Chronic daily headache

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aristotle
New Member


Date Joined Jan 2010
Total Posts : 1
   Posted 1/7/2010 5:48 AM (GMT -7)   
Hi Everyone!,
                     Does anyone else suffer from chronic daily headache or even just severe tension headache? If so what drugs are you taking for it? I am on Gabapentin 7,200mg. Can anyone suggest any drugs or pain treatment I could take?
 
 
       
                                                                                                                                                                        
                   

catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 1/7/2010 8:13 AM (GMT -7)   
hi aristotle-
 i'm pretty new here as well and learning as well so let me say that what works for one may not work for another so its really a discussion for you and your doctor. ( did i get that right guys? ;o)..).. anyway, I've been dealing with chronic head pain for over 9 years now and am currently taking opana, norco, topomax, lyrica and kertolac as a supplemental prn for the past week for pain. I go back to my pain doc this coming monday and am hoping he will be willing to increase the opana from 10 mgs up to 20 mgs and increase the norco back up to 6 x's a day for breakthrough or perhaps switch to something else as it only seems to last for about an hour and 1/2 or so and the breakthroughs are very intense. I also have a supra-orbital nerve stimulator implanted in the right side of my forehead.  I'm always interested when I hear that someone else is dealing with chronic headaches so anything you'd be willing to share would be willing.
welcome
cat
sick and tired of being sick and tired


Jadensmommy
Regular Member


Date Joined Nov 2009
Total Posts : 104
   Posted 1/7/2010 10:11 AM (GMT -7)   
I suffer from migraine headaches 3 or 4 times a week and so far the only thing that has helped me is DHE injections. I do them at home. I think it's spelled Dihydroergotamine? If you look up DHE, you'll find more info on it. It's only used for migraines though. If you are having tension headaches, it won't help. It's something to look into though! Hope you get those headaches under control!

Tammy
Fibromyalgia Dx November 20, 2009

Pain issues: Pain in neck and upper/lower back, chest/ribcage pain, Degenerative joint disease in both knees, migraine headaches, very painful menstrual cramping, pelvic pain.

Meds: Neurontin 300mg.

First PM appt on February 5th!


Tammy <3


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 1/7/2010 11:40 AM (GMT -7)   
Hello dear headache sufferers!! My headaches started ten years ago. No trauma. Just temporal headahces that started just like that and have never gone away. I was diagnosed with TMJ and had appliance after appliance and then braces. In that time my headaches were off the wall. I was off work for a year and a half. I am a paediatric nurse. The only med that worked then was Methadone and I had tried everything. Got better in 2005 only having pain here and there. During this time I had also seen tons of dr , tried many meds and tried many forms of treatment. I got back to work. Then in sept 2007 the headaches came back and just got worse and worse. I started seeing all the different doctors again, all the treatments possible, a natural pain relief clinic, all the meds. And this time i knew what it involved going on opiates and coming off of them. I am off work again since Oct 2008. Once again nothing is working. the Orthodontist has tried four different appliances and non help. i think i will be getting braces again soon to correct my bite once again. Dr. don't know what to do. My pain dr. has nothing else he can do to help me. I have tried botox twice, nerve blocks. i am on oxycodone prn and try to keep it to one tab early afternoon and two at night. Other meds are cymbalta and seroquel for sleeping. i take magnesuim, this is good for the muscles to relax, vit D, most people in chronic pain have a low vit. D and mine was certainly low, nutra sea, your fish oils., and vit B12. My pain continues to be 10/10, 24/7. I struggle thru my days but am trying to accept, bit by bit, that this is the way it may be. My faith helps me thru my dark days. I rest a lot with ice on head. It's the only thing that will help me. I live in Ottawa, Ont. and am trying to find out if some of the procedures done in the states are available here, such as the iv infusions of ketamine and lidocaine, the radiofrequency ablation, and the stimulator. CATAHOULA, could you give me more info on your stimulator. I am also wondering if that would help my kind of headache. They are always the same, always bilateral temporal and feel like pressure.
Well that's a start for now. I am sorry for all of you suffering with horrible headaches. It has certainly taken my life away from me and i need to learn to get my life back. Ask me any questions or share more of your info if it may help any of us that is suffering. There is also a migraine/headache forum here at HW so check it out. You may get some info there.
Blessings to all and low pain day vibes to everyone!!!

Suzane

catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 1/7/2010 12:41 PM (GMT -7)   
Suzane-
  Supraorbital nerve stimulator. Mine is implanted in the right side of my forehead just  above the eyebrow line just above the eye socket right dab smack in the middle of my face. I was able to be asleep for this implant because I was told that there was only one site that the stimulator could be implanted ( as opposed to being awake for the oppicipitol nerve stim trial). WhEN YOU HAVE THE TRIal , the lead come out the side of your face and are attached to the battery pack you carry around for a week or so. If you go ahead with the implant the wires are then routed around the top of your ear, around the back, down your neck and the battery is implanted in your chest. You then have a controller, chaaarger etc all enclosed in this Medtronics case. I have the rechargable battery which I am told is good for about 9 years. I recharge it abouot once a week even though they say you can go longer. I just don't want to take a chance of it charging down ( losing charge?). I'm told it can be restarted up to 3 times if you do let it lose charge. I've had mine almost 4 years so I am assuming improvements have been made. I know that on the newer models, one is able to change the rate of stimulation. I can't do that on mine. The problem with there only being one site for implantation is this. For me, the tenderness I experience is right in the corner of my eye ( amoung other areas in my head.) The stimulator does not cover this area. Also, if one turns the stim up too high, it really hurts. The stem was meant to help with pain in the forehead and the trigeminal nerve. Suprisingly, it seems to ease some of the pain in the lower, back portion of my head. Doc can't seem to explain this. Please be forewarned. This is experimental and I have yet to find any other doctor who will see me with this stimulator , even for a second opionion so make sure you are very happy with the doctor who will do the procedure and follow-up. I had to be hospitalized once for pain and a neurologist who was on-call was insisting that it be removed as it was nonsense!!! I don't know how wide spread these are being done but would be willing to tell you where I had mine done. Just be very sure  you would know what you are getting into. I'm not sure I would do it if I had it to do over again.
cat
sick and tired of being sick and tired


privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 1/7/2010 9:25 PM (GMT -7)   
tmj,
The DHE was the med given to my granddaughter for her head too. I remember tell you but couldn't remember the med then I asked my daughter and forgot to post it and then I read that Jsmomma posted and remembered. She was only 16 the first time she received it and then had another hospital stay the second time at 17. I think because of her age they hospitalized her and would give her antinausea drugs to boot. I beleive it was Reglan and something else can't remember but whatever that was it caused her to have an Occular event with her eye rolling back and staying there and they administered Benedryl to release it. They told her she could never take meds in that family because of that. Anyway she ended up with a Pain Management doc that did subcranial stimulation -- massages basically and it helped her more than anything. Every trigger point they touched was painful to her and they said most of her pain was related to stress. She is a gifted kid and put so much pressure on herself that none of us were aware of because she internalizes so well and we just don't see it. But because of the gifted part she never lost out on school, had to pull one summer school session, but will graduate this spring with her class.
Since she found out she hasn't been hospitalized for headaches, has muscle relaxers, knows what to look for when they start and can get them under control before she gets to the point of not functioning. Like I told you she went to Childrens Mercy in Kansas City and will be 18 this month so if she goes again she'll go to the MidAmerica Neuro Institute in KC also. I will gladly help you if you need it kiddo.

Mevans27
Regular Member


Date Joined Dec 2009
Total Posts : 33
   Posted 1/10/2010 7:41 PM (GMT -7)   
Headaches are definitly not fun. My girlfriend suffers from an eye condition that brings her a numerous amount of bad migraines. She takes regular hydrocodone that she was prescribed and she says it helps her alot. The problem is though it doesnt start to help until you feel it coming on, and as we all know it definitly wont prevent any. She has taken oxycodone for them, but she says at times it made the headaches even worse. Goodluck

Mike
Neurofibromatosis Type 1, PVNS left hip, Arthiritis Left Hip/Knee
 


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 1/10/2010 8:16 PM (GMT -7)   
privey said...
tmj,
The DHE was the med given to my granddaughter for her head too. I remember tell you but couldn't remember the med then I asked my daughter and forgot to post it and then I read that Jsmomma posted and remembered. She was only 16 the first time she received it and then had another hospital stay the second time at 17. I think because of her age they hospitalized her and would give her antinausea drugs to boot. I beleive it was Reglan and something else can't remember but whatever that was it caused her to have an Occular event with her eye rolling back and staying there and they administered Benedryl to release it. They told her she could never take meds in that family because of that. Anyway she ended up with a Pain Management doc that did subcranial stimulation -- massages basically and it helped her more than anything. Every trigger point they touched was painful to her and they said most of her pain was related to stress. She is a gifted kid and put so much pressure on herself that none of us were aware of because she internalizes so well and we just don't see it. But because of the gifted part she never lost out on school, had to pull one summer school session, but will graduate this spring with her class.
Since she found out she hasn't been hospitalized for headaches, has muscle relaxers, knows what to look for when they start and can get them under control before she gets to the point of not functioning. Like I told you she went to Childrens Mercy in Kansas City and will be 18 this month so if she goes again she'll go to the MidAmerica Neuro Institute in KC also. I will gladly help you if you need it kiddo.
 
 
THANKS CATHY FOR THE INFO. RIGHT NOW I AM LOOKING INTO THESE KETAMINE INFUSIONS OR LIDOCAINE. THEY ARE USED TO BREAK THE PAIN CYCLE. I READ about IT BEING DONE AT A HOSP. IN CONNECTICUT. THEY SAID THEY ARE THE ONLY ONES DOING IT IN THE STATES. IT COSTS OVER FOUR THOUSAND DOLLARS. I ALSO SENT AN EMAIL TO AN ANESTHETIST AT MY HOSPITAL TO SEE IF I CAN GET INFO FROM HIM about IT BEING DONE IN ONTARIO. THANKS AGAIN MY FRIEND.
 
SUZANE

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