Well, I wish I could really be of more help to you but since I have a pump I will leave it to the others to say how they are doing with their combos. I do have oral Dilaudid 8mg for BT pain even with a pump, my dr believes we should always have something for BT pain. I can break them in half if I want to. When I take the 4mg I do ok, I don't usually get sleepy or foggy. But, now the 8mg does give me this affect. The pain has to be pretty severe before I take the full 8mg. I also have Dilaudid in my pump. I remember being on Norco and it worked very well for me but was short lived because of becoming in effective.
The last time I was in the hospital they gave me 4mg IV and boy it just knocked me for a loop. I have a real wacky system when it comes to medications, never know how I will react. I could not take oral Morphine but given IV, I am in lala land. I guess according to my family I get real goofy on it. Usually when I get put in the hospital with a crohns flare they give me IV morphine for pain and I must put on quite a show for the family, lol.
I am sure some of the others will get onboard and share their experiences . Good luck.
Welcome to the forum and the family....CAT? Anywho, here is my question...are you taking the Opana ER? or the Opana? I was going to take it, the Opana ER but my insurance wouldn't pay for that and my Methadone...Another question....why are you having to go to the ER? If you see a PM Doc you should have pain meds....just asking....
I have been a spectator for so long..Now it's time to participate.......
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/ 30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen
If I remember correctly from one of your first postings, your pain is the result of post shingles nerve damage. This is usually called postherpetic neuralgia. Usually the pain from shingles lessens as time goes on and usually disappears after a year or two. Some do have it much longer. The one thing I have learned is that it is extremely important to identify that the pain treatment is for neuralgia and not physical damage like failed back syndrome. Many of these types of nerve pain do not respond to all types of pain medications. Many narcotics are not effective for neuralgia, so be careful about asking others what works for them. I am also suffering for a neurodegenerative problem, and have learned there are only a few medications that are work for us. For me, Actiq (high dose Fentanyl) worked, but it was far too strong and too expensive to be a viable option. Ironically, Fentanyl patches, even up to 150 mcgs did not relieve my pain. Low dose morphine was the key for me in a pump and Dilaudid for B/T. Fentanyl and Oxy, I have learned are not top choices for neuralgias. Some people do well with Lyrica, Cymbalta, and some of the anti-seizure meds. It took me a long time of trial and error to learn and believe my PM when he said 3/4th of the narcotics out there don’t relieve neuralgia. What has your neurologist said about how long he feels you are going to be dealing with this? Like other shingles pain, it this expected to go away after time or is this permanent?
Is this the PM that was forcing you into having an SCS implanted – and then threatened you with detox and rehab. Have you had another conversation with him since the threat of detox? I am not sure going into his office discussing potential drug combinations is a good idea, since he already seems to have his own agenda. Or – have you found a new PM and are starting fresh?
Moderator for Chronic Pain and Epilepsy
Rare neurodegenerative /movement disorder called “Multiple System Atrophy”. Mobility issues,, neuropathic pain, spasticity, myoclonus, central apnea, collagenous colitis, joint and body pain, swallowing and respitory involvement, Implants: intrathecal pump & neurostimulator. Extra features: O2 & wheelchair.