tenosynovitus anyone?

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Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 12/17/2009 3:42 PM (GMT -6)   
I've been so busy this last week with school productions and house jobs (we won't be in for Christmas, our new house is taking forever to finish, just ran out of time)
My body of course decided to continue this flare despite all the meds my rheumy is throwing at me. I'm trying so hard to not let it get to me. I had my first infusion of infixamab last Friday which went well but didn't do much for my pain yet. Next one is next Tuesday, so cross your fingers I get some sort of response.
Saw my rheumy again yesterday and she tells me my wrists now have tenosynovitis. Seemingly it is common in people with RA to swell along the tendon sheaths. Has anyone any experience of it? If the inflixamab doesn't work, she can get these injected under ultrasound but it sounds as if fusion is the long term answer. It sounds so drastic and not something as an artist I want to contemplate...  
She removed the fluid from my knees and injected them both with cortisone, I'm still a bit stiff but wonderfully pain free today in my knees. My feet are getting quite swollen too but the prednisone I'm taking orally seems to have taken the edge off the pain there. So slowly chipping away at the pain just my wrists and elbows that swallow me up with the bone gnawing pain now. I'm keeping positive that the second infusion does its thing.
I hope everyone is ok. Skeye did you make a decision on your implant? I keep wondering about you.
I'm managing to sleep about 3 -4 hours at night on this stupid prednisone, it really gets my brain whirling. Anybody got any helpful suggestions?
Sorry I haven't been posting much lately, kids are on holiday now so less time to myself. Best wishes to all , I miss you guys, golithoturn

Veteran Member

Date Joined Aug 2006
Total Posts : 9607
   Posted 12/17/2009 8:47 PM (GMT -6)   
Sorry, I've not heard about this procedure...but I hope the infusions will help...
lots of positive thoughts, prayers and healing hugz coming your ways...
maybe do a google search on this procedure...keep us posted..
Happy Holidays back at you....
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


Forum Moderator

Date Joined Feb 2003
Total Posts : 13366
   Posted 12/17/2009 9:37 PM (GMT -6)   

Hi Golitho,

I did Remicade infusions for crohns disease for 3 1/2 yrs. Then I went off of it and went back on again for almost a year because I developed a fistula. It induced Lupus, serum sickness and I built up antibodies to it so now I am on Humira. I do not know about RA, but can tell you most people could tell some difference in their joint pain after the 3rd infusion. It seems like when you do the initial dosing schedule that after the third infusion you can tell a difference. Once you do the initial dosing how often will you be having the infusions done? Granted ,I was getting it for a different problem, but back then the rule was an infusion every 8 weeks. Well, I never made it eight weeks because the symptoms would return with a vengeance. So, then they learned it does not stay in the body as along as they thought it did and it actually should be given to the patient tailored on their needs. I did infusions every four weeks. I sure hope you can get some relief soon.

Take care and let us know how you are doing.


crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 12/18/2009 2:24 AM (GMT -6)   
Thanks Char and Susie, it still seems the same Susie. once I get the 3 starting infusions then its every 8 weeks.
 Lupus is a worry, has it stayed with you, even off the remicade? I worry about adding to my already pathetic list of ailments. I am already positive for ANA but have no other lupus symptoms.
Humira has been good but is simply not working for me now, I am swelling and filling up with fluid in too many joints. Its the worst flare I've had and extremily worrying for me. I can't believe the surgical menopause could have created such a monster for me. Hormones or the trauma of the surgery may be the culprit. Is your PSA under control on the humira?
I'm getting this bone aching pain deep in my joints, I know it can't be as bad as Dani but it dominates me right now. Hard to type with the wrists too.
But I'm hoping the second infusion on Tuesday gives me a christmas bonus and I make it through the silly season with a smile on my face! Just in case I topped up my pain meds today at my local doctor, so I'm all prepared for the big day now.yeah
Best wishes to you both, golitho

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 12/18/2009 11:59 AM (GMT -6)   
I don't know much about it, but can imagine as an artist you don't want to lose your flexibility. I hope you have some other options.

I have swelling in my right wrist, arthritis, etc., but nothing compared to what you're dealing with. And I don't know anything about the infusions, but I sure hope they help!

And I hope I can get this off without crashing again! If I'm not as frequent here it's because of computer issues. I hope my modem isn't going as I can't stand not being able to touch base with everyone here!


Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 12/18/2009 4:30 PM (GMT -6)   
Thanks PALady, I know what you mean when our computer crashes I feel marooned. It is such a wonderful link to the world. Plus I love being able to come and read even if I don't feel up to posting. I love to keep an eye on everyone and their individual problems. Keeps me from becoming too internalised too. I hope that computer settles down soon, we went througha patch a week ago where we couldn't seem to log on or stay on HW for long, but this week it seems fine. Good to have you back with us even if it is frustrating fo you.

Do you have a technical whizz friend who may be able to help? Sometimes when we've been cut off we have to reinstall the hardware back onto the computer to get it running smoothly again. Do you think it could be something as simple as this? I am absolutely hopeless with technology I have to admit, maybe ask WhiteBeard?

Worth a thought anyway, golitho

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 12/18/2009 9:00 PM (GMT -6)   
  Dear Golitho,
     Hello! *warm huggs* I hope you are off your feet and realxing by now. You have alot on your plate! Ia m so sorry to hear of the extensive treatments you have to endure through. And on top of all the hussle and bussle of the holidays, I am sure you have your hands full. I just wanted to stop by and say that you are in our hearts, and hope these treaments , eventally, provide some much need relief for you. *warm huggs!!*



Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood



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