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FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 11/11/2009 7:24 PM (GMT -7)   
Oh my back is so painful today.  Have been having trouble with it for awhile.  Think the rain has made it worse last 2 days. Remants from TS Ida.
But have an appt finally long story with a back pain specialist on the 20th of Nov.  Will probably get another series of floroscopic steroid injections. Helped a bit back in winter 2007. Told not a canidate for fusion something like open up a can of worms plus heard not very succesful. So shots then maybe onto warm water physical therapy for back and fibromyalgia.  Love the water used to be on a swimteam.
But with the Fibro flare and back pain and leg pain from both about ready to scream at times.
Hard to sleep flip and turn like a pancake all night long you know what I mean. And do not sleep long at all fibro thing still working on finding right med or dosage with current flare.
 
I guess i just needed to vent and you know how family is yeah yeah and my head hurts too.
No they can be supportive at times but they get sick and tired of hearing us even if they ask Whats wrong oh nothing I will say  when I am in so much pain I could cry and sometimes do!
 
Have a good day and here's hoping for Sunny Days!
Rhonda :-)
Humour is always the Best Medicine!
 
Fibromyalgia, DDD, 2 herniated Lumbar discs, Migraine, Dysthmic Disorder, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel both hands, Currently Double Depression


mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 11/11/2009 8:06 PM (GMT -7)   
Sorry that you are having such a rough time Rhonda. I hope it lessens in the coming days.
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
[url=http://dragcave.net/view/xdyP][img]http://dragcave.net/image/xdyP.gif[/img][/url]


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 11/11/2009 10:59 PM (GMT -7)   
Rhonda...

I'm sorry for your increase in pain. I completely understand what you are saying about just needing to vent it to someone other than family. I was thinking about that today: I hardly ever talk about my pain issues with my family anymore...and I'm in pretty bad pain on most days. That's why I like being here where there are others that completely understand!

I also have a hard time sleeping - and have tried just about everything for it (I have fibro, too). What have you tried? How many hours of sleep do you get? On a "good" night, I'll get 5 to 6 hours. On average, though, I probably get about 4 hours of sleep. Believe it or not, though, this is better than I was. I had a good year or two where I was hardly sleeping at all. I almost went crazy!

So...I hope you feel better; at the very least, I hope you get through this flare and your pain decreases. I also hope you get some sleep!
Take care, Tina
Pain Issues: Neck/back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands, arms, feet; I also have POTS/dysautonomia; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Addison's Disease; Central Sleep Apnea; etc etc

Meds: MS Contin (480mg daily); Dilaudid (8mg/3x day); Actiq (1200 mcgs/1x per day); Soma (3x day); Atenolol; Midodrine; Phenergan; Effexor and on the list goes...

Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation


babycakes-
Regular Member


Date Joined Nov 2009
Total Posts : 94
   Posted 11/12/2009 2:58 AM (GMT -7)   
im sorry your dealing with more pain then usual, i hope you feel better soon : )
- erin xo

Loin Pain Haematuria Syndrome - A Painful & Rare Kidney Disease.

^.^ ^_^ >.< ~.~ -_- -['.']- o.o +_+ @-@ ~^^~
____________________________


FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 11/12/2009 5:25 AM (GMT -7)   

Thank you Sandi and Erin  feel a bit better this am.  The rain has mostly stopped maybe something to do with it. Now it is just very windy and bit of drizzle.

Tina I am now taking 100 mg of trazadone at night for sleep, at night I also take 100 mg tramadol, 10 mg flexeril, 50 mg topamax and go to bed.  Most times I can fall asleep within 10-20 minutes with this mix but am having a hard time staying asleep. Toss and turn, wake up numerous sometimes countless times sleep about 4-5 hours.  Sometimes a bit less.  Yes have been having trouble with sleep for a long time but has worsened with recent flare of fibro then back over last 2-3 months.  Have tried elavil before the trazadone.

Have a nice bed, good pillows, cool room etc just still wake and wake and wake up it is pretty bad.

You all have a good Day!

Rhonda


Humour is always the Best Medicine!
 
Fibromyalgia, DDD, 2 herniated Lumbar discs, Migraine, Dysthmic Disorder, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel both hands, Currently Double Depression


FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 11/12/2009 6:27 AM (GMT -7)   

Thanks PRR

What a nice welcome.  Yes it is easier to Vent or talk to people who understand chronic pain/conditions.  Our family Love them but can only understand so much. 

Yes i have been telling my hubby i want an electric blanket or throw.  One I can bring around the house with me esp in Winter.  The worst on me and my fibro flares.

I was hoping for a hottub but an electric blanket will do. :)

You have a great Day!

xxx Rhonda

 


Humour is always the Best Medicine!
 
Fibromyalgia, DDD, 2 herniated Lumbar discs, Migraine, Dysthmic Disorder, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel both hands, Currently Double Depression


privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 11/12/2009 8:37 AM (GMT -7)   
I'm sorry to hear you pain level had increased. This just must be the time of year for it as mine it up now too. So many things to do and such a short time to get them done. I try not to complain at home also but my husband and kids can read my face and know when I hurt so they bring it up. I need to call the docs office for more pain med because our pharmacy is closed over the weekend except from 3-5 on
Sunday and for controlled meds we have to carry the RX in to the Pharmacy. It seems like when I have to call the doc for pain med they make me feel like I'm a drug seeker and I use it very sparringly so I don't have to call. The docs office is closed every Thursday afternoon so I need to call soon so I can pick it up tomorrow.

I hope you have better days ahead. Keep posting!!!

Cathy

FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 11/12/2009 8:23 PM (GMT -7)   

Thanks PRR for the info on the throws.  My dear Hubby brought me home the electric throw from CVS.  Woohoo so happy have it on me right now.  Gotta love hubby. Thanks again!:)

 

Hi Cathy that sounds rough having to bring your scrip in I guess that is true with narcotics.  Can the doctors office fax it to your drugstore or email it?  Also is there another drugstore u can use that is open more often or up on the new technology if that is the case,

The strongest thing I take is tramadol and can have it faxed.  I used to take some percocet and vicodin etc but really it did more harm then good.  I also know I could not stay on that type of med forever.  Only use that for acute type pain if ever.

Good luck to you and your drugstore dilemna.

I do understand what u mean about family and trying not to burden them it is difficult to hide your pain and emotions.

Rhonda xxx

 

 


Humour is always the Best Medicine!
 
Fibromyalgia, DDD, 2 herniated Lumbar discs, Migraine, Dysthmic Disorder, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel both hands, Currently Double Depression


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 11/12/2009 10:32 PM (GMT -7)   
Hi Funnygirl:

I have not had the opportunity to meet you yet, so I wanted to say Hello! I have not been posting much lately as I have been struggling terribly with my pain level.

That blanket sounds like something I may want to look into. I have 2 heating pads, and I'm constantly moving them to different spots.

I'm glad you are feeling a little better today.

Lorie

FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 11/13/2009 7:17 AM (GMT -7)   

Thanks PRR yes love it.  I  love my hubby too for bringing home to me.  Will get alot of use out of this electric throw this winter no doubt.  Yes they had several plus live close to Wilmington with tons of stores.  So probably can find them anytime.

Thanks for the info PRR. idea

Hi Lori

Nice to meet you.  yes this throw is nice.  PRR told me about them being on sale at CVS.

It was 34.99 on sale and you also get a $5.00 mailin rebate.  Well worth it I think.

It is small enough and not cummbersome so I easily took it from living room to bedroom and backagain without a hitch.

Talk at ya later

Rhonda :-)


Humour is always the Best Medicine!
 
Fibromyalgia, DDD, 2 herniated Lumbar discs, Migraine, Dysthmic Disorder, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel both hands, Currently Double Depression


punchfit
Regular Member


Date Joined Nov 2009
Total Posts : 89
   Posted 11/13/2009 7:53 AM (GMT -7)   
FunnyGurl said...
Oh my back is so painful today.  Have been having trouble with it for awhile.  Think the rain has made it worse last 2 days. Remants from TS Ida.
But have an appt finally long story with a back pain specialist on the 20th of Nov.  Will probably get another series of floroscopic steroid injections. Helped a bit back in winter 2007. Told not a canidate for fusion something like open up a can of worms plus heard not very succesful. So shots then maybe onto warm water physical therapy for back and fibromyalgia.  Love the water used to be on a swimteam.
But with the Fibro flare and back pain and leg pain from both about ready to scream at times.
Hard to sleep flip and turn like a pancake all night long you know what I mean. And do not sleep long at all fibro thing still working on finding right med or dosage with current flare.
 
I guess i just needed to vent and you know how family is yeah yeah and my head hurts too.
No they can be supportive at times but they get sick and tired of hearing us even if they ask Whats wrong oh nothing I will say  when I am in so much pain I could cry and sometimes do!
 
Have a good day and here's hoping for Sunny Days!
Rhonda :-)
 
Hi Funnygirl,
 
Sorry to hear of your difficult situations,its so easy to feel so terrible about what going on in your life due to so many issues, the water physiotheraphy sounds like it may help calm relax and eliviate some pain. Totally agree we all love our families greatly, but i agree thatthey must get sick of hearing how bad we feel, no much positive when you are in alot of pain, but will always be there for you no matter what, my kids ask whats wrong why yo sad and crying i explaineto them and the a both quick to do anything they can from a back massage to making me a coffee and setting up some pillows on th couch with a soft blanket, they are so prescious, i  hope you have some better days ahead
 
Take care PIPA


FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 11/13/2009 6:30 PM (GMT -7)   
Hi Pipa
yes I am totally looking forward to trying some warm water pt.  As soon as my back procedures are complete and i am ready to go.  yes family is good hubby brought home an electric throw blanket for me last night.  Today he called me from work and asked me out to lunch because he missed me.  So we went to Sams club and picked up some things for our business then went to Mexican restaraunt.  It was also nice to get out of house for awhile today.
My son will help out a little when I am in pain.  I am glad your children are so helpful to you when you need them to be.
Take care and have a painfree day
Rhonda
Humour is always the Best Medicine!
 
Fibromyalgia, DDD, 2 herniated Lumbar discs, Migraine, Dysthmic Disorder, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel both hands, Currently Double Depression


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 11/13/2009 9:37 PM (GMT -7)   
I hope the heating blanket helps, I used a moist heat pad to help my aches...Vitamin D can also help and maybe ask your doctor about using melatonin after dinner to help with sleep, just a suggestion...good luck with the injections and lots of soft hugz...
((((((((((((((((((((((((((((((Rhonda))))))))))))))))))))))))))))))))))))))))))))
Hope you can get a low pain day soon...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 11/20/2009 8:24 PM (GMT -7)   

Chartreux

Thanks and the Electric Blankie is working out great.  Thanks for all the support probably going to post another post on my new news today.

Have a good painfree weekend!

Rhonda


Humour is always the Best Medicine!
 
Fibromyalgia, DDD, 2 herniated Lumbar discs, Migraine, Dysthmic Disorder, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel both hands, Currently Double Depression

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