Woke up in agony....just tired of it all

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nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/20/2010 3:05 PM (GMT -7)   
I woke up with my back just absolutely going nuts on me. Muscle spasms, shooting pains, plus the remnant of some abdominal pain that put me in the hospital last week and I've about had it.

I do have pain meds to take but try to avoid them because they make me sleepy and I'm supposed to be working (working from home today thank goodness!).

What do the rest of you do in this situation?? Just tough it out?

JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 1/20/2010 4:00 PM (GMT -7)   
No, if you have severe pain as you described toughing it out is not going to makew it better or make it go away. You treat the pain, whether its medication or whatever it takes to calm it down. Trying to ignore the pain will only lead to more and more pain it is a viscious cycle. In order to stop pain you must break the pain cycle first.

Hope you get to feeling better.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Linx
Regular Member


Date Joined Nov 2009
Total Posts : 82
   Posted 1/20/2010 4:01 PM (GMT -7)   
Hello,
Woke up this a.m. in bad pain in my lower back and it took ice and a tens unit and pain medication before I had releif and then it didn't last all day. I'm better now and it's almost six at night. Every day I have to push myself through this and the pcp dosen't like to give me pain medication for what ever reason. I cry alot.....there are days I just don't know what to do. I hope you feel better now then you did earleier....best wishes....

hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 1/20/2010 4:36 PM (GMT -7)   
I agree with with straydog. Treat your pain. I tried to go without because I thought that I could just tough it out. Does not work that way. Pain gets away from you and ends up a lot worse. Can I ask what kind of abdominal pain you had that put you in the hospital?
Diagnosed crohns Disease 07,
Bladder Inflammation
Three Herniated disc; stenosis, facet arthritis,degenerative disc , severe siatica
3 laparoscopies, hysterectomy
p.t. and trigger point injections for severe pelvic pain.
Spinal epidurals for herniated discs and siatica
meds: lyrica, vicodine, amrix
 


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/20/2010 5:52 PM (GMT -7)   
Hi JoAnn,

I agree with what everyone has said: it's always better to get ahead of your pain, if you can, than to wait until you can't bear it anymore. Susie explained it really well.

Hope you're feeling better this evening.

hugs,
Skeye

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/21/2010 11:14 PM (GMT -7)   
Thanks so much, everyone, for your replies! I appreciate your input and your good wishes....it helps to get someone else's perspective on things. I have this really bad problem with brain fog anyway, and when I'm in severe pain my brain almost totally shuts down (at least it seems that way!).

I was ONLY thinking about pain pills when I started this post, but when straydog said "whatever it takes to calm it down" suddenly I remembered (DUH!!) that I had other options. And of course the rest of you reminded me of the same things....my TENS unit, hot packs or ice, etc., etc.....WHY is it so hard to think clearly?

I've had a talk with my husband and asked him to help me remember ALL of my options for pain relief when I'm really in trouble with pain....and I should make a list and tape it on the bathroom mirror!

I have fibro and other issues; feels like my IQ has dropped 30 points at least in the past 6 months. sad

I'm feeling a bit better today (used the TENS unit and some heat on my lower back).

Hydrangea, I've been having really severe pain in the right upper quadrant (RUQ) of the abdomen. I have autoimmune hepatitis and my gallbladder was removed in 1992, but it feels just like gallbladder pain; sharp RUQ pain radiating to the right shoulder. I was in the hospital 2 days last week because it became unbearable. They put me on morphine (which barely touched the pain), did multiple blood tests, an ultrasound and a CT scan and found nothing.

The current working theory is that it was "capsulitis"; the capsule is outer skin of the liver, and sometimes it can cause pain if the liver swells and stretches it a bit. I don't know why my liver would be swelling (!?), but they didn't seem to be too worried because my liver enzymes and other markers were OK. rolleyes

Thanks again to all of you for your support and encouragement!
(((hugs)))
JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/22/2010 12:27 AM (GMT -7)   
HI joAnn!!

Glad to hear you are doing a bit better. We take anything we can get. I'm also in agreement on the pain med deal. It takes less medication overall to keep the pain under control than to beat it down when it's out of control.

Another option if you are working and need pain medications. I had the problem of driving to work while taking pain meds 24/7. For a long time I had it times and controlled very well. But over time it was getting harder to be alert while driving. One day when stopped at a traffic light I realized I had fallen asleep for just a second or two and that scared me to death! I had heard about a medication called Provigil so I looked it up and then talked to my doc about it. I've been taking it for long over a year now and it's very helpful and I personally don't have any side effects. You may want to keep that in your bag of 'options' and talk to your doc about it.

I do hope things get better for you!
Chutz
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 1/22/2010 5:17 AM (GMT -7)   
JoAnn, sometimes with the pain meds the effects tend to lessen after you have taken it for awhile. The Darvon is a relatively mild pain narcotic, of course everyone is different, but maybe if you could try taking it on a regular basis like over a 3 day weekend your body could have a chance to get used to it and the sleepiness would subside some. Then save the morphine for after your done working.

Ultram, generic is Tramadol, may be another option for you. It is non-narcotic pain med that helped me alot when I was working in a factory & no doctor would prescribe me narcotics because of my job. Some people do have side effects from it but I never noticed any. This also has an extended release form of it but there is no generic for it and can quite expensive.

Let your doctor know about the sleepiness and maybe between the two of you some other form of medication can be tried.
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


snowflake
Veteran Member


Date Joined Feb 2007
Total Posts : 595
   Posted 1/22/2010 10:17 AM (GMT -7)   
Nasalady i know when i`m in so much pain i just can`t think straight .Yesterday i had seven injections in my spine in a bid to relieve some of it at the moment it`s so bad and i can`t take anymore pain relief for several hours and only being aloud to lie down for the next day or so am finding it vry difficult .I thought have a hot shower and let the hottes water i can stand just run down my back it was good in thought but just about passed outin the shower it was not so good .I`m not at home so my heat packs were the last thing i was thinking of .Writing a list sounds a good idea of your options .i hope you find something that helps .
Snowflake

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/22/2010 10:30 AM (GMT -7)   
Thanks for the suggestions, Chutz and Jag! I have noticed that the Darvon doesn't really do very much for the pain anyway....I don't take anything unless the pain is pretty bad. Darvon mostly just makes me sleepy.

But you're right...I shouldn't wait until the pain is bad! I should anticipate and take something before it gets bad. That's been my problem; I haven't been doing that.

I've heard of Tramadol but thought that it might be a problem because it's metabolized in the liver? But I could ask my doctor....I know my son-in-law has taken Tramadol for his fibromyalgia pain and it did help him.

Chutz I relate to the driving issues (falling asleep), but when I told my doctor about my symptoms (falling asleep at the wheel, vertigo, double vision, blurry vision) she immediately told me I couldn't drive anymore and actually ratted me out to the DMV! So my license has been yanked! :(

My husband drives me to work now.

Thanks again!
(((hugs)))
JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/22/2010 10:33 AM (GMT -7)   
Thanks Snowflake; heat is helpful to me too! I have some of those microwaveable heat packs and I've taken them to work before....that has gotten me through some bad days.

A hot shower or hot bath is also a good idea.

I'm sorry you're in so much pain; I really hope you get some relief soon!
(((hugs)))
JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 1/22/2010 11:18 AM (GMT -7)   
Nasalady, Hope you get some relief soon. Sounds like you have a lot going on. I use the old stand by rice in a sock. Just put white rice in a tube sock and put in microwave. It works great.

I also had abdominal pain that I was hopitalized for a couple of years ago. It turned out to be crohns disease. i am in remission, but still had the pain, after pushing my doctors for more test.... they finally found a tumor in my bladder. So if the pain does not stop, make sure you push your doctors. you know you body better than anyone else. And one something is not right you know better that anyone.
Good Luck!!
Diagnosed crohns Disease 07,
Bladder Inflammation
Three Herniated disc; stenosis, facet arthritis,degenerative disc , severe siatica
3 laparoscopies, hysterectomy
p.t. and trigger point injections for severe pelvic pain.
Spinal epidurals for herniated discs and siatica
meds: lyrica, vicodine, amrix
 


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/22/2010 2:31 PM (GMT -7)   
Hydrangea, thanks for the encouragement! I'm definitely of the school of "listen to your body more than the doctor", so I know what you're saying. Fortunately for me the RUQ pain has been easing up a lot.

I just got back from getting an MRI of my lumbar spine, so we'll see if there's anything there that explains my lower back pain. It's frustrating having all of these tests and then the doctor says "everything is normal and so obviously there's nothing wrong with you". This has been my experience with my new neurologist anyway.

No one has ever been able to explain my lower back pain.

Glad to hear that your Crohn's is in remission! My celiac disease is doing much better on the gluten free diet, and improved even more when I went grain free (or at least, grain light).

Take care,
JoAnn
Lyme Disease, autoimmune hepatitis, Hashimoto's thyroiditis, "lupus-like" CTD?, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel

Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

Darvon and Morphine Sulfate PRN


autoimmunediseasesgfliving.blogspot.com


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 1/23/2010 2:19 PM (GMT -7)   
Be sure to get a copy of the written MRI report. I say this because drs are famous for saying things like "no significant findings", when in fact something has shown up. It may not be a big problem, but the fact of the matter is it could develop into a bigger problem. Its always good to have a copy of your own medical records, never know when you may need them. You can obtain a copy of the MRI films & report from the facility you went to for it. Hope all turns out well.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


kimber9807
Regular Member


Date Joined Jan 2010
Total Posts : 492
   Posted 1/24/2010 5:48 PM (GMT -7)   
I hope yoour pain subsides. I know your pain i suffer from severe pain each day, I use to come here but just recently coming back. Take Care.
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