Living a life of horrible pain!

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nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 11/18/2009 3:50 AM (GMT -7)   
Hi.....Haven't been able to check in for a  long time. I had my shoulder replaced Aug..26th and I am still having horrible pain which they can only attribute to a hugh fibro flair caused by the physical therapy. All of the therapy requires lifting my arms above my head (a great big no-no for someone who has had 4 cervical spinal surgeries). I've been on 2 rounds of steroids and received trigger point injections just this last Mon. to try to release some of these points and decrease some pain. I sleep about 4 hours a week which is about to kill me. I'm a tough old bird who has lived with daily pain for the past 38yrs. but this is just about to get the best of me. Every movement of the arm causes horrible muscle pain in the deltoid area and that muscle just looks like is is hanging off of the arm. My RSD in both arms has reared it's ugly head which makes life so much worse. I love my ortho surgeon....I sat and cried in his office Mon. and in 25yrs of going to him  he has never seen me in a state to make me cry and he would do anything to help me get better. Yesterday in PT they started the "freeze and stretch" therapy only to see it they can get the trigger points calmed down. I absolutely dread Thanksgiving! My husband will have to cook almost all of it by himself which he never complains about.  We have about 15 people here for the food fest. He never complains about anything...he just want's me to feel better. I'm so blessed to have him! Pain meds aren't even touching the pain but I take them "just in case".
I knew this was going to be difficult but I never dreamed it would be this bad. I've had so many surgeries and I hope that I haven't done anything to my spine in all of this. Please keep me in your prayers as I am about as miserable as I can be.
Wishing each of you a wonderful Thanksgiving and a day free of pain.
Nurse2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.
 
Find blessings in every day!
 


babycakes-
Regular Member


Date Joined Nov 2009
Total Posts : 94
   Posted 11/18/2009 4:42 AM (GMT -7)   
Hi Nurse; sounds like your having a really tough time at the moment.

Try and keep your head up, i know its hard but it sounds like you have a lovely supportive husband :)

Enjoy your thanksgiving - we dont have that here in New Zealand!!!
Hope tomorrows a better day for you.
XOXO

~ Love Always; Erinxo

Loin Pain Haematuria Syndrome  - A Painful & Rare Kidney Disease .
 
 ^-^
Finish Each Day & Be Done With It. You Have Done What You Could. You've Tried Your Best. 
Tomorrows A New Day; Begin It With A Smile
 


punchfit
Regular Member


Date Joined Nov 2009
Total Posts : 89
   Posted 11/18/2009 5:17 AM (GMT -7)   
Hi Nurse2,

Gee and i am complaining?

My goodness you have been through so much, i am speachless.
Your story is heartbreaking, and you are lucky to have such a wonderful supportive husband.
It sounds like you havent had much success with surgery?
I cannot imagine having 4 hours sleep a week, you must be so run down no wonder you feel the way you do.
Is it the pain that keeps your awake?
It sounds like you have some great caring professional medical assistance.
We to in Australia dont have Thanks Giving, but i am sure your husband will cook up a storm so to speak, hope you can enjoy.
I wish you all the best in your recovery, and hope to hear that next time you get to post you are reciveing some effective PM, its so terrible and so unfair that we all have to suffer from chronic pain, its just so painful and effects us in so many ways.
My thoughts and blessings are with you and your family, during this difficult time.

Please take care.
Hope tommorow brings you some effective pain reilef.
Love Punchfit x

AFLady-Army Mom
New Member


Date Joined Oct 2009
Total Posts : 14
   Posted 11/18/2009 7:46 AM (GMT -7)   
I'm so sorry you're in sooo much pain. I will pray for you. It's great you have such a supportive husband. I would let him take over Thanksgiving cooking and not feel bad about it. It would be better for you to be rested up and feeling the best you can when you have so many people over. I know lack of sleep can drive you crazy and intensify your pain. I wish you lots of sleep, less pain and a great Thanksgiving!

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/18/2009 12:44 PM (GMT -7)   
Nurse2,
I'm sorry to hear you're having such complications. Just the raising your arms above your head move had me wincing and that was before reading the rest of the post.

I know you're not going to like my suggesting this, but maybe could someone else do Thanksgiving this year? You know, being a nurse how you want to take care of everyone, but holidays weren't meant to cause us more medical problems and with the state you're in I think you'll try to do things you shouldn't. Let alone all the anxiety. Please consider making some phone calls and just saying to others you can't do it at your house this year; they'll understand. Then your husband can make one great dish and you can both go somewhere else. Another option our family has done at times was for everyone to meet at a local restaurant. There are usually a few who have nice buffets for Thanksgiving. It is, afterall, about giving thanks, not about driving yourself crazy and risking more injury!

Hugs,

PaLady

Splashdancer
Veteran Member


Date Joined Aug 2009
Total Posts : 927
   Posted 11/18/2009 12:52 PM (GMT -7)   
I am so sorry that you are feeling so awful. I could almost feel your pain through your words. I do want to try an give you a little bit of hope. It's not exactly the same, but a friend of mine had knee replacement surgery and it took her a good six months to truly feel better. She kind of 'plateaued' (sp?), painwise, for awhile, and then a few months in she started feeling improvement almost daily. So please hang in there - I really think you will start feeling better soon. And about Thanksgiving, AFLady-Army Mom is right - let your hubby take care of everything (BTW, he sounds like a wonderful man :-) !) and just enjoy the day as much as you can - visit with everyone and enjoy the feast! I'm sending healing, pain-relieving vibes your way!

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/18/2009 12:55 PM (GMT -7)   
    Good afternoon Nurse! Oh....no!....I can feel your pain now!....We all truley hope you get to feeling better and find some sort of relief. Have they tried everything as far as pain meds go? Surley. there is something they can do for the pain. Keep us posted.....and really I for one hate to hear about someone like this in severe pain! Take care now.
 
     Michael

privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 11/18/2009 2:47 PM (GMT -7)   
I'm so sorry you are having so much pain nurse 2, wish there was something I could do to help. I totally understand the Thanksgiving deal and feeling that someone else has to do the work but I also know that if he didn't want to do it, he wouldn't. He has pictched hitted for me and I for him a number of times during the 40 marriage and we are stronger because of it. It sounds to me like if there is anything you can do to help him that doesn't amount to a bucket of pain you''ll do it.

Surviving on 4 hours of sleep a week can't be good are you taking anything to help you sleep? It seems like if you could get some rest overall you''d feel better. Just my opionin and opions are like a*&holes everyone has one.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 11/18/2009 4:15 PM (GMT -7)   
Aw Nurse, I am so sorry that you are having such a terrible time. Any chance of your dr increasing your meds or trying a different one to help you out here? May be worth making a call and talking to the nurse.

Omg, there is no way I would consider dinner at my house for 15, I don't care who they are. Surely these folks understand that you are not in any shape to have company at this time. What I would do is get on the phone now and ask who is willing to sponsor the big feast at their home this year. Its just not right for people to expect to come to your place this time. Instead. they should be falling all over themselves helping you out. I don't care how good hubby is and how hubby will cook-the two of you need a break!!!

I will stop here before I shoot my big mouth off, this just is not right. Take care of yourself.
Straydog/Susie
Moderator Chronic Pain
 
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/18/2009 4:28 PM (GMT -7)   
Nurse2,
Just thought I'd add some new info. that I just received. My goddaughter was going to have Thanksgiving at her house for the first time this year. Tomorrow they were going to be moving extra chairs and stuff over, and as well she and her hubby and her Dad were going to help me move some things I need moved by Nov. 30. Last night when I talked with her she said her husband had the flu, and I said he ought to be in bed, and not to worry about moving things, Well, I just got a phone message from her from the hospital. Her husband had an emergency appendectomy this afternoon! It wasn't the flu at all! So I am going to strongly urge her to not even consider trying to do Thanksgiving, although I think others in the family will likely already be doing this. Or suggest we all go out.

There are things that need to be flexible and holidays are one of them. They're a ton of work if you're the host, and even if you try not to do things, you know you're going to try and probably at least aggravate that shoulder more. Why? Call some local restaurants and ask about their Thanksgiving buffet, and make reservations for a party of 17!

I'm with Straydog on this! Hope yout don't take offense!

Hugs,

PaLady

nurse2
Regular Member


Date Joined Jul 2005
Total Posts : 229
   Posted 11/18/2009 7:19 PM (GMT -7)   
Thanks for your wonderfully kind words and prayers. As far as pain meds..........two Percocets do nothing......one Lortab does nothing. Ambian 12.5 CR is not helping the sleep which is upset by the constant pain. I started taking Baclofen (sp?) which is an old muscle relaxer and it has helped with the muscle spasm in the deltoid a little bit. I've been wearing a TENS unit and using Lidoderm patches, Biofreeze, Bengay and anything I can get my hands on. A heating pad has helped a little. It is the muscle pain that is just unbearable! I still have very limited movement of the arm because of the muscle pain. The joint works well, passively when they move it around. I just can't do it myself. I will continue to work hard to get in the best shape that I can. On Dec. 8th I am having another round of nerve blocks in the occipital area and on both sides of C1, C2 and C3. Right now I can't even look down at the grandkids without geting sick to my stomach. Something has to give.
Again, your words of encouragement are so appreciated.
Nurse2
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.
 
Find blessings in every day!
 


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/18/2009 7:54 PM (GMT -7)   
    nurse2 what is the mg on the percocet if I may ask. The difference between  a #5 and a #10 can make all the difference in the world. I know that you have been here for quite some time, and I have not, but I'm just concerned, and hate to see anyone in pain. I used to take the #5's myself, then had to jump to the #10, and it made a huge difference for a long time. Ok, I'm going to shut up, cause I have a feeling you already know all of this. I'm just wishing you well, and hope you can get some relief soon.
 
   Michael

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 11/18/2009 9:55 PM (GMT -7)   
nurse2
I'm glad to see you posting but I am very dismayed that you are in such pain and having such a difficult time of it! Baclofen is an older med but it can be extremely effective for muscle spasms and also it has been found with continued use that it does or shall I say can help lower pain. I have been on it for quite some time now and it has been a real Godsend for me, I take 25mg at 6AM and 2PM and 30mg at 10PM it took quite a while to work up to getting an effective dose, but it does work ( at least for me for the the muscle spasms and helping control the pain!) I do hope that you will get some relief from it soon! I do wish I had the ability to help take away your pain! I will continue to pray for you nurse2!

May Gods Peace be with YOU!

White Beard

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 11/19/2009 4:04 AM (GMT -7)   
Nurse, I don't have alot to add that others haven't said already but I do hope you can get some relief soon.  Pain after surgery can be really tough and yours has been going on way too long.  When is your next dr appt?  Soon I hope!

---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


AFLady-Army Mom
New Member


Date Joined Oct 2009
Total Posts : 14
   Posted 11/19/2009 9:21 AM (GMT -7)   
Nurse2,
I have horrible chronic muscle spasms in my back and neck. Muscle relaxants, PT, massage, acupuncture...none of it helped. But - my pain mgmt dr. recently tried something new that did work. You may want to ask about it. Apparently it's expensive, but most insurance should cover it if it's for medical purposes. I got Botox injections in my back and neck and shoulders. It's awesome. It's the first time in years I'm not is severe constant spasm. The Botox damages the muscles so they can't contract. It's supposed to last about 3-4 weeks before the muscles heal. I'm hoping the spasms will be much better when the muscles heal, otherwise I'll be begging for more. I've had more back and neck pain since the injections, but I'm still thankful to get a break from the muscle spasms.
I hope you can try it and it hope it helps. Still praying for you too!
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