Ok, I have been seeing the same PM Docs for over 6 years, and I have been pretty happy with them...until lately. The last appt. I had the Doc decided to make some changes in my meds...that was ok because I have been on Methadone for the entire time and felt it was time for a change. So, he wanted to decrease the Methadone to 80 mg. a day and add Opana ER 20 mg. twice a day...That didn't work out because of my insurance not wanting to cover BOTH long acting narcotics at the same time...so the Doc raised my Methadone from 120 mg. a day to 150 mg. a day and NO BT meds... I had been taking Oxycodone 30 mg. 4 times a day...now I had nothing... After calling the office 2 times they gave me another appt. to come in...I thought I was going to see one of the Docs that I had seen before, but NOOOOO....they put me with some NP that was new. Remember, I had already been in for my regular appt. 2 weeks prior and gotten my Methadone....So, this new person did me like it was a regular appt. and even though I told her why I was there she gave me another script of 450 Methadone...and no BT meds again....I told her...I already had my Methadone and needed something for the BT pain...wasn't that why I was there? She said that until she talked to my Dr. she could only give me Oxycodone 5 mg. and only take them 3 times a day!!! NO NO NO.... That's crap!!! The Dr. walked right by the door and waved at me...but she couldn't ask him one freakin question??? I left very upset....
Now, I go back for my regular regular appt. on the 23rd. What should I do? I really want to try the Opana ER but if they don't get it straight with my insurance I'll be in the same place I am right now...
The Dr. that I like, he's a pain specialist with all kinds of degrees and awards...so you'd think he would know what he was doing...right? Why me? After all these years I had hoped I would be in a better place as far as pain goes...At least when this first started I had some time where the pain was under control...not anymore..
Is this what I have to look forward to? Is this the way it will be?
I have been a spectator for so long..Now it's time to participate.......
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/ 30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen
Post Edited (Screaming Eagle) : 11/14/2009 12:02:47 PM (GMT-7)
Thanks for all the responses...let me clarify a few things. The Dr. that I saw on the 27th was my Doctor...the one that I really like and had before but TennCare took their time in getting him back on the plan...so I am happy about that. He is the one that told me to call if I needed my BT meds back, and to give it a few days...I did, and I called him (or rather the nurse) and she said that there was a note in my chart to make an appt. for the first one available...that's all I knew. I thought it was so he could actually give me my script back and had to see me in order to do that. Then I see this NEW NP... and it was like I was a new patient starting out at square one. She didn't really even look at my chart because she gave me another script for Methadone... I immediatley handed it back to her and explained that I had all the Methadone I needed and was here for BT meds..this is something I made perfectly clear during my time with her...so for her not to know this meant that she wasn't paying attention. And....she tried to give me Lortab 5's at first!!! The last time I took Lortab was 3 years ago and they were the 10's...so the 5's are like eating Pez.. I just really felt hurt by the whole experience...I know it sounds weird, but I have been going to these Dr.'s for over 6 years...and I guess I expect too much.
The insurance thing is perplexing...they actually cover BOTH Methadone and Opana ER, but not together...since Methadone is the cheapest of the 2 I think I will listen to you guys and pay for the methadone and let TennCare pick up the Opana ER...that' s the only way I can try this combination... I feel like I should have left things alone... I'm the one that mentioned how long I had been on the Methadone and that I felt like it wasn't helping as well...and I'm the one that mentioned the Opana ER...so i think this is all my fault.
I have read from so many CPer's how their Doc's change up their meds after so long so they won't get "tolerant". So I thought since it has been so long that I should bring it up.
Anyway, the 5 mg. Oxy's aren't helping at all...even with the increased Methadone. I have read that after 100 mg. of Methadeone there really isn't a difference in the pain relief...so taking 150 instead of 120 doesn't change much. The one thing it does is make it so I can't sleep...The crap keeps me up all night.
Ok, there it is. Tell me what you think.
Two roads diverged in a yellow wood,And sorry I could not travel bothAnd be one traveler, long I stood
Thanks for all of the help... My next appt. is with my Doctor on Monday the 23rd...so I can wait it out. Unfortunately waiting it out means no relief from the ongoing BT pain...those 5 mg. Oxy's aren't doing a thing...so I am taking about 3 or 4 of them at a time. I know, I know...that's a no no...No pun intended. But if it isn't helping what else can I do? I already called and told the nurse about it and what I was doing...she said that since I was so used to taking the 30 mg. Oxy's that what I'm doing won't hurt...so that's a relief....
When I go in I hope that they have all of the ducks in a row as far as my meds go..I don't want a repeat of the last time. That NP said that she thought I came in every 2 weeks and that's why she wrote my methadone...But wait!!! That would mean that I am taking 900 methadone a month....What a dumba*^!!! I don't think so.
When I talk to my fave Dr. J. I plan on either going back to the way things were...taking 120 mg. methadone and 30 mg. Oxy IR every 4 hours as needed.. I mean, it worked for the most part, but I really think I want to try the Opana ER...I guess I'm hoping for a miracle drug...I just get soooo tired of not ever having pain free time anymore. I know that I'm getting really depressed about this CP...I can't help but dwell on the fact that for over 20 years I have been dealing with this... That's almost half my life. Too much to handle.
So, what's next? Oh yeah, I had this thing come up on my face that I thought was a pimple...right by the lower corner of the bottom of my lip on the right side...only now it feels like a cyst...and I'm worried about that too.
Man oh Man....will it ever get better?