~Adult Scoli Info

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Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 1/3/2010 11:01 AM (GMT -7)   
 
   Bleh! Avoiding stuff is way to easy for me. I gotta stop doing that.
 
     On to the question. Does anyone know where I can find information reguarding "adult" scoliosis correction surgeries? Preperation, procedure, and recovery, after care. I have found alot reguarding adolescent idiopathic cases, but nothing for adults so far. I know I might need to head back to scoliosis.org forum but thought I would ask you guys here. Surgery is always such a controversal subject over there.
 
 Thanks
*huggs*
  dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


straydog
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Date Joined Feb 2003
Total Posts : 13473
   Posted 1/3/2010 12:12 PM (GMT -7)   
Dani have you trtied "googling" this to see what you can find? Its just a thought. Usually when I am looking for things I start there. Unfortunately, I am afraid when someone mentions surgery of the spine there are more negative thoughts than positive and thats not always the case. Good luck.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


skeye
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Date Joined Mar 2008
Total Posts : 2976
   Posted 1/3/2010 3:11 PM (GMT -7)   
Hi Dani,

I did a quick google search & found some websites with information which you might find helpful.

Spine Universe: Adult Scoliosis: Treatment and Recovery
http://www.spineuniverse.com/displayarticle.php/article2691.html

Scoliosis & Spine Associates: Adult Scoliosis Treatment Overview this site even had case studies
http://www.scoliosisassociates.com/subject.php?pn=practice1023

WebMD: Adult Scoliosis Surgery Video
http://www.webmd.com/video/adult-scoliosis-surgery

You might also try searching pubmed for any recent journal articles on the subject. You do have to pay for most of these articles if you want to read more that the abstract. But if you find any that you think may be of help, e-mail me the info & I can get the articles for you for free through my school's interlibrary loan system.

many hugs,
Skeye

skeye
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Date Joined Mar 2008
Total Posts : 2976
   Posted 1/3/2010 3:18 PM (GMT -7)   
I just found another good one. This site goes really into depth about the different surgeries & outcomes.

Sonoran Spine Center: Adult Scoliosis
http://www.sonoranspine.com/Scoliosis_Adult.asp

Skeye

Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 1/4/2010 6:49 PM (GMT -7)   
 
  Dear Susie,
 
     Thank you for your reply. I did google, but got a concophany of adolescent info.
 
~~>"Unfortunately, I am afraid when someone mentions surgery of the spine there are more negative thoughts than positive and thats not always the case. "
 
    Well... in my case, once im stable, if I can become stable... many corrections will need to be done, not for estetics or pain. But for nescessity of my organs. Decision as large as this may be something considered once stable, but NOT something I can just schedual and begin. Takes a year for preperation alone. Funding is near impossible. I would like to be prepared for the "positive" out come (IE stable bones). I cannot even comprehend what the negative out come would be like but I should prepare myself with information for that cenario aswell.
 
 
 
   Dear Skeye,
 
     Thank you oh so very much! I am reading them all now. *huggs* thank you
 
*huggs*
dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 1/4/2010 9:55 PM (GMT -7)   
Dani, I hope some of Skeye's sites of oh help to you. I did a google on adult scoliosis corrective surgery and found quite a bit of info inccluding tons of pictures and slides about the surgery. From what I have read most of the surgeries are fusions with instrumentation. I know they use to do what was called "harrington rods" to correct it. I know of two teens that had that done and it was a rough surgery but they were so glad they did it because it relieved so much of their pain and they could stand straight.

So, has any of your bone loss slowed down any at all? I was out for a bit and missed a lot of your posts, but sort of remember they found a prblem with your thyroid. Is this correct or am I thinking of someone else. So, treatment wise what are they doing for you?

I sure hope they can get this all straightened out soon. Hugs,
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/5/2010 1:59 AM (GMT -7)   
Dani,
Sorry I haven't been able to post to this thread until now. Computer issues. I'm lucky if I can do one or two posts - and that's a good day! LOL

You might also try searching Medscape.com. That's similar to pubmed, as it's affiliated with Medline, another search engine doctors use. But the Medscape portion is free, and the articles are often adapted from research. Plus you can bring up a list of journal articles from Medline, although as Skeye says sometimes you can't get the complete article for free or without being a subscriber.

I did a lot of research and was able to print out many articles on lumbar fusion surgery before I had my back surgery. I've done the same with procedures like RF and such, so if there's any research out there for adult scoliosis, you should find some links.

I get a free list of the lastest journal articles from Medscape on my computer every week. Just need to sign up.

Good luck!
Many hugs,

PaLady

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 1/5/2010 5:08 AM (GMT -7)   
Dani, I don't have any info for you but do hope you can get some help and relief soon. When I am feeling sorry for myself and my pain all I have to do is think about how hard you are having it and how it affects your whole life and I realize I don't have it that bad. Wishing only good things for you.
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 1/5/2010 8:41 PM (GMT -7)   
 
 
   Dear Susie,
 
     thank you for your replay. I hope you are able to relax this evening.
 
So, has any of your bone loss slowed down any at all?
 
      I will not know til beginning of feburary. I have bone scanns schedualed, alot rests on the results. I am hoping for the best but I have lost a few inches from my hight.
 
but sort of remember they found a prblem with your thyroid. Is this correct or am I thinking of someone else.
 
     Yes. My absorption rate is 0.0025. I recieve 200,000 Units per month Vit D. No calcium is needed because my diet provides more than enough. They think there may be another "factor" to the bone loss. Apparently my white blood cell count has been high for quite some time. The long term fever seems to be a source of concern.
 
     My "bones" seem to be taking a front seat. Thou I am sure by now the rest of my doctors have recieved word that my eyes are degenerating and stripping cells. Lord only knows what they will do next when the eye surgeon contacts them.  Ive lost alot in just one year. My hearing to my bones and everything inbetween. Too much for me. Too much for anyone I think.
 
     Bleh! too much to think about right now. In any case, I hope you  have a relaxing evening. *hugg*
 
 
Dear PALady,
 
     THANK YOU. Exactly what I was looking for. Perfect. Thank you very very much. I hope you have a good evening and again I cannot thank you enough. *Huggs*
 
Dear Jag,
 
     thank you *huggs* but please dont worry. The pain , I guess tha pain is bones detioriating, really... each level only makes me sick and dizzy and vomit for a few weeks before I get used to each level. All the rest.. the hearing, eyes, teeth, tetany, parathesis, bone loss, insomnia, etc etc ... its doesnt seem very real. Its like I know its hapening to me, but it is hard to acknowladge that its me going through it. Just gotta take deep breaths and keep pushing through it one day at a time. *shruggs* I was telling my husband the other day "You know, its a good thing my memory is so bad, otherwise this **** might really bumm me out." small giggle over that. Anyway, no worries! *huggs*
 
     I just wish there were some way I could help you with your SS case! It frightens me when I hear about all the trouble everyone goes through to get approved. Everyone keeps politly "mentioning" social security to me the last 6+mos, and I dread the subject. I just steer the conversation towards something different as quick as possible. Well, I should end this here. But, I do hope you have a great evening.
 
*huggs*
  dani 
 

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/5/2010 8:49 PM (GMT -7)   
Dani,
I agree - you're going through too much for anyone to tolerate! Way too many losses!

((((((((((((Dani)))))))))))))

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 1/5/2010 11:15 PM (GMT -7)   
Dani just thinking about you. Was thinking about the surgery you are looking into and all. But, I guess until the bone loss stops maybe there is no way to have surgery, is this right?? I guess it couldn't be done till that has stopped. Answering my own questions, lol. Its late and I am tired. Oh well, I can still send up prayers and good thoughts.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

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