So the trial is....

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Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 1/18/2010 8:11 PM (GMT -7)   
Not on as of yet.  I wish I had better news for everyone, but my SCS trial won't be happening anytime soon.  Looks like after my next psych appt in two weeks, though, I will be ready for it to be placed by my doctor! YAY!  He is ready (that is my Psych doc) to give me the green light on this!  Now....most would think this to be a really good thing, but to me it means heading for many court dates and arguing with some high paid lawyer from Wyoming with ONLY Wyoming Worker's Comp's best interests in mind.
 
I will have Dr. Parks and Rita in my corner, and my psych doc as well, but as far as the other side, I'm sure that they will have dozens of experts to say that the SCS does not work EVER!  I only want a chance...one chance...to see if the SCS is what will bring my pain down at all.  Is that so much to ask for??
 
Huuuuuuuuugsss
 
Scarred
What doesn't kill us only makes us fight back harder! :P
 
Two level fusion on S1- L4 in 2000. One level fusion on L3-L4 in 2003 and revision on L3-L4 6 months later.  This led to a diagnose of failed back syndrome, nerve pain and Chronic Pain. Two bi-lateral patellar realignments on both knees last one in 1988.  Overall...I'm in great health. 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 1/18/2010 8:23 PM (GMT -7)   
You should know that I'll be rooting for you and sending many prayers your way. Good luck and try to keep positive.
Keep posting with plenty of up dates (as I forget)..
((((((((((((((((((((((((((((((((((((((((((((Scarred))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
hugz
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* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

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mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 1/18/2010 8:34 PM (GMT -7)   
Scared,
I will also be rooting for you. I turned the scs down but that was for me. I know that in some patients they do remarkable things in bringing the pain levels under control enough so that some patients get back to life and work, and all of that other good stuff that we miss out on at times.........so I am hoping that Wyoming doesn't decide to give you a hard time with this and let's the trial go through.
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
Avascular necrosis of left wrist- maybe hips too


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 1/18/2010 9:12 PM (GMT -7)   
Best of luck.  Us you doctor aware of any other WC cases in your state where they have covered the cost of an SCS?  I know you are not interested in one, but what about other implants like a pump?  Are they ever covered.
I am sure you doctor will defend your case to the max - I hope it does not take too long.

Stella Marie

Moderator for Chronic Pain and Epilepsy

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, myoclonus, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump & neurostimulator.  Extra features: O2 & wheelchair.

 

 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/18/2010 10:21 PM (GMT -7)   
Scarred,
I'll be in your corner, too! I think you should at least be able to have a TRIAL, and then honestly evaluate if it would be of much help to you. Then you and your doctors would know.

But that would make too much sense, right?

Still, you're making progress, slowly but surely. And the turtle won the race - remember!

Hugs,

PaLady

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 1/18/2010 10:37 PM (GMT -7)   
Common sense nevr seems to go hand in hand with these people, Scarred but I sure hope they let you have a trial too, golitho

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 1/18/2010 10:51 PM (GMT -7)   
Scarred, I will be glad to go to court with you. Hey why not get several of us with a SCS implanted to give them 1st hand information about the use of the unit. I am sure that would make no difference to them as they have an agenda and are blind to anything else. I do hope you get the chance.

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/19/2010 11:11 AM (GMT -7)   
Good luck Scarred, I'm still fighting to get my stimulator. We're about to submit the second insurance appeal. Keep your fingers crossed for me as well!

hugs,
Skeye

privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 1/19/2010 2:21 PM (GMT -7)   
Scarred,
I sure hope things work out the way you want them to. I know nothing about SRS or stimulators but know you must have done the research and studied the outcomes. My thoughts and prayers are with you; Good Luck.....

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 1/19/2010 5:49 PM (GMT -7)   
Hey guys, thanks so much for all your luck and well wishes. I know that WC is convinced that the SCS, as well as the Pain Pump do not work for back pain or siatic pain. This of course is rediculous! They just don't wanna pay for it I think is what it comes down to. There are hundreds of cases that I can use where the patient has had wonderful progress with the SCS, many here on the forum. But WC doesn't like to hear that they are wrong, ya know? Which bites for me, cause when I do get to take them to court (and I WILL) it will be a long battle that will end in me probably getting it but with many restrictions, One being no more medical paid for by them and the other being that they won't want me to be on any more medication at all.

Here when I first started this process a few months ago with my new doctor, he went to bat for me with WC when they were determined that they wanted me to be completely off my medications for the trial and they wanted a rep in the evaluation so that they could ask their own questions. Doc refused this idea, stating many cases where the patient needed medications with even the permenant implant. I was pretty happy with this and actually got what I wanted out of it!

Now the hard part is that I have to complete my Long Term plans for my recovery for the full year following the SCS implant. Hubby gets to sit in on the next appt with my psych and I get to bounce a few ideas off of both of them. Now, here is the thing. If you all knew my husband you would see why this worries me. He is the type of person that doesn't believe in psych docs and thinks that all of this that I am doing is just a bunch of balogna. But he promises to be good ha ha ha.


Hugssssssssssss

Scarred
What doesn't kill us only makes us fight back harder! :P
 
Two level fusion on S1- L4 in 2000. One level fusion on L3-L4 in 2003 and revision on L3-L4 6 months later.  This led to a diagnose of failed back syndrome, nerve pain and Chronic Pain. Two bi-lateral patellar realignments on both knees last one in 1988.  Overall...I'm in great health. 


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/21/2010 3:41 AM (GMT -7)   
Hi Scarred,
I'll be praying for you for a victory in this battle for you too! Just incase, I'll keep my fingers and toes crossed too! It makes you wonder, how much $$$$$$ are they willing to waist to fight someone who is just looking for a little (lot) of pain relief? It just doesn't make any sence to me!

If I were King of the forest, things would be different! Hang in there Lil Sis, you have lots of peeps pulling for you!
Big Hugs,
Pete
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