Still around and in more pain than ever

New Topic Post Reply Printable Version
45 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

snowflake
Veteran Member


Date Joined Feb 2007
Total Posts : 595
   Posted 12/31/2009 12:49 PM (GMT -7)   
I went to see a chiropractor about the pain in my back as the drs were of no help what so ever and taking the medication was making me feel so sick all the time .
The chiro was really good he explained what the problem is and did tell me it was going to take a long time to get any relief .I have now had a few visits with him and some days i leave there feeling pretty good ( too bad i just cant take him home  with me ) but the relief is only short lived within a couple of hours the pain has returned .Now just walking is so hard let alone sitting .He then told me a couple of visits ago that the problem was infact getting worse rather than better ( some how i already knew that ) so he suggested i try acutuncture I have never though much about it but was willing to give it a go anything for some relief .The first session was good and lasted for a few days but then the next one was not so good and ever since then i have had so much pain again .I am unable to do any exercise until he sees some improvement and then that will help with the pain .As it is i am limited to lying only on my left side to sleep as soon as i try to roll over it just feels like i`m being stabbed and then the longer i lie there the worse it becomes .
I have to go back to the specialists to have some more cancer removed on the 11th and i`m so not looking forward to it either the last two they removed has caused more problems than i care to comment on .Then to make matters worse on Christmas day i burnt my hand and then a day later acquired a severe steam burn to my breast i have been in the wars of late .Now just waiting for it to end think it`s someone elses turn for the pain for a bit i have had enough .
Snowflake

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 12/31/2009 3:33 PM (GMT -7)   
Snowflake


I am glad to see your post! But I am not happy to see how much pain you are in! It sure doesn't sound like things are getting any better for you! But are they? For some reason you have been on my mind lately and I have even mentioned you to others on this forum and wondered how you were getting along! I am sorry that things are not going that well for you right now. Is there anything else they can do to help control your pain. Right now as I write this post they have a program on TV talking about using Hypnosis as a way to control pain. They are actually showing a patient getting a dental crown removed from his tooth using only hypnosis for pain relief. And one person claims that is all she uses to control her crohns pain! Anyway I have my doubts about it myself but, have you maybe thought about trying that? I know I am grasping at straws, but I sure would like you to find something that would help you! You mentioned that you had to get more cancer removed, is it spreading or couldn't they get it all? I don't mean to pry but I do worry about you and often wonder how you are doing!



I wish you well snowflake! It is good to hear from you!



White Beard

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 12/31/2009 3:56 PM (GMT -7)   
Hello Snowflake! Sorry, to hear that your not feeling too well lately! Can you tell me what type of cancer you had or have? Melanoma? I also sent you a e-card, and you should be receiving it very soon. Enjoy, as these are truly stunning to watch!

Michael

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 12/31/2009 9:13 PM (GMT -7)   
SnowFlake ,
was so glad to hear from you, hun...sorry you had such bad news, I'll say some more Prayers for you and
send lots of extra soft gentle hugz...
(((((((((((((((((((((((((((((SnowFlake))))))))))))))))))))))))))))))))))))))))))))))))))))))
posts when you can...
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 1/1/2010 2:15 AM (GMT -7)   
Hi Snowflake...

I just want to tell you that I'm sorry for all the pain issues you are going through right now. You are right!! - it's too much for one person! I really hope and pray that you will find something that will help relieve some of the pain.

Keep us posted on things...
Take care...Tina
Pain Issues: Cervical/Thoracic back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; I also have Dysautonomia/POTS; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; etc etc

Meds: MS Contin; Dilaudid; Actiq; Soma ; Neurontin; Atenolol; Midodrine; Phenergan/Zofran/Reglan; Effexor; Synthroid; Prednisone; and on the list goes...

Future Plans: Intrathecal Pain Pump; already completed trial; awaiting my decision for implantation


solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 1/2/2010 8:59 AM (GMT -7)   
Hello Snowflake. I don't post often here but have read your posts and feel almost compelled to write to you today. I am so sorry for everything you have had to go through. You have struggled and suffered so much, way more than any one person should have to in a whole lifetime. But you have not given into your situation and you have not given up the fight. Your strength and perseverance is something all of us here should admire and respect greatly and strive to reach for ourselves. I truly hope that this new year brings you healing and peace. Hang in there and remember we are always here to lend a sympathetic ear. Take care, Lisa
If I can laugh at it, I can live with it.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 1/2/2010 10:25 AM (GMT -7)   
Hi Snowflake,


I am so glad to see you posting but hate to hear about all of the things going on with you. geesh, those burns are the pits. Steam burns can be the very worst and terribly painful.



Back in the 80's I was in a car wreck and was rear-ended by a car doing 45mph. I was at a complete stop and could not get out of this guy's way. I saw him coming in my rear-view mirror and did the reflex thing and braced for the impact. Since learned that was the not the thing to do. I had a horrible headache and extremely stiff neck by 5:00 that day when I left work. I was seen immediately by an ortho and put on meds & PT. I did this for 3 months and it did not help, it was all short term relief.



My sister had been in two bad wrecks 6 months apart and was trying to out off neck surgery by doing accupuncture as pain control. She got me to go to her dr and try this. It worked for me very well. But, we were having the traditional Chinese method with the needles which is different from what chiro's use. I have had the chiro's form of accupuncture and it was a waste of time. To me it was more of a pressure point type of treatment, how does the chiro do yours? When I first started the dr told me my pain would increase and it did, but by the third session the pain started moving around and decreasing. It sure helped me more than what the ortho did for 3 months. I do believe hypnosis can be helpful for some people if they can actually go under. I have seen some of the things White Beard spoke of.



I have been told that accupuncture will not work on CP but can for acute pain. I just wish the dr could come up with a better plan on pain control that is lasting not temporary for you. Have you had an MRI done on your back? if so, what did it show?



Please don't be a stranger, as many of us here like to know how you are doing.

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/2/2010 8:42 PM (GMT -7)   
(((((((((Snowflake)))))))))). Acupuncture works wonders for some people. It made a big difference in the inflammation in one of my shoulders after multiple surgeries. Stick with it a little longer if you can, sometimes it takes several sessions/a couple weeks before you notice a difference.

Just a thought -- Have you ever seen an osteopath for cranial-sacral work? They are kind of like chiropractors/massage therapists/energy healers with a MD (except they are DO's). They believe that by making minute adjustments & restoring the natural position of the body, disorders like chronic pain can be improved. I didn't know much about osteopathy when I began seeing an osteopath & I was really impressed by him. I saw him for a couple months & I did notice a small difference in my pain. I think it would have increased with time, but I had to stop seeing him due to money issues and his location (a 6 hr round trip from my college!). Maybe an osteopath would be able to help you with some of your pain.

Hope you're feeling better today!

hugs,
Skeye

Post Edited (skeye) : 1/2/2010 8:47:45 PM (GMT-7)


snowflake
Veteran Member


Date Joined Feb 2007
Total Posts : 595
   Posted 1/10/2010 4:42 PM (GMT -7)   
I just wanted to thank you all for your thoughts and comments i have been unable to come in for a while but am here for a short time .
I will continue to have the acupuncture but unfortunately due to where i live he is unable to come out here until the 20th of January .The type of acupuncture the chiro does is with the needles .I was amazed to hear that the ody draws the needles in furthur themselves during the treatment ,this has happened both time i recieved acupuncture .The chiro told me this happens because the body actually needs the treatment .I was actually surprised to see the needles i imagined them to be a lot thinner than they actually are but if it works i don`t really care how thick they are The past few weeks have been totally unbearable even my hubby is concerned that there is no relief even from the meds .I eventually had to return to my dr as one of my legs became so painful and it was so swollen with the shin becoming very red i thought there must be an infection .The Dr had no idea and sent me for a barage of tests including a CT scan on my abdomin and pelvis .This showed up another problem one i sort of knew about but put it out of my mind as i thought it was something that could wait .On an ultrasound last year it picked up an abnormal structure on my right ovary the dr at the time said it was ok and just to come back if the pain continued .I was shocked to see how much it has grown it actuall trippled in size since november .He said even the CT scan has not revealed just what it is but the dr said it has to be removed asap .Just something else to add to the long list of problems .Here i thought this year was going to be a better one but so fsr it isn`t shaping up that way .
I still have the swollen painful leg and the dr has no idea nor can explain why .The Dr still wants me to have this injection in my spine he has been at me the last couple of visits when he sees how this is all effecting me .I just so hessacent with having an injection of steriods into my spine just so concerned something will not go right .
I will definately look at seeing an osteopath will have to see if there is one in the area just means a six hour trip to see them if they are in the next place .I will try anything to get some relief .
Snowflake

Mevans27
Regular Member


Date Joined Dec 2009
Total Posts : 33
   Posted 1/10/2010 5:39 PM (GMT -7)   
Snowflake, that doesnt sound good at all. Back pain is so horrible and can take a lot of things out of our lives if left. Curious, what meds were you taking that was making you sick? I have always wondered about acupuncture myself as I have heard a variety of mixed feelings about it. My dad had it done to his back and he said he felt a lot better from it, but it is nice to also hear your experience. Well goodluck and I hope you get better!
 
Mike
Neurofibromatosis Type 1, PVNS left hip, Arthiritis Left Hip/Knee
 


snowflake
Veteran Member


Date Joined Feb 2007
Total Posts : 595
   Posted 1/22/2010 4:40 AM (GMT -7)   
Mike sorry it has taken me so long to get back to you ... i have been on oxycotin of different strengths and Ms contin ( morphine ) they just make me so sick .But enought was enough today i underwent a procedure where they injected seven injections into my spine in a bid to relieve the apin .At the moment i `m in so much more pain i`m sweating so much and my daughter tells me i`m as white as a ghost all because of the pain .I am in bed for a couple of days until it hopefully settles .
On the 5th i`m having surgery to remove the abdominal mass i`m so over all of this i can`t take much more .
I had acupuncture on wednesday and it felt really good but only short term would have it every day if i could .
I need to sleep for a week no more than a couple of hours a night and it`s certainly taking a toll,The gyno was concerned as to my mental state told him i`m already nuts and it will only get worse until all this stops .
Snowflake

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/22/2010 2:02 PM (GMT -7)   
Snowflake,
I've been having computer problems so can't post much, but hope to get this one in. One thing I'd suggest is ice the areas where you got the injections. That might help a bit. At least for about the first day.

I wish you could get acupuncture everyday, too. Heaven knows you deserve it with all that's on your plate. I wish I could do more, but just know I'm sending hugs and peaceful thoughts.

((((((((Snowflake)))))))))

PaLady

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/22/2010 2:23 PM (GMT -7)   
Snowflake, you're in my thoughts and prayers! Hoping that you find some relief soon!

((((hugs))))
JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


snowflake
Veteran Member


Date Joined Feb 2007
Total Posts : 595
   Posted 1/22/2010 2:23 PM (GMT -7)   
I never thought about icing the area PaLady but ended up having a really hot shower not sure it helped but was so close to passing out my daughter was so shocked when she saw me as i was white as a ghost .I took a few painkillers and relaxants and finally got a couple of hours sleep but who again with the pain .was awake for about five hours before nodding off again .This morning there is little relief still .think i was hoping for too much wanting to wake up this morning pain free or atleast wit it not so severe but might take a couple of days defore it actually settles .Ijust have so much to do this week before i have the surgery and dealing with the levelof pain isn`t what i need .
Snowflake

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 1/22/2010 10:18 PM (GMT -7)   
Snowflake

I am so sorry to hear of all the pain you are in! There surely has to be something they can do to get your pain under control! You were saying that the Oxycontin and morphine made you so sick, did they give you anything for that? Zofran is usually a pretty good medication for nausea and vomiting that used to be only an IV med, we used to give it allot to cancer patients before or sometimes after giving Chemo. But I think now they have that in pill form and I know that there are several other good meds out there for that. I know for some patient that even that didn't work, but I was just wondering if they had tried that with you. I am surprised that they let that mass go like that, especially with your history! I certainly do hope that everything goes well for you!

You know PALady is right about the icing, as a suggestion, take a paper or styrofoam cup and fill it with water and then put it in the freezer, after it is frozen, you can peal the sides down a little and have your husband run it over the sore spots on your back it is very cold at first but after awhile the area kind of gets numb and it relieves the pain it is especially good for muscle spasms in the back after they get numbed up you can stretch the muscles out. It is also good if you alternate the hot and cold. Just don't do the cold to long in any one spot.

Snowflake You have been through so much and I keep Praying for you to get better!

I wish you well on your surgery I will say some extra prayers for you!

White Beard

snowflake
Veteran Member


Date Joined Feb 2007
Total Posts : 595
   Posted 1/22/2010 11:53 PM (GMT -7)   
Thank you Whitebeard i will try the icing and see how it goes at the moment my hubby is 300km away at home . hopefully tomorrow i will be ok enough to drive back home and get some help from him then as it is i`m on my own . have been lying down most of the time as ordered since my procedure .the pain meds have given mininal relief and with maxalon i can tollerate them some of the time .Will see my dr when i gt home tomorrow as i have to travel 700km on wednesday for the oncologist and need to be able to drive ok as i will be on my own.
the mass was detected three months ago but it was only small but now 5cm it can no longer stay there just growing too fast .not sure how things will go with that but have a lot of confidence with the dr who is going to operate he has done other ops on me years ago with great success .It`s just the anesthetic that concerns me and how it will be administered this i will not know until the day of the op when i talk to the anesthetist .As areventative he will remove the ovaries so i do not have to worry about cancer there in the future
Your prayers i really do appreciate ,many thanks .
Snowflake.

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 1/23/2010 9:02 AM (GMT -7)   
snowflake

You sure have a long distance to drive, as a km is equal to about 6 tenths of a mile I believe. WOW that is quite a distance even in miles! Do you live in the out back or in the country away from major cities? That is a long way to be driving in your condition! Do you have somebody with you when you drive? With all that driving you do need all the prayer you can get!

Please becare snowflake, and take care of yourself!

White Beard

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/23/2010 1:22 PM (GMT -7)   
Snowflake,
I can't imagine how you're managing with everything when you're on your own. I live alone and I know how hard it is, but I'm not dealing with anything near what you are.

White Beard has given you some good advice, but I think all of us here wish we could do more.

Just know you are in our thoughts. And do see if you can get someone to help out if you're husband's not available. Maybe someone from a local Church or social service agency, if you don't have any friends or family nearby (sometimes strangers can be better than problematic family!). I don't remember if you have a social support system (mine is pathetically weak, and I have to lean on a precious few family members who are themselves busy) but this may be the time to try to reach out once more to get a little help.

((((((((((((((((Snowflake))))))))))))

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 1/23/2010 2:06 PM (GMT -7)   
Hi Snowflake, wondering how your injections are working? Did they do trigger point injections on you or what? about your abdominal surgery, can they do laproscopic surgery or will it be an open surgery? Be nice if they could do lap versus an open incision. I sure hope you are feeling better-you have way too much on your plate. Hugs.

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 1/24/2010 3:53 AM (GMT -7)   
Snowflake, you can put rice in a tube sock or any old bag, place in the freezer for a cold pak. These are nice cause you can lay on it without a hard hunk pushing on your back, just lay it on the bed and then position yourself over it. The rice bag can also be placed in the microwave for moist heat. My doctors always recommend cold after any injection for the first couple days.

Hope you are feeling better today!
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/25/2010 2:18 AM (GMT -7)   
Jag,
I knew that would work for heat, but didn't realize it would for cold, too. I'll have to make myself one!

Snowflake, I hope some of the soreness has decreased a bit.

Many hugs,

PaLady

snowflake
Veteran Member


Date Joined Feb 2007
Total Posts : 595
   Posted 1/25/2010 4:47 PM (GMT -7)   
Morning all well it`s a few days since i recieved seven injections ( the dr told me it`s just like acupuncture but believe me it`s not i had acupuncture the day before and it never hurt near as much )i Spent a couple of days lying down as they told me to rest as much as possible .I didn`t come home until the third day so didn`t have to run around and pick up after my family .
Today it`s still very sore on one side but the right side the pain hahs been relieved somewhat .they told me it will take time and improve as time goes on .
My surgery will start out as keyhole but the gynocologist told me he wasn`t hopeful that would not go further so i just have to be prepred for what ever happens ..
Thanks for the tip of the rice sock/bag will definately be trying it will make up a few and take in the cold box in the car when i go tomorrow as it`s a seven to eight hour drive tomorrow and i know i will be needing it .
I`m going up on my own and will come back half way on Saturday to pick up my son
and take him back up to where i`m staying as seeing he has just started an electricial apprentiship he doesn`t want to take too much time off work he has his cancer check on monday and we will come back either monday or on tuesday i will just have to wait and see how i`m feeling .
I`m hoping that once the surgery is over the next appointment is my oncologist in March so after that i just want to stay home for a bit and not travel anywhere .
Snowflake

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 1/26/2010 1:12 AM (GMT -7)   
Hi Snowflake,


When is your surgery scheduled for the mass to be removed? I really could not tell from your last post. If you are doing it as you were speaking of in this last post I am not sure you are going to be able to do all of this driving you are speaking of, especially if you end up with an open surgery. I tried driving too soon after my hysterectomy which was an open surgery and let me tell you drivng too soon will rack you up. I did not listen to my dr and I paid for it. It may sound like its something easy to do, but not with an open surgery. There is something about pushing on the gas pedal and brake and having the stomach muscles move that we don't realize do move when driving, that tears you up, I had no clue.



I wanted to ask you also if you have a moist heating pad? If not you may consider getting one. Moist heat works better than dry heat, it seems to feel like it goes much deeper. I have gone thru several of them over the years lol.



Please let us know the date your surgery is scheduled. After you have it, when the nurses come in to get you up to walk, do it. Wlaking is the best way to get your bowels to wake up from the surgery and get them working again. For some reason surgery always tends to bring on gas problems and walking is a good way to get rid of it. It is also the best thing you can do to help get your strength and stamina back. When getting up or down, or in & out of bed, take a bed pillow and press it to your stomach, believe it or not that pressure helps when trying to do these things. The pillow will not hurt your stomach either. Take care of yourself.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/26/2010 1:45 AM (GMT -7)   
Snowflake,
Susie's absolutely right about the driving. I wasn't allowed to drive for 6 weeks after my fusion surgery and a minimally invasive approach was used. There's the internal sutures as well as any external (sutures, staples, or in my case, glue) which can be damaged if you move in the wrong ways too soon. So I hope you can find someone to drive you home. I know it's not always easy, and you've got so much on your plate.

You may not even get to read these before you leave, but please follow all your doctor's instructions and take care of yourself!

Hugs,

PaLady

snowflake
Veteran Member


Date Joined Feb 2007
Total Posts : 595
   Posted 1/27/2010 1:28 AM (GMT -7)   
Hi Straydog ,My surgery is booked for the 5th of February over here and all th driving i`m doing before the surgery i actually drove all day today left home at 8am and arrived here at 6:30pm such a long day .My back isn`t the best but have a couple of days before i have to drive haflway home and pick up my son to bring him up here for his cancer check the will drive home the next morning .
I remember back when i had my hysterectomy i had so many problems it was done all internally so no outwards sutures but so many things went wrond and ended up in hospital on morphine for two weeks never want to do that again believe me .I have already been told no driving and will be staying a day or so after i come out of hospital just to get some strength ,I have asked hubby to come with me so he is going to drive .I just hope that all goes well and they can remove it all .
I think i was more concerned at having the injections in my spine than what i am about the surgery but then it`s a while away yet and things may change as it gets closer .
With only hubby and one son at home life isn`t as bad as it was they both know who to use the washing machine and both can cook if they are hungry .
Snowflake
New Topic Post Reply Printable Version
45 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Monday, December 05, 2016 5:48 AM (GMT -7)
There are a total of 2,732,901 posts in 301,070 threads.
View Active Threads


Who's Online
This forum has 151224 registered members. Please welcome our newest member, teacher2many.
208 Guest(s), 8 Registered Member(s) are currently online.  Details
PeterK, dacarte3, Susannah R., mtm3461, Redwing57, Sherrine, JaxCalvin, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer