Angry and hating the incompetence here! (Rant)

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Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 12/1/2009 11:08 AM (GMT -7)   
If any of you are originally from South Carolina and are offended by the things that I'm about to say...I'm sorry.

The medical community here has been pretty much a joke since day one here. Before I even left Oregon on 10/14, at my PM doc's advice, I started calling down here and trying to make arrangements for the PM portion of my care. Oregon PM's thoughts were that since I was there it would be easy to have me come in to sign for record releases. Right before I left I had gotten connected with a pain clinic that's about 10 miles to the east of where I'm at now. They received the referral request from my PM doc in Portland and said that as soon as I arrived down here they'd solicit for my records. On 10/22 after I had a chance to sleep after being on the road for a week, I went over there and filled out the records release information. I was told then that it would be about a week, maybe up to two, but that they'd call me when they got my records in and they had an appointment for me. My PM doc's office called me on 10/23 to tell me that they received the release and that they were sending the records that day. I checked in with them (the new one) on 11/09 figuring that had been a couple of weeks. Nope, they still didn't know anything. The (one) doc that they have there hadn't made a determination as to whether he was going to take me on as a patient. This should have been my first red flag. 11/16 I call again to see if there's any information. They tell me that no, our doctor still hasn't had a chance to look at the file. 11/18 I have appointment with new primary care here, discuss with him about official local referral, he refers. 11/23 I try calling to new PM doc's office AGAIN to see what the status is. This time I'm calling cause we're getting down to the wire here. My PM from home only gave me one additional set of scripts to travel with and my first refill with a new doc would be due 12/03. When I make the call on 11/23 I get a recording saying that the office will be closed 11/23-11/29. Yesterday 11/30 I go in because I'm tired of all this running around and no answers. When I go in the receptionist has to call to a back office that I can't see. She asks about my file, apparently the back office person tells her that they JUST got all of my stuff put together and they're still waiting for the doc to review. But that they've scheduled me a first appointment on 12/29. JUST GOT IT PUT TOGETHER?! They'd had my records since at least 10/24, even if my home doc's office hadn't sent them till the next day!! I explain to the receptionist that this isn't going to work as I don't really want to be without meds for 3 weeks. She then tells me that even at the 12/29 appointment they would not write me refills as their doctor will not write on an initial visit. That it wouldn't be till my followup appointment at the end of January that he would be writing anything. I was infuriated and scared since I don't know about the system here.

I came home and started hitting the phone. I found a pain clinic that was willing to talk to me about my best course of action etc. They agreed that this is ridiculous. The receptionist there was very nice and made a remark that if they were going to be that slow and careless, did I really want to be treated there? I thought about it and decided that the 35 mile drive to the clinic that I was talking to would be better than the aggravation that I had already received from the local one. And really, when you live out here in the land of not even having garbage service, a 35 mile drive is nothing. So I called my home doc's office yesterday and asked them to start the ball rolling as far as a referral. They've been great. They got it all together and sent it yesterday. My regular nurse called me today to let me know that the only thing left here was to get my butt into the local office so that I could sign the consent forms and get the last of the records. I'm still going to end up having to go a few days without meds since the first appointment they have available is 12/11. I have enough meds to make it to 12/05 maybe as much as 12/07 if I cut down. I'm going to call my new primary here to see if he's willing to write anything to at least help with w/d symptoms till I can get into the new PM here.

Of the experiences that I've had here I've discovered a couple of things. One, there seems to be this assumption that people are coming in just to get pain meds (See my post about having to go to two ER's just to get an x-ray cause the first one assumed that I was there seeking since I had admitted that I was a CP patient). And two, that they're way too loose with their records and information here. Every doctor's office that I've talked to (primary, two pain management clinics, and a rheumatologist) have all been surprised that my doctors back home won't just send them the records without my coming in and signing a release of information form. They all seem to be amazed that my doc offices tell them that they need to have me come in to sign for release. It makes me wonder. Especially since HIPPA is supposed to be federal. You would think that confidentiality of information would be an across the board thing.

Alright, I"m done with my rant. On the odd chance that anyone else is living in this state and can give me any sort of advice on how to deal with these people, I'd appreciate it.
Curious people are interesting people...I wonder why that is.
~Bill Maher


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 12/1/2009 11:27 AM (GMT -7)   
     Piercing....that is pretty much what happened to me here in KS....I was lucky when my PCD saw that I was getting the run around with the PM's here.....He just took care of it himself...but I had to agree to have surgery to continue treatment. The first PM clinic treated me like a criminal the second I steped into the place. I truly wish you well...and I hope someone here can advise you on this.

Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 12/1/2009 11:53 AM (GMT -7)   
I know that even if there's not anyone that can advise me about this state, just being able to complain about it made me feel better. lol. But yeah, at least my doc & nurse back home will do anything that they can to help me with this.
Curious people are interesting people...I wonder why that is.
~Bill Maher


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 12/1/2009 12:06 PM (GMT -7)   
....its ok...let it all out honey!....we all feel like this at times!......I'm sure someone will be by shortly to advise you....all I can do is send you my very best wishes until they get here.......hurry up gang!......or she is going to blow! :) You know....I think all of us have been having a rough time of it latley......we need some fresh members here to help! :) Piercings....I havn't seen you here in quite some time.....no need to explain anymore...as your post here says it all. ....well where is everybody today!......oh....just put your head on my shoulder....the good one please!....I only have one left to offer anymore! :)

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 12/1/2009 12:08 PM (GMT -7)   
Piercings,
The sad thing is it's not just one state. That's the REAL sad thing. One thing to learn from this is to get a copy of your records - especially if your'e traveling - and have them with you (keep your own copy) to hand to your new doctors. I often have to sign releases to get my own records (which to me sounds crazy) but I try to have them, although I've slacked off a bit lately cuz there are so many!

But finding a decent pain doc isn't easy no matter where you are. I'm in PA and having difficulty. Many others on this forum report similar problems. So when you find good docs, hang on to them, and yes, you may have to travel. I'm waiting to hear if the doc I called to take over my pain meds will agree - and he's 3 hours away. I have no other choice.

So go ahead and rant - I don't blame you - but it's not any one state or location, sadly!

Hugs,

PaLady

Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 12/1/2009 12:56 PM (GMT -7)   
Eagle, I may take you up on that shoulder if these people actually do make me go around the bend here. Heh. But seriously, at least after venting here I really did feel better. If nothing else I knew/know I have people here that can understand the frustration and fear of not knowing where their care is coming from next.

PALady, I didn't think about it till I was already on the road. I really should have gotten everything. I think if this office proves to be a problem as well I might actually just mail a consent to my docs and have them send me copies. I have moved within state a few times in the last few years, but haven't gone out of state since being in PM. I had no idea it was going to be such a headache to get these people off their butts to get anything done. I had thought that I was being smart by starting the process before I got here. So much for that idea. lol

Time to go to the new doc's office so they can send over the consent form. Wish me luck that they decide to take me on.
Curious people are interesting people...I wonder why that is.
~Bill Maher


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 12/1/2009 1:00 PM (GMT -7)   
I drive an hour to get to my pain docs. well worth the time spent.
Chronic Lyme Disease
Fibromyalgia
Chronic fatigue syndrome
Polycystic Ovarian Syndrome
Sleep Apnea
Hypothyroidism
Adrenal Fatigue
 


Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 12/1/2009 5:04 PM (GMT -7)   
PA...Even if I had to sign a release for my own records here, I'd be okay with it. It's the fact that these people in this state pass around medical records WITHOUT a signature. They're surprised that my old PM's office requires them to get a consent form with my sig saying that it's okay for OR to release my records. That's the part that bothers/scares me.
Curious people are interesting people...I wonder why that is.
~Bill Maher


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 12/1/2009 6:57 PM (GMT -7)   
Piercings,
the one thing I do now adays is get a copy of my mri's, down here you have to wait 30 days then they can release your mri's to you the patient,
so at least I do have those...but getting OR records can be a real hassel, so very sorry you have to go thru this, and hope you can still get
some decent treatment....rant away..Hope you get a low pain day soon...
(((((((((((((((((((((((((((((((((((((((((((((((((((Piercings))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
keep us posted and I hope you don't have to worry about withdrawals...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


Piercings
Regular Member


Date Joined Aug 2008
Total Posts : 326
   Posted 12/1/2009 8:50 PM (GMT -7)   
Thanks for the hugs Char. At least if I'm being hugged I can't reach out and slap these people. lol. Getting my OR records should probably be fairly easy. My PM doc's office there has been doing everything they can to help me with this three ring circus here. I should know something hopefully by the end of the week here as to whether the new clinic here is going to take me on as a patient. When I went in to sign the consent forms today they told me it should be no more than 3 days and I should have an answer. Keep your fingers crossed that they can get me in for an appointment asap.

Oh and Char...where's 'down here'? confused
Curious people are interesting people...I wonder why that is.
~Bill Maher


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 12/1/2009 10:27 PM (GMT -7)   
Piercings if this is the first glitch you have ever run into with CP count yourself very lucky, lol. You cannot begin to imagine what some of the members have gone thru here or are still going thru in an effort to get decent care. Rant, away you have every right in the world to do so.
 
As PaLady said its very important that you get copies of your medical records.  You cannot ever rely on a drs office to do what they say they will when it comes to paperwork. For some reason paperwork is always backburnered. It took 2 months to get 2 sheets of paper sent to a local dr here in town.
 
I sure would make an appt with the new PCP and explain about when your meds run out and when you see the new PM dr. I would ask that he script meds long enough in between the two appts because it is really unnecessary for you to be without. By asking for limited days worth that will show you are not in there to just get medication. I sure hope this works out for you.
 
I am so glad that you decided against the first idiot's office. That would have been a disaster, already was before you actually became a patient. Matter of fact, since your out of state dr furnished your records to that office I would call them and give them a three day notice that I would be by there to pick my records up. I would not leave them in that office, they are your records. But give them notice you will be coming by to pick them up.
 
I think you will find that sometimes traveling some distance to see a good dr is  worth its weight in   gold. Many of us have done that and I still do. I drive 60 miles round trip to see my gi and pulmonary dr. I did see a pain mgt dr that was the same distance. No big deal.
 
Take care and let us know how you are doing.
 


[color=blue>

<FONT>crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

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