Pain Pumps for Headaches

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tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 12/13/2009 8:07 PM (GMT -7)   
Anyone familiar with this? Does it exist? I have tried many opiate meds orally with no relief of my terrible pain. My headache is continuous 24/7, the pain is 10/10. The headaches are always temporal. This started ten years ago. This present headache has been there 2 years. My pain dr. says there is nothing much else he can do. The injections have not worked and no meds have worked. And he never mentioned any pumps although and i didn't think to ask. i live in Ontario and it doesn't seem that we are up to date with the states. Any help would be greatly appreciated. Thank you.
 
Hoping you all have a low pain day tomorrow.
 
Suzane

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 12/13/2009 8:48 PM (GMT -7)   
Hi Suzane,

I don't know about pain pumps, but you might be a candidate for a peripheral nerve stimulator (PNS). Within the last 10 years or so they started using them for headaches (usually occipital migraines) and facial pain (such as trigeminal neuralgia). A PNS is the same device as an spinal cord stimulator, but instead of hooking the electrodes to spinal nerves as in the SCS they are hooked to cranial or other peripheral nerves. The generator is usually placed in your chest, under your collar bone, or in your belly.

I'm actually in the process of setting up a trial of a PNS for my eye pain. My surgeon is taking somewhat of a risk with me because he's only ever found one other person who underwent something similar (he talked to neurosurgeons from around the country & did extensive research). But he thinks that there is a good chance it may help me, as does my neurologist (who was the one that sent me to the neurosurgeon to be evaluated for a PNS in the first place) and my ophthalmologist is highly intrigued & also thinks that it might be helpful. I'm hoping to have the trial (and if successful, permanent implantation) of the system sometime after Christmas and before I return to college at the end of January. I just need to get approval from my insurance company, which unfortunately might be tough since this is a somewhat "experimental" procedure. The OR coordinator has been working on it for a week plus, so I'm going to give her a call tomorrow & find out what's happening. It was a big decision for me to make & I still certainly have concerns, but this is the best (and essentially only) chance I have to finally find some relief. Like you even massive doses of opiates do not reduce my pain & I've been through pretty much every other medication that can be used for pain. At this time my only options left are 1) the PNS, and 2) do something drastic like kill or remove the eye & there is no guarantee that that would even help because we are lacking so much information about the cause of my pain & other ophthalmic symptoms, so I'm not even considering this option an option at this point.

Feel free to email me about this if you like. I can let you know more of the details as I learn them. I know the basics now, but don't know much of the fine details. If you are interested, I'd also suggest that you look for a neurosurgeon who is highly experienced/ specialized in treating conditions of the head & who has done this sort of procedure before. My neurosurgeon happens to be one of the world leaders in the treatment of trigeminal neuralgia & trigeminal neuropathy, as well as gamma knife surgery (which may be something else you want to look into). I didn't know that until my father, who came with me to my appointment, told me when I left (he's a doctor as well). I only went to see him because that's who my neurologist wanted me to see, but I'm very glad I did so. He was very knowledgeable & compassionate and after only seeing him once I already trust him completely.

Also, if you want more information, I have several journal articles from my research on PNS for facial pain which you may find helpful. Most of what they talk about is PNS for trigeminal neuralgia and migraines/headaches. I could send these to you via email.

hugs,
Skeye

Post Edited (skeye) : 12/13/2009 8:56:20 PM (GMT-7)


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 12/13/2009 9:16 PM (GMT -7)   
Oh Skeye, sounds like you have lots of good info for me to read. That would be great. i asked a friend to ask the neurosurgeon dr.'s at work if this procudure is done in Ontario and where, etc. (as I work at a children's hopsital). Let's hope I get some positive answers answers from the dr.'s ar my workplace.

i will keep in touch.
Thanks
Suzane

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 12/13/2009 9:40 PM (GMT -7)   
OMG how did I do this?? I have no idea how this happened. So sorry.
 
Looks like a classic case of computer hiccups.  I deleted all of the duplicate posting.  I have to admit, I was not sure when they were going to end.  If your going to do something, always do it well.  Well done!!

Post Edited By Moderator (Stella Marie) : 12/14/2009 1:22:52 PM (GMT-7)


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 12/13/2009 9:40 PM (GMT -7)   
OMG how did I do this?? I have no idea how this happened. So sorry.

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 12/13/2009 10:34 PM (GMT -7)   
There is an article on the internet today too about a new treatment using oxygen for intractable headaches and intractable migraines. It is done using a combination of an injection of imitrex and 100% oxygen delievered over 15 minutes or so and it cures the headaches. Try a search on it and you should come up with it.
I don't know if I would go the pain medication pump route, number one , you aren't opiate tolerant, so that isn't a good idea, secondly, if you can not tolerate opiate pain meds, then you may not be able to tolerate them intrathecally, and thirdly, there are only certain meds that can put through a pump, so I am not aware of any anti abortives or pain meds that you might be able to use in the pump if they are not opiates.....
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
Avascular necrosis of left wrist- maybe hips too


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 12/14/2009 4:13 AM (GMT -7)   
TMJ, I think you may have Max Headroom syndrome!!! You may not know who he was from the 80's but he was a computer generated head that stuttered alot. Just kidding, gotta keep up the spirits some how.

Hope you can find some information that will help you.
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 12/14/2009 7:22 AM (GMT -7)   
   Morning Suzane!....glad to see your asking the right people....I just dont have any experience with your type of problem. Looks like you got some good information already. Take care now...and you know where to find me! :)

Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 12/14/2009 1:28 PM (GMT -7)   
One treatment that was being used in headache centers was an infusion of Depacon. Depacon is the IV formulation of the oral tablet Depakote. Depakote in indicated by the US FDA for the prophy treatment of migraines. I think the Depacon infusion is a off label use. You might want to ask your headache specialist about whether this is a viable option.

Good luck.

Stella Marie

 Moderator for Chronic Pain and Epilepsy

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump  & neurostimulator.  Extra features: O2 & wheelchair

 

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