this is emily . I have n't been here in awhile.

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kimber9807
Regular Member


Date Joined Jan 2010
Total Posts : 492
   Posted 1/24/2010 5:35 PM (GMT -7)   
Hi Everyone, I dont know if you remeber me or not. I use to go by the name of emily but could nt remember my password . so Im using this name now. How is everyone doing?  I am taking day to day . I am no longer on pain meds because i can no longer afford them without insurance. its not because my back pain is gone . I still suffer daily with pain. I am using tylenol and ibuprofren with no help. I am looking to find a new insurance because I need surgery on my gallbladder so hopefully i can get back on them in 2 weeks. I hope  I see familiar names as I go on. I am sorry i have been gone so long  we moved in may and been having finacial difficulties thats why I havent been on. I have applied for disability  and jumped through all their hoops . I am hoping to hear from disabilty soon. I hope everyone is well I will try to be on more often. I havent had no pain meds since may  but i take it day to day. I hope to hear from some of you I knew  from 8 months ago.

mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 1/24/2010 6:05 PM (GMT -7)   
Welcome back. I'm sorry to read that you have had problems with getting insurance and your pain medications. Have you tried using ice and heat alternating to help with the pain levels? A heating pad or sock filled with rice heated in the microwave for 2 minutes really goes a long way in easing some of the pain.
Anyway, I hope that you hear from disability soon and then get your insurance back. What happened with your gallbladder?
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
Avascular necrosis of left wrist- maybe hips too


kimber9807
Regular Member


Date Joined Jan 2010
Total Posts : 492
   Posted 1/24/2010 6:19 PM (GMT -7)   
Thank you for the welcome back. my dr  think my gallbladder isnt  functioning and i have fatty deposits (sludge) I was officaly dxed with biliary colic . I am suppose to have a hida scan done in two weeks hopefully I have insurance by then im going to the surgeons . for the last month I have been experiencing severe pain in my right upper abdomen with naseau and vomiting if I eat fatty,spicy and fried foods. I can only drink liquids and a soft food diet. I cant eat solid foods without getting sick and in severe pain from it.


im dxed with  herniated discs,fibromylagia , scolosis,ddd,athritis, spinal stenosis ,gerd,gastric ulcer,gastroparesis and aslo gallbladder disease aka biliary colic.
 
meds:bentyl,zofran and trazodone.


fatherjohn
Veteran Member


Date Joined Feb 2009
Total Posts : 999
   Posted 1/24/2010 10:20 PM (GMT -7)   
Emily, welcome back although not with all the circumstances. The insurance issue is a never ending issue for many of us as without some sort of insurance our medical options are limited. I hope you get the insurance that you are seeking. If not, I know that some hospitals do write some costs off for those without financial abilities but I believe those funds are not as available as they used to be. Whatever health reform we end up with certainly will not be here in time for you. Hopefully as you have surgery, you can also find a little relief  even if it is temporary. We are still here supporting each other. Keep us updated. Blessings!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13477
   Posted 1/24/2010 10:36 PM (GMT -7)   


Hi Kimber and welcome back to HW. I am sorry that you had to leave us for awhile. Finances is something I think everyone is going through right now. Its really tough out there.

I do hope you are able to get insurance soon. Please keep in mind just about all insurance companies have clauses for pre-existing conditions. Many put time limits on when they will start paying for treatment for a pre-existing condition. I have seen some be 3 months on up to some conditions completely banned from a policy. So, do your homework and check this out.

I hate to hear that you have been without medication. Have you ever contacted the drug company directly for assistance? So many companies now a days offer many different assistance programs for their medications. I have one medication that the copay is $70 with a script card and the drug company picks up the $70 copay for me, so please check into this. I just got a discount card to activate for my Lialda which is for ulcerative colitis and they will either pay all of my copay or most of it. If you will go into CP 101 Chutz has a list of different programs that offer meds from free to small copays, please check that out. I do not know how you have managed on Tylenol & Ibuprophen. But I know, sometimes we gotta do what we gotta do.

I had my gallbladder out back in 2003. I also had a HIDA Scan and they found on it my gallbladder was inflammed and not functioning correctly. My surgery was done laproscopic and much easier than a full blown incision. Regardless, its still surgery and your recuperative time is the same. My dr refused to allow me to return to work for 6 weeks. I did office work nothing involving heavy lifting and he still would not let me go back.

Anyway I wanterd to say welcome back and I hope you will keep posting. As you can see our forum has really grown with members since you were last here. Take care.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 1/25/2010 2:42 AM (GMT -7)   
Hi, Emily,
WB but sorry to hear all you're struggling with - although many of the issues are familiar to me. Straydog is right; go to the links in the CP101 post at the top of the page for help with medications. I have no Rx insurance, and a minimal health insurance plan because I'm low income. I have used the websites in that CP101 thread and am getting most of my meds at no cost from the pharmaceutical companies. I also managed to get 200 percocet for $24 at Walmart using a discount card from www.yourrxcard.com. Of course it's the generic, but the cost at CVS and Rite Aid was over $100. Thing is you do have to get a doctor to write you a script. Maybe you can find a PCP at a hospital clinic who would be wiling to do that.

I also had my gallbladder removed when I was 19, but that was back when the large incisions were done. I remember the attacks, though, and they were quite painful. Stick to a bland diet for now so if you have to have surgery the gallbladder is less inflamed, although your doc should be telling you this. If you know certain foods cause you pain, makes sense to just stay away from them for now. It should be fixable over time, unlike many of our CP issues.

Glad you're back. Please take advantage of all the resources you can to help you through this tough period. Just know you're not alone!

Hugs,

PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 1/25/2010 8:26 AM (GMT -7)   
Hi Emily,

I don't think we've met before, but I just wanted to give you a shout out & welcome you back to HW. Glad you came back to us, although I'm sorry about the reason.

Skeye

kimber9807
Regular Member


Date Joined Jan 2010
Total Posts : 492
   Posted 1/25/2010 8:30 AM (GMT -7)   
I want to thank you for all for your replies.
im dxed with  herniated discs,fibromylagia , scolosis,ddd,athritis, spinal stenosis ,gerd,gastric ulcer,gastroparesis and aslo gallbladder disease aka biliary colic.
 
meds:bentyl,zofran and trazodone.


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 1/25/2010 8:32 AM (GMT -7)   
just wanted to say hi. My name is melissa, and I am relatively new to the chronic pain forum.


hope you have a pain free day

melissa
Chronic Lyme Disease
Fibromyalgia

Chronic fatigue syndrome

Polycystic Ovarian Syndrome

Sleep Apnea

Hypothyroidism

Adrenal Fatigue

Type 2 Diabetes


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 1/25/2010 9:40 AM (GMT -7)   
 
  Dear Kim (or emily?)
 
     Welcome back. I do not recall either name, but my memory isnt the best. Reguardless! Welcome back and I do look forward to getting to know you better as time goes by.
 
*huggs*
  dani


 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/26/2010 11:54 AM (GMT -7)   
Hey Kimber!!

Wonderful to have you back with the family. It doesn't matter how long someone's been gone because once you are part of this family we always take you in.

I sure hope you get some good insurance going again and resolve some of the problems. We're always here for you...remember??? ;-)

Hugs,
Chutzie
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

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