Change of thought on Savella

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LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 12/17/2009 3:54 AM (GMT -7)   
Some of you know my husband has been dealing with Fibro.  We have been trying to find the right medication treatment plan.
 
This is our second time on Savella.  The first time last about 3 weeks but was discontinued due to side effects, rapid heartrate, shaking, sweating, irritable and many other things.  Well the doctor said to try again and bare with it.
 
He has now for almost 2 months now.  He seemed to adjust but we couldn'tsmhair   The kids and I finally had to deal with his behavior. He actually told me he wanted a divorce.  Had me in tears this last week. He was so cold and just plain ole mean!skull   He was very self centered and cruel with the statements he made.  I was packing to leave the house the night before a pain treatment (monday) and all he did was sit in his chair eating and watching football.  So cold.
 
When he left for work when I was getting ready for work I decided to research some of the med combinations he was on.  I'm just so anal on that front.  Found out about the hostility, aggression and irritablility that this med can cause.  And that it reacts with his 24 hour ER release med!  I really think some docs need to research drug interactions before writing a script!
 
After my treatment I sat him down and showed him the drug information and interactions.  He still thought I was crazy and it was all in my head. (and the kids) He blamed everything on stress both our cars broke down.  And he was using my daughters car.  Ok yes that is stress but we have money to buy new cars.  Jeeze all we needed was time to find one.  (we both work alot)
 
I had also googled tappering this med.  It can cause some nasty withdrawls.  Its been two days now at half dose, even at that I see a huge difference.
 
My point of this is to tell all of you if a loved one tells you something is wrong PLEASE listen.  This has been so out of CHARACTER he is such a loving and caring man.  But he was convinced I was the crazy one.
 
So in this household no more SAVELLA!!!!!!
 
Thanks for listening to my rant
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 12/17/2009 4:30 AM (GMT -7)   
Thanks for the info Laurie, I'm glad you were looking out for your husbands well being because it looks like he wasn't capable of doing it on his own. There are so many of these side effects that aren't put on the meds so people won't be scared off.

I tried Lyrica before and my husband hated me on it. Not something I will try again!
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 12/17/2009 7:39 AM (GMT -7)   
Laurie

I applaud YOU! I do hope everything works out well for you! Some of these med do have some very weird side affects! I do hope that this is not a permanent side affect! I know when I was on Neurotin it messed up my vision, and it never did go back to what it was! Keep a close eye out and continue to observe for changes. Also I would suggest that you thoroughly document all of this, and continue to keep documentation in the future! You never know, it might prove handy to have, and possibly even important later on! I do wish you all the best!

Good Luck to YOU!

White Beard

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 12/17/2009 8:44 AM (GMT -7)   
jag you are so right.  The doctor nor the pharacist said anything but the online info was very clear twice even that these changes could occcur.
 
Whitebeard great idea.  Keeping track and documenting it.  As you know me I'm very firm on keeping records heck I have ALL my medical records and working on getting all my husbands.  Its kinda hard to get military records though.  shakehead
 
I'm thinking now that he reacted like this he might not be able to do well with any type of altering med, Lyrica, Cymalta ect. 
 
An easy way to put this is.  He picked me up from work not a word out of him.  He asked if I wanted to go to my sister for the night all nice.  As soon as I said I would rather stay at home while we both think about what was going on.  Now this occured in the driveway within 2 minutes.  He jumped out of the explorer slammed the door and stormed into the house.  Within 5 minutes he came out and gave me a soda and asked if I would come in and rest. That it wasn't good for me to be in the cold.
 
Now a 360 in behavior three times in less then 7 minutes.
 
thank you two for your responses....
 
Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 12/17/2009 9:06 AM (GMT -7)   
 
   Dear Laurie,
 
      Good mornng *huggs* I hope you are doing a little bit better today. I am so sorry to hear of the termoil that has been going on in your house hold. And just before the holidays... I cannot imagine the amount of stress you must be enduring. *huggs*
 
     I am so glad you decided to dicontinue the medication. You are always making sure every aspect of your families health is researched and carefully planned. I hope your husband continues to improve.
 
      ...so, here is a random thought. If it is in error, im sorry. Dont mean to pry. !! to the point!! Last night I found myself wandering over to a post entitled "ultram?" (tramadol) and I noticed it was made in the "fibromyalgia" forum. It seems that ultram in very very low dose, is also used to treat fibromyalgia? I dont know if this is true or not, or even if your husband has already tired it. Was just a random thought. But I, just now reached the desired dose after slowly increasing it over the last month and half. It helps quite a bit for my pain. But I noticed a "common dose" of about 25mg - 100mg for the folks in the fibro forum? Anyway,  like I said,  I know nothing of fibro, but I know that in the beginning when I took 100mg the first 10 days, there was little to no side effects.
 
     Well, I wont chat endlessly, just know your in our hearts and we sure hope things continue to improve.
 
*warm huggs*
     dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 12/17/2009 12:08 PM (GMT -7)   
Laurie
The only thing I would ask of you is to be careful, if this medication is causing all this and such mood changes and personality changes, I would encourage you to talk to a Doctor about it! As it might be better if this was handled by a professional, I guess I would just urge you to be cautious about all of this, as you don't know what all the affects this medications is actually having on your husband. Such radical personality changes in such a short period of time is not normal! So again I ask you to Please be carefull!! And keep us posted!



White Beard

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 12/17/2009 2:42 PM (GMT -7)   
Oh Laurie, how awful for you to deal with. Its bad enough dealing with the toxicity of all these meds plus the lowering of immunity but to have to deal with personality changes too and such massive swings. You must be living on egg shells.

I'd definately go back to the doctor and sort it out, it obviously isn't the med for your DH.

Best of luck, especially in this mad stressful lead up to Christmas, I am so hanging out for that rest! It sounds as if you could deal with that too? Best best wishes, golitho

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 12/17/2009 3:44 PM (GMT -7)   
Dani is correct, some docs prescribe tramadol (Ultram) for pain. Some people love it, some don't. I take it for endometriosis/adhesion pain and it helps a bit. It also takes the edge off my fibro pain enough to allow me to do most of what I want to do. I wouldn't say all docs use a low dose for fibro, I know some people with fibro that take the max dose. I take a low dose, usually between 50 & 150 mg a day, because that's what works for me.

It does have some affect on serotonin so if your husband tries it, keep an eye on him. I can't take SSRIs and similar meds because they alter my mood making me irritable and very depressed but tramadol does not do this to me. It actually helps my mood because I'm a bit happier when I am not in a lot of pain.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13481
   Posted 12/17/2009 7:05 PM (GMT -7)   
Laurie so glad you read up on this stuff. Some others on here tried it and has horrible side effects from it, scarey stuff. The problem we patients are faced with is these pharmacut. people hit these drs offices loaded for bear with their new miracle drugs. The dr or who ever is in charge of dealing with them gets a brief wonderful story on how fabulous the drug is and guess what thats the education they are given. The drs do not bother to really read about the drug, they skim across a brochure and thats it.

Hope all goes well and I sure would be calling the dr and letting him know what happened and what you all are doing. Hang in there. The person you described is not the man you told us about on here either, lol. Hope you get him back real soon.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 12/17/2009 7:41 PM (GMT -7)   
Laurie,
Another suggestion might be to call the pharmacist and ask if he/she could look up all the meds to be sure that one doesn't contraindicate the other. I worked at a hospital and our PharmD said she would check our med lists anytime to make sure we were okay and we all used her. Sometimes docs just prescribe and have no clue what goes with what. I'm sorry you are in such a tense environment and hope you can get some relief soon.

LLPLUV
Veteran Member


Date Joined Mar 2009
Total Posts : 1158
   Posted 12/17/2009 9:37 PM (GMT -7)   
Dani he is on Ryzolt which is tramadol (ultram) 300 mg ER release. He has fell in love with it. I also take it with percs for breakthrough pain.

You know I didnt' even think about christmas throught out this ordeal. Christmas will go on as if nothing happened or is happening. I require the holidays. I will start to cook on saturday regardless if the hubby is freakingout of not. Which I will love him to peices even if hes being a pain.

I'm telling you I love this site. When you feel pain or just stressed your always out there. Thank you so much for all your support.

Laurie
Kidney Diseases and Disorders
              Moderator
 
39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD

Also CHF (Congestive Heart Failure) and Sleep Apnea

Hopefully NO MORE........


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 12/18/2009 12:45 AM (GMT -7)   
I love it too, always someone with a kind word to lift your mood.

Try to get some sort of rest won't you. Please be kind to yourself, I know Christmas itself can be hectic but the holidays afterwards are such a goodtime to destress. I love the fact that the city seems to empty out, no traffic or not much and you feel you can breathe again. Even shopping seems easier, as long as you don't do the sales.

So remember to be kind to yourself, find some activity to bring peace to all. (singing) Best best wishes, golitho

merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 12/18/2009 7:03 AM (GMT -7)   
I had to stop savella affter a bout 4 weeks on it. It darn near killed me!!
Chronic Lyme Disease
Fibromyalgia
Chronic fatigue syndrome
Polycystic Ovarian Syndrome
Sleep Apnea
Hypothyroidism
Adrenal Fatigue
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 12/18/2009 9:51 AM (GMT -7)   
Laurie,
Sorry it's taken me so long to respond. Besides my phone line being down now it seems my computer keeps crashing after I read a post or two.

I'm so glad you checked on this med. And I'd be wondering about that doctor that told you to just deal with it (or something like that). Those were huge side effects you were dealing with, and thankfully you are as caring as you are even with your husband behaving that way. He probably didn't realize it himself.

I'd think about other doctors, but that's just MHO!

Hugs to you,
PaLady

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 12/19/2009 7:08 AM (GMT -7)   
Hi...my doc gave me Lexapro for Fibromyagia.  Within a week my vision was blurred.  I then became an emotionless drone.  It didn't help with the fibro at all and I decided to wean off...took four months of cutting the dose down then stopped at 2.5mgs.  My rheumy told me I shouldn't have any withdrawal effects from a 10 mg dose.  Wrong.  Besides the terrible brain zaps I have had for three months, the crying jags and irritabilty have made my husband nearly insane.  I'm surprised he hasn't moved into a hotel.  I understand this can go on for months.  Doctors have NO CLUE.  Mine gave me this SSRI knowing I was on NSAID's for pain...intestinal bleeding which I found out myself my after looking on the Lexapro site...NO NSAID's with Lexapro.  Also, my vision is probably ruined forever as the drug can do something to the muscle of the eye that regulates focus...found that out after continually going to the eye doctor for new glasses.
 
I just wish doctors had more insight to what they are  prescribing and do research on drug interactions etc instead of listening to what the drug reps tell them.  I know these drugs are lifesavers for some and have made a huge difference in their quality of life.   But Savella, Lyrica...SNRI's and SSRI's are potent drugs and before any doctor prescribes them, he/she should be more knowledable on what happens if you miss a dose...reduce a dose or want to wean off.  Sorry for the rant...I haven't been able to turn my head or move my eyes without getting electrocuted for three months.
 
Donna
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil

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