I havn't been on here for a long time.

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ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 1/23/2010 4:12 PM (GMT -7)   
Hi Everyone,
 I havn't been on here for a long time! I had to go threw fentanly withdraws when my doctor decided not to treat me any more. I had no choice but to go cold turkey, I thought I was going to die! And now I think that might of been the best thing that could of happened? I finialy got a new Doctor, and I am getting Vicoden and I have taken it for so long they don't work!!! I am getting tired of being in pain every minute of everyday.
 So I ask this:.
ACE
 
 
2. No discussion of medical marijuana use.
 

Post Edited By Moderator (Stella Marie) : 1/23/2010 8:09:58 PM (GMT-7)


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 1/24/2010 9:46 AM (GMT -7)   
I apolize for posting a no no. I am just searching for anything that will help me have some kind of life.
Thanks
ACE

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 1/25/2010 8:47 PM (GMT -7)   
Welcome back. Hope you find an answer to your pain issues. It's awful when the meds stop working and I imagine the withdrawls were awful as well.

I hope you will come back and keep posting with us. We always rejoice when a member comes back after being gone for a while, so welcome back---again!!

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/26/2010 12:02 AM (GMT -7)   
Hi Ace...

And I'm glad you're back! Don't worry about the posting. I'm sure you were in need of help but we do need to keep this a family site and keep to the owners rules.

Have you considered or tried a new doctor? I know it can be a bit risky for those with chronic pain because we can be accused of doctor shopping...BUT, there is no way a decent physician would stop you cold turkey when you are taking an opioid medication. That's just not done..it can kill people doing it that way. There is a medication that will help you get through withdrawal without the side effects. It's called suboxone. You might ask your doc to prescribe it for you.

If I were you, thought, I'd be looking for some place that can give you some serious help. My first choice would be a university/teaching hospital. There are lots of them around the country and they are not afraid to treat pain. Many of them are conducting research on pain issues so they are always on the cutting edge of the newest medications and techniques available. In the Chronic Pain 101 'sticky' at the top of the page is a link to a large list of these facilities around the world. Here's the link so you don't have to hunt for it...
en.wikipedia.org/wiki/List_of_university_hospitals

I do hope you stick around and also find some relief. No one should have to go through what you are suffering.

Chutz
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 1/26/2010 8:10 AM (GMT -7)   
Thanks to all for the welcome back. My case is very complicated! I am still fighting with work comp, they have drawn the line ware all I can do is get treated for the pain! All I ever wanted was to have my back fixed so that I could go back to work and have a life! It is a said thing if all you want all day is for night time to come, so that you can go to sleep! The only time I am not hurting is when I can get to sleep!! I am afraid that I am loosing this battle, every day I get weaker and weaker. I do thank all of you for the advice to seak a place that might give me some pain relief. From the Doctor that did my diskOgram, his report stated that he had a good test disc where I didn't know that he had injected, he stated that I have pain in L3,L4,L5, L5 showing leakage and narrowing of the spinal canal.
 My pain has grown from just that area to going up my back and hurting on my left side. I hope that someone can tell me how they test for Fibromyalgia? And how do they treat it?
Any advice will be greatly apprecated
Thanks
ACE

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/26/2010 6:51 PM (GMT 0)   
Ace....

Do NOT give up! It doesn't matter if your insurance company is 'drawing the line'. You don't have to take NO for an answer. There are options you have! First, try the insurance commissioner of your state. In Washington state it's the Washington state office of Insurance Commissioner. Each state has one. The all have a way to file complaints and/or get help. If you don't get any satisfaction there then get in touch with your local representatives. Look up either your state senator or representative and they have a forum to email them. Tell them what your problem is and what sort of help you need. This is the reason these folks are there...to help the people they represent in any way they can. You'd be surprised how fast they will respond...at least they always have for me. On that forum you fill out there will be a box asking if you want the email sent to your other representatives. Do it! You will have the phone ringing and help on the way.

Next you need to get to a university/teaching hospital and they will link you up with a specialist for what you need. Your case is unusual but that doesn't mean that your doc has any right to just give up. He's not living up to his oath nor is he giving you the respect you deserve.

Ace..you can live a good life but you will have to take the first steps to get things rolling. Let these folks help if you want to get your life back. And...keep Chutzie and everyone up to date on how things are going or if you need help...OK?

Hugs,
Chutzie
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 1/26/2010 3:51 PM (GMT -7)   
Chutie,
thank you for the heads up! I am going to have to do something! I got hurt 2003 and worked untill Dec 2007 never missing any work, in July of 2007 is when I killed my back, so I kept working because I had to have a income.
Thanks Again
ACE

kimber9807
Regular Member


Date Joined Jan 2010
Total Posts : 492
   Posted 1/26/2010 4:04 PM (GMT -7)   
I understand what you are going through. I am no longer on pain meds anymore because I lost my insurance. But i never went through withdrawls and I am sorry you did . I had to quit cold turkey also . I hope you find a pain med that helps you.
im dxed with  herniated discs,fibromylagia , scolosis,ddd,athritis, spinal stenosis ,gerd,gastric ulcer,gastroparesis and aslo gallbladder disease aka biliary colic.
 
meds:bentyl,zofran and trazodone.


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 1/27/2010 9:06 AM (GMT -7)   
Kimber9807,
I thank you for your kind words.They tell me fentanly is 8 times stronger than moriphine, I lost a whole year of my life, I don't remember much about the year I was on fentanly. And the main problem was that I was still in pain! I have to find something to help me, I don't think that I can stand another year of this pain! I do what to state, Please don't let anyone you know get on the fentanly system!!
Just looking for some relief.
ACE

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13481
   Posted 1/27/2010 9:55 AM (GMT -7)   
Hi Ace, wow wondered where you went off to. I don't really have alot to add because I think Chutzie has given you the very best advice there is on trying to get something done on your behalf. You asked about Fibro and I can tell you there is no real test to dx it. From what I understand drs look for certain symptoms and if you have these symptoms then thats how a person is dx'd w/Fibro. A lot of drs prescribed Lyrica for Fibro and many get good results from it. The best thing you can do is skip over to the Fibro board here at HW and do some reading of the threads. Those folks have a ton of info on their forum.

From what you described about the discogram it sounds like you have some positive findings. I would get a copy of the written report and get busy on what Chutzie recommended and get me some medical treatment. Was your pain reproduced at certain levels when they injected the disc during the discogram?

Keep us posted on what you have been able to get accomplished. You have come this far don't give up now, you have more fight left than you realize.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 1/27/2010 10:06 AM (GMT -7)   
Ace, have you had an MRI of your lumbar spine done? Sounds like you could use one. I think this would show alot more than the discogram. Is your doctor planning on doing so sort of injections? I thought that a discogram was used as a diagnostic tool to be used before trying an injection.

Hope you find some sort of help soon. Was this doctor a orthopedic specialist or a Pain Management?
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 1/27/2010 1:48 PM (GMT -7)   
Straydog,
When they did the disogram they did 5 disc, 2 of the disc caused me no pain, put 3 killed me, O couldn't tell witch one hurt worst!! I can tell you for fact don't go threw that test if you don't have to!
bsjaquar,
I have had every test possi8ble done, and they claim there is no repair!
Thanks for all the help.
ACE

ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 1/28/2010 9:23 AM (GMT -7)   
Hi Folks,
I was wondering if I got a hold of the ins. commisioner, since I am envoled in a law suite against work comp, they are the ones that have stopped my pay again (a little game they play) would that hurt my case?
I would be deeply great full for any and all advice.
Thanks
ACE

Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 1/28/2010 9:47 AM (GMT -7)   
Hi Ace,
just stopped in to say Hello! I have nothing to add to the others suggestions but just wanted to say >> GOOD LUCK!!!

Your Buddy,

Pete

ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 1/28/2010 10:55 AM (GMT -7)   
Thanks Pete,
I just don't want to make matters worse, This has been going on since 2003, and I worked up until Dec2007. I need to find someone that has a condition like mine that has moved to a warmer climate. When these cold fronts start to come in, I just want to go to sleep and stay that away untill it warms up! I like a lot of folks on here have no life, I spend 80% of my time lying in bed. And I ask myself why our goverment lets work comp ins. companies do the stuff that they have and are doing to me ?????

Thanks for the hello!
Later
ACE

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13481
   Posted 1/28/2010 5:14 PM (GMT -7)   
Ace, did your dr recommend surgery after the disco? I do hope you will take action on what Chutz has suggested, she knows what she is talking about. Most of the orthopods I know will not consider doing disco on people, they claim they are too dangerous, and not all that reliable. Many folks have ended with tears in their discs after having one done and they just don't like them. Alot of PM drs recommend them for their patients and some Do's, but the MD's I know want no part of that test for their patients.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 1/29/2010 8:03 AM (GMT -7)   
Hi Straydog,
The surgeon that ordered the diskogram, suggested tri level surgery but do to him relocating he could not do the surgery! Then i get 3 years of run around. All I ever wanted was to be able to have a life without pain. I have allways loved work, I am not saying that every job has been a good job, but I allways have worked, and now I am lost and live in so much pain I cannot focus on anything. We are at the place in my law suite that the doctor I have now can only can give me pain meds. I will never released the W.C. Ins. co.. The high today is going to be 21 degrees and the low is going to be 8 degrees. This weather just kills me. I know that there are tons of people that have it worst than me by a lot, and i feel for them!!!

I am just trying to get some pain relief.
ACE
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