Moderator for Chronic Pain and Epilepsy
Rare neurodegenerative /movement disorder called “Multiple System Atrophy”. Mobility issues,, neuropathic pain, spasticity, myoclonus, central apnea, collagenous colitis, joint and body pain, swallowing and respitory involvement, Implants: intrathecal pump & neurostimulator. Extra features: O2 & wheelchair.
The study was initiated by Graeme E. Correll, B.E., M.B.B.S., and involved reviewing the medical records of 33 patients with CRPS treated by Correll. The patients, some of whom had failed to obtain pain relief from conventional therapies, were treated with low-dose inpatient intravenous infusions of ketamine between 1996 and 2002 in Mackay, Queensland, Australia. Ketamine infusions were started at very low rates and were slowly increased in small increments as tolerated by selected patients. The therapy was then continued as long as the patient tolerated the drug and continued to benefit from it. Treatment cycles generally continued until the patient experienced complete pain relief; until initially-obtained relief would not improve any further; or for no more than 48 hours if there was no improvement in pain severity.
Pain was completely relieved for 25 (76 percent) patients, partially relieved for six (18 percent) patients, and not relieved for two (6 percent) patients. Although the relief obtained did not last indefinitely, 54 percent remained completely pain-free for three months or more and 31 percent for six months or more. For 12 patients who received a second treatment, 58 percent experienced relief for one year or more with 33 percent remaining pain-free for more than three years.
The most frequent side effect reported was a feeling of inebriation. Hallucinations occurred in six patients with less frequent side effects including complaints of light-headedness, dizziness and nausea. Liver enzymes were altered in four patients but resolved after therapy. " end of quote
I will see if I can find any studies that includes patients on in home monitoring. It seems to me that I recall reading other studies about ketamine infusions but don't recall if there was inhome monitoring performed.
What happened the previous night was that my headache was out of control. I was screaming and crying. It was just the worst ever. I just wanted to die.
It's back to its 10/10 now but I feel so sick and weak. My husband says there is no such thing as 15/10 but that headache was 20/10. I'm living it so I know it.
Hope everyone has a lovely day. We must all hang in there! I wish my CP friends lived closer to me!!!