BlueJet2 is in the hopsital

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straydog
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Date Joined Feb 2003
Total Posts : 13451
   Posted 1/10/2010 1:37 PM (GMT -7)   
Hi everyone,
 
Wanted to let everyone know that BlueJet2 got admitted thru ER Friday night in severe pain. Poor thing was left laying on a gurney in ER for 8 hours writhing in pain before she was finally admitted and put in a room. Boy, if that won't kick up back pain I don't know what will.
 
She was admitted by a hospitalist and a neurosurgeon was called in and that was a waste. The neuro asked if there was any new  injury and she said no. he looked at her and said, well since there is not a new injury I don't see any point in me taking over your care and walked out!!!!! Yesterday a new hospitalists saw her and increased her IV pain meds a tad. They still do not have her pain meds where they should be to get the pain under control.
 
She is going to ask who ever comes in today to run a CT Scan. The first one mentioned doing this but hasn't. It has been many years since she has had one and is way past due. She says the pain is a nerve pain and how she is feeling is nothing like what she has ever experienced before, she is really worried something new is going on. She has nerve pain but they have never decided if its her diabetes or from her back.
 
So, keep her in your prayers please.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


White Beard
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Date Joined Feb 2009
Total Posts : 3609
   Posted 1/10/2010 2:12 PM (GMT -7)   
Bluejet2


I hope you can see this, Really sorry for the way you are beeing treated, and for alll the pain you are in! We are all here supporting you and hoping you get better very quickly! I really hope that they get your pain under control soon!



Your in my prayers Bluejet! Good Luck to You!



White Beard

golitho
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Date Joined Sep 2008
Total Posts : 1670
   Posted 1/10/2010 2:21 PM (GMT -7)   
How horrendous to be left so long in ER. Hospitals are nightmares aren't they? You always seem to get these arrogant doctors and nurses intermingled with the caring ones, makes my blood boil. Poor Blue jet, please send her my warmest get well wishes. I hope they run the CT scan and she gets some answers.

I only go to hospitals as last resorts, I'm sure most of us with constant pain are the same, so when we get there we want help, not to have to jump hoops prooving our worth!!!!

Sorry Susie. I feel really annoyed that they've treated her this way. Sincerest get well wishes, golitho

mrsm123
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Date Joined Dec 2007
Total Posts : 1228
   Posted 1/10/2010 3:42 PM (GMT -7)   
Hi Stray,
Thanks for letting us know. I wondered why I hadn't heard from her. It is so sad that to be treated for any pain that anyone has to put up with being left for 8 hours laying on a gurney. It's disgusting that she or anyone is treated that way.
I hope that she gets the pain under control, writes that sorry excuse for a neurosurgeon up for walking away from her like that and gets that CT scan. Something is going on.
The doctors like to blame diabetes for any increased nerve conditions, and if that is not there, then a previous problem like back pain.
If you talk to her, please tell her that I am thinking about her .
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
Avascular necrosis of left wrist- maybe hips too


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 1/10/2010 3:49 PM (GMT -7)   
How horrible to be treated that way! I just don't understand that type of treatment. You would think she was in a third world country or something! I sincerely hope she gets to feeling better.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 1/10/2010 4:37 PM (GMT -7)   
SE I had two emergency surgeries back to back in a 3rd world country. Although., they had no modern equipment, I mean none, not even a call button for your bed, I had better care there than I ever have had in the states. They didn't even speak English but they knew how to take care of a patient. Those drs and nurses took extreme pride in their profession and it showed. Never 1 time ever had to ask for 1 thing, good thing, I didn't speak their lanuage except to ask for a beer or tequila, lol. Our drs & nurses have lost all pride for their professions.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/10/2010 6:43 PM (GMT -7)   
((((((((((((Lorie))))))))))))). I hope you get the treatment you need to get you back on your feet! We miss you. I'm keeping you in my thoughts & prayers! Feel better!!

hugs,
Skeye

ps - Thanks Susie for posting this!

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 1/10/2010 7:55 PM (GMT -7)   
Thanks for letting us know she is in the hospital.
Bluejet i pray that your care will improve and that you get to feeling better real soon. Being in the hospital is no fun.
My thoughts are with you dear. Please get home quickly.
 
Hugs
Suzane

PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 1/10/2010 9:38 PM (GMT -7)   
((((((((((Lorie))))))))))))

Sending you healing hugs even if you can't read this. What a lousy experience. I sure hope next report is that a new doc is on the case and is doing a better evaluation.

Susie - thanks for posting. And give her my best!

PaLady

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/10/2010 10:28 PM (GMT -7)   
Thanks for posting this Straydog!! Can you pass on my love and prayers hoping she will feel our love and get getter soon...if possible.

One other things...every hospital has a patient advocate. All you have to do is ask for one to come to your room and they will go to bat for you getting the care and help you need. They're not afraid to talk to nurses and doctors and find out what's going on. I may help having someone on her side.

Hugs,
Chutzi
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 1/11/2010 10:27 AM (GMT -7)   
Hello to All:

First of all, thank you Susie for starting this thread. I appreciate so much the love and support that you guys give so well!

I am still in a tremendous amount of pain, so I'm going to keep this short, but this has been a frustrating experience to say this least. After a lot of begging and pleading, I finally got the hospitalist to raise the dosage of Dilaudid to the amount my PM had recommended should be the dose they start at for me. She would only agree to do it for 4 doses, and then it will be dropped back down to 6mg regardless of how I am feeling.

I am very concerned that something is not right with my fusion, and have been begging for a CT Scan as well, and she refuses to do it. She feels that a CT Scan is not warranted since I did not take a fall or re-injure myself in some way. She has no respect for the fact that I may know my body the best.

She is having a Physiatrist (a doctor of physical therapy) come in today to evaluate whether or not a few days in an in-patient physical therapy rehabilitation program might do me some good. Normally I would be willing to try anything they ask me to do, but I am concerned that if my fusion or any of the hardware is compromised in some capacity that it could do more harm than good, but obviously, no one respects my opinion on the matter.

I will try to keep you updated on how things are going, or at least keep Susie updated and then she can let you all know how I am doing.

Again, thank you so much for your well wishes and prayers - keep them coming, I need them!

Lorie

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 1/11/2010 10:37 AM (GMT -7)   
Lorie,
Talk to this new physiatrist that is coming to see you. You might be surprised , and he/she may be more willing to order that CT scan to check the status of the fusion. Mine was far more helpful when my fusion didn't take than the surgeon, or any other doctor that I had seen. I was right too, the fusion hadn't taken, and two screws were bent and broken and working their way back out of the vertebrae. Don't take no for an answer.
Simply tell the physiatrist that you feel something is wrong with the hardware and that you need the CT scan to rule it in or out, and that way you both know exactly what is causing the problem. You have the right to request the medical testing. If you don't get a satisfactory answer, call for the patient advocate.
Take care hon,
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
Avascular necrosis of left wrist- maybe hips too


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 1/11/2010 11:14 AM (GMT -7)   
Lorie I totally forgot about the Patient Advocate. They can and do work wonders. I used one with my husband once and they got the ball rolling after firing a dr. Please call the main desk there at the hospital and just say you need to speak with a patient advocate. If your hospital has one you will get to speak with them right then & that person will come down to your room. Hugs.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/11/2010 12:23 PM (GMT -7)   
(((((((((Lorie)))))))))))).

Skeye

golitho
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Date Joined Sep 2008
Total Posts : 1670
   Posted 1/11/2010 1:20 PM (GMT -7)   
Why are these doctors so scared of relieving your pain? Or finding its source? How incredibly frustrating for you Laurie.
 
I'm sending you all my healing energies and gentle hugs. I really hope this patient advocate can work some miracles for you. Do all hospitals have one? How much would it cost for the CT scan? Is that why they won't order one, cost saving measures?
 
Makes me feel cross that this doctor won't listen to you.
 
Best, best wishes, I hope the dilaudid works for you, golitho
 
 

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 1/11/2010 8:31 PM (GMT -7)   
Sending you some prayers..
(((((((((((((((((((((((((((((((((((((((Lorie)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 1/11/2010 10:49 PM (GMT -7)   
Hello everyone and thank you again for your hugs, well wishes, prayers, and friendship.

I am completely worn out and drained from spending the day fighting to get the CT Scan done, as well as for a shower. I finally succeeded on both - I got my shower this evening, and will have the CT Scan tomorrow a.m.

The doctor happened to stroll in at about 8pm right as I was coming out of the shower. She started telling me that I looked like a completely different person, and maybe I was ready to go home. I told her to just stick around for 20 minutes and she will see my body return to the constant pain and muscle spasms. about an hour after she left, the right side of my low back down the back of my right leg and up my back to my shoulder blade seized up into spasms so bad that I could not stand up straight, I could not sit down, I could not bear weight on my right leg at all - I stood holding on to the side table and the bars on the bed, balancing on one leg while I screamed in pain.

My nurse helped me get back into bed and made me a warm pad for my back, and gave me my next dose of pain meds a little early. The spasms have eased for now, but I am left with terribly sore muscles in addition to the horrible pain that brought me here in the first place.

I will try to keep you updated. Thanks again!

Lorie

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 1/11/2010 11:34 PM (GMT -7)   
Lorie

I am glad you are having the CT scan I absolutely can't understand why they would not want to do that? You know I had my surgery the 28th of September and in Dec they did exrays and my follow-up in March they are doing a Cat Scan. If you are having pain and spasms that right there should be enough for them to want to find out what is going on. This reminds me of my neurologist that did the EMG on my arm and the MRI on my neck, he told me my pain was coming from my neck but there was nothing that could be done for it! When I told him my pain Doc wanted to do epidurals and have me see a surgeon, he raised cane about it! That was when I told him I thought he was blowing me off and I had it out with him! He was wrong! The surgeon looked at the same test he looked at and said there was a big problem and he could fix it! I will be curious to see what they find with your CT. You know something has to be causing your pain and muscle spasms! If nothing else ask to see the radiologist report, after they do the CT and have a good chance to look it over and Radiology reports its findings! Because your Doctor might not think it is that bad, but another Doctor might not agree with that! What I am trying to say is just don't give up if your Doc doesn't treat you! Because that doesn't mean that you don't have a problem. As the problem might be with the Doctor!
I wish you all the very best Lorie! Good Luck to you tomorrow!

White Beard

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 1/13/2010 4:40 PM (GMT -7)   
 
   Dear Lori,
 
       I am so sorry I havnt responded sooner. I am waaay behind on my reading. I hope you get the CT scan results quickly. I agree it seem loooong over due. Please update when you can. I am sure you must be down right exhausted. Try to rest during those few moments that you can. And gosh, dont bash in the heads of the increadibly rude medical personel. *HUGGS!!*
 
*huggs*
   dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/14/2010 7:55 AM (GMT -7)   
Hi Lorie,

How are you doing today? Did you get the results of you CT scan back yet? I hope you're home & not in too much pain.

hugs,
Skeye

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 1/14/2010 10:07 AM (GMT -7)   
I have heard from Bluejet and she is receiving about the worst care imaginable. Oh there is a patient advocate at the hospital alright and she is as usless as they come. So, no help there. She has a worthless hospitalist overseeing things, the one who said a CT was not warranted, ugh. So, no help there either. There was a showdown with the head nurse and pretty much its all for naught. Their idea of good care is to wean her off the IV Dilaudid and slap a Fentanyl patch on her and have her see her own neuro & PM drs. She says they are wanting to do this to release her in the next few days. So she still has no answers as to why she is in severe pain. My heart goes out to her for all of the needless suffering she has and is going thru.

Sandi FYI she is in the Goshen unit. I do not know if you have had any dealings with them in the past but BlueJet is having a terrible time there. I know the two of you are fairly close to each other there in the town.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 1/14/2010 10:11 AM (GMT -7)   
    Grrrr!.....Grrrrr!  Stray, how about you, me and PaLady take a trip to that Hospital and take a whooping stick with us!.....never mind the stick!.....my hands can do the job! Lets take White Beard with us too....and Privey is a nut cracker!....lets take her as well........look out world the CP Force is comming to get you!

Post Edited (Screaming Eagle) : 1/14/2010 10:15:59 AM (GMT-7)


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/14/2010 12:16 PM (GMT -7)   
(((((((((((Lorie))))))))))))).

Skeye
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