Please Help! switching from Methadone to Oxycodone IR to Oxycontin starting tomorrow.

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rocket.mcc
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 1/24/2010 1:16 PM (GMT -7)   
I'll try to make this as short as possible. I've suffered from Crohns Disease for over 4 years, went through a surgery with major complications (bowel resection leading to 2 absess'. bowel obstruction and more) Been on pain meds for about 4 years.(Mainly Percocet, Percodan, Tylenol w/Codeine, Buprenorphine & Methadone) Doctors that really care about pain are hard to come by in Toronto, Canada.

Started taking Methadone for pain 4 months ago, since day one it has made me very VERY ill. Major fatigue, sweats, shaking, triggered severe anxiety with constant worries of death. Was then put on Cipralex to counter act the side effects because the doctor refused to prescribe an alternative pain med.

The Cipralex has helped a bit but I've finally found a new family doctor that understands my problems and cares enough to help. My new family doctor and the Methadone doctor have spoke and devised this plan to switch my meds and I'm hoping someone has gone through this before or something very close to it. I'm a very concerned and paranoid person when it comes to these medications that lets face it have dangers.

I've been taking 25mg of Methadone for 4 months, starting Monday I'll be titrating down 5mg daily while taking Oxycodone IR 5mg(immediate release). Eventually once stabilized on the Oxycodone I'll be switched again to the long lasting Oxycontin.

Sunday I'll take 25mg, Monday 20mg, Tuesday 15mg, Wednesday 10mg, Thursday 5mg, Friday 0mg.
While I'm going down in Methadone dose over the week I'm supposed to be taking the Oxycodone to "make up" for the lack of Methadone in my system and pain. So apparently Monday I can take the Oxycodone IR tablets, 1-2 5mg tablets, Tuesday 3-4, Wednesday, 5-7... so on. I'm allowed to take up to 1-2 tablets every 6 hrs to a maximum of 8 tablets which equals 40mg of Oxycodone.

So my concerns are...
-Has anyone gone from Methadone to Oxycodone or Oxycontin?

-What is the proper equivalent of Oxycodone/contin to 25mg Methadone?

-Does what the doctors have planned for me sound like a safe way to do this?

-Has anyone taken Methadone and Oxycodone at the same time?

-Are there any drug interactions between the Cipralex and Oxycodone/contin?

Any Answers/Help in this situation would be greatly appreciated. Hopefully some of you respond today, tomorrow is Monday and this all goes down then.

Thanks a ton.

r.m.

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 1/24/2010 3:51 PM (GMT -7)   
 
 
Wow!  I don't see a problem...You are such a low dose of Methadone that changing over would be a Godsend for you.  I take 120 mg. of Methadone a day along with Oxycodone IR 30 mg. 4 times a day....and when I tried to change to Morphine it was a disaster!!  The Doc didn't titrate it properly so I went through MAJOR WD's....but you won't.  I can almost promise that you will be fine.  So, don't worry about that part.
 
I am going to change to Opana ER next month.  I have been on Methadone for so long that I need to try something else.  My tolerance is soooo high that the Methadone really doesn't help as much.
 
From the symptoms you stated I would think that you weren't taking enough Methadone and were going through Withdrawls....but if you can stop taking it I would.  It is the hardest drug to come off of...so do it now.
 
Tell me how things are going after the change...I'd like to know.
 
Me

I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 


rocket.mcc
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 1/24/2010 4:37 PM (GMT -7)   
Hey, thanks for the reply! Appreciate it a lot.

Yeah I know I'm on a very low dose of Methadone. I was originally taking around 12-15 Percocet a day just to get by but the doctors here are really ignorant and compassion is just a word to them. It got so bad that I had to go to an addictions specialist on my own to try and get off the pain meds. I guess being young and having full sleeve tattoos doesn't help get great treatment. However I decided to do this to prove to everyone that I was not a drug addict and that I had no interest in getting street drugs to get high. I put myself through a full year of living with pain to prove this to the doctors. Finally I decided enough was enough and told the doctor I'm done living in pain and I wanted to go on pain meds again. Of course the only med I was allowed to try was Methadone. I started on 20mg, went up to 30mg, then 40mg, then down and down. I know my symptoms do sound like WDs but I've been through WDs a few times from running out of my Percocet prescriptions and not being able to get ahold of my doctor or specialist. And I once tried to quit cold turkey with prescriptions of benzos and blood pressure meds. 4 days!!!!! I made it 4 days and had to be taken to the emergency.
So I know what it feels like and to be honest the Methadone makes me feel different. If I take more than 25-30mg I feel really messed up... like really high but not in a good way, and the anxiety symptoms come on real strong. And let me tell you.. I went from normally depressed to constant thoughts/worries of dying. Couldn't get the worry that I was a half step away from death out of my head. I still have it but no where near as bad thanks to the Cipralex and I'm raising my dose from 10mg to 20mg tomorrow. For whatever reason Methadone and my body just do not get along. It's not much cheaper than if I were to take 2/20mg Oxycontin a day either, I work Freelance in the Advertising Industry so I have no medical insurance and apparently Oxycontin is way cheaper here in Canada than in the US.. thank goodness.

Anyhow.. thanks again for replying. At least I know that others do take Methadone and Oxycodone at the same time and that I should be perfectly safe.

Good luck with the Opana ER! My new doctor isn't really that knowledgeable about pain meds, the deal is I can switch to Oxycontin but can only get a dose equivalent to the 25mg of Methadone I'm getting now. He won't give me a higher dose, and I am not allowed to have any break through meds. He doesn't even know what break through means. Just said NO SHORT ACTING pain meds once your switched to the Oxycontin.
But at this point... after 4 months of being forced to take Methadone and forced to be sick as a dog every single day I'll take what I can get.

I'll let you know how it goes and thanks again.

fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 1/24/2010 10:29 PM (GMT -7)   
R,M, the statement that you made about not finding very many doctors in Toronto could be said about almost anywhere. There are so many different approaches to dealing with it anytime you change doctors, the approach seems to change. I agree with uniquelyme that the low dose of methadone that you are on will make the transition easier. Our bodies all rerspond differently to medications so what you experience will be different them someone else and that includes changing from one medication to another. That does not remove the fear that we all face as changes take place.  Hang in there and you will find caring and compassionate people here to listen.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 1/24/2010 11:02 PM (GMT -7)   
Hi Rocket and welcome to Healing Well. I am sorry you have to be here but very glad you found us. I think you will find this is the very best forum around. We have a great group of people here that is willing to listen any time. I am so glad Uniquely Me came on and posted her info as she is one of our most knowledgable ones that has experience with Methadone. Methadone can be a very affective pain reliever for some people but that does not mean its for everyone. None of these medications are a one size fits all. I think Methadone should be reserved as a last resort medication. It has the half life that has to monitored closely and trying to get off of it after a long time or high dose is a real problem for a lot of people. There are far too many others medications out there to be tried first.

I am glad you have a dr trying to help you, but it does sound like he is not very experienced with medications at all and that can be a problem for you at some point. It is very hard to find a decent pain mgt dr here in the states because of the stigma attached to CP. Most people here end up with a pain mgt dr because our primary care drs do not want to prescribe pain meds and if they give any it is for a very short time. Believe me we have just as hard as time as you do finding good care.lol.

I understand your situation with the crohns disease all to well. I have had a resection and a couple of fistulas and some of the other lovely things that go along with it. I would not wish this disease even on my worst enemy. What meds do you take to try to keep it at bay? I am on Humira when I am not battling an infection, Imuran, Entocort. I think I am missing another drug. I was on Remicade for a long time until it induced Lupus.

Good luck with your switch on the medication. Also, I don't know how much you looked around Healing Well but, have a very good group of folks on the CD forum. Keep posting and let us hear from you.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


rocket.mcc
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 1/25/2010 8:53 AM (GMT -7)   
Hey ya'll! Thanks for the nice replies, it's cool to see that others don't mind taking a bit of personal time to help another in need.

Fatherjohn, I know exactly what you mean about great treatment being hard to find no matter where you are. I've read many stories during my time researching on the internet about other individuals issues and struggles. And I found out the hard way that some medications are not for everyone, it's too bad my original doctor didn't want to take that seriously and forced me to continue the Methadone treatment for over 4 months.

Straydog, Thanks for the warm welcome and your right.. this forum has been the most helpful out of the few that I've tried. Uniquelyme has been so helpful in making me feel better/safe in this mixing of meds.
As far as my new family doctor.. he is a really nice, easy going and helpful guy. He does know what he's talking about but what I meant is that I don't think he's very experienced in pain management. I don't think he's read many case studies, researched patient treatments. I say this mainly due to the fact that he automatically stated that short acting pain meds would NOT be prescribed while he's giving me long lasting pain meds. Yet 90% of cases I've come across patients are prescribed a dose of Oxycontin mostly twice a day and a sort acting pain med as a "break through" med for in between. And of course his statement that he will NOT raise the dose of the Oxycontin once I'm on it and he will NOT prescribe anything above the equivalent of the 25mg Methadone I'm taking now. I tried to explain to him that the reason I'm taking such a small dose of Methadone is because the side effects are way to much to deal with so I have to deal with a bit of pain in order to function.. and of course everyone knows that over time ones body develops a resistance to the dose one takes for a while... which means eventually the dose will have to be raised.

Anyhow... like I said before, at this point I'll take what I can get as long as I'm allowed to get as far away from that sickening Methadone as possible.
When it comes time to talk more about my meds and what I want/need I'm not afraid to do so. I'm also doing everything I can to get into a Pain Management Clinic at one of the hospitals here.. been waiting to hear back from someone for ummm... 2 months now.

YES, YES! I would NOT wish Crohns on my worst enemy either... well maybe to someone like Osama, or George Bush.. someone really bad that hurts people.. like pedophiles or rapists.. haha.
Believe it or not I've never been on anything other than Prednisone for my Crohns. The area of my intestines that was originally affected was only about 10cm long and my GI decided that instead of trying all kinds of different meds that cutting it out would be best. Well I quickly mentioned in my first post how well that went.. They almost KILLED ME!
Another reason I never tried any medication for my Crohns was because (and this may sound silly/ridiculous but it was important to me) I was the singer of a fairly successful band at the time, we were signed to a well known indie label, had a major label manager and were on our way. I researched meds and found that the side effects were just too scary and could've potentially ruined my career. Hair loss, skin tags... etc. sounds vain I know. But I had responsibilities not only to myself, my career but I had 4 other individuals careers to think of (the guys in the band) not to mention the label, management, a team of people counting on me.
Anyhow. I've since left the band and am taking a long break from my music career so...

Well today is Monday. I took my first dropped dose of Methadone (20mg instead of the usual 25mg) I went to the pharmacy and picked up my increased dose of Cipralex (now 20mg up from 10mg which I take at night before bed cuz it makes me drowsy), and the 30 tabs of Oxycodone IR. I'm hoping that I don't have to take any today and can deal with the 20mg of Methadone.

thanks again all you guys, and I'll try to keep you updated. Your replies, experiences, comments, advice, comforts, politeness is really appreciated. Take care.

Rocket.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/25/2010 3:17 PM (GMT -7)   
Hi, Rocket,
I also wanted to welcome you to the CP forum. As you're hearing, finding good pain management is easier said than done for most of us. I know that firsthand. Do keep in mind, though, that while this is the greatest support group on the internet, IMHO, we're not doctors and can't give medical advice, so you always need to make your own decisions with your doctor.

Methadone is a tricky medication, and a lot of doctors don't know how to use it correctly for pain management. And it does have its own set of complications and side effects, yet it can be an inexpensive and effective alternative for a lot of people. You do want a doctor who knows what he/she is doing with that medication.

I hope you can get into a PM clinic before too long since it does seem your PCP may not be aware of all aspects of PM. On the other hand, you're lucky he/she is prescribing anything. My PCP won't write for any narcotics, and neither will my neurologist. It's crazy. So your PCP may also just be reluctant to take on the long term aspects of PM and is just giving you something to get you through the near future. Hopefully, you'll have another choice soon.

Good luck and again, welcome!

PaLady

rocket.mcc
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 1/25/2010 4:51 PM (GMT -7)   
I just got a letter from a PM program at one of the hospitals here in Toronto. I have to call to make an appointment!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 1/26/2010 12:41 AM (GMT -7)   
Hi Rocket,
 
Sounds like you got some good news with the pain mgt place. It is good that your PCP is going to start out with some help for now to get you going, but a PM dr is what you will need. When a dr looks at you and says " no BT meds and no increase in dosage", then you are dead in the water. When those guys dig their heels in and bury their heads in the sand nothing changes their minds, lol. If you can manage with the Oxycotin till PM will see you that will be great.
 
I did get a laugh out of your vainess over the medications for crohns but also wondered just how much you have educated yourself about this disease.  But at the same time I am not sure if you understand your surgery was not a cure. There is no cure for crohns. Not only that even though you had surgery, the crohns is still there silently doing its dirty work and eventually things can get very bad. I had surgery you know and no remission in 7 years. I don't know if I will ever go into remission, I have given up on that. One thing I do know is a person should always be on a maintenance medication for it. And, not everyone has those side effects either from the various medications available now. The side effects from Prednisone are far worse than any I know of. People have a love hate relationship when they are on Prednisone, it can be a real evil drug. The steroids should only be used for a very short time. You truly need to do some research about the various meds available for crohns and get on something for maintenance.  If one person has a reaction to a certain medication then they are required by law to list that as a potential side effect. However, that is not saying that will happen to you either.
 
Hang in there and let us know how you are doing.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


rocket.mcc
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 1/26/2010 8:22 AM (GMT -7)   
Hey Straydog, Thanks for your reply.

Yeah, I actually just got the letter in the mail last night out of the blue. I went to see a psychiatrist a couple times after having to go to the emergency for an anxiety attack that made me feel like I was going crazy (one of the side effects of the Methadone). The ER doctor didn't feel he could do anything but send me to a psychiatrist and so I went. She was great and really tried to help me. She put me on Cipralex and instead of just masking the side effects of the Methadone I asked her to make a referral to a Pain Management Clinic... and she did. I didn't hear anything back from anyone about so I almost gave up. But thank God I got accepted and have to make my first appointment.

It does make one chuckle how afraid I was/am about the Crohns meds and loosing my hair, skin tags, etc but you have to realize that at the time my looks was a very important part of my career. It's not like I was in a garage band playing bars, I was the lead singer of a band that was on it's way up the industry ladder very quickly. We had a lot invested, people working for us, touring, doing photo shoots, etc. And unfortunately what a person looks like is a bigger part of success in the music industry than should be... a sad but true fact of life in music.

I have spend countless hours reading and researching my disease.. before the music thing turned into a career I did spend 3 years in college so I'm not dull if you know what I mean.
I'm fully aware that the surgery wasn't a "cure" and that anything could've happened afterward. I could've gone into remission for 30years, 3years, or 3months. And I know about Prednisone, I've heard horror stories but for myself.. I didn't find it effected me negatively at all, though I understand it was only a matter of time.
As far as my surgery.. I hate talking about it cuz it forces me to remember what I went through, and I honestly can't explain all the horrible details. If I actually could most people wouldn't believe me anyway.. that's how messed up it was. Let's put it this way, that 2.25 months spent in the hospital left me physically, mentally and emotionally scarred for life.

From being pushed into the surgery by my GI and the head of surgery at the hospital, being in so much pain that I pushed the Morphine button to the maximum and almost overdosed to the pain specialist interrogating about what "street drugs" I did while I was so sick I could barely speak. The night nurse sending 2 huge security guards to escort my girlfriend (who is 5'1, 110pounds) out of the hospital at 3am downtown Toronto (talk about dangerous!) forcing me to be all alone after the head nurse said she could stay with me.
Being left alone with no one answering the emergency button for over an hour forcing me to drag myself to the washroom to try and get something out and be sick.
No nurses, doctors would listen to me when I told them something was really wrong with me.. until a few days later I spiked a fever and couldn't stay awake, kept passing out. They finally decided to do an emergency CT scan and found 2 major absess in my abdomin caused by a hole in the bowel at the resection site(someone didn't know how to sew properly!). Drainage tube time!
Weeks later was sent home even though I told them something was still wrong (no one listened again), I was back in the ER in 3 days when I woke out of a dead sleep and projectile vomited over and over. Another emergency CT scan found from the resection site all the way down my bowels were collapsed and obstructed. Shove the drainage tube further in!
The hospital then made the most neglectful mistake yet when they put an elderly man with dimensia, whom didn't speak or understand english in my room. He and I were the only people in the room at the time. I found out a day later that he was originally in isolation due to the possibility of Tuberculosis, then moved to my room before the test results were concluded. Of course instead of waiting he was moved to my room while I was recovering, and yes he was positive for TB.
I called the section of the hospital that is supposed to deal with patient rights and help patients in need, to my surprise they conspired against me immediately and concocted a story that made it nearly impossible to do anything about the situation and or sue the hospital.

Anyhow.. that is not even all of the events or things I went through during my 2.25 month stay in the hell hole they call St. Michael's Hospital in Toronto, Ontario Canada!
So I tried to ignore my disease for as long as I could.

Yesterday was the first day I dropped my Methadone dose by 5mg (from 25mg to 20mg).
So it's Tuesday today and I took 15mg of Methadone this morning, I really felt the lack of opiates in my system about 10 minutes after I woke up and jumped in the shower. I decided NOT to take any of the Oxycodone last night cuz I was scared! I felt okay yesterday until about 7pm but didn't want to take an Oxycodone and something happen that late at night, and my girlfriend was at work til 10pm so I was alone.
I assume I'm gonna have to take a couple Oxycodone tonight cuz it's 10:30 and I feel really lagged out and tired.

Should I really be afraid to take one 5mg Oxycodone tonight when I only took 15mg of Methadone this morning? The only thing that worries me is the fact that Methadone stays in the system so long so realistically my system has approx. 25mg or more Methadone in my system that is slowly draining out with the dropping of dose even though I can't feel the effects.

My doctors seem to think it's perfectly safe but then again they have never taken these meds themselves...
So come on my experienced pals.. make me feel safe about this or I'm gonna make myself suffer.


Thanks again everyone!!! So appreciated.


-rocket.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/26/2010 5:06 PM (GMT -7)   
Rocket,
WOW. You sure have been through the ringer, to say the least. No wonder you feel scarred; you were traumatized. I hope you still see that helpful psychiatrist to help you process all that's happened to you.

As far as the meds, you know we're not doctors so anything anyone says here is just opinion based on their own experience. I think ultimately if your doctors think it's ok, then you have to make the decision by tuning into your own inner wisdom and see if this feels right to you. Personally, I don't think the 5mg of oxycodone will be dangerous, but that is simply my gut feeling and nothing else. If you're concerned, you may want to make sure you're not alone when you're taking it.

I'm glad you found us and started posting!

PaLady

rocket.mcc
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 1/26/2010 6:07 PM (GMT -7)   
Thanks PAlady,

Well it's 8pm and I just swallowed my first 5mg OxyIR tablet. I took 15mg of Methadone this morning and can't believe I made it this long with that small amount and to be honest I probably could've gone the rest of the night without an OxyIR but I bet my morning would've been awful. It wasn't great this morning when I took 20mg yesterday morning.
The main reason I took the OxyIR now was because I was feeling kind of tired and crappy, and also because my doctors wanted me to start taking them yesterday.
Hope all goes well.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 1/27/2010 5:23 AM (GMT -7)   
Rocketman I hope your doses are working for you. I understand your fear after what you have been thru. But on the same note I would hate to see anyone suffer needlessly, because most CP patients end up that way a lot, and not by choice.
 
Your surgeries sound incredible. I know that pain, a complete blockage and abscess is what set me up for an emergency resection.  That is a pain like none other and I laid in a bed out of my mind in pain praying to die. I too had draines coming out of everyplace. I always gate the NG tube. Although, my first surgery that day was not the resection. They thought it was my appendix so they took out my appendix first only to find them fine. We were on vacation in Mexico when this happened.
 
Before some of the new medications hit for crohns the people ended up steroid dependant. Many of them ended having their bones and joints destroyed because of the steroids and had to have joint replacements done because of this. We have a member right now that is in big trouble with that problem from being on steroids  for several months.
 
I hear you on the career business, you have been very fortunate not to be plagued apparently with problems from the crohns. I will never go off the meds because I don't want to run the risk of getting  back in the shape I was in 7 years ago. I am too old for kind of stuff. Its bad enough just having to go in the hospital with flare ups out of control.
 
I hope all goes well with the PM appt. Is it scheduled yet? Good luck.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


rocket.mcc
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 1/27/2010 9:05 AM (GMT -7)   
Hey everyone!

Well I didn't die! haha. On the contrary.. I felt pretty good for the first hour after taking the OxyIR after that I started getting really tired and a bit of a headache coming on. To be fair I always have gotten really tired (like so exhausted I can't stay awake) around 10pm ever since taking the Methadone. It may also have something to do with the fact that I get really tired at work at around 11 everyday and have to drink like 3 coffee just to function. So it may be caffeine crash?
I'm not sure if it's just me or what but I seem to remember from a while ago that I did take some OxyIR for about 4 days one time when I ran out of my Percocet prescription. (A close friend had them and I was in dire need.) And I remember never feeling anything but good on the Percocet but always got a headache taking the OxyIR. Does anyone have a comment for that?

Yeah Straydog, when I first went to the emergency for an unknown pain that I never imagined was humanly possible they automatically assumed it was appendicitis and almost rushed me into surgery to have it removed but one doctor said NO! do some tests first. And of course my appendix was fine. thanks doc!

Like I said before, I took Prednisone for probably a year and a half straight and never had any negative effects. Odd, but great.

NOW FOR THE UPDATE:
Today is Wednesday and I woke up pretty messed up. I got up at 7:30, went out for a cigarette and had to immediately go to the washroom(which I assumed was gonna be a mad case of the "runs" as my mother would call it. haha.) But to my surprise it wasn't.. just a normal painful excretion.
I was shaky and felt just run over so I got to the fridge, took my dose of 10mg (down from 15mg yesterday) and had to go back to bed. Work probably wasn't too happy but what can ya do?
My lovely girlfriend woke my up at 9:30ish and I felt much better! Took a shower, walked to the subway station, got on the train, transferred to the next train, got off, grabbed a coffee and walked to the office. Got here at 10:40ish and here I am. Feeling okay, wondering when I'm going to feel the need to take an OxyIR. I know I could probably go a while without one but like I said yesterday, as far as my doctors are concerned I should be taking about 4-5 of them today. Which would be a good idea just to get my body used to the change but of course I'm leery of having too much of both drug in my system at the same time.

So there it is. Have a good day everyone.
ttys.

-rocket.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 1/27/2010 9:38 AM (GMT -7)   
Rocket, with all of this uncertainy that you have going on over the medication changes, why not call your phamacist and ask some questions about the differences of the medications and discuss the dosing your dr has recommended. I would trust my pharmacist more so than my dr since this is his specialty. By doing this you could probably save yourself a lot of grief here. Bouncing back & forth over should I or shouldn't take the medication is not helping your pain level at all. Our pain levels are much better when there is consistencey in the amount of medication in our systems at all times.

At least by talking to the pharmacist you can get the correct info you need on the dosing. Pain is something we always have to keep ahead of, otherwise too much time is spent chasing the pain trying to bring the pain level down.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


rocket.mcc
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 1/27/2010 11:22 AM (GMT -7)   
Well, I did talk to a pharmacist and actually more than one... for some reason they don't like to talk about these medications without an ignorant tone and ugly face. The info I got from them basically boiled down to the "well your doctor should know and have told you" answer, or the frank "yes, they should be fine" answer.
It sure is fascinating how fast ones demeanor can change with one single word, "Opiate".

I'm sure I'll be fine with the switch.. my mornings are gonna be ruff for a while cuz I'm running low on the Methadone in my system and I don't feel like waking up in the middle of the night to pop an OxyIR (unless I absolutely have to). I can't help the consistency issue at this point though.. I'm dropping the Methadone dose by 5mg day which from what I've researched is very fast and not easy on the system, and the same time I'm slowly uping the amount of OxyIR tablets I take in a day... I'm just going slower with the OxyIR than the doctors thought I would need because I'm afraid of mixing meds. I hate dealing with pain and WDs but I think I would hate dying even more. haha. I have too much to live for to even take chances.

But with the doctors, meds, all your support and playing it safe I'm sure I'll be just fine.

-Rocket.

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/27/2010 1:53 PM (GMT -7)   
Rocket,
One thing I think that creeps into the mix for all of us is anxiety, and that intensifies pretty much everything, plus affects our thought process.

What's the worst that can happen if you go slowly, like you are? You could end up hurting more, and with more withdrawal symptoms for a short period of time. Not forever. And you'll learn maybe just how much of the OxyIR you do need to best manage your pain. It seems you're ok with experiencing a few extra things, so why not relax about it a bit. Make a decision that you're going to experience some discomfort, it won't last forever, and if the pain gets too bad you'll know you need to readjust. Then try to go about your day as normally as possible - although that may mean with some adjustments for awhile.

On a side note, I hope you don't ever take meds from a friend or anyone again, as that's something that can be dangerous as well as get you into huge trouble with your PM doctor - and perhaps lead to not being able to find a PM doc who will treat you. If the percocet helped more, you may want to speak with your doctor about that. And if your meds aren't covering your pain, you need to discuss that with your doctor and not just take extra so you run out. It seems like you may have a bit of a tendency to manage your own meds, like even now by not taking them as your doctor has suggested. Be careful about that tendency. Hope you can understand I'm trying to be helpful here.

Take care,

PaLady

rocket.mcc
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 1/28/2010 2:08 PM (GMT -7)   
Hello,

I don't know where to start this today. As far as my medication is concerned everything is going alright. But yesterday my sister was rushed to the hospital to have emergency c-section for her 2nd baby. At 11:30 she had a baby girl who is seemingly healthy, but at 3:15 she was rushed back into surgery for internal bleeding. They gave her a hysterectomy due to a ruptured uterus. She is currently still in the ICU and under. They aren't sure why this happened, happening, but she's had diabetes since a young age and had issues with her first pregnancy. She's on a ventilator, had all her blood transfused. Her blood sugars are high and blood pressure very low and for whatever reason the blood in her body won't clot so she's receiving plasma. I had a doctors appointment this morning and she said something about DCI.. and that basically this is about as serious as it gets. I am 7 hours south by car from my family and my sister and have no means or money of going there. My mother is with her while taking care of her first child who is only 2 yrs old. Her husband is far in the bush and can't get a helicopter out until Friday.

I am going out of my mind and don't know what to do. I am completely helpless.

I'm waiting for more news at this point trying to do anything possible to keep my thoughts from becoming negative. I can't believe this is possible.. this is Canada, 2010.. people don't come this close to death in child birth.

-r

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 1/28/2010 5:03 PM (GMT -7)   
Rocket,
 
I am so very sorry to read what is going on with your sister. I understand the fear you are having, I had a horrible incident with my only brother from an auto accident 5 yrs ago and we were told he would not live, he did.  At least its good to know your Mom is there helpjng at least she is not alone. I will tell you that prayer in numbers is very powerful. I will include her in my prayers and you can bet many others will do the same on here. I do not know if you are a spiritual person or not, but if you are say alot of prayers, they really help. My brother made tremendous strides when members of his church went to his room and prayed, he is a miracle to say the least.
 
I will say this just once, try to calm yourself as much as possible, ok. It will serve no purposefor you to get down in bed or end up in a hospital in out of control pain. You must take care of yourself, who knows you may end up being needed for help later on down the line.
 
Take care and keep us posted.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/28/2010 5:27 PM (GMT -7)   
Rocket,
I'm also very sorry to hear about your sister. Straydog's advice is right on point, although I know it's easier said than done. It's probably not time to try to not take the OxyIR, and just follow your doctor's instructions so your pain doesn't get too bad.

Do you have any friends or even someone from a local Church or social agency that might be able to drive you there?

In the meantime, take comfort in the fact your sister seems to be getting the best care. Things can happen, especially with diabetes, but at least she was in the right place when it did - to get immediate treatment.

We will all keep you in our thoughts.

PaLady

rocket.mcc
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 1/28/2010 6:29 PM (GMT -7)   
Thank you all so much, it means a lot to even have strangers praying and being positive right now. I can say that I am spiritual.. more faithful than anything. I am not overly religious. My family is Catholic by nationality but never stuck too close with the church. Most of my family are close to pure Irish descendence and the old saying "the luck of the Irish" is really a huge sarcastic joke which most don't realize.
Anyhow.. I had an appointment with a new doctor that is taking over for my family doctor while he's away. She told me to take the OxyIR in a different manner this time round. 1 every 3 hours so that I'm not hitting peaks and valleys. Which I can see as sensible and I've been doing that since I left the office.
Tomorrow will officially be my first day without Methadone in almost 5 months and I can tell you that I'm glad to be free of that devil juice. Don't get me wrong.. I know it's a god send for some, but for me i felt like the devil tainted my every dose.
I've been feeling very edgy all day, that sketchy WDs, restless legs feeling mixed with discomfort and a bit of pain. But I think I'll be okay, I just really want my sister to make it out of this alive and well. I can't imagine what I'll do if anything happens... I'll more than likely just lose it for good.

I still haven't heard any news so at this point I just keep thinking that no news is good news.. and I'm praying, begging, pleading, threatening, bartering, sending any msg to God I can and hoping with everything I have that he's real, that he hears me and that he's listening.

until next time..

-r

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 1/28/2010 8:09 PM (GMT -7)   
Dear Rocket
I have been reading all the posts and my heart goes out to you. I pray you will get to feeling better on your new meds.
I will also pray for your sister. Please keep us up to date on any news.
Myself I suffer from constant horrible headaches and no one has been able to help me. It's been ten years since this all started. No pain med has helped me.
I also wanted to tell you I am in Ottawa and would enjoy sharing emails with you. Can you send me your email.
Take care and thanks for sharing your story.
Have a good night.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 1/29/2010 11:00 AM (GMT -7)   
Good to hear the dr has given some new instructions on the meds. In short time you will be past the w/d type of symptoms, just hang in there. Stick to the doing schedule and tyouy will have a consistent amt of meds in your system and that will help tremendously, the peaks & valleys routine are just murderous on the body.

Let us know when you get some news on your sis. Also, I don't know who you can talk to at home (sisters home) but if her husband would tell the nurses at the hospital to release info to you via telephone, you could call & get updates on her and not have to wait for someone to call you. Perhaps your mom could realy this info to the husband for you. Just a thought.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 1/29/2010 11:06 AM (GMT -7)   
Any news Rocket (what is your real name)?
I hope you are doing OK.
Thinking of you.

Suzane

rocket.mcc
New Member


Date Joined Jan 2010
Total Posts : 15
   Posted 1/29/2010 1:25 PM (GMT -7)   
Hey everyone. Last I heard my sister is doing a little better, she's still in the ICU but is of the ventilator and was awake. She's still not out of the woods and anything could happen at this point but at least she's awake and got to see/name the new baby. That's the last I've heard.

As for myself, I'm not doing very well. Today is my first day without a drop of Methadone and let me tell ya! I'm not doing well. i woke up very sore and in pretty bad WDs. Took an OxyIr at 7:30am (Now I know some of you are gonna say something about this but what can I really do?) I had to take another at 9:30 cuz I got to work and couldn't function. Another at 12:30 and had to take another at 2:30..again I couldn't wait the full 3 hours. And I'm still sore and Withdrawing. It's crazy.. The Methadone totally raised my tolerance to this medication.. a lot. I'm sore, painful, I have WD symptoms, restless legs, and let's not get into the battles in the washroom. I'm gonna try and call the doctor after work just to let her know that it isn't working as planned and make sure she knows I'm taking more medication than planned. I'm not trying to pull any punches with anyone.. but If I can't function on 1 every 3 hours I can't just shiver, shake, moan and groan and crap myself at work right?

Even right this second I feel like crap run over twice and I've had 20mg OxyIR since 7:30am which is from what my doctor thinks is relative to just less than half of the 25mg of Methadone I was taking before.
At this point I don't know what to do.. I don't know how safe it is to take a crap ton of OxyIRs through out the day.. but if my body is saying there's not enough, that probably means I can afford to take more/need to take more right?

Anyhowss. I'm in pretty ruff shape so can't write more. ttys.

-r
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