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golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 11/25/2009 3:37 PM (GMT -7)   
I'm just wondering whats happening with your search for a doctor to prescribe you your meds?
Plus how are you going? Did you manage to sort out some sort of animal access with your shelter?
I'm just worried about you, golitho

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 11/25/2009 6:11 PM (GMT -7)   
Me too!!!
Pete

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/25/2009 7:54 PM (GMT -7)   
    Add me in there as well! ......My lady, where are you? Speak to us! I could tell from your last post, something was not quite right. We are all worried!

Post Edited (Screaming Eagle) : 11/26/2009 5:35:36 PM (GMT-7)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/25/2009 11:13 PM (GMT -7)   
Awe, you all are so sweet. I will explain more details in a week or so. One thing is that I'm just exhausted. I think I mentioned I'm closing down the remnants of a business and I've been busy moving things and sorting through stacks of papers that I've let accumulate over the years. So I'm lucky to sign on here once. I didn't realize it was that noticeable, though, and I sure don't want to worry all of you.

I am tired, very tired. Physically and emotionally. There's more grieving than I realized there'd be, as my career is really coming to a final close. I've also been selling some things from the office, and have to send a bunch of things to a former student of mine in New Mexico. That part is nice, but it's taking a lot of work on my part. My landlord is being nice, though, and giving me some extra days beyond the 30th.

And then there's the appointment with a new GI doc yesterday about the Barrett's esophagus and precancerous condition. I have another surveillance endoscopy scheduled for Dec. 14th, but I have to find someone to take me. It's going to get tough as a lot of my family are leaving for a couple of weeks toward the end of Dec. - just not sure when they're leaving. I want to get this done in Dec. because this low income insurance I have resets in Jan. (all the allowed amounts, etc.). The GI doc told me I'm also a candidate for what is similat to an RF ablation in my esophagous; it's called a HALO procedure, and like with nerves, they use radiofrequency to zap the abnormal cells. I have to give it more thought, as there are always risks, but I must admit I did like this doctor. I felt like I was treated like an intelligent, capable woman, instead of some idiot who couldn't understand anything and had to be treated like a child.

As far as finding a PM doc, I have a call in to the doctor my cousin knows who she thinks will help me but he can't get back to me for a week or so. He only operates a sole propietorship, and he had recently been injured in an accident and is just getting back into full time work. I think he has learned firsthand about pain, though. I will let you all know when I hear something. Not sure what my other options will be other than to beg my neurosurgeon to continue helping me. The PM docs in this area will not accept my insurance. And the plan only allows for 4 doctor visits/year. I can't pay for regular visits to someone. Somehow, I'll figure it out. I'm getting everything but the percocet.

All of the animal visiting has been put on a back burner for now. Probably a good thing I didn't get a cat just yet as I've got stacks of things here that need to be filed that a feline would be more than willing to "help" me with. Good thing is I have an empty file cabinet that got moved on Sunday. Now if I can only fill it the way a file cabine is supposed to be filled!!!

Sorry I haven't been answering posts the same way I usually do. Probably will be that way for a bit right now. Please understand I am thinking about all of you!!!

And I so appreciate your caring! Really, this thread brings tears to my eyes! Golitho I so appreciate your thinking of me enough to start this! A special thank you to you!

Hugs,

PaLady

Post Edited (PAlady) : 11/26/2009 1:38:54 AM (GMT-7)


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 11/25/2009 11:32 PM (GMT -7)   
PALady
I am sure you know how I feel, so what can I say to you? But try to remain strong, I give you all the support I can........I wish there was more I could do or say to help you!

I hope you have a Good ThanksGiving Day PALady

White Beard

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/25/2009 11:36 PM (GMT -7)   
Thank you, White Beard!

Everyone sending good vibes is a wonderful help. although I wish some of you who know how to do household repairs lived a lot closer!!!!

Hugs,

PaLady

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 11/25/2009 11:58 PM (GMT -7)   
PALady
If I lived closer, your house would be in Good Shape! I might not be, but your house would be! (smile) I do most all my own home repairs! I do wish I could help you!

White Beard

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/26/2009 1:11 AM (GMT -7)   
White Beard,
I know you would help - although I'd never let you do anything that would hurt you more!

One day at a time is all I can do right now. Sometimes not even that. My neck is tightening up because I had to put a lift under my mattress to help keep the acid out of my esophagus, but my body wants to curl up flat and I end up waking up sort of scrunched down with my cervical pillow. It actually doesn't feel bad when I first lay down, but when I turn on m side or move around it create prooblems. I know you know all about sleeping positions! Just seems like so much is piling up, physically I am getting very, very tired.

I should be in bed now!!! Fact is that's where I'm headed!

Night!

PaLady

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 11/26/2009 12:00 PM (GMT -7)   
PA Lady,
You have always been so gracious and kind to me, and I wish that somehow I could manage to help you. Hav you checked with a Habitat for Humanity to help with the household repairs or maybe your local Center for Independent Living or your local Senior Resources centers? They may be able to either refer you to someone or someone to you to to help with the house repairs?
I don't have any ideas as far as Pain Management doctors go.
I wish that I lived closer, I would come and help you with the filing and the driving.....
Hugs and Happy Thanksgiving,
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
Avascular necrosis of left wrist- maybe hips too


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/26/2009 1:53 PM (GMT -7)   
Sandi,
Thank you so much for the kind words. Believe me they help soothe my soul and that is more of a help than I can put into words. After all is moved I will have plenty of time on my hands for sorting and filing, that's for sure! But for now, I will think about that tomorrow, as my friend, Scarlet O'Hara says!

As for a PM doc, well, I'll do what I can. That's about all any of us can do, right? I am really angry with my neurologist, who I just saw 2 weeks ago, and he's willing to do everything BUT the percocet, even though I've been in that office for over 25 years. They have more of my medical history than anyone on the planet. But I can't afford to tick him off as I need his help and support with the disability. He kind of hemmed and hawed around even helping me for a short time, and then refused because he said that tends to turn into longer than a few months. He could do it if he wanted to. I happen to know he does prescribe for a few of his other patients because I know some of them. So evidently he uses his discretion and I must not meet his internal guidelines. My PCP completely refuses. None of the free or low income clinics touch this stuff, and I can understand why they don't. So....

One thing I tell myself is I will somehow survive. I've been trying to stretch a few percocet over the last year so I have some extra that could at least (I hope) get me through the Christmas season. I guess otherwise I will just be in pain until another option opens up. But I won't die. Right now I'm going to hope that other doctor is compassionate enough to come through for me. I left him a detailed message (what my cousin instructed me to do) and said he could take over all my pain meds, that was perfectly fine with me as long as he knew I had to get them either as generics or through the pharmaceutical programs. Keep your fingers crossed!

Anyway, I'm off to my goddaughter's for some late afternoon turkey sandwhiches.

Hugs to all of you!

PaLady

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/26/2009 2:09 PM (GMT -7)   
My Lady....you are very highly thought of and respected....and Loved here....so Yes!...... we do take notice when one of our regular members is missing in action. I know exactly what you are going through as to shutting down your business, as I'm in the process of doing that right now myself. Grieving is the perfect word to describe what it feels like after you have spent a lifetime running, and growing it.....only to see it fade away or drift off into someone else arms. I have always said there is a big difference between an Owner and a manager....and in many cases like ours....we are both! I don't know the history behind your relationship to the business, but I can tell that it was dear to your heart. I'm hoping you and I can visit by phone one day, and talk about it. Take all the time you need, and don't worry about not getting here to chat as often as we would like for you to....we will all understand completely. On your comment; ...... "I felt like I was treated like an intelligent, capable woman, instead of some idiot who couldn't understand anything and had to be treated like a child"!....I had to laugh at a brain quip that flashed through my mind when I read this statement from you......Can you imangine... You and StrayDog, and Chutz...all being treated at the same time by the same Dr ...and having him treat you any other way than what you should be treated?.....Whoa unto him, that would do such a foolish thing! It would be the Apocalypse! :) I feel sooo bad about your poor health, and don't know all the particulars of your situation, and like the others I have mentioned here, you are such a strong person in my eyes, and we sometimes forget that underneath that strength, is person with real feelings and vulnerabilities....(I hope I spelled that right!) one last thing!....when your ready to get a Kitty....give me a call...either by phone or my email...as I have a special offer just for you! (eilertphoto@yahoo.com) Trust me, you will like the offer! I can't always give like I would like to here on this site, as I'm very limited in my knowledge with CP....but there are other ways to give...so give me a jingle when your set, and ready. All my Prayers are with you tonight....We all Love you deeply.....Im so grateful for this site and the moderators, veteran members, and regular members.....I can't stress this enough! My wife and I go to bed every night reading these post....and we feel great sorrow for those whose pain is is over whelming to them....and we laugh when the times are good!.....what a wonderful bunch of people! Take care my friend....and take care of yourself. Again you are loved!.......now Scramo...Whamo...Bamo! :) Your friend...Michael

Post Edited (Screaming Eagle) : 11/26/2009 5:48:00 PM (GMT-7)


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 11/26/2009 4:50 PM (GMT -7)   
Hi PAlady, packing up a business sounds like a LOT of work! Wish we could all pitch in and help you out.
 
I'm so glad you're ok though and I'll keep my fingers crossed that this new doctor comes through for you. Are local doctors not allowed to prescribe pain meds or is it a territorial thing? I know my rheumy leaves pain meds to my GP and she just deals with the RA but its called a shared care plan so that all my specialists are linked. Any letters are sent to all so they don't prescribe something to clash with another area. I just don't really understand the American health care system.
 
Will Barek Obama's changes have any impact on you? We hear some of the arguements in the senate over here. Makes me smile, us Aussies all pay a percentage of our tax to government medicare so health care is free via the public system or if you're poor. You can opt for private and get your choice of doctors or treatments. I hear these protestors saying "I don't want to pay for other peoples health bills" I can see its a pretty heated area. We've been doing it for years, its such a tiny percentage of your earnings, I don't notice it and if you're under a threshhold you don't pay at all.
 
Sleeping is a major issue. I can really relate, having to sleep raised is the pits. When my asthma is bad or my chest I do the same and it really impacts on my joints. I use to bury bits of me in pillows trying to compensate. I hope you manage to get some rest soon . It sounds as if you need it with the move.
 
Changes are hard, I feel for your grief. Hopefully something positive will come from it for you. I'm aways trying to find that silver lining when change is thrust upon me but I'm not saying its easy, only sometimes if something didn't happen then I wouldn't have been exposed to something else. If you get my ramblings! I hope you find a silverlining from the end of a chapter in your life.
 
Best wishes to youPAlady, golitho
 
 

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 11/26/2009 8:09 PM (GMT -7)   
Hey there, I do hope you are getting near the end of finishing up the moving. Thats always such a big pain in the arse. Its a bittersweet moment I am sure.
 
I do see one good thing happened for you that's very important. You like your new gi, that is a blessing and so very important. Interesting what he spoke of surgery wise, will have to check that one out and see what it's all about. Who knows, it could be something very worth checking into once the dust settles. I am on gi number 4. When the search was on for a gi after my emergency surgery down south, I went thru four in three months. He was my lucky charm, he is very competent, great disposition, and I just could not ask for a better dr. He is a keeper and a gem. I have been with him 7 years. I am his oldest patient as far as length of time for treatment. He says at this point, I am no longer a patient, I am family, lol.
 
Glad you are able to get another scope done before all the deductibles hit and start all over. If your family is leaving the last two weeks of December, surely one of them will take you for the scope on the 14th. I am scrambling trying to schedule appts in Dcember because of the deductible thing too. There is a bunch of us I am sure trying to get that last visit in, lol.
 
I sure hope this PM dr thing pans out. If he has been in jured, then he should have first hand knowledge about pain, could be a plus for you.
 
Just take it a day at a time, thats about all any of us can do, Take care.


[color=blue>

<FONT>crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/27/2009 12:29 AM (GMT -7)   
Screaming, Golitho, Straydog and everyone,
I want to write more of a response, but I am still so tired. I just wanted you to know your replies mean so much to me!

I'm also not feeling so hot. I think it's a sinus infection starting to land in my chest so I'm coughing and heed to go take some expectorant stuff.

I hope in a week or so I'll have some good news re: the PM, most if not all the move behind me, and will be feeling a tad better.

Hugs to you all!

PaLady

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 11/27/2009 8:20 AM (GMT -7)   
PAlady,
 
I have been reading this and just wanted to send my support as well.  I hope you can get some relief and some treatment on that esophagus.  I know that must be a worry for you.  I have a friend that has that as well. 
 
I find comfort in animals too.  I have a cat, two dogs, a cockatiel, a horse and my boys both have snakes.  I hope so much that you can either get a pet when things settle down or get back to your volunteer work with animals. 
 
Please know you are in my thoughts and prayers. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/27/2009 8:46 AM (GMT -7)   
    Let it be known....that when my Lady is ready for a pet, I have a pretty sweet offer for her.....So there should be no excuses for not getting one, other than the timing has to be right for her. We all love her....and it's wonderful to see all the support here for her....you all are a wonder bunch of family. Have a wonderful day......It's Black Friday!.....Wahooo! yeh...right!.....you wont see me out there in that mess! :)

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/27/2009 8:47 AM (GMT -7)   
    Gretch!...How are you doing? Give us a shout...or maybe, I just didnt see an update on you! :)

privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 11/27/2009 10:52 AM (GMT -7)   
Hi PA Lady
The posts are wonderful!! I believe you are loved by every member on this forum. Closing down a business must be horrible and heartbreaking I'm sorry you had to close it and sorry you have so much to do. When you don't feel well that makes it double hard.

I will keep you in my thoughts and prayers and remember to take care of YOU through all of this you are the one that matters....

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/27/2009 4:28 PM (GMT -7)   
Gretchen, Screaming, Privey and everyone,
Once again, I thank you for all your kindness. I can't put into words how much it helps and means to me right now to have my "family" here.

A bit of a rant. Today, the day after Thanksgiving, I get in the mail an EOB (the explanation of benefits we all get from the insurance regarding each claim) denying the charge for the office visit with my neurologist because my policy had been cancelled! Now I believe (although one is never 100% sure) this is a gliche and will work out AFTER I have to make a gazillion calls and even some written responses, as I have paid the premium (just received the first bill in mid-Nov, which was for $655 for August - December, and thankfully my cousin helped me out again) and checked my bank account and they HAVE cashed my check, so it's one of these right hand not knowing what the left is doing. Having dealt with insurance companies as a provider for well over a decade, I know this happens a lot when policies change or are switched. BUT in the meantime if anyone - like my GI's office - calls for authorization for a procedure (like my endoscopy on Dec. 14th) they will likely be denied. This drives me batty (as it does all of us when these things happen) because I've been screwing with these people for so long already. I knew when I kept getting letters to send in the same form that someone wasn't inputting the right data into the computer. I just left the woman who supposedly handles all this 2 voice mails for her to get on Monday morning, and of course I'll have to deal with this next week just as I'm dealing with moving and emotions that are much more delicate. I can't imagine how many people try to apply for this low income program and give up. If they keep screwing with me once I'm moved I'm going to have some time on my hands, and while I've got a lot of other things to process like SSD, and other low income program forms, I'll manage the time to get a letter off to the state insurance commissioner. Especially if this screws up my endoscopy so I can't get it until after Jan. 1.

And last night at my goddaughter's I took a slight fall. Thankfully, not a bad one, but you know when there's a house full of people and kids and pets there are lots of things to trip over. I had just filled my plate with food and turned and the dog's bed, which had been propped up, somehow flopped over and my foot caught the end of it. I only went down on one knee, but it was the leg that gives me trouble with my SI joint and has all the pain. The good thing was I landed on the soft dog bed! So I'm a bit sore today. And my neck is really killing me from sleep positions. I've got to figure out something better.

Ok, enough ranting!

It's getting cold here and snow is on our horizon. Just hoping I can get everything moved out before we have any major snowfall.

Thanks again....and hugs to you all!

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 11/27/2009 6:18 PM (GMT -7)   
What is it with ins companies. I have been battling w/BCBS for months now on not paying claims on me. Just like, because I took a fall they automatically assume I got hurt somewhere and there is other ins to cover my medical bills for the broken arm. They have not made payment on any of these bills. Monday will be spent going round & around with those idiots. I had bills denied from over aytear ago when I fell. This idiot at the ins company says are you still getting treatment for this. I said hell who knows, thats all I do is go to the dr. I was mad over this one. Idiots.


[color=blue>

<FONT>crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

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