I might like to thwap him if he did. LOL
Steriods- boy is that one mixed bag of feelings. I know that they have kept me out of the hospital several times, but this last time, my doctor kept me on them for over a month, at a high dose and I think that is what caused the avn. I don't like hospitals but if he had told me at the time that the steroids might cause this, I wouldn't have taken them. .
I have COPD , from all of the respiratory stuff over the years, but thankfully don't have congestive heart failure. That is truly scary. Your family must be so worried about you Susie and I can't blame them. Steroids also cause problems in the spine, and aren't supposed to be used there, but they do, in fact, I think far too much. I know that doctors around here love to throw a Medrol dose pack at people with back problems and the injections they want to do , have far too many encounters with steroids. It's one of the reasons that I stopped accepting them, along with the fact they didn't help....but there are many doctors around me who will do the whole series of injections if you will let them, from esi's, to facet injections, to selective nerve root blocks, to the whole spectrum and just about all of them include some dose of steroids in them.
I found a bunch of references for homeopathic treatments for psoraisis if you are interested. Seems Dead Sea Salts are really good at getting the inflammation down and healing the patches, and you can buy them about anywhere. And vitamin B, tea tree oil, and a whole bunch of others. If you are interested, I will send you the links. I'm sure that you probably know about a lot of them but I thought that I would see if I could find something that might ease some of the pain you are dealing with....
Hope you are having a lower pain day.
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
[url=http://dragcave.net/view/xdyP][img]http://dragcave.net/image/xdyP.gif[/img][/url]


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13466
   Posted 11/12/2009 8:38 AM (GMT -7)   
Sandi,
 
You nailed it, I am in total agreement with you that the steroid thing is way, way overused. I was so ignorant to them when I first jumped on that band wagon. I was seeing a neurologist for severe migraines and I started back with severe neck & back pain. That situation had been brewing for many years. Dummy I was, I agreed to shots of Decadron every six weeks IM. I was receiving the largest dose he could give. But, it allowed me to continue to work, otherwise I would have been down and unable to work. I was not about to go that route, I loved my work so much and just could not imagine not working. o, I did this for 3 1/2 yrs straight until I ended up in the hospital stroke line. To me it was a miracle drug. I had no clue that I should not have had more than 3 injections of it a year and look at me going every 6 weeks!! Idiot, Idiot.  I was just too trusting of my dr, boy have I come a long ways since those days lol.
 
I do understand where you are coming from with the COPD issues. I have been put in the hospital with it and somehow my dr pulls me out without steroids. Granted it takes me much longer to get well but its doable.  Each time he will say, if only you could handle steroids but he would not dare ever try it, same way with my gi. Lung problems run in my family, there are two of us girls on oxygen and I think a third one is headed that direction. Three years ago she started the bronchitis and pneumonia thing every time she turned around and always ended up in the hospital. You can tell when talking to her she does not have enough air. The problem with her is getting her to a dr. She had breast cancer surgery 10 months ago and the dr thing is a whole new experience with her as she has always been healthy as a horse. She will be 65 this May.
 
I will tell you when its comes to the homeopathic ways this gal is totally ignorant, sad but true, but I also believe very much in it. I am going to give you an email that I have so rather than take up space here at the forum would you mind emailing them to me? The email is ditseygardenlady@hotmail.com. Yes, I have heard of the tar shampoos and such. I do have a patch that gets on my hairline and its on my face too. ugh. Anything you can pass my way would really be appreciated.
 
I will say many prayers for you on this next venture with the drs. Take care.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 9:30 AM (GMT -7)
There are a total of 2,734,105 posts in 301,180 threads.
View Active Threads


Who's Online
This forum has 151308 registered members. Please welcome our newest member, garf222.
343 Guest(s), 15 Registered Member(s) are currently online.  Details
PeteZa, Wdan, Bololidat, 81GyGuy, Aj1734723, Susannah R., Serenity Now, soulbreaker10, Scaredy Cat, Present&Grateful, NiceCupOfTea, ChickNorris, njfillet, 1039smooth, Graytech


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer