QT Karen please read

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straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 11/12/2009 4:30 AM (GMT -7)   
QT Karen,
 
Hey, I saw that you had responded on another thread here. How are you and how have you been doing? The last we heard was from your hubby, Jason,  that you were going to go in for some kind of big surgery. Did you have this surgery or not, if so was it a success? Please let us know how you are doing. You have been missed by the gang here.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 11/12/2009 4:58 AM (GMT -7)   
Yes,
missed a lot...Hope your feeling a little better each day..
Lots of soft hugz to you QT Karen
(((((((((((((((((QTKaren))))))))))))))))))))))))

QTKaren
Veteran Member


Date Joined Apr 2008
Total Posts : 605
   Posted 11/12/2009 4:16 PM (GMT -7)   
Hey Susie and Char!!!
 
I will post this on the fibro forum as well.  It's so good to post and to see that someone remembers me after so long shocked lol
 
Well to answer the ??? as what has happened with me,no, I haven't had the brain surgery as Medicaid won't pay for it.  I still desperately need it as the vessel in my head is more than 80% blocked and the neurosurgeon has said its not if but when its going to blow and with it cause major damage or death.  He has been pleading as well has my reg family doc,Dr. Roes with Medicaid to pay but Medicaid has said this procedure isn't covered and won't at anytime be covered.
 
I feel like I have a ticking time bomb in me.  I try to keep calm as this raises my blood pressure and is very dangerous but it's hard not to get upset.  I am having horrible fibro pain and not sure if it's a flare or just how it is now.  I am having pain in my arms and ankles and wrists daily.  It hurts so much to walk or hold even anything in my hands.  Jay has to carry my purse as well as everything else.  My nausea is getting badder as well as becoming ultra sensitive to most things.  I can't even enjoy eating anymore as everything tastes funny to me and I have trouble with swallowing and gagging.
 
I haven't been posting but a still do read almost every post in the fibro and pain forums and I so terribly miss talking to you all and need the support.  Just know that I am still here to laugh with you and cry with you.
 
I had to stop taking ambien for sleep as it was making sleep walk!!!  I was falling and getting hurt almost nightly and then duhhhhhhhhhhhh I figured it out after I fell and broke some ribs and bruised my kidney!!!  So now even with melatonin I don't sleep much.
 
Jay is not working since his ^%$*** boss decided to fire him or rather "let" him go.  It was without warning and without good reason and he just now is getting unemployment after waiting on that for 2 months.  We were down to our last 47 bucks and were living off food stamps, so we, like so many ppl are cutting corners and driving each other crazy with him being home. 
 
Jayson has been for the most part really great.  He is doing a lot of stuff around the house to take care of me.  I feel so sad that I'm not able to do my part now, before I used to over do it and now I don't have the energy to even the basic things.  Hell,its hard to just take a bath, even that wipes me out.  I do have a referral supposedly to a pain clinic.  I haven't talked to them yet,and they are the same clinic that told me before that they didn't take Medicaid so we will see.   If it's true then maybe I can finally get some good pain relief as this is just getting crazy how undermediciated I am specially now.  So say a little prayer for me on the head thing.  I sure not ready to die.
 
Well, this post had takin forever to write.  Take care everyone and God Bless.....
 
Karen 

Karen
 
Mom of one gramma to 4 lover to One
 
Had another stroke 2/09 and it took my speach for the most part and dont know when it will coming back. Caused serious stroke symptoms on right side of body.
 
 
Fibromyalgia,IBS,Stroke x2,endometriosis,Diabetes type 2,neuropathic pain,nerve damage due to tailbone removel,nerve damage due to fractured back,deppresion,high blood pressure,severe nausea,atrophy,chronic pain,nerve damage due to botched bladder surgery,torn hip joint,hypoglycymic
 
Norco(double strength vicodin) 80 to 100 mg @ day
Ms Contin(morphine) 45 mg @ day,Lyrica 600mg @ day
 
 
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 11/12/2009 5:40 PM (GMT -7)   
Hi Karen,
 
OMG, we had no clue your surgery was denied by Medicaid, they are just idiots. But like you say its something that is basically out of your control. One thing I might mention is to have your husband call and talk to one of your local representatives in your area.I would be very tempted to take this story to the media, as you may be surprised as to what local attention can spawn. Bless you and your family, you have already been thru so much and now to have this hanging in mid air. You are one strong lady. I cannot begin to imagine.
 
Yes, from what little info I know from my sister the Fibro pain is just unreal. I see that you are on Lyrica. Has it helped you in any way at all? Just what you do not need on top of everything else.  I do hope this pain clinic can come up with an effective plan for relieving your pain to a much more suitable level.
 
I must cut this one shurt, I started an IV antibiotic yesterday and today my worst fears were realized, its hitting the gi tract in a real unpleasant manner. I hear you on the falling. I fell Oct. 10th and broke my left arm, the caste comes off on the 18th if all goes well. Please take care of yourself honey I do think of you so often. Hugs.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/12/2009 8:26 PM (GMT -7)   
Karen,
I remember you, also, and was very pleased to see you post! But the insurance issue....well, I don't want to contribute to your blood boiling so I'll just say I agree with Susie. I would call your State AND Federal representatives, since Medicaid is a combination state/federal program. I would also think you'd be eligible for some type of disability, and possibly Medicare, and maybe Medicare would cover it. Sometimes there are loopholes - compassionate exceptions, etc., that if you can find a sympathetic ear in one of your district representatives offices, they may be able to help you find it. And the media doesn't hurt either.

You deserve this!

In the meantime, I hope you can find some relief for your pain.

Hugs,

PaLady

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 11/14/2009 2:38 AM (GMT -7)   
Hi Karen,
I'm not sure you remember me but I do remember you! Oh my sweet girl, I;m so sorry to hear what they are putting you and your husband through! It's a sin!!! I agree w/ the other girls that maybe a state rep, senitor or even the same on a federal level may be able to help you. The media thing is a good idea too. I'm not sure where you live but where I do, most TV news shows often have "Contact #5 or #12" where people call when they reach a dead end on an unfair sittuation like your. It makes for good news or at least good ratings and they usually get results!

My goodness w/ your ticking time bomb I would think someone whould love to take on a story like that!

Please know that we are praying for you and your husband, this along w/ loosing his job must be awfull hard on him too!
Big Hugs>>
Your friend,
Pete
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