Moderator for Chronic Pain and Epilepsy
Rare neurodegenerative /movement disorder called “Multiple System Atrophy”. Mobility issues,, neuropathic pain, spasticity, myoclonus, central apnea, collagenous colitis, joint and body pain, swallowing and respitory involvement, Implants: intrathecal pump & neurostimulator. Extra features: O2 & wheelchair.
Post Edited (Screaming Eagle) : 12/31/2009 5:41:26 PM (GMT-7)
Hey Cat..... I haven't worked in over 8 years....I really have nothing to do. at least nothing I want ot do. I can't clean the house much, I can't do any walking without hurting, so I have nothing left... I read alot of books, I watch a lot of tv...and I color with colored pencils.... I get those books of Mandalas to color,, I have about 60 that I've been through and need a new one as we speak....
We, as CPer's need to find something to occupy our time. Something productive... I like to make jewelery with beads....I have made many but have to be in the Mood to do it... Sometimes I find it hard to just sit still.... without being in pain. I also have a hard time sleeping. My bed is fairly new, I bought it with my casino winnings a few years ago...it cost me about $900 but the springs hurt my back and hips....
We all have our demons....we just have to block them out....
We are here for you....
I have been a spectator for so long..Now it's time to participate.......
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/ 30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen
Yes many of us has asked this very same question. I became disabled in 2004 and it was because of the crohns disease, not CP. I have has the CP for over 20 yrs and did just about every kind of treatment coming down the pike short of sugery just to keep working. Shortly after becoming disabled my health went down the tubes and it was like a domino effect.
I am slowly beginning to get some of my life back thanks to a very good PM dr. I do mean slowly too, I still just take it a day at a time. What I have been playing around with is, if I get one thing settled down then one of the others crops up so I feel very much like that rat lost in the maze trying to get out. It gets real difficult at times dealing with it too.
Depression has also played a huge role in my life. Once I got on meds and actualy got some help, I was able to put things into a better perspective.
I gave up a long time ago on anyone understanding CP whether its friends or family. Since its an invisible problem most just don't get it. I don't have the energy any more to try and enlighten a few of them. It takes a CPer to know a CPer as far as I am concerned. Thats the beauty of this place is being able to come here and pretty much say what I want and get it out there. And just to let you know, whining is allowed, lol. Usually someone likes to bring cheese and another brings crackers and we can just have a party.
Take care and keep posting, it does help to get a lot of it off your chest sometimes.